upworthy

hospice care

Julie McFadden and former President Jimmy Carter.

Former President Jimmy Carter is known for being one of the most beloved former presidents in American history for his resolve to use his talents to help others, whether it was eradicating the Guinea worm or his work with Habitat for Humanity into his late 90s. Carter says that his faith is the big reason for his resilience. “I have one life and one chance to make it count for something,” he said. “My faith demands that I do whatever I can, wherever I am, whenever I can, for as long as I can with whatever I have to try to make a difference.”

The man who held the presidency from 1977 to 1981 went into hospice in February 2023 but has lived much longer than most expected. Carter has made 2 public appearances in that time, the first in November 2023 for the funeral of his wife of 77 years, Rosalynn and on October 1, 2024 for his 100th birthday. When Carter was wheeled into his wife’s funeral, some family members expressed shock and worry about Cartter’s appearance.

Since beginning hospice care, Carter has appeared frail and gaunt without expression and mouth agape. It shouldn’t be shocking for a person who has reached the age of 100 to appear so fragile, but it’s right to be concerned that he may be uncomfortable in such a state. However, Julie McFadden, also known as Hospice Nurse Julie, settled a lot of people’s fears in a TikTok video where she explained Carter’s appearance and why he’s most likely comfortable during his transition.

McFadden has assisted over a hundred people in their final days and is the author of the bestseller, "Nothing to Fear."

@hospicenursejulie

#greenscreenvideo #greenscreen Jimmy Carters 100th birthday! #hospicenursejulie #hospicenurse #jimmycarter #education

What is Jimmy Carter's condition?

“I have been tagged in this Jimmy Carter turns 100 years old today video,” she begins her viral TikTok with over 600,00 views. “So many times people asking me, why does he look like this? Is he okay? Does this mean anything? As a hospice nurse, this video was not alarming to me. Jimmy Carter, to me, looks just like someone who was 100 years old on hospice and getting towards the end of their life.”

She then speculated on what his life is like at age 100. “Jimmy Carter is likely sleeping 20 to 22 hours a day. He is likely not really eating and drinking, which is all normal and to be expected at the end of life. So that's why he looks so thin. He looks cachectic. His body is slowly shutting down and the more we just let his body be the guide, the better he will be.”

A lot of people are concerned about the way that Carter’s mouth seems to be permanently open. McFadden says that is due to muscle wasting. “His mouth is hanging open because it takes muscles to keep your mouth shut. And at the end of life, those muscles relax. So he is likely so relaxed that when he's sleeping, which is most of the time, even when he's in a wheelchair, he's asleep, and his muscles relax, so his mouth hangs open.”



McFadden also addressed many people's concerns: Should Carter have been brought outside to celebrate his birthday with his family in such an advanced state? Should he have been in front of the cameras?

“In my opinion, it's up to the family. The family knows that person best,” McFadden said. “From what we know of Jimmy Carter, he was a family man who loved being around his family. So why not be around him and celebrate his one hundred? One-hundredth birthday and bring family around, bring him outside. They know his personality. They must think he would love this. So let's do it. We don't have to keep dying people hidden away.”

McFadden is such an incredible gift because we tend to lock away the dying and talking about death and hospice is a very uncomfortable topic for most. This lack of information leads us to believe that someone in Carter’s position suffers. But, according to McFadden, he’s probably comfortable and relaxed. McFadden knows that when people better understand Carter’s condition, they will probably feel better about their final days as well.


via Evergreen Hospice Volunteers / Facebook

Hospice nurses seem to come from the heavens. It's a job that requires a big heart, the strength to deal with death on a daily basis, and in-depth medical and nursing training.

Five years ago, Leigh Gardner performed a small miracle for a man that made one of his last days on Earth one of his best

Edward Reis, 62, was an ex-forest ranger with multiple sclerosis and had been in hospice care for years. His caregivers became a surrogate family for Reis who didn't have much family in the area.


A few weeks before his death, his chaplain Curt Huber asked him if he had any final wishes. Reis said he'd love to go back to the forest where he worked.

RELATED: 13 side-by-side portraits of people over 100 with their younger selves

Huber and Gardner, a nurse at Evergreen Health Hospice in Washington state, came together and created a plan that would allow Reis to make one last "walk" through the trees. The only problem was that Reis was bedridden and couldn't ride in a wheelchair, let alone walk through the forest.

So they contacted the Snohomish County Fire Department and they hopped into action.

The firefighters picked up Reis in a firetruck and took him to the lush forest of Puget Sound. They then rolled him on a gurney through the rocky terrain, stopping him by the creek so he could hear the water, and picking pieces of bark and putting it to his nose for one last inhale of one of his favorite scent.

"He was just smiling the whole time … saying he was so happy," Gardner told ABC News.

"The wheels of a gurney are like a shopping cart, so very small wheels on a trail -- and it wasn't like one of those little running trails at all, it was like a hiking trail ... and we would stop every so often and he would just sit and listen," Gardner continued. "And you know I went over to him and I said, 'Are you happy?' He's like, 'I'm so happy.'"

RELATED: New research shows that children who grow up near nature become happier adults

The trip to Puget Sound was therapeutic for the firefighters as well. The men had recently been in Oso, Washington recovering bodies from a landslide that killed 43 people.

"We saw a lot of bad things up there in Oslo, and this was a time to just watch somebody at the end of their life enjoy what they could," he said of Reis' trip. "It felt good inside to help him and to watch his face. The payment was in his expression when he was out there."

With his final wish granted, Reis passed away a few weeks later.

"We kind of were his family in the end," Gardner said, adding that she missed him. "For the first couple of weeks after he'd passed away I was like, 'It's so weird not going three times a week and working so hard to take care of him.' It felt a little odd. So I miss his presence and just, you know, he was a gentle, gentle soul."

One can be sure the forest misses him, too.


/a>

From Your Site Articles
Related Articles Around the Web