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In men, it’s Parkinson’s. In women, it’s hysteria.

In men, it’s Parkinson’s. In women, it’s hysteria.
via Columbia Social Work / Twitter

This article originally appeared on ProPublica. You can read it here.

Once it was called "hysterical" movement disorder, or simply "hysteria." Later it was labeled "psychogenic." Now it's a "functional disorder."

By any name, it's one of the most puzzling afflictions — and problematic diagnoses — in medicine. It often has the same symptoms, like uncontrollable shaking and difficulty walking, that characterize brain diseases like Parkinson's.

But the condition is caused by stress or trauma and often treated by psychotherapy. And, in a disparity that is drawing increased scrutiny, most of those deemed to suffer from it — as high as 80% in some studies — are women.

Whether someone has Parkinson's or a functional disorder can be difficult to determine. But the two labels result not only in different treatments but in different perceptions of the patient. A diagnosis of Parkinson's is likely to create sympathy, but a functional diagnosis can stigmatize patients and cast doubt on the legitimacy of their illness.


Four in 10 patients do not get better or are actually worse off after receiving such a diagnosis and find themselves in a "therapeutic wasteland," according to a 2017 review of the literature by academic experts.

"This is the crisis," said University of Cincinnati neurologist Alberto Espay, the author of guidelines on diagnosing functional movement disorders. "It shouldn't be stigmatized but it is. No. 1, patients are wondering if it is real. 'Does my doctor think I am crazy?' Secondly, doctors can approach it in a way that implies this is a waste of their time."

A study published last year in a leading neurological journal stoked the growing controversy. Of patients diagnosed with functional symptoms, 68% were women. This finding, the authors wrote, "suggests that female sex may be an independent risk factor for the development" of functional symptoms.

The study prompted a furious letter to the journal's editor from Dr. Laura Boylan, a New York City neurologist. She argued that the study's results might demonstrate instead that symptoms thought to be psychogenic were actually the result of Parkinson's, and that doctors were slow to identify the brain disease in women.

"Disparities in healthcare for women are well established," she wrote, adding, "Women commonly encounter dismissal in the medical context."

For Boylan, the issue was more than a professional debate. It was personal. She had been diagnosed with Parkinson's-like symptoms that her doctors, all top caregivers at some of the world's leading medical institutions, largely believed to be psychogenic or side effects of medication.

via PixaBay

Most of her doctors were men, but two were women. Boylan, herself a brilliant neurologist, disagreed vehemently with them. She attributed her problems to a physiological cause, a tiny cyst in her brain, and grew despondent when other neurologists doubted her theory. She gave up her medical practice, became housebound and contemplated suicide. Even today, her case remains a mystery.

The first sign that something was wrong came in 2008.

At the time, Boylan was busy with a successful career that included work as a teacher, researcher and clinician. She was an assistant professor of neurology at the New York University School of Medicine; the director of the behavioral neurology clinic for the VA in New York City; and an attending physician at a hospital in Pennsylvania.

She was married to another neurologist, Daniel Labovitz, who is a professor at the Albert Einstein College of Medicine and practices at Montefiore Medical Center in the Bronx.

It was while driving at night on a Pennsylvania highway that Boylan experienced a vivid hallucination. She saw a cartoonish chipmunk on the steering wheel, smiling and waving at her. Another time, two blue men with red hats appeared on either side of her. She knew the images were not real, but she couldn't make them go away.

Her doctors at the time blamed the hallucinations on side effects of psychiatric medicine Boylan took for her long-diagnosed bipolar disorder. Her bipolar condition would later add another element of uncertainty to the debate over her Parkinson's-like symptoms.

Studies show that people with preexisting psychiatric disorders are more likely to develop Parkinson's — or have a functional disorder with similar symptoms. Boylan said she sees a psychiatrist for the bipolar disorder, but it's "just not a big deal in my life."

Over time, her health continued to worsen. In early 2011, during a tai chi class, she had difficulty balancing on her right leg. Later, she also noticed muscle twitching in her feet and legs.

Boylan was worried that some of her symptoms mirrored those found in patients with amyotrophic lateral sclerosis, or ALS, a rare and degenerative neurologic disease that affects the ability of muscles to function. ALS, also known as Lou Gehrig's disease, was ruled out by a specialist, but an imaging scan performed as part of that exam revealed a small cyst on the front right side of her brain.

The location and type of cyst are considered rare. At the time, Boylan and the neurologist she consulted didn't believe the cyst was causing her movement problems and chalked it up as an "incidental" finding not to be concerned about.

In the fall of 2013, Boylan experienced a three-day bout of double vision that forced her to miss work. The episode was disturbing because it left her, for the first time, unable to perform her duties as a doctor.

About a week later, she went to see Janet Rucker, then a neuro-ophthalmologist at Mount Sinai Medical Center. Rucker diagnosed convergence insufficiency, a condition in which the eyes are unable to work together to focus on close by objects. Rucker thought it unlikely the brain cyst was causing the vision problem and believed it was more likely related to medication Boylan was taking, according to her notes.

via Bryan Jones

Boylan returned home unconvinced by Rucker's opinion. Her vision improved enough to allow her to research the condition herself. She said she found instances where levodopa, a medication used to treat Parkinson's that she had prescribed many times for her own patients, helped alleviate the vision problem.

She decided to take her treatment into her own hands and took levodopa she prescribed for herself. Boylan knew the decision to test her own theory was a direct challenge to Rucker's competence.

While legal, self-prescribing medication is considered an unsound practice by some in the medical establishment. Physicians who treat themselves risk removing the objectivity usually present in a doctor-patient relationship, which can lead to poor decisions.

Within an hour of taking the levodopa, Boylan's eyes converged and the vision problem cleared. That wasn't all. Involuntary tremors and twitches stopped. She later wrote that she "felt years younger" and "moved much better" immediately after taking the drug.

