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What I've learned as a 26-year-old living with chronic pain

A few months ago, my feet began to hurt.

At first, I thought that it was just from standing a lot for work, but then it continued to get worse. The day the pain spread to my hands, I knew something was wrong.

But it was when it spread to the rest of my body — my shoulders, elbows, knees, and ankles — that I panicked. What was happening to me? All of a sudden everything hurt, all the time: sitting, standing, walking. At first, lying down was my only relief. But then the pain got so bad every joint would throb, no matter how comfortable I was.


Within two months, I went from being a personal trainer, strong and fit with a passion for hanging upside down and balancing on my hands to not being able to dress myself, cut my own food, or tie my shoelaces.

Me playing around pre-arthritis. All photos provided by Ashley Hunt, used with permission.

Rheumatoid arthritis is an autoimmune disease that causes inflammation and swelling in the joints. It's extremely painful. Around 10 million people in the U.K. have arthritis, 700,000 of which have RA. It is most common in women aged 45-60.

This is the third autoimmune condition I've been diagnosed with (I also have celiac disease and Berger's disease). That's the unfortunate thing with autoimmune conditions: Once you have one, you are more likely to develop another.

RA is often called the silent illness because people with RA don't look sick.

I'm a generally positive person, but I'll be honest: These last few months have really challenged me.

Every day is a constant struggle as I try to move through life in constant pain. It's a dark and isolating place to be. On top of the physical pain, there is also the fear that my body is changing, that it's completely out of my control, and the realization there are some things I will never be able to do again.

I've been in some dark places. I've felt sorry for myself. I've spent whole days in bed, I've used alcohol to numb the pain. It has been a process to come to terms with these changes taking over my body. But every day, I wake up and fight this battle again, getting stronger each time as I learn to accept the hand I've been dealt.

These are the lessons I have learned from living with chronic pain:

1. There is a time and a place for modern medicine.

While I am a huge advocate for natural health, we are so lucky to live in a modern world with amazing pharmaceuticals. I wish I could tell an inspirational story about how I rejected the drugs and decided to cure myself naturally, but it is so far from the truth. After the pain that I was feeling, when the doctors offered me a chance to have even half of it taken away by a steroid injection, even after listing the plethora of potential side effects, I jumped at it without hesitating for a second. As the kind of person who would never even take meds for a headache, this was a tough pill to swallow. Sometimes your values will be challenged as your circumstances change.

2. It's OK to ask for help.

I have always been stubbornly independent, never wanting to rely on anyone, priding myself on being completely self-sufficient. I'd never even let anyone open a jar for me, but oh, how the mighty have fallen!

I've had no choice but to put all of my pride aside as I begin to require assistance for almost everything. Now I understand the importance of having a strong support network and the gratitude that comes with having around me people I love who would do anything to help me.

3. Self-care isn't an option; it is a necessity.

I used to race through life, with clients morning and evening, full-time PR work during the day, pole dancing, yoga, travel, writing, friends, family... I used to feel that any moment I wasn't productive was wasted. I even used to meditate with the sole purpose of being more productive!

When I was first diagnosed, I got so frustrated with myself for not being able to do as much as I used to do. Now, I have learned to accept my situation, and I understand that I need to look after myself. I put myself first because I have to, and I listen to my body. If I need to spend an afternoon in bed, that's what I do. And it's OK. If I need to turn away a potential new client because I don't have the time or energy, that's fine too. You can't do it all. Make yourself a priority. Turns out, resting is pretty f*cking awesome.

4. Positive thinking is not always the answer.

Instagram mantras like "positive mind, positive life," "I'm in charge of how I feel and today I'm choosing happiness," and "wake up and be awesome," may seem inspirational, but I've learned that life is not so simple.

While I see a huge difference in my pain when I am in a good mood versus when I'm in a bad mood and I'm a big believer in the mind-body connection, it only goes so far. Telling someone like me to "think positive" or telling me that the reason this happened to me is that I poisoned myself with negative thoughts is insulting and so far from the truth.

