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One man's journey with Down syndrome shows how far we've come in 30 years.

Richard and Didi Dobbs didn't know much about Down syndrome when their nephew Sean was born with the condition in 1985.

The only thing they did know — and according to all of the information they could find on the condition — was that it was synonymous with "Mongolism." Which, as you can imagine, was less than reassuring.

"It was the '80s, and there was no Internet or anything," Didi told Upworthy. "I knew the very little that people in the '60s would know, which is that it was odd, or freaky, or scary."

Before the '80s, the average life expectancy for a person with Down syndrome was 28 years, and it was common for children born with the condition to be sent away and raised in institutions or group homes, segregated from educational opportunities and the public at large. In fact, up until 1984 — just a year before Sean was born — doctors were not legally required to give medically indicated treatment for life-threatening conditions to infants with disabilities.


Sean as a toddler. All GIFs via Richard Dobbs/Vimeo.

So the Dobbses tried to help their family, and others like them, the only way that they knew how: by turning the cameras on.

When Sean was 2 years old, they began to film his life with the ultimate goal of turning the footage into an informational video to help other families treading the then-uncharted waters of raising a child with Down syndrome. At the time, no such movies existed, at least not that they could find.

Over the years, they documented all the major milestones in Sean’s life. They filmed his speech and occupational therapy classes as he learned to walk and talk. When he took a liking to swimming, they brought their camera along to his high school swim meets. They followed him to the prom and to his high school graduation, when he became the first special needs student in the 2,000-person school to graduate on time.

Sean shaving before the prom.

Their archival footage was interesting to family and friends, but it wasn't really a story ... until they learned that Sean was going to compete in the National Special Olympics Triathlon in 2014.

Suddenly, the film that had been nearly 30 years in the making had a whole new shape as well as a name: "Sean So Far."

The Dobbses began to chronicle Sean's preparation alongside his triathlon partner, Troy — the only two athletes from Connecticut to compete in the national games that year. Their friendship would go on to become one of the lynchpins of the film.

Sean and Troy training together.

But the film took another unexpected turn when Sean was rushed into emergency spinal surgery six months before his big race.

During an obligatory physical, doctors discovered an atlantoaxial instability in Sean’s neck. This is a fairly common congenital complication in people with Down syndrome, although that doesn't make it any less serious.

Sean ended up missing eight weeks of training that winter while he recovered from the surgery. But as soon as the neck brace was gone and the doctors gave the word, he was right back at it, determined to get himself back into shape before the race.

Sean ended up taking home the bronze medal at the National Special Olympics that year, but his story didn't stop there.

Just two weeks after the race, Sean and Troy were invited to attend a black-tie dinner at the White House on behalf of the Special Olympics International Committee.

Sean was even given the opportunity to deliver a speech to President Barack Obama and his family. "His mouth had no muscle tone when he was a baby — we have footage of that — so this speech was a big deal!" Didi Dobbs said.

Sean meeting President Obama.

The Dobbses have seen a lot of changes in the 30 years that they've been working on "Sean So Far" — both in Sean himself and in the way the world looks at Down syndrome.

Didi recalled seeing a child with Down syndrome in a recent commercial for Target and noted how that kind of visibility goes a long way to normalizing the condition and building empathy for people with it. After all, that's how Sean has been able to do so many amazing things: by thinking that he could and having a family who supported that.

"Sean learned that everything is possible, not that he has limits," Didi said. "He knows he has Down syndrome, and he talks about it. Yes, it's a disability. But I heard someone refer to it as 'life in a different key.' And that's how I've come to see it."

Sean being interviewed about self-respect for the documentary.

As for Sean himself? He’s returned to his day job, enjoying some much-needed downtime.

2014 was a whirlwind of excitement, so he's taking some time to hang out with friends, go to the gym, and catch up on his favorite TV shows and hobbies.

You know, like people normally do.

Check out the trailer for "Sean So Far" below:


Family

A 6-year-old designed a custom t-shirt for his first day of school and it's seriously the best

Thank you, Blake, for bringing some much-needed sunshine into our day.

Unfading adornments

When 6-year-old Blake Rajahn shows up to his first grade classroom on Monday, he will arrive bearing an uplifting a message for his fellow students.

Blake's mother, Nikki Rajahn, runs a custom personalization business in Fayette County, Georgia, and she asked her son what kind of t-shirt he wanted for his first day of school. He could have chosen anything—his favorite sports star's number, a cool dragon, a witty saying—anything he wanted, she could make.