For Boylan, the experience with levodopa confirmed what she had come to suspect; that the cyst in her brain thought to be harmless was in fact causing her Parkinson's-like symptoms. (In Parkinson's, nerve cells in the brain that help control body movements break down or die.)

If she had a functional disorder, the drug should have no effect. She excitedly dashed off an email to Rucker reporting her success and attached a video showing her eyes working properly.

"That is a pretty impressive effect," Rucker replied. She wrote that she rarely recommended the drug for convergence insufficiency, but given Boylan's improvement, "perhaps I'll recommend it more often."

Rucker, however, didn't appear to think the cyst was responsible for Boylan's double vision, calling it the "least likely" of options, according to her notes of the case. More likely, she wrote, it was related to other medications Boylan was taking.

Boylan didn't learn about the contents of the medical notes from her visit until later. Boylan, who believed her recovery proved that the cyst was the origin of her double vision, was insulted.

"That I solved this problem with levodopa, documented it, and returned to work the next day might be taken as evidence of my skill rather than having a screw loose," she later wrote to Rucker, who declined comment for this story.

Levodopa is a potent drug used to control tremors and stiffness in Parkinson's patients. The development of the drug, and what it revealed about how the brain works, was an important breakthrough that won one of the researchers involved the Nobel Prize in medicine in 2000. But levodopa can also produce side effects that include involuntary movements, from tics to sudden, jerky body motions, different from those that it had alleviated in Boylan.

Boylan decided to continue taking the drug, but wanted another neurologist to help manage her situation. She chose Elan Louis, a neurologist who had been just ahead of her in the Columbia residency program. Boylan told him she was serving as her own neurologist and that her situation was "getting acutely worse."

via pixabay

The two doctors saw each other at the occasional reunion, but they were not close. Boylan largely knew of Louis by reputation. He is considered one of the leading experts on movement disorders and is the editor of Merritt's Textbook of Neurology, a standard clinical guide in the field.

He practiced at Columbia when Boylan first began seeing him in late 2013 but was recruited to Yale University in 2015 to serve as chief of the movement disorders division in the neurology department.

Louis had not treated a specialist in his own field before. The relationship proved challenging. Boylan has a combination of intelligence and passion that attracts devoted friends. Louis described Boylan as "super smart" and someone who was constantly digging into the medical literature to learn as much as she could about her symptoms and the cyst in her brain.

She could also be blunt and confrontational. Boylan was one of several people arrested a decade ago for refusing to leave a U.S. senator's office as part of a sit-in advocating for single-payer health care.

She was also an early proponent of limiting the perks that pharmaceutical companies give doctors to encourage them to prescribe their drugs, a stance that irked some colleagues but also won her admirers. Boylan was not hesitant to challenge her own doctors' assessments, as she had done with Rucker. With a mix of pride and contrition, she describes herself as a difficult patient.

In one email exchange in 2015, Boylan appeared miffed that Louis did not believe that a bout of heart palpitations and dizziness was related to her brain cyst. "I wish you'd responded earlier when you found my questions odd/unreasonable," Boylan chided Louis. "At present I know more about this area than you and yet seem crazier because of it."

At least 10% of the patients who seek help for movement disorders at the Yale clinic are determined to have a psychogenic, or functional condition, Louis said. At other neurology clinics, the number is as high as 20% and second only to headaches as the reason for seeking help.

To determine if a condition is functional, neurologists identify symptoms that don't match with physiological movement disorders. In Boylan's case, the cyst was on the right side of her brain, which meant it should only cause symptoms on the left side of her body. The right leg weakness she experienced at tai chi, for instance, didn't fit with this.

Then there are a series of tests that can help determine if movements are genuinely involuntary. One group of tests is designed to distract a patient. A patient with a left arm tremor, as was the case with Boylan, might be asked to extend that arm out and then use the hand on the other arm to tap out a sequence of numbers.

As the neurologist calls out for one tap, four taps, two taps and so on, he or she is watching to see if the tremor on the left side stops as the patient focuses on the tapping.

When Louis performed these tests on Boylan, she knew exactly what he was assessing. She administered the same tests to her own patients. To Boylan, the fact Louis was even doing the tests meant he had already concluded some of her symptoms were psychogenic. "I knew I was going to fail," she said later, adding that the tests are not always a valid indicator.

"I tried so hard to do things properly that it can look extreme." Louis observed that Boylan's tremor stopped when she was distracted. "If something is truly involuntary, it should persist whether someone is paying attention or not," Louis told me. He agreed with Boylan that the tests are not foolproof, but said that they are useful in evaluating a case.

In his initial assessment of Boylan, Louis referenced the brain cyst and possible medication-induced effects as well as the possibility that "something else is going on here." The difficulty, he noted, was "piecing it all together."

To help solve this puzzle, with Louis' encouragement, Boylan consulted two neurosurgeons.

The first, at Columbia Presbyterian, wrote the cyst might be playing a role in her tremors but warned surgery should only be considered as a "last resort." The second, at Mount Sinai, was skeptical the cyst was playing a role, writing, "It is difficult for me to pin the presence of this cystic lesion on her worsening symptoms."

After the appointments with the surgeons, Boylan returned to see Louis on Nov. 14, 2013. Louis told her he saw some "psychiatric overlay" in her symptoms and said there may be something "organic beneath a lot of overlay," according to his notes.

He estimated that perhaps 70% of her symptoms were psychiatric in nature. He doubted the brain cyst was causing her rapidly worsening symptoms. It "doesn't fit," he wrote. He noted Boylan "was not happy about this but seems to have accepted it during subsequent emails/phone calls."

Louis told me that Boylan's case was "very complicated" because some of her symptoms and the cyst in her brain were rare. "Her syndrome is difficult to neatly put in one box," he said. "That is why she has defied diagnosis and had a difficult time."

