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Well Being

Americans' short-sighted focus on 'personal liberty' ended up limiting another type of freedom

Americans' short-sighted focus on 'personal liberty' ended up limiting another type of freedom

As the U.S. crosses the 300,000 COVID-19 deaths milestone, let's take a step back and look at what got us here.

But first, let's tip our hat to those who aren't where we are—to the countries that took swift, decisive action, got the population on the same page about what needed to be done, and kicked pandemic ass. The countries that not only have a tiny fraction of our death toll, but who also have been able to resume normal life in all its glory.

While mandatory quarantines for travelers and contact tracing systems for any cases that slip through the cracks are still in place, countries like Australia, New Zealand, Vietnam, Thailand, and Taiwan are experiencing a level of collective and individual freedom that America—and much of Europe—simply does not have right now. People are attending concerts, plays, sporting events, weddings, etc. without masks or social distancing. People can hug one another without worrying about killing someone. It's literally like a whole other world.

Sure, some of those countries are islands and they all have smaller populations than we do. But the U.S. is bordered by just two countries. Thailand borders four and Vietnam borders three, including China—and our not controlling the coronavirus spread has nothing to do with people crossing our physical borders. And as far as population goes, our large size accounts for raw numbers, but not deaths proportional to population.

Check out the deaths per million statistics among these countries:

Australia: 35

New Zealand: 5

Vietnam: 0.4

Thailand: 0.9

Taiwan: 0.3

United States: 924

We currently have the 12th highest deaths-per-million rate in the world. So much winning, we're sick of winning, right?

It's been said a million times that it didn't have to be this way, and it didn't. But while our government has been blamed for its abysmal response to the pandemic—and while those criticisms are legitimate—that's not the whole problem. It's nice to think that if we had a president that listened to public health officials and provided coherent guidance, we'd be in better shape, and we probably would be to some degree. But a big part of the problem is the American people ourselves.

I love us, but a huge key to controlling a pandemic is getting a population on the same page and getting people to make personal sacrifices for the greater good. It requires a collective commitment, and I'm just not convinced the U.S. is capable of that without a serious rethinking of what our core national value actually means.


The world knows—because we really, really like to shout it from the rooftops—that the U.S. is all about freedom. It's what we were founded on, what we take pride in, and what we cling to as our highest ideal. And we most often define freedom in terms of personal liberty—the right to live our lives the way we choose.

But in a pandemic, personal liberty can be problematic. I know that's hard for some Americans to hear, but it's true. If we all just do whatever we please, we end up right where we are—with an out of control virus killing a 9/11's worth of Americans every day, ten months in, and the ongoing economic hardship that goes along with a half-assed, incohesive attempt to maybe save businesses or maybe save lives. We've ended up with the worst of both worlds—mass death and economic demise—largely due to Americans' insistence upon personal freedom to the deadly and devastating exclusion of everything else.

Let's be clear about the fact that the federal government has not established any mandates or restrictions that violate American freedoms during the pandemic. Decisions about mitigation measures have been left to the states, which is both good and bad. The United States is huge, and logistically it makes more sense for local conditions to guide local responses. However, our borders between counties and states are imaginary lines with no checkpoints or restrictions for travel, which makes for a lot of holes in our collective pandemic control.

I'm not saying that the government should go all willy-nilly with our freedoms; I'm saying that Americans are short-sighted in our vision of what freedom actually means. Too many Americans have exercised their personal liberty in a way that limits our collective freedom (because it leads to out-of-control viral spread) and also ends up limiting personal liberty anyway (because out-of-control viral spread means having to take measures to keep our healthcare system from getting overwhelmed).

I know some people say "collective freedom" isn't a thing, please see the difference between daily life in the U.S. and daily life in Australia right now. Our Aussie friends are living a far freer life than we are, both individually and collectively, because they chose to sacrifice individually so that the whole society could be free from the virus. That's what collective freedom looks like, and they didn't succumb to tyranny to get it. That could have been us, if we stopped seeing everything that isn't "go ahead and do whatever you want" as tyranny.

In a viral pandemic like this one, doing whatever we want is inconducive to true freedom. We're watching this play out in states that were reticent to implement restrictions until now, as hospitals spill over and mandates become necessary for public safety. People exercising their personal freedoms with no regard for public health guidelines results in out-of-control viral spread, which results in social and economic devastation as huge numbers of people get sick and die.

Exercising personal liberty without personal responsibility in a viral pandemic leads to limited freedom for longer, with a lot more pain and suffering, than using our liberty to do what needs to be done to prevent that.

I can already see people bringing up Benjamin Franklin's quote—"Those who would give up essential Liberty, to purchase a little temporary safety, deserve neither liberty nor safety." Some version of it comes up any time the government tries to enact anything Americans view as limiting their freedoms, but there are a couple of problems with bringing it up now. Franklin, as it turns out, was specifically talking about a dispute over taxes to fund securing the frontier, not public health in a pandemic. (And despite what people might assume, his quote was actually pro-taxation.) While that quote pushes all the right "my personal freedom" buttons, I'm quite sure that Ben Franklin would be losing his mind over Americans rejecting public health guidelines in the name of "I do what I want" if he were here today.

As an American, I appreciate our nation's commitment to personal liberty. I really do. But we seem to have forgotten that the founding premise of our republic wasn't just an inalienable right to liberty, but to "life, liberty, and the pursuit of happiness." When exercising personal liberty costs another American their life, then our national values are in conflict. "Give me liberty or give me death" is great when we're not in a viral pandemic, but "Give me liberty and I will give you death" is what we're currently experiencing.

Freedom can't be merely seen as an end, but as a means. In the next pandemic, I hope my fellow Americans will use their personal liberty to choose do what needs to be done to help us reach collective and individual freedom, rather than cutting off our nose to spite our face by insisting on a puerile version of freedom that only leads to all of us losing both.

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Three women, three MS journeys: How multiple sclerosis looks different for everyone

Gina, Nathalie and