Blake chose something unexpected—an orange t-shirt with a simple, sweet message for the other kids at his school to see. Five little words that might just mean the world to someone who reads them.

"I will be your friend."

Ouch. My heart.

Rajahn shared the story on her business Facebook page:

"I have to brag on my son. I told him that as a back to school gift, I will make him any shirt he would like. It could have anything—a basketball theme, football, etc. which are all his favorites. He thought a while and said, 'will you please make me a shirt that says "I will be your friend" for all the kids who need a friend to know that I am here for them?' Never underestimate your kid's heart for others! I love my sweet Blake! #stopbullying"







Apparently, such a gesture is typical of Blake. "He has always had a heart for others and is very genuine," his mother told Upworthy. She said she's donating part of the proceeds of her t-shirt sales to the Real Life Center, a non-profit that helps families in need in Tyrone, Georgia, all because of Blake.

"During the summer we had a vacation Bible school that he went to," she said, "and they did a toothbrush and toothpaste drive for the Real Life Center. He came home saying we needed to go to the Dollar Store to get some that night. We told him we would go the next day, but he had to use his money for it. He said that was fine, so we asked how much he would like to spend. He said, 'It's for people who don't have any, right?' We said yes, so he very matter-of-fact said, 'Well all of it!' And he did!"

Rajahn said everyone has been very encouraging and people are starting to order their own version of the t-shirt with "#blakesfriends" added to it.

She also shared Blake's reaction to hearing that his shirt idea was starting to spread on Facebook—and again, it's just the sweetest darn thing.

"Ever since I posted about my son and his shirt, I have sold some and told Blake about it. He said, "Oh good! Now more and more people are going to have more and more friends!" He is just so flattered so many want to be his twin too 😊"

Sometimes all a person needs is one friend so they won't feel alone, and Blake going out of his way to make sure kids feel welcomed by him is an example even adults can learn from. If we all reached out to people who might be shy or who might feel excluded, and let them know in some small way that we are open to being friends, what a better world we could build.

Thank you, Blake, for bringing some much-needed sunshine into our day.


This article originally appeared on 8.2.19

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Family

Parents share their kids' hilarious reactions to learning about how sex works

Kids really do say the darndest things.

Photo by Cassidy Dickens on Unsplash, @meganmuircoyle/Twitter, @Laruazaugg/Twitter

One of the greatest parenting milestones is the day you get to explain to your children the basics of sex.

Sometimes that day arrives because a kid bluntly asks how babies are made, sometimes parents bring it up so their kids to hear it from them before they hear it from other people, and sometimes it's a result of an unexpected encounter (like a kid walking in on their parents doing the deed).

However you arrive at it, that initial conversation is always interesting. No matter how prepared you think you are, some awkward hilarity is inevitable as you navigate those new waters. Sex is pretty simple on the one hand, but quite complicated on the other, and figuring what details to share at what stage is a tricky balancing act.


Some kids are open and curious and ask a million questions. Some kids are quiet and reserved and process it all in their own sweet time. But the first reaction of most pre-pubescent kids when they first hear about the mechanics of sex, even if you introduce it in a sex-positive way, is something along the lines of "What?? Are you serious? EW." And when they connect the dots that their parents had sex in order for them to be alive, the reaction gets even funnier.

A thread on Twitter illustrates how true this is as parents share their children's reactions to hearing about the birds and the bees.

Clearly, Megan has three kids. Logic.

Some kids let questions slip out before thinking about whether they really want to know the answer. Once you know it, you can't unknow it. Sorry, kiddo.

@meganmuircoyle On a summer walk my 1 boy(9) was asking ? about sex & I explained everything. My husband was away f… https://t.co/0hHQQxUFgt— arlene geerlinks (@arlene geerlinks) 1612372163.0

Parents have to be prepared for awkward questions, but sometimes you really can't predict what a kid might want to know. Kids aren't exactly known for having boundaries, and that's doubly true for a topic that's totally new for them.

Most of us don't like to imagine our parents having sex, so this is one area where kids who are adopted have somewhat of an advantage (until they learn that procreation isn't the only reason people have sex).

It's not just the questions, but the declarations that come along with kids learning about sex that can take parents by surprise.

It's always entertaining to see a kid's understanding move from innocence to reality.

@meganmuircoyle when he got older I told him about the cervix, contractions, labour etc and he was like "oh. okay.… https://t.co/u7mnCiVYUg— L. (@L.) 1612384726.0

And even more entertaining when you realize that you were the one who inadvertently introduced your kid to a sexual concept you may not have been prepared to discuss.