A psychogenic diagnosis, he said, is hard for patients because "there is a feeling with people that it is not real, it is all in our head and imaginary and undervalues and devalues what they are going through. No one wants that."

While Parkinson's is treated with medications such as levodopa, patients determined to have a functional or psychogenic condition are often prescribed psychological regimens such as cognitive behavioral therapy. Louis said he has worked successfully with a Columbia psychiatrist to treat functional patients.

"We have had patients unable to walk who were walking out two weeks later," he said. Louis said he discussed Boylan's case with her psychiatrist to share his evaluation of her situation and to coordinate medications. Her psychiatrist referred her to behavior therapy, Boylan said. "I did a round," she said. "It helped me tolerate problems but did not change them."

The more Boylan tried to convince others that the cyst was causing her problems, the more she felt she was viewed with suspicion. It became an obsession. Louis once remarked to Boylan that no one in the world knew as much about the square inch of brain where the cyst was located as she did.

Despite their clashes, Boylan respected Louis. When he delivered his diagnosis, it caused her to second-guess her theory about the cyst. She also believed that some of her doctors used her bipolar disorder to cast doubt on her complaints.

Her symptoms worsened and the stress overwhelmed her. On Dec. 9, she was admitted to the emergency room at St. Luke's Hospital with severely elevated blood pressure and stress-induced cardiomyopathy, a heart muscle disease that makes it harder to pump blood. When a cardiologist inquired if she was under stress, Boylan tearfully told her, "My doctors think I am hysterical."

As 2014 wore on, Boylan needed increased doses of levodopa to get the relief she first experienced when self-treating her double vision. It was a vicious circle. She needed the medicine to help with her with her lack of balance, which was causing her to fall, as well as her vision and left arm tremor. But the side effects from the medicine were severe.

On a Sunday afternoon in September 2014, Boylan stumbled out of a taxicab onto the sidewalk in front of the emergency room at NewYork-Presbyterian/Columbia University Medical Center. A couple of ambulance workers noticed she was having difficulty and helped her into a wheelchair.

Boylan was gaunt. She had lost more than 30 pounds since the beginning of the year. In the preceding days she slept little. Her body was twisting up in uncomfortable and unusual positions, making it hard to walk.

Her head jerked and her knees pushed together as she bent forward. She was unable to control the movements. In a brief video taken after she was admitted to the hospital, Boylan leaned against a wall with her head slumped awkwardly to the side as she waited to use a bathroom.

To the doctors who attended to Boylan, her condition was disturbing. They knew her as an accomplished neurologist who trained and mentored a new generation of doctors. She was a familiar face at Columbia, having done her medical residency there in the late 1990s. On this day, Boylan appeared paranoid and agitated. She argued with doctors about medication and their assessment of her condition. She complained that her husband thought she was crazy.

Her case defied an easy diagnosis. "She is a quite complicated movement disorders patient," one of the treating physicians at Columbia noted.The attending neurologist at the hospital that weekend thought Boylan was suffering from "mild psychosis" with contributing factors that included fatigue and the side effects of medication.

The doctors noted Boylan recently received a distressing email about a former patient who was dying; the implication was that this was a possible source of a psychogenic effect. Louisa Gilbert, a friend of Boylan's, said that when she arrived at the hospital she found doctors treating Boylan as a "psych case."

Boylan left the hospital after one night. In the following weeks, her condition worsened. She stopped working and was largely homebound. Her diet was poor, consisting primarily of ice cream and grapefruit juice, and she continued to lose weight. She was again having trouble reading and developed severe writer's cramp that she attributed to the brain cyst.

Boylan grew dependent on others to take care of her, including Gilbert, whom she first met at boarding school. A professor of social work at Columbia University, Gilbert always admired Boylan for her resiliency. Boylan went through her last two years of medical school while a single parent. She never missed work. Now there were days when Gilbert would show up at Boylan's apartment and find her friend writhing on the floor, unable to get up.

"It was so bewildering," Gilbert said. "What the hell is going on?"

By December, Boylan was spending hours lying on the floor of her apartment while sipping orange juice to speed up the absorption of the levodopa she was taking to stave off muscle spasms. She was now separated from her husband; they would later divorce. Alone and unable to work, Boylan despaired and made plans for suicide. "I had and am still having emotional meltdown over this loss of profession/vocation/self-definition," she wrote in an email to her brother, Ross, in California.

Ross and Laura Boylan were the only children of a corporate lawyer and a homemaker. For most of their youth they lived in an apartment near the Metropolitan Museum of Art on Manhattan's Upper East Side. Their mother suffered from severe mental illness and was hospitalized a number of times. Their father was an alcoholic. The couple often argued. Laura was happiest when she was out of the apartment, and she often spent summers away from the city.

The Boylan siblings both attended boarding school at Phillips Academy in Andover, Massachusetts, but rarely interacted there. Ross was two years older and each of them moved in their own circles. Laura returned to New York City to attend Barnard College. Ross went on to Harvard University and then moved permanently to the west coast.

In her December 2014 email to her brother, Boylan wrote "bad news" in the subject line. She said the brain cyst was causing "more and more problems." She shared that she gave up clinical practice because of "fatigue, stamina, vision and other problems." She said there was a "small possibility of neurosurgery" but she wasn't sure it was worth the risk, and she doubted any surgeon would take the chance anyway. She said her symptoms were getting progressively worse and there was no cure.

Ross Boylan responded with a short note that ended with a touch of optimism. "The future is not written," he wrote.

The email from his sister caught Ross Boylan off guard. "I thought she was doing OK," he said in an interview. "Then she sends me this email, oh by the way every single sphere of my life is collapsing." The doctors she consulted seemed to be uniform in their view that her brain cyst was irrelevant and that removing it would be pointless and probably dangerous, Ross Boylan said. "It's impossible to operate, and nothing could be done about it," he said. Most concerning, it seemed to him that the "fight had gone out" of his sister.

