upworthy

death

Julie McFadden and former President Jimmy Carter.

Former President Jimmy Carter is known for being one of the most beloved former presidents in American history for his resolve to use his talents to help others, whether it was eradicating the Guinea worm or his work with Habitat for Humanity into his late 90s. Carter says that his faith is the big reason for his resilience. “I have one life and one chance to make it count for something,” he said. “My faith demands that I do whatever I can, wherever I am, whenever I can, for as long as I can with whatever I have to try to make a difference.”

The man who held the presidency from 1977 to 1981 went into hospice in February 2023 but has lived much longer than most expected. Carter has made 2 public appearances in that time, the first in November 2023 for the funeral of his wife of 77 years, Rosalynn and on October 1, 2024 for his 100th birthday. When Carter was wheeled into his wife’s funeral, some family members expressed shock and worry about Cartter’s appearance.

Since beginning hospice care, Carter has appeared frail and gaunt without expression and mouth agape. It shouldn’t be shocking for a person who has reached the age of 100 to appear so fragile, but it’s right to be concerned that he may be uncomfortable in such a state. However, Julie McFadden, also known as Hospice Nurse Julie, settled a lot of people’s fears in a TikTok video where she explained Carter’s appearance and why he’s most likely comfortable during his transition.

McFadden has assisted over a hundred people in their final days and is the author of the bestseller, "Nothing to Fear."

@hospicenursejulie

#greenscreenvideo #greenscreen Jimmy Carters 100th birthday! #hospicenursejulie #hospicenurse #jimmycarter #education

What is Jimmy Carter's condition?

“I have been tagged in this Jimmy Carter turns 100 years old today video,” she begins her viral TikTok with over 600,00 views. “So many times people asking me, why does he look like this? Is he okay? Does this mean anything? As a hospice nurse, this video was not alarming to me. Jimmy Carter, to me, looks just like someone who was 100 years old on hospice and getting towards the end of their life.”

She then speculated on what his life is like at age 100. “Jimmy Carter is likely sleeping 20 to 22 hours a day. He is likely not really eating and drinking, which is all normal and to be expected at the end of life. So that's why he looks so thin. He looks cachectic. His body is slowly shutting down and the more we just let his body be the guide, the better he will be.”

A lot of people are concerned about the way that Carter’s mouth seems to be permanently open. McFadden says that is due to muscle wasting. “His mouth is hanging open because it takes muscles to keep your mouth shut. And at the end of life, those muscles relax. So he is likely so relaxed that when he's sleeping, which is most of the time, even when he's in a wheelchair, he's asleep, and his muscles relax, so his mouth hangs open.”



McFadden also addressed many people's concerns: Should Carter have been brought outside to celebrate his birthday with his family in such an advanced state? Should he have been in front of the cameras?

“In my opinion, it's up to the family. The family knows that person best,” McFadden said. “From what we know of Jimmy Carter, he was a family man who loved being around his family. So why not be around him and celebrate his one hundred? One-hundredth birthday and bring family around, bring him outside. They know his personality. They must think he would love this. So let's do it. We don't have to keep dying people hidden away.”

McFadden is such an incredible gift because we tend to lock away the dying and talking about death and hospice is a very uncomfortable topic for most. This lack of information leads us to believe that someone in Carter’s position suffers. But, according to McFadden, he’s probably comfortable and relaxed. McFadden knows that when people better understand Carter’s condition, they will probably feel better about their final days as well.


Pallbearers holding a coffin.

In the 2020 series finale of the philosophical sitcom “The Good Place,” Kristen Bell’s Eleanor character poignantly reflects on what it means to be human. “Every human is a little bit sad all the time because you know you're going to die. But that knowledge is what gives life meaning,” she says. And it’s true: The fact that our lives will end makes the time we spend on this planet much more meaningful.

You only have so much time on this planet; how will you choose to spend it? What goals will you pursue? Who will you help? What will you contribute? What will your job be? Who will you spend your time with?

One way to figure out the answers to these big questions is to put it all on paper. Victor Sweeney, 33, a funeral director in Warren, Minnesota, chooses to do so by rewriting his obituary once a year to help him focus on the things that really matter in life. Working in the death business must give one a unique perspective on these matters of life and death.


Even though Sweeny has lived another year, he makes more edits to his obituary than additions. “Each year, my obituary gets shorter and shorter,” he told CNBC’s Make It. “It’s not that I’m doing less, but that there are fewer and fewer things that really, truly matter.”

Sweeney tells CNBC that every time he rewrites his obituary, he realizes that what truly matters to him are his family and service to others. Since 2015, Sweeney has slowly removed references to his accomplishments or career. “Now it’s like, ‘He lived, he loved, he had some kids.’ That’s about it,” he says.

The significant benefit of writing your own obituary is that you can reverse engineer your own life. You can list everything you set out to do and make your true purpose concrete. As you grow, you can make additions and subtractions as your purpose evolves.

