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Heroes

A love letter to the parents struggling to give their kids the childhood they didn't have

A love letter to the parents struggling to give their kids the childhood they didn't have
Photo by Andrew Seaman on Unsplash

There are superheroes among us.

Disguised as ordinary moms and dads, members of this league of extraordinary parents change diapers, pack lunches, and tuck kids in at night just like the rest of us. But behind the scenes, they battle forces of darkness none of us can see.


My dad was one of these superheroes. I don't remember when I first took note of the cape tucked neatly under his sweater vest, but by the time I left home, I had some idea of how much time and energy he spent fighting the villains in his head.

Growing up, I heard stories and parts of stories. A grandfather beating his wife before chasing his sons down an alley with his police pistol. A mother plagued by alcoholism and anger. Six siblings from six different fathers. A precious violin smashed to pieces in a drunken rage. Bit by bit, the picture of my father's upbringing was painted in blacks and blues. He didn't tell us everything—just enough to give us a sense of where he came from.

Superheroes must keep some secrets, after all.

Now that I have three kids of my own and a keen understanding of how difficult parenting can be under the best of circumstances, I recognize my dad for the cycle-breaking hero that he was. I'm well aware that the hell he lived through as a kid, simply by being born into a wounded family, could easily have been my own fate. The cycles of addiction and abuse, the inheritance of personal and parental tools in need of serious repair, the passing down of bitterness and rage like family heirlooms—I've witnessed these phenomena in other families over the years.

It's the easiest thing, for mortals to be human.

But at some point, my dad stepped into a phone booth and vowed to be more than the sum of his upbringing. He took on the monsters that followed him and declared war on the dysfunctional demons he carried. He chose to give his children the childhood he didn't have.

And for the most part, he succeeded. I remember fun family vacations, laughter around the dinner table, prayers and hugs at bedtime. I can still see my dad giggling to the point of tears when my brother announced his pet rock pooped on the floor. I can smell his famous hash browns cooking with Stevie Wonder blaring on the record player Sunday mornings. I can hear his voice filling the room at choir concerts, plays, awards ceremonies, and graduations—“THAT'S MY DAUGHTER!" He was always proud of me. I always knew I was loved, deeply and sincerely.

But there were battle scars he couldn't hide. I remember watching him leave in the evening to attend ACOA (Adult Children of Alcoholics) meetings and wondering what went on there. I recall pleasant but wary visits with uncles and grandparents and a dim awareness of extended family member drama. I still feel the grief of my dad's beloved younger brother's suicide when I was ten—too young to understand that my sweet, funny uncle had been fighting the same war as my dad, but had lost.

And I did witness occasional losing battles—jaws clenched, eyes flashing as the demons surfaced, changing the weight of the air in the room. I remember moments when my mother (a superhero in her own right) calmly tamed those monsters. I remember staring them down myself once, begging my father to fight harder before he silently carried the beasts off to battle alone. He always apologized for battles lost.

But I remember many more battles won. Struggle and strength manifested in deep breaths and strained brows. There was a speed and energy to his movements when he took on the rage monster. I instinctively knew to step lightly, to give him space to build his fortresses and strategize without distraction. In time, I discovered some of his weapons—faith, prayer, books, routine, decompression time, classic rock albums—and saw how much easier the fight was if he kept them well-maintained and at the ready.

I know it wasn't easy. I'm sure he feels he failed us in some ways.

My dad wasn't perfect, it's true. But neither is any parent—or superhero, for that matter. All have their kryptonite. But the fact that he kept returning to that phone booth defines his fatherhood for me. I admire my dad for many reasons, but none so much as his courage and fortitude on his internal battlefield.

I've met others like him in my adult life, and they all amaze me. It takes superhuman strength and stamina to fight the good fight every day, to drown out the dysfunctional dialogue in your head, to overcome anger and abuse. Cycle-breaking parents face a megalopolis of tall buildings, and those single bounds have got to be exhausting.

So if you are a parent from a wounded background striving to raise your kids differently, if you are silently waging your own battles the rest of the world can't see, I want you to know that you are awesome. Parenting is damn hard, even with good psycho-emotional tools, so naturally it may feel impossible sometimes. But you've got this. Keep choosing that phone booth. Don't give up.