Sometimes I wake up feeling like crap. I have a crap day. The people around me are being crappy. And that's fine. Then I go to bed and hope that tomorrow will be different. It's a new day.

5. Chronic pain can be extremely isolating.

People with RA are twice as likely as others to develop depression, and up to 4 of every 10 people with RA lose their job within five years due to their condition. 1 in 7 give up work altogether within one year of their diagnosis.

When I explain my illness to people, they nod and offer sympathies, but they don't really get it. The most valuable thing for me since being diagnosed has been to connect with other young sufferers, to know that I am not alone. There is unique solace to be found in someone else who also has issues pouring a cup of tea and who fully understands my fear of being locked in a public bathroom as my hands struggle with locks and handles.

6. It's never too early to start meditating.

Living with chronic pain conditions can take a huge toll on your mental health. For me, years of developing a meditation practice has made a big difference in my ability to handle difficult situations. It has been vital in allowing me to come to terms with my condition as well as staying positive, overcoming anxiety, and making the most out of my situation.

And meditation is not just for people with illnesses; it's an amazing tool for everyone! Stress and anxiety play a huge role in developing and worsening chronic illnesses. Meditation is a way of working on your well-being at the best of times so that when challenges come along, you have tools to help you gain control.

In the end, I've realized that my struggles have made me stronger.

It sounds cliché, but I can't even explain how true this rings for me right now. Even when I'm feeling my worst, I'm constantly realizing what I'm capable of. Every time I conquer yet another day of pain, I remind myself that I can get through this.

And if I can get through this, I can get through anything.

Planet

Easy (and free!) ways to save the ocean

The ocean is the heart of our planet. It needs our help to be healthy.

Ocean Wise

Volunteers at a local shoreline cleanup

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The ocean covers over 71% of the Earth’s surface and serves as our planet’s heart. Ocean currents circulate vital heat, moisture, and nutrients around the globe to influence and regulate our climate, similar to the human circulatory system. Cool, right?

Our ocean systems provide us with everything from fresh oxygen to fresh food. We need it to survive and thrive—and when the ocean struggles to function healthfully, the whole world is affected.

Pollution, overfishing, and climate change are the three biggest challenges preventing the ocean from doing its job, and it needs our help now more than ever. Humans created the problem; now humans are responsible for solving it.

#BeOceanWise is a global rallying cry to do what you can for the ocean, because we need the ocean and the ocean needs us. If you’re wondering how—or if—you can make a difference, the answer is a resounding YES. There are a myriad of ways you can help, even if you don’t live near a body of water. For example, you can focus on reducing the amount of plastic you purchase for yourself or your family.

Another easy way to help clean up our oceans is to be aware of what’s known as the “dirty dozen.” Every year, scientists release an updated list of the most-found litter scattered along shorelines. The biggest culprit? Single-use beverage and food items such as foam cups, straws, bottle caps, and cigarette butts. If you can’t cut single-use plastic out of your life completely, we understand. Just make sure to correctly recycle plastic when you are finished using it. A staggering 3 million tons of plastic ends up in our oceans annually. Imagine the difference we could make if everyone recycled!

The 2022 "Dirty Dozen" ListOcean Wise

If you live near a shoreline, help clean it up! Organize or join an effort to take action and make a positive impact in your community alongside your friends, family, or colleagues. You can also tag @oceanwise on social if you spot a beach that needs some love. The location will be added to Ocean Wise’s system so you can submit data on the litter found during future Shoreline Cleanups. This data helps Ocean Wise work with businesses and governments to stop plastic pollution at its source. In Canada, Ocean Wise data helped inform a federal ban on unnecessary single-use plastics. Small but important actions like these greatly help reduce the litter that ends up in our ocean.