Then, you can follow the path laid out in your obituary, which becomes a roadmap for life. “Writing your own obituary helps you uncover your life purpose. This exercise will help you find meaning and focus—live your life the way you want to be remembered,” Gustavo Razzetti writes in Fearless Culture.

obituary, meaning in life, writingA woman writing her obituary. via Canva/Photos

Wring your own obituary is also a way to “Blue Sky” the way you think about your life. “Blue Sky” speculation is a technique the Imagineers use to design attractions at Disney Parks and generate ideas without limitations. As the engineers say, “If it can be dreamt, it can be built.” What would be your “Blue Sky” dreams for your life? Where do you want to live? What do you want to do for work? What organizations would you like to start or be part of? How many kids would you like to have? Who is your perfect partner? What do you want your impact on the world to be?

Some may think that writing an obituary, especially early in life, is a morbid practice that makes them uncomfortable. However, with our limited time on Earth, realizing your own mortality too late in life, could mean the difference between following your dreams and staying in bed. Because when we live without considering our deaths, we are not truly thinking about life itself. That discomfort is a small price to pay for waking up one day and realizing that your time is limited, but you came to that truth too late to do anything about it.

On May 28, 2014, 13-year-old Athena Orchard of Leicester, England, died of bone cancer. The disease began as a tumor in her head and eventually spread to her spine and left shoulder. After her passing, Athena's parents and six siblings were completely devastated. In the days following her death, her father, Dean, had the difficult task of going through her belongings. But the spirits of the entire Orchard family got a huge boost when he uncovered a secret message written by Athena on the backside of a full-length mirror.



After removing the mirror from the wall, Dean discovered a 3,000-word letter written all the way down its backside in black pen. "She never mentioned it, but it's the kind of thing she'd do," her father told People magazine. "She was a very spiritual person, she'd go on about stuff that I could never understand – she was so clever." The moving letter revealed her deepest feelings about her fight with the dreaded disease. "Every day is special, so make the most of it, you could get a life-ending illness tomorrow so make the most of every day," she wrote. "Life is only bad if you make it bad."

via YouTube

Although Athena is gone, the mirror now serves as a powerful memory of her undying spirit. "We're keeping the mirror forever, it is a part of her we can keep in the house, it will always be in her room," her mother, Caroline, said. "Just reading her words felt like she was still here with us, she had such an incredible spirit."



Athena's full message:

"Happiness depends upon ourselves. Maybe it's not about the happy ending, maybe it's about the story. The purpose of life is a life of purpose. The difference between ordinary and extraordinary is that little extra. Happiness is a direction not a destination. Thank you for existing. Be happy, be free, believe, forever young. You know my name, not my story.

You have heard what I've done, but not what I've been through. Love is like glass, looks so lovely but it's easy to shatter.

Love is rare, life is strange, nothing lasts and people change. Every day is special, so make the most of it, you could get a life ending illness tomorrow so make the most of every day. Life is only bad if you make it bad. If someone loves you, then they wouldn't let you slip away no matter how hard the situation is. Remember that life is full of ups and downs.

Never give up on something you can't go a day without thinking about. I want to be that girl who makes the bad days better and the one that makes you say my life has changed since I met her!

Love is not about how much you say I love you – it's about how much you can prove it's true. Love is like the wind, you can feel it but you can't see it. I'm waiting to fall in love with someone I can open my heart to. Love is not about who you can see spending your future with, it's about who you can't see spending your life without… Life is a game for everyone but love is the prize. Only I can judge me.

Sometimes love hurts. Now I'm fighting myself. Baby I can feel your pain. Dreams are my reality. It hurts but it's okay, I'm used to it. Don't be quick to judge me, you only see what I choose to show you… you don't know the truth. I just want to have fun and be happy without being judged.

This is my life, not yours, don't worry about what I do. People gonna hate you, rate you, break you, but how strong you stand, that's what makes you… you!

There's no need to cry because I know you'll be by my side."


This article originally appeared on 04.15.19

Mental Health

27-year-old who died of cancer left behind final advice that left the internet in tears

"Don't feel pressured to do what other people might think is a fulfilling life. You might want a mediocre life and that is so OK."

Photo courtesy of Remembering Holly Butcher/Facebook used with permission.

Holly Butcher left behind her best life advice before she passed away at 27.

The world said goodbye to Holly Butcher, a 27-year-old woman from Grafton, Australia.

Butcher had been battling Ewing's sarcoma, a rare bone cancer that predominantly affects young people. In a statement posted on Butcher's memorialized Facebook account, her brother, Dean, and partner, Luke, confirmed the heartbreaking news to friends.

"It is with great sadness that we announce Holly's passing in the early hours of this morning," they wrote on Jan. 4, 2018. "After enduring so much, it was finally time for her to say goodbye to us all. The end was short and peaceful; she looked serene when we kissed her forehead and said our final farewells. As you would expect, Holly prepared a short message for you all, which will be posted above."