When you feel weary, remember this: The rewards for your efforts are vast and far-reaching.

You are protecting your own family, yes, but your feats also positively impact society at large. Raising kids with minimal damage is a gift to the world. Seriously. How many great thinkers and potential trailblazers have been held back by the scars of their upbringing? How much of the pain people inflict on one another is a byproduct of generations of abuse or neglect?

So wear that cape proudly, cycle breakers. Don't be afraid to give your kids clues to your “secret" identity. You don't have to tell them everything, but offer them a sense of what you go through in order to shield them from the darkness. I am so grateful to my dad for tackling those demons for me. Your kids will thank you, too.

This post originally appeared on Motherhood and More. You can read it here.

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Three women, three MS journeys: How multiple sclerosis looks different for everyone

Gina, Nathalie and Helga share their reactions to being diagnosed with MS and how they stay informed and positive in the face of ever-changing symptoms.

Courtesy of Sanofi

Helga, Nathalie and Gina all have MS, and their experiences show how differently the disease can manifest.

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It’s been 155 years since neurologist Jean-Martin Charcot gave the first lecture on a mysterious progressive illness he called “multiple sclerosis.” Since then, we’ve learned a lot. We know MS causes the immune system to attack healthy tissue, including damaging the brain and spinal cord. Resulting symptoms can be debilitating and include fatigue, blurred vision, memory problems and weakness. Huge advancements in our understanding of MS and its underlying causes, as well as treatment advances, have been made in the past few decades, but MS remains a complex and unpredictable reality for the 2.8 million+ people diagnosed around the world.

Ironically, the only real constant for people living with MS is change. There’s no set pattern or standard progression of the disease, so each person’s experience is unique. Some people with MS have mild symptoms that worsen slowly but sometimes improve, while others can have severe symptoms that drastically alter their daily lives.

All people with MS share some things in common, however, such as the need to stay informed on the ever-evolving research, find various lines of support and try to remain hopeful as they continue living with the disease.

To better understand what navigating life with MS really looks like, three women shared their MS stories with us. Their journeys demonstrate how MS can look different for different people and interestingly, how the language used to talk about the disease can greatly impact how people understand their realities.

woman with horse, woman riding horseGina loves riding her horse, Benita.Courtesy of Sanofi

Gina—Hamburg, Germany (diagnosed with relapsing multiple sclerosis in 2017)

When her youngest son was 4 months old, Gina started having problems with her eye. She’d soon learn she was experiencing optic neuritis—her first symptom of MS.

“Immediately after the diagnosis, I looked up facts on MS because I didn’t know anything about it,” Gina says. “And as soon as I knew what could really happen with this disease, I actually got scared.”

As her family’s primary income provider, she worried about how MS would impact her ability to work as a writer and editor. Her family was afraid she was going to end up in a wheelchair. However, for now, Gina’s MS is managed well enough that she still works full-time and is able to be active.

“When I tell somebody that I have MS, they often don't believe me the first time because I don't fulfill any stereotypes,” she says.

Overwhelmed by negative perspectives on living with MS, Gina sought support in the online MS community, which she found to be much more positive.

“I think it’s important to use as many positive words as you can when talking about MS.” It’s important to be realistic while also conveying hope, she says. “MS is an insidious disease that can cause many bad symptoms…that can be frightening, and you can't gloss over it, either.”

To give back to the online community that helped her so much, Gina started a blog to share her story and help others trying to learn about their diagnosis.

Though she deals with fatigue and cognitive dysfunction sometimes, Gina stays active swimming, biking, riding horses and playing with her sons, who are now 11 and 6.

Cognitive dysfunction is common in MS, with over half of people affected. It can impact memory, attention, planning, and word-finding. As with many aspects of MS, some people experience mild changes, while others face more challenges.

Gina says that while there’s still a lot of education about MS needed, she feels positive about the future of MS because there’s so much research being done.

woman in wheelchair holding medal, woman rowingNathalie is an award-winning rower with multiple international titles.Courtesy of Sanofi

Nathalie — Pennes Mirabeau, France (diagnosed with relapsing-remitting multiple sclerosis in 2002)

Nathalie was a teenager and a competitive athlete when she noticed her first symptoms of MS, but it would take four years of “limbo” before she was diagnosed.