Ross Boylan is a research statistician at the University of California, San Francisco, and his department frequently works with doctors at the medical school there. Among all the specialists at the university, he figured there must be one who could help his sister. He didn't tell Laura that he was going to try to help. He was afraid she would tell him not to bother, and he didn't want to get her hopes up in the event his efforts failed.

On a webpage for the university neurology department, Boylan came across a group photo that included his boss. It turned out his boss had done some statistical work for the research team of neurosurgeon Michael Lawton. An introduction was made. Ross Boylan gave Lawton what information he had about his sister's condition, and within days Laura Boylan was in contact with the surgeon by phone and email.

"My hunch is that operating on the cyst will help and I am ready to proceed," Lawton wrote her. "You can appreciate that we surgeons like to be certain that our efforts are going to be curative, and in your case I can't be sure. Nonetheless, I think this operation will be safe and I am ready to move forward whenever you are."

Boylan decided to go ahead with the surgery and booked a flight to San Francisco.

Lawton told me that the cyst was located in an area of brain circuitry that is disturbed in Parkinson's patients and could be the cause of her movement disorders and double vision. "It fits," he said. "It's right where that kind of lesion would produce those symptoms." Nonetheless, he said he cautioned Boylan the procedure could be done perfectly with no complications yet have no therapeutic effect.

Louis said he wasn't certain if the surgery was a good idea. "I deferred to the surgeon," he said. "There was little margin of error, and that made it a very complex decision." Others close to Boylan were concerned about the speed in which the decision to operate was made and that Boylan decided to go ahead before even meeting with Lawton in person.

Boylan herself confessed in an email to a colleague days before the operation that she felt "in over my head" in arranging the surgery and was "beginning to think this is not a good idea."

via PixaBay

On Jan. 9, 2015, Lawton and his team performed a nearly five-hour craniotomy on Boylan in which part of the bone in her skull was removed to expose her brain. The cyst was drained and a piece cut out to prevent it from accumulating fluid in the future.

Boylan was worse off in the weeks after the surgery. The awkward, twisting movements persisted. She couldn't use her right arm. She didn't know if she would recuperate to a life worth living.

About a month after the surgery, Boylan saw neurologist Rebecca Gilbert at NYU Langone Medical Center. Boylan arrived for the appointment wearing an eye patch and an arm sling.

Gilbert's notes of the encounter make it clear she thought Boylan's symptoms, even after the surgery, might be psychogenic. A right side tremor was "inconsistent" and abnormal movements were "variable and erratic" and only "present during the formal exam."

In contrast, when "patient is telling her story, there are no abnormal involuntary movements." Gilbert wrote that she was "very concerned that at least part of this neurologic picture is psychogenic in nature."

By mid-March, just a month later, Boylan's condition improved significantly. On March 21, she sent an email to Lawton with the subject line "have turned a corner." She said her symptoms were improving and she was "back out and about in the world."

She told him he had "given me my life back." She also criticized those who questioned the wisdom of her decision to undergo the operation. "I confess that, in accord with my own pre-existing bias, some neurology pals have thought I must have found a cowboy who took a lucky long shot," Boylan wrote. "I correct them carefully in detail."

Ten days later, Boylan saw Gilbert for a follow up appointment. Gilbert wrote that Boylan "returns looking very well. She feels well neurologically and psychiatrically. She attributes her improvement to the surgery." Gilbert declined comment on Boylan's case.

By June, Boylan was back to work.

On a Sunday morning this spring, Boylan sits at a conference table in the neurology department at Bellevue Hospital in Manhattan, the country's oldest public hospital. The room is sparse save for a large, formal portrait of the former head of neurosurgery. The painting does not escape Boylan's notice. Like many of the leading figures in neurology, the former official is a white male.

Boylan, 57, is dressed casually in black pants and a flower-print blouse. A lanyard with a Bellevue identification tag hangs from her neck. On this morning, she is the attending neurologist, overseeing medical residents. In addition to Bellevue, Boylan does part-time stints at a hospital in Duluth, Minnesota, and a VA facility in Albany. She has regained the weight she lost when her illness was at its worst, as well as the mental sharpness that dulled during that time.

Across the table, a resident briefs her about a woman who arrived in the emergency room the day before. The exchange is thick with medical terms, but there is a clear point to the back and forth: They are trying to determine if the woman's symptoms are functional. The patient complained of a generalized burning sensation.

That's the type of vague complaint that could point to a psychogenic diagnosis. On the other hand, the resident said the patient reported having problems with her coordination, but not with her strength. People with functional disorders might also indicate they were weak, because they tend to have a wide array of complaints.

When the resident pulls up a scan of the woman's brain on a screen mounted on the wall, Boylan points to an area that she describes as a "little bent" with a "kink in it." This is potential evidence, she says, of a cerebral fluid leak. The woman recently underwent an epidural injection and fluid leaks are a known complication of the procedure. Boylan talks to the patient and comes away confident a leak is the problem. The remedy is intense rehydration. The patient improves, and is released the next day.

Afterward, Boylan said her own experience has prompted her to evaluate cases more carefully. She said she also has to guard against failing to recognize cases that may, in fact, be psychogenic. "I have to be careful not to lead the patient," she said.

After her surgery, Boylan requested copies of her medical records from most of the doctors who treated her over the prior five years. She was angered to find that several of them highlighted her history of bipolar disorder — in some cases it was the first item entered — and discounted the role of the brain cyst in her symptoms.

Boylan believes that many of her doctors discounted the brain cyst because of a predisposition toward diagnosing psychogenic conditions in women, and that her case is symptomatic of gender bias in the field of neurology.