Butcher's message, which Dean and Luke did, in fact, post publicly shortly thereafter, has brought the internet to tears.


We believe her powerful message — which has amassed an incredible 72,000 Likes and 56,000 shares across the world so far — deserves to be spread far and wide.

Butcher used her final post to reflect on what she's learned in her short but beautiful life, offering some advice to those of us who are willing to listen.

"It's a strange thing to [realize] and accept your mortality at 26 years young," she began. "I always imagined myself growing old, wrinkled and gray — most likely caused by the beautiful family (lots of kiddies) I planned on building with the love of my life. I want that so bad it hurts. That's the thing about life; It is fragile, precious and unpredictable and each day is a gift, not a given right."

Butcher's poignant post is definitely worth reading in full. But here are 16 especially powerful points:

1. "I just want people to stop worrying so much about the small, meaningless stresses in life and try to remember that we all have the same fate after it all, so do what you can to make your time feel worthy and great, minus the bullshit. ... Those times you are [whining] about ridiculous things (something I have noticed so much these past few months), just think about someone who is really facing a problem. Be grateful for your minor issue and get over it. It's OK to acknowledge that something is annoying but try not to carry on about it and negatively affect other people's days."

2. "Once you do that, get out there and take a freaking big breath of that fresh Aussie air deep in your lungs, look at how blue the sky is and how green the trees are; It is so beautiful. Think how lucky you are to be able to do just that — breathe. You might have got caught in bad traffic today, or had a bad sleep because your beautiful babies kept you awake, or your hairdresser cut your hair too short. ... I swear you will not be thinking of those things when it is your turn to go. It is all SO insignificant when you look at life as a whole. I'm watching my body waste away right before my eyes with nothing I can do about it and all I wish for now is that I could have just one more birthday or Christmas with my family, or just one more day with my partner and dog. Just one more."

cherishing today, thoughts on life, premature death, youth, family

Holly Butcher shares a big smile for the camera.

Photo courtesy of Remembering Holly Butcher/Facebook used with permission.

3. "I hear people complaining about how terrible work is or about how hard it is to exercise — be grateful you are physically able to. Work and exercise may seem like such trivial things…until your body doesn't allow you to do either of them… Appreciate your good health and functioning body — even if it isn't your ideal size. Look after it and embrace how amazing it is."

4. "Give, give, give. It is true that you gain more happiness doing things for others than doing them for yourself. I wish I did this more. Since I have been sick, I have met the most incredibly giving and kind people and been the receiver of the most thoughtful and loving words and support from my family, friends and strangers; more than I could ever give in return. I will never forget this and will be forever grateful to all of these people."

5. "This year, our family agreed to do no presents and despite the tree looking rather sad and empty (I nearly cracked Christmas Eve!), it was so nice because people didn't have the pressure of shopping and the effort went into writing a nice card for each other. Plus, imagine my family trying to buy me a present knowing they would probably end up with it themselves ... strange! ... but those cards mean more to me than any impulse purchase could. ... Anyway, moral of the story — presents are not needed for a meaningful Christmas."

6. "Use your money on experiences ... or at least don't miss out on experiences because you spent all your money on material shit. Put in the effort to do that day trip to the beach you keep putting off. Dip your feet in the water and dig your toes in the sand. Wet your face with salt water."

7. "Try just enjoying and being in moments rather than capturing them through the screen of your phone. Life isn't meant to be lived through a screen nor is it about getting the perfect photo."

music is therapy, love, courtesy, life and death, positive messages

"Try just enjoying and being in moments rather than capturing them..." Holly Butcher.

Photo courtesy of Remembering Holly Butcher/Facebook used with permission.

8. "Listen to music ... really listen. Music is therapy."

9. "Cuddle your dog. Far out, I will miss that."

10. "Talk to your friends. Put down your phone. Are they doing OK?"

11. "Travel if it's your desire, don't if it's not."

12. "Work to live, don't live to work."

13. "Seriously, do what makes your heart feel happy."

14. "Don't feel pressured to do what other people might think is a fulfilling life. You might want a mediocre life and that is so OK."

15. "Tell your loved ones you love them every time you get the chance and love them with everything you have."

16. "Oh and one last thing. If you can, do a good deed for humanity (and myself) and start regularly donating blood. It will make you feel good with the added bonus of saving lives. Blood donation (more bags than I could keep up with counting) helped keep me alive for an extra year — a year I will be forever grateful that I got to spend here on Earth with my family, friends and dog. A year I had some of the greatest times of my life."

Butcher may be gone, but her impact will live on in the hearts and minds of people around the world.

"Never [met] her, but I am very touched and in tears," one Facebook user commented. "Such a bright light for a seemingly dark world at times," another chimed in. "Beautiful."

"What a wise soul she is," someone concluded. "I'm off to donate my blood."

Rest in peace, Holly. You made this world a better place. ❤️

If you are in the U.S. and inspired by Butcher's message, consider finding a blood donation center near you. You could save a life.



This article originally appeared on 01.08.18