“Ultimately, the diagnosis was more of a relief, than a shock,” she says. “Because when you have signs and you don’t know why, it’s worse than knowing, in the end, what you have.”

However, learning more about the disease—and the realities of disease progression—scared her.

“That glimpse of the future was direct and traumatic,” she says. Her neurologist explained that the disease evolves differently for everyone, and her situation might end up being serious or very mild. So, she decided to stop comparing herself to others with MS.

She said to herself, “We’ll see what happens, and you’ll manage it bit by bit.”

By 2005, Nathalie’s MS had progressed to the point of needing a wheelchair. However, that has not dampened her competitive spirit.

Nathalie began her international rowing career in 2009 and has won multiple world titles, including two Paralympic medals—silver in London and bronze in Tokyo. Now, at 42, she still trains 11 times a week. Fatigue can be a problem, and sometimes hard workouts leave her with muscle stiffness and shaking, but she credits her ongoing sports career for helping her feel in tune with her body’s signals.

“Over the years, I’ve learned to listen to my body, letting my body guide when I need to stop and take breaks,” she says.

Nathalie explains that she used to only look backwards because of the initial shock of her diagnosis. In time, she stopped thinking about what she couldn’t do anymore and focused on her future. She now lives in the following mindset: “Even when doors close, don’t miss out on those that open.” Instead of focusing on what she can’t do, she focuses on the opportunities she still has. Right now, this includes her training for the 2024 Paralympic Games in Paris, where she will compete for another rowing medal.

“I only go forward,” she says. “Well, I try, anyway…It’s easy to say, it’s not always easy to do. But that’s what I try to do.”

woman exiting water after swimming, woman with great daneHelga's Great Dane has become a helpful and beloved companion.Courtesy of Sanofi

Helga—Johannesburg, South Africa (diagnosed with relapsing multiple sclerosis in 2010)

When Helga first started having balance issues and numbness in her feet, she chalked it up to her training as a runner. But when the numbness moved to her face, she knew something was wrong. She never guessed it was MS.

“When I was diagnosed, I felt completely overwhelmed and clueless,” Helga says. “I felt that I had nowhere near enough information. I did not know anything about the disease…I had no idea that it was going to be a process of continually monitoring and adjusting your lifestyle.”

In the beginning, Helga’s symptoms developed slowly, and she didn’t appear ill to others. She was even able to run for a few years after her diagnosis, but she couldn’t do marathons anymore, and she began to fall frequently due to balance issues and right-foot dragging. Then her cognition issues became more problematic, especially in her job as a trainer in a printing company.

“My executive function, decision-making and short-term memory were affected to the point that I was eventually medically unfit for work,” she says. She stopped working in 2017.

However, she didn’t stop living life. Even though she could no longer run, she continued to swim competitively. She got a Great Dane puppy and trained him as a service dog to help her walk. She also serves as vice chair of the patient support organization Multiple Sclerosis South Africa, and she advises others who have been diagnosed to join a patient advocacy group as soon as possible to get reliable information and meet others with MS.

Helga says she is “hopeful” about the future of MS. “I must say that I am so grateful that we have all the new medications available, because my life would not be the same if it wasn't for that,” she adds.

Part of how she manages her MS is by looking at the positives.

“If I could tell the world one thing about MS, it would be that MS is an incurable disease of the nervous system, but it's also the greatest teacher of valuing your health, family, friends, and managing change in your life,” she says. “My life is diversified in a way that I never, ever thought it would, and MS has been honestly the greatest teacher.”

Each MS journey is unique – with each person impacted experiencing different struggles, successes, and feelings as they manage this unpredictable disease. But the common thread is clear – there is a critical need for information, support, and hope. We are proud to participate in World MS Day and share these incredible stories of living life while living with MS. To learn more about MS, go to https://www.sanofi.com/why-words-really-matter-when-it-comes-to-multiple-sclerosis.

MAT-GLB-2301642-v1.0-05/2023

This article was sponsored by Sanofi. Participants were compensated when applicable.

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