"I don't believe I would be treated this way if I was a man," she said. By sharing her experience publicly, Boylan is determined to counter what she views as an ingrained suspicion of symptoms reported by women that dates back to the use of the word "hysterical" to demean them as emotionally and physically weak and prone to exaggeration.

She calls it a "pervasive and potentially lethal bias" in neurology.Gender inequality is rife in neurology. Female neurologists were last in pay and had the biggest salary gap between men and women, in a 2016 survey of salaries by specialty and gender at medical schools.

The American Academy of Neurology has had only one female president in its 71-year history even though women now constitute 40% of the professional society's membership. Female neurologists are also disproportionately underrepresented in awards handed out by the academy, according to a study last year. In 24 of the 28 years studied, the recipients of the academy's lifetime achievement awards did not include a single woman.

The more difficult question is whether this inequality spills over to clinical practice. Boylan received care from both male and female specialists, and her medical records are devoid of outright indications of gender bias. Boylan said female neurologists are trained "in a paradigm of thinking generated by men for men" in which the same symptoms are viewed differently in men and women.

Louis said there was no gender bias in his evaluation of Boylan. He said functional disorders are "far more common" in women and "if a person is that gender I am more comfortable with that diagnosis." Still, gender is "only one of many, many pieces of information" used to make a diagnosis, he said.

Dr. Sarah Lidstone, a specialist in functional movement disorders at Toronto Western Hospital, said it is "impossible to say" that gender bias doesn't exist in diagnoses of this condition. "That does factor into that." Still, she said, there appear to be real gender differences. "We don't know why. It's complicated."

Researchers are working to figure out whether women are disproportionately diagnosed with functional disorders.

"We don't know what is right or the whole truth necessarily," said Dr. Mark Hallett, a senior investigator at the National Institute of Neurological Disorders and Stroke. He said one study underway is looking at whether women suffer more childhood trauma, particularly sexual abuse, than men and if that is a cause of functional disorders.

He said he didn't believe that gender bias played a significant role in the fact that women receive the diagnosis more often than men, and he said other explanations may include hormonal differences between the sexes or that women may be more likely to seek treatment.

It's impossible to know for certain how Boylan got better. The workings of the mind are complex and our understanding of diseases of the brain and of psychology is constantly evolving. It may be that, as Louis suspected, a combination of factors was at work that include both a psychogenic component and the brain cyst.

"To me, where she is now is nothing short of a miracle," said Boylan's friend, Gilbert.

I asked Lawton if Boylan might have experienced a placebo effect from the surgery. While that can happen, he said, Boylan's relief and turnaround "was pretty significant to the point that it outlasted the typical duration of most placebo effects which I think run their course."

Louis said he believes the surgery "did do some good" and at a minimum removed a cyst that was in a dangerous position. But he is not persuaded it is the main reason for Boylan's turnaround. He suspects many of her symptoms were functional, and sometimes patients with that diagnosis get better over time.

Boylan is convinced her cyst and reactions to medicine to treat the symptoms caused by it were the primary sources of her illness. She views her story as a cautionary tale: She was a woman with means, a degree in medicine and a cyst in her brain. Still, she said, "that did not spare me from being cast as hysterical."

time off requests, pto, sick leave, gen z manager, manager positions, asking for time off

This Manager thinks PTO is for vacation, not "life changing events."

What does it take to be a good boss? You can answer this a million different ways—by being a clear communicator, earning employee trust, providing constructive feedback, and fostering a positive and supportive work environment while also being open to feedback and recognizing your team's contributions—but really, it all seems to stem from respecting your employees as fellow human beings.

Part of that means acknowledging that these employees have lives that are, frankly, more important to them than the job, and not penalizing them for it. One manager, and Gen Zer no less, seems to fully understand this basic principle, and folks are applauding her for it.


Elizabeth Beggs, who manages a five-person team for a packaging distribution company in Virginia, recently made a TikTok sharing which time-off requests she “rejects. ”You’ll see why “rejects” is in quotes shortly.

One example: when a female rep notified Beggs that she was likely having a miscarriage. After the team member asked how she can file for time off to see to the issue, Beggs immediately responded, “Girl, go to the doctor! We’re not submitting time off for that!”

In Beggs’ mind, PTO is for “vacation,” not medical emergencies. What a concept.

@bunchesofbeggs

Edited to clarify- 1. My team is all salary. 2. These examples are not all recent or from my current position. 3. My team works hard and hits thier KPIs above and beyond. Time off is meant to recharge and be used how you need it, not to handle life changing events #mangers #corporate #genzmanagers #sales #vetstocorporate #veterans

Beggs went on to explain a couple more situations, like when one employee—a parent—was “up all night” with their sick kid. And her last one wasn’t even negative—she had an employee who wanted to work a half-day to do something nice for their anniversary.

“Seriously, if any of these triggered anyone, then you need to evaluate how you run your team as a manager,” she concluded.

By and large, the response to Beggs’ management style has been overwhelmingly positive, and people seem to find it completely refreshing.

“You are not a manager, you’re a LEADER,” one person wrote.

@bunchesofbeggs

Everything you do should be to better your team, not to make your life easier #leadership #ownership #corporatelife #veteran #military

Another said, “The better you treat your employees, the more loyal they will be and the better work they will put out. Most people do not understand how management works.”

A few noted how this attitude seems to be more present among younger leaders. One person commented, "millennial manager here. My team members are human first, employees second. Like just go do what you want but get the work done too.”

Another joked that “Boomer managers could NEVER.”

Beggs would later clarify this doesn’t mean she doesn't have clear productivity expectations for her team (who work on salary). Perhaps if she had a team member not making their KPIs (key performance indicators), there would be an additional conversation surrounding time off, but there is still an inherent respect as a fellow human being. Which, to her, means treating bona fide time off as a way to “recharge and be used how you need it, not to handle life changing events.”