Ocean Wise, a conservation organization on a mission to restore and protect our oceans, is focused on empowering and educating everyone from individuals to governments on how to protect our waters. They are making conservation happen through five big initiatives: monitoring and protecting whales, fighting climate change and restoring biodiversity, innovating for a plastic-free ocean, protecting and restoring fish stocks, and finally, educating and empowering youth. The non-profit believes that in order to rebuild a resilient and vibrant ocean within the next ten years, everyone needs to take action.

Become an Ocean Wise ally and share your knowledge with others. The more people who know how badly the ocean needs our help, the better! Now is a great time to commit to being a part of something bigger and get our oceans healthy again.

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See, not even their human parents can tell them apart because when the swapped dog got home, nothing seemed odd to the owners at first. She was freshly groomed so any small differences were quickly brushed off. But this accidental doppelgänger wasn't fooling her feline siblings.

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All images provided by Prudential Emerging Visionaries

Collins after being selected by Prudential Emerging Visionaries

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A changemaker is anyone who takes creative action to solve an ongoing problem—be it in one’s own community or throughout the world.

And when it comes to creating positive change, enthusiasm and a fresh perspective can hold just as much power as years of experience. That’s why, every year, Prudential Emerging Visionaries celebrates young people for their innovative solutions to financial and societal challenges in their communities.

This national program awards 25 young leaders (ages 14-18) up to $15,000 to devote to their passion projects. Additionally, winners receive a trip to Prudential’s headquarters in Newark, New Jersey, where they receive coaching, skills development, and networking opportunities with mentors to help take their innovative solutions to the next level.

For 18-year-old Sydnie Collins, one of the 2023 winners, this meant being able to take her podcast, “Perfect Timing,” to the next level.

Since 2020, the Maryland-based teen has provided a safe platform that promotes youth positivity by giving young people the space to celebrate their achievements and combat mental health stigmas. The idea came during the height of Covid-19, when Collins recalled social media “becoming a dark space flooded with news,” which greatly affected her own anxiety and depression.

Knowing that she couldn’t be the only one feeling this way, “Perfect Timing” seemed like a valuable way to give back to her community. Over the course of 109 episodes, Collins has interviewed a wide range of guests—from other young influencers to celebrities, from innovators to nonprofit leaders—all to remind Gen Z that “their dreams are tangible.”

That mission statement has since evolved beyond creating inspiring content and has expanded to hosting events and speaking publicly at summits and workshops. One of Collins’ favorite moments so far has been raising $7,000 to take 200 underserved girls to see “The Little Mermaid” on its opening weekend, to “let them know they are enough” and that there’s an “older sister” in their corner.

Of course, as with most new projects, funding for “Perfect Timing” has come entirely out of Collins’ pocket. Thankfully, the funding she earned from being selected as a Prudential Emerging Visionary is going toward upgraded recording equipment, the support of expert producers, and skill-building classes to help her become a better host and public speaker. She’ll even be able to lease an office space that allows for a live audience.

Plus, after meeting with the 24 other Prudential Emerging Visionaries and her Prudential employee coach, who is helping her develop specific action steps to connect with her target audience, Collins has more confidence in a “grander path” for her work.

“I learned that my network could extend to multiple spaces beyond my realm of podcasting and journalism when industry leaders are willing to share their expertise, time, and financial support,” she told Upworthy. “It only takes one person to change, and two people to expand that change.”

Prudential Emerging Visionaries is currently seeking applicants for 2024. Winners may receive up to $15,000 in awards and an all-expenses-paid trip to Prudential’s headquarters with a parent or guardian, as well as ongoing coaching and skills development to grow their projects.

If you or someone you know between the ages of 14 -18 not only displays a bold vision for the future but is taking action to bring that vision to life, click here to learn more. Applications are due by Nov. 2, 2023.
@davidcsmalley/TikTok

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Holly Butcher left behind her best life advice before she passed away at 27.

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