And then there are the unintentional misunderstandings that occur when kids don't get quite enough information.

Perhaps the funniest part about talking about sex with kids is how actually kind of weird the physical act really is when you think about it. Of course it seems absurd to children who haven't sexually developed yet.

In fact, some kids find it so weird, they literally don't believe it.

Like, what the heck with this design? And they don't even know at this point about the nitty-gritty details that you only really know once you've done it.

As funny as these stories are, the fact that parents are having open and honest conversations with their kids about sex is seriously awesome. Some people do their kids a disservice by being too creeped out to talk about it, or maybe worrying they'll give too much info, so they don't talk about it.

Whatever your moral perspectives on the topic, sex is part of life. It's basic health and biology. It's a human reality that everyone learns about one way or another, and it's generally better for kids to learn about sex from their parents than from their peers, who might give wrong information. Starting early by answering kids' questions matter-of-factly, giving age-appropriate details (which admittedly can be hard to discern), and bringing up the topic occasionally if your kids don't can help kids ease into a healthy understanding of sex.

While the basic mechanics conversation is indeed a parenting milestone, the best parent-child conversations about sex are ongoing and ever-expanding. Making consent and boundaries part of the conversation is vital as well. Some uncomfortable moments may be inevitable, but keep the line of communication wide open will go a long way toward helping kids prepare for what's to come.


This article originally appeared on 02.04.21

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Education & Information

A boy with dwarfism struggled to get his lunch. So a cafeteria worker made him a souped-up cart.

He went from struggling to stylish.

via Beaverton School District

Julian Worsham gets a new cart.

Six-year-old Julian Worsham of Beaverton, Oregon is like a lot of other first-graders: he loves Super Mario and Taekwondo. But he has achondroplasia, the most common form of dwarfism, and goes to a school that wasn't built for kids his height.

"He's born into a world that just, in some ways, is not built for him," Julian's father, Brett, told WHAS11.

His mother did a walk-through before his first day at school to make sure he wouldn't run into any problems because of his height but forgot to check the cafeteria. [We] "noticed that where the food was, was right at his head," Heather told the Beaverton School District. Then, to make things more of a struggle, he had to carry his tray outside to the lunch benches.

The school made him a makeshift cart out of an upside-down milk crate on wheels to help him transport his lunch from the cafeteria to the benches.

"When I saw it I thought, 'Wow,'" said Enedelia Mottram, who's served lunch for the school district for 18 years. "I just wanted to help Julian, because I mean his head barely reaches the lunch line. He can't see anything."

Julian's first cart wasn't cutting the mustard.

via Beaverton School District

That night, she talked to her husband, James, a metalworker, to see if he could come up with something better. He got his team together at Wright Manufacturing in Portland to create a new cart that allowed Julian to transport his lunch tray and see over the counter.

James told the Beaverton School District that he wanted to make something that Julian would be "proud to push around."

James and his team put together a badass cart with adjustable, handlebar grips just like a motorcycle that has a stool inside so he can reach the countertop. It is adorned with flames and a personalized license plate that says, "JULIAN."

Julian's parents were blown away by the care and creativity that was put into creating his cart.

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"They took the time to get those license plates with his name, which is just like, they just really put a lot of heart into it. So when I saw it, the first thing I saw was actually a picture of James and his team who made the cart and I cried. It's just such a sweet thing," Heather said.

Julian loves the license plate and the flames and is now able to grab his lunch and get out to the benches in style.

"He's independent now," said Mottram. "Before, a staff member [would] have to be there to help him," she said.

Heather hopes that the story will inspire others to reach out and help other people in need.

"There's just wonderful people in this world that, you know, they have their eyes open. They're seeing needs that need to be met and they're meeting them. So I hope that other kids can get their needs met through this," she said.


This article originally appeared on 11.3.21

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People are ready to throw down for an adorable little girl who just wants her pencil back

You have to hear Taylor tell her story to understand why this travesty of justice went viral.

@tabgeezy/Instagram, Charlotte Clymer/Twitter

In a time of increased frustration with our public school system, a 2nd grader is giving us someplace to channel our frustrations.

In a hilarious video rant, a youngster named Taylor shared a story that has folks ready to go to the mat for her and her beloved, pink, perfect attendance pencil.


Instagrammer @tabgeezy shared a video of her daughter telling the story of how she put her perfect attendance pencil—the pink one that she had legitimately earned—in the classroom box of pencils to be sharpened.