@bunchesofbeggs

If you’re planning does not account for people being human- it’s bad planning #genzleaders #armyvet #militaryvet #genz #corporatelife #corporate #manager #timeoff

Younger generations might get labeled “lazy” or “entitled,” but they are also the ones fighting to change the status quo so that we all may be treated less like cogs in the machine, and more like actual human beings. Its leaders like Beggs who show that operating in new ways doesn't compromise productivity—it, in fact, enhances it. We might not be able to change the global standard overnight, but we certainly aren’t going to get to a better place without leaders who choose to serve their community rather than a bottom line.

This article originally appeared in March.

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cheapest states, cost of living, finances, cost of living, $100

Map represents the value of 100 dollars across America.

As the cost of living in large cities continues to rise due to inflation, tariffs, and other economic factors, more and more people are realizing that the value of a dollar in the United States is a very relative concept. For decades, cost of living indices have sought to address and benchmark the inconsistencies in what money will buy, but they are often so specific they prevent a holistic picture or the ability to "browse" the data based on geographic location.

Each year, the Tax Foundation addresses many of these shortcomings using the most recent Bureau of Economic Analysis data to provide a familiar map of the United States overlaid with the relative value of what $100 is "worth" in each state. In recent years, they've further updated their data so that you can break down the value of your money across every single metro area in the United States. It's an incredibly valuable tool for the many people considering (or who have already acted and migrated from states like California to Florida), Texas and other states with friendly state taxes rates and more affordable housing options.


The map quantifies and presents the cost of living by geography in a brilliantly simple way. For instance, if you're looking for a beach lifestyle but don't want to pay California prices, try Florida, which is about as close to "average"—in terms of purchasing power, anyway—as any state in the Union. If you happen to earn (or luck) your way into Silicon Valley tax brackets, head to Hawaii, D.C., or New York. You'll burn through your money in no time. And in some of those places like Hawaii, there are quality of life measurements that often exceed raw purchasing power.

So, where does your dollar go the furthest in 2025? The financial planning site GoBankingRates.com compiled its own list of cash purchasing power across each state and found that in California, you get the least bang for your buck: only $87.42 in real purchasing power for every $100 of cash. The average person in California makes $96,344 annually, one of the higher income levels in the country. However, just living in California on average costs residents a staggering $86,408, leaving the average person with little flexibility for long-term financial planning projects like retirement, saving for a new home, or even buying a new car.

At the other end of the spectrum is Arkansas, where your dollar goes the furthest. In fact, that $100 bill burning a hole in your proverbial wallet is in fact worth more than its technical value, with a real value of $113.49. On top of that, the cost of living is only $37,067, less than half of that in California. Further, the average cost of a new home in Arkansas is $208,743, less than one-third of a new home in California. Not coincidentally, in 2023, Arkansas was the top destination for people moving to another state within the United States, followed by Texas.

family, moving, income, finances, $100 Family moving into a new home. Canva Photos.

How about Florida, which has received outsized attention in recent years for its overt efforts to draw residents from California and other states with higher costs of living? According to the most recent data, Florida is in fact much closer to California than Arkansas, coming in only in 40th place on the GoBankingRates rankings, with $100 in cash only being worth $96.55. However, the annual cost of living is still only slightly more than half of that in California, coming in at $53,505. And if you're looking to buy some real estate, the average home is valued at $404,924. That's still well outside the purchasing power of many Americans, but with built-in advantages such as warm weather and one of the top-ranked state education system in America, it's obvious why so many people, especially those with families, are choosing Florida over California in recent years.

florida, cost of living, finances, $100, education Driving Road Trip GIF by Rosen Hotels & Resorts Giphy

According to U.S. News and World Report's data analysis, California only has the nation's 23rd best education system and is ranked a paltry 37th overall in their state rankings. It's quite a contrast for a state that bills itself on the promise of opportunity, natural wonder, and positive lifestyle options. And with 2025's wildfires (as well as an annually-worsening wildfire season), the constant threat of earthquakes, and other factors, California clearly has challenges beyond economics if it wants to remain one of the more attractive states in the nation.

Of course, those numbers are always in flux, and political leaders in California have promised concrete reforms in order to address the state's high cost of living compared with the value of its social and emergency services. If you want proof of how quickly things can change, look at a similar analysis of the value of $100 in each state from 2015:

- YouTube youtu.be

However, those negative statistical trends aside, California continues to have an incredible pull on our collective imagination. Four hundred twenty-three thousand, one hundred ninety-four Americans left their state for California according to the most recent data in 2023, placing it in third behind our previously mentioned top two states, Arkansas and Texas.

So, it's clear there are a number of factors that determine the best place to live in America. When it comes to raw purchasing power, you cannot beat Arkansas. But there's so much else to consider: public resources like education and healthcare, job opportunities (you probably won't make nearly as much in Arkansas as you might in California) and other factors such as proximity to family, friends, and personal interests.

There's no doubt America is rapidly changing and that includes what people value the most when they decide where to live. In uncertain economic times, the face of America will likely change radically in the coming years with the political, economic, and social landscape shifting in meaningful ways.

This article originally appeared in August.

Carole Wade, Senior Living, music, karaoke, Fleetwood Mac
Cecily Knobler

A woman sings "Landslide" by Fleetwood Mac at karaoke.

On a hot Sunday in July, Carole Wade took the mic at a Dallas senior living facility where my mom lives. I happened to be visiting for the karaoke event, and the list of residents who couldn't wait to put their stamps on their favorite tunes was so long, the event had to be extended. ABBA's "Mamma Mia," David Lee Roth's "Just a Gigolo"—you name it, they sang it.

When it was Wade's turn, the microphone was brought to her table. She took it in her hands as though it was an extension of her fingers as the music cued up. Then, as she began to effortlessly sing "Landslide" by Fleetwood Mac, the room got still. Frozen. All eyes were on her, and most of those eyes were wet. The lyrics, so beautifully fitting:


"Well, I've been afraid of changin'
'Cause I've built my life around you.
But time makes you bolder,
Even children get older,
I'm getting old too."

A man sitting at our table took notice of how emotional I had become. He leaned over to say, "Never stop feeling the music."

I had the honor of chatting with Wade, who at 85, has been singing nearly her whole life. She got started in the business as a backup singer in Elvis impersonator groups in Dallas and surrounding areas. In and out of bands, playing Deep Ellum clubs and local hotels, she shares, "I've been singing since I was a small child. I've loved music all my life."

As luck would have it, she was at a jam session when she started harmonizing with other musicians. They would soon form her most recent band, Psychedelic Oatmeal. They officially stopped playing gigs when she was in her 70s, but they remain close. (She notes her bandmates were all much younger.)

bands, carole wade, music, old friends, singer Carole and her band mates.Carole Wade

They covered classic rock tunes from Stevie Nicks, The Eagles, Janis Joplin, and Led Zeppelin. Songs like "Me and Bobby McGee," "Seven Bridges Road," and "Whole Lotta Love." She laughs that most of the men in the band couldn't hit those Zeppelin high notes made famous by Robert Plant, so she took on the challenge—with great success.

They even branded themselves at gigs, making little Ziploc bags of oatmeal and glitter, which they would throw to the audience at shows. That is, until a club owner asked them to stop, as the oatmeal was mixing with spilled drinks, "creating goo."

Rare footage of Psychedelics Oatmeal.

The band Psychedelic Oatmeal plays in Dallas. www.youtube.com

Wade makes clear that music is her therapy. "If you're down on a certain day, it will bring you up." She has lived a full life, with two grown sons who are both excelling in life. But music, and the friends with whom she makes it, brings her that extra piece of joy and purpose.

Michael Hatcher, the Resident Services Director at The Reserve at North Dallas (the senior facility in which this event was held), has seen firsthand how music soothes seniors. It reconnects them to their purest selves, no matter how hazy their memories might become. Hatcher shares, "They remember the music, and the time. It's a vessel for anyone of age. It can be used to bring someone out of the deepest sun-downing and back to life."

A man sings "Just a Gigolo" at The Reserve karaoke day.

@cdk213

Senior living karaoke! Fabulous! #seniorlivingcommunity #justagigalo #dallas

There is much research to support this. Bannerhealth.com quotes music therapy coordinator Tammy Reiver for Banner Hospice in Phoenix: "Music holds the power to increase dopamine levels (happy hormones), decrease symptoms of depression and pain, and improve a person’s quality of life. Pleasing music plays an important role at every age, but for aging adults, the benefits are even greater.”

As for Wade? She jokes that she and a few other musicians at the senior home have plans to start their own band. She certainly has the chops for it—and the fans.

Education

A fourth-grade teacher asked for 3 'good reasons' for slavery. There was only right answer.

The school assignment was intended to spark debate and discussion—but isn't that part of the problem?

history, Black Americans, school, homework assignment, outrage

A school assignment asked for 3 "good" reasons for slavery.

Back in 2018, a fourth-grader's school assignment was so shocking that it went viral. Every news outlet from ABC7 to HuffPost to CNN reported on the incident, in which a homework assignment asked students to list three "good" reasons for slavery. Yeah, you read that right.

The assignment was given to fourth graders at Our Redeemer Lutheran School in Milwaukee, Wisconsin, and also asked for three "good" and three "bad" reasons for slavery. The absurd and offensive assignment was brought to the public's attention when one fourth grader's mom shared a photo of the homework sheet on Facebook, asking, 'Does anyone else find my 4th grader's homework offensive? 😡"


Now, it's not uncommon for parents to have questions about their kids' homework. Sometimes, it's just been too long since they've done long division for them to be of any help. Or teaching methods have just changed too dramatically since they were in school. And other times, kids bring home something truly inexplicable.

For mom Trameka Brown-Berry, looking over her 4th-grade son Jerome's homework made her jaw hit the floor.

The school assignment was intended to spark debate and discussion—but isn't that part of the problem? The shockingly offensive assignment deserved to be thrown in the trash. But young Jerome dutifully filled it out anyway, and his response was pretty much perfect:

In the section reserved for "good reasons," Jerome wrote, "I feel there is no good reason for slavery that's why I did not write."

We're a country founded on freedom of speech and the debate of ideas, which often leads us into situations where "both sides" are represented. In most cases, looking at both sides of a debate can help people come to a clear conclusion about what's right and what's wrong. But in this scenario, there is no reason that a child should ponder the positive benefits of slavery. There's no meaningful dialogue to be had about the perceived merits of stripping human beings of their basic living rights. No one is required to make an effort to "understand the other side" when the other side is bigoted, hateful, and violent.

The principal apologized to the students for the assignment

In a follow-up post, Brown-Berry writes that the school has since apologized for the assignment and committed to offering better diversity and sensitivity training for its teachers.


But what's done is done, and the incident illuminates the remarkable racial inequalities that still exist in our country. After all, Brown-Berry said to WCTI ABC News12, "You wouldn't ask someone to list three good reasons for rape or three good reasons for the Holocaust."

At the very end of the assignment, Jerome brought it home with a bang: "I am proud to be black because we are strong and brave..."


Even though the assignment was offensive, Brown-Berry found a silver lining in the experience for her son. "The moral of the story is, the only way to teach our kids to stand up for their rights and respect is to model it. With all of your support, I was able to give my child a personal life lesson about how change starts with you," she wrote in a Facebook post.

Good for Jerome for shutting down the thoughtless assignment with strength and amazing eloquence, and for being brave enough tell the truth: there are no good reasons for history's most heinous acts. The sooner the world acknowledges that, the sooner we can heal and restore.