But when she went to retrieve it from the sharpened pencils box, all she found were plain yellow pencils. That's because Lizzie—who, by the way, had not earned a perfect attendance pencil because she had gone to CANADA—was using it. And not only that, but Canada Lizzie then lost Taylor's pencil in her desk, and her teacher was no help.


You have to hear Taylor tell it to understand why this travesty of justice has gone viral.

If you think this pencil battle is of no consequence whatsoever, think again. People on Twitter got hold of the video, and folks are rallying behind Taylor as if that pink pencil is our democracy and Taylor and Lizzie are the House and Senate.

"Lizzie" trendied on Twitter as people called out the little girl who went to CANADA and then dared to take Taylor's perfect attendance pencil.

There were some shout-outs to Taylor's classmate who understood what that pencil meant to her.

But Taylor's teacher certainly wasn't getting any love.

Twitter's collective reaction even started getting its own GIFs.

People had so. many. feelings. about baby girl getting back her pencil, about the way her mom and teacher dismissed it as "just a pencil," and about poor little Lizzie who probably still doesn't understand what all the fuss is about.

Why do we care so much? Adorableness aside, we're all a little burned out on politics and the methodical dismantling of our country's checks and balances, so maybe getting charged up over an adorable little girl's pencil injustice somehow feels cathartic.

Hope you get your pencil back soon, Taylor. We all need a little glimmer of hope that justice can, indeed, prevail.


This article originally appeared on 01.31.20

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Health

Jimmy Kimmel tested on their knowledge of female anatomy and they failed hilariously

SIX ovaries?!

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"What Do You Know About The Female Body?" from Jimmy Kimmel

When Jimmy Kimmel takes to the street, you know you’re in for a good laugh at just how little we actually know about, well, seemingly anything. That goes for anatomy too. In this case, female anatomy.

In a segment called “What Do You Know About The Female Body?” men try—and hilariously fail—to answer even the most basic questions, like “does a female have one uterus, or two?” much to the amazement of some of their female partners.

Here are some of the very best bits of nonwisdom:

Woman have LOTS of fallopian tubes and ovaries, apparently.

When asked, “how many fallopian tubes does the average lady have?” one man prefaced with “I know I’m gonna be way off,” before answering “four.”

He was right about being way off, indeed. Women usually have one fallopian tube on either side of the uterus, making that two fallopian tubes.

Another guy guessed that a woman has not one, not two, but six ovaries. Which, in case you didn’t know, is three times more than the correct answer (two ovaries, one on either side of the uterus). Where would a woman keep four extra ovaries? Her purse?

A mammogram examines the stomach.

The interviewer also asked: “What part of the body does the mammogram examine?"

"The lower half…" replied one man. Yikes.

And when asked to demonstrate where exactly the “lower half” is, he gestured toward the uppermost part of his belly, seemingly avoiding the actual area a mammogram covers entirely.

PMS is all in the mind, but only annually.

man in green black and yellow floral button up shirtPhoto by Taylor Deas-Melesh on Unsplash

The next question up was “What does PMS stand for?"

One man shyly answered, “Post…mental…syndrome?”

One outta three ain’t bad. But the correct answer is premenstrual syndrome.

And it definitely happens more than “once a year.”

An IUD is a “mammogram device.”

Oh, and a NuvaRing is a “pap schmear,” and a speculum is the actual “IUD.” Holy moly, if you thought IUDs were uncomfortable before…

Things really took a turn once the graphics came out.

And men were asked to point to where the cervix is. Plenty of things were pointed at—like the uterus. But sadly, no cervix findings.

Changing gears, the interview instructed the men to “point at something you know.”

To which one man replied (inaccurately) “uh…that’s a baby?”

Unless the woman is giving birth to a colon, that was incorrect.

Later in the video, a man is asked “where does the baby go?”

“In there,” the man answers after pointing to the ovaries. (Spoiler alert: It doesn’t go there. A fetus grows in the uterus, which this man thought was the cervix.)

His wife, a gynecologist no less, chuckled “I’m mortified…I’m apparently not a very good educator at home for my husband.”

Though this is just for pure fun, it is food for thought.

A woman’s autonomy over her own body has been the subject of much controversial discussion lately. And I can’t help but wonder how certain politicians/leaders would fare if given the same questions. Perhaps it is unwise to try to govern that which is not fully understood, just saying.


This article originally appeared on 01.14.22

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