This article originally appeared seven years ago. It has been updated.

moms, motherhood, parenting, family, teens, teenagers, letters, tough love, parenting styles
via Heidi Johnson/Facebook
A letter written from mother to son.

Parents are people, too. Whether they subscribe to "gentle parenting" ideas or a more old-school approach, the truth is that they're just doing their best. Sometimes they get it right, sometimes they make mistakes, and quite often, it's hard for anyone to tell whether they're doing a good job until years later.

Heidi Johnson's son was 13, deeply in adolescence, and in that stage where he'd frequently lash out and defy her at every turn. In one such instance, he stubbornly told her he shouldn't have to deal with her rules and should be independent. So she wrote a strict but loving "Mom's not a fool" letter. In the letter, she wrote that because he bragged about making money, he can buy back all of the things that she had purchased for him in the past and that he would also have to pay rent.


moms, motherhood, parenting, family, teens, teenagers, letters, tough love, parenting styles Teaching teenagers about real-life consequences isn't easy. Photo by Norbert Kundrak on Unsplash

"Dear Aaron,

Since you seem to have forgotten you are only 13, and I’m the parent, and that you won’t be controlled, I guess you will need a lesson in independence. Also, as you threw in my face that you are making money now, it will be easier to buy back all the items I bought for you in the past. If you would like your lamp/lightbulbs or access to the internet, you will need to pay your own share of costs.

Rent – $430

Electricity – $116

Internet – $21

Food – $150"

She also added some additional chores that, if not accomplished, she would fine him $30.

"He came home, saw the note, crumpled it on the floor, and stormed out of the apartment. I have always encouraged him to take a walk when he is upset so that he can collect his thoughts, so when we try to talk, we are able to talk, and not just yell at each other. I do the same thing — sometimes, I just need to walk away and collect myself. I am not above admitting that. He was still livid when he got home. He decided to stage a 'sit in' in my room, where he did laugh at me and repeat, 'Really? What are you going to do? You can't take my stuff,' etc.

He was asked to leave my room, and when he could be respectful, and I was more calm, we would discuss it further. He went to his room, and after about an hour, he had removed some electronics and items I missed that he felt he should have to earn back for his behavior. He apologized, and asked what could he do to make things better and start earning items back. He earned his comforter and some clothes right back. I did leave him some clothes to begin with, just not the ones he would want to wear every day. He also had some pillows and sheets, just not his favorite ones.”

Johnson decided to post the letter in its entirety on Facebook, the way one does to friends for a laugh and connection. After all, the strategy had been a success!

However, she neglected to make it "private," and soon, comments and shares proliferated, including admonishments from strangers who thought she was a bad parent. Now she had to deal with a bigger teenager: the internet and its commentariat.

But Johnson remained level-headed and wrote another Facebook post, clarifying.

"It's out there; and I am not ashamed of what I wrote... I am not going to put my 13-year-old on the street if he can't pay his half of the rent. I am not wanting him to pay anything. I want him to take pride in his home, his space, and appreciate the gifts and blessings we have.”

She explains that he is more grateful because of it, and also that he has slowly earned back things and dealt with sacrificing others. Then she lists her very organized and succinct rules of the house:


moms, motherhood, parenting, family, teens, teenagers, letters, tough love, parenting styles Kids need to be reminded, sometimes, of how much they still depend on mom. Photo by Spencer Plouzek on Unsplash

1 – Do your best in school! I don't expect a perfect 100%, but I do expect that you do your best and ask for help when you don't understand something.

2 – Homework and jobs need to be done before you can have screen time.

3 – Jobs are emptying the trash, unloading the dishwasher, throwing away trash you make in the kitchen, rinsing dirty dishes, making your bed daily, pick up bedroom nightly, and cleaning your bathroom once a week.

4 – You must complete two chores a day. Each day of the week with the exception of Sunday has a room that we work on cleaning. He has to pick two chores for that room. For example, if it is the living room he can choose two of the following options: dust, vacuum, polish furniture, clean windows, mop the floor.

5 – Be respectful and kind with your words — no back talking, no cussing at me.

6 – Keep good hygiene.

7 – Make eye contact when being spoken to, and be an active listener.

8 – Use proper manners.

It seems that after a long conversation about what being independent truly means, the mother and son came to a deeper understanding and patched things up.

"You know what.. this hasn't hurt our relationship. He and I still talk as openly as ever. He has apologized multiple times... And… he is trying harder," Johnson said.

Tough love is a controversial topic in parenting circles. Some say it makes kids anxious and unsafe while others insist that it's the only way to truly instill an understanding of consequences in young people. Experts say the best "tough love" enforces boundaries and consequences in order to teach tough life lessons, but is done with love and understanding rather than yelling — and it's certainly never violent. That's why it's so powerful how Johnson took the time to cool herself down and write a firm but level-headed letter.

It's also important to remember that teens who rebel aren't bad or ungrateful. The rebellion is a part of how they begin to establish their much-needed independence.

- YouTube www.youtube.com

After the initial negative reaction to her post, Johnson's story continued to spread and drew praise from other exasperated parents of teens:

"Tough love is real love, he has a chance because of you," one commenter wrote.

"Good for you! He needs to appreciate everything you do! You are doing him a favor teaching him what it is to take care of himself and learn some respect," wrote another.

"Best parent I have read about in a very long time. Kids do not rule the house, adults rule the house. Thank you very much for being a great mom," another said.

As for Johnson, her son is earning things back little by little, and "appreciating it more than he did before," she wrote.

"This came down to a 13-year-old telling his mother she had no right to enforce certain rules, and had no place to 'control' him. I made the point to show what life would look like if I was not his 'parent,' but rather a 'roommate.' It was a lesson about gratitude and respect from the very beginning. Sometimes, you have to lose it all to realize how well you really had it."

This article originally appeared four years ago. It has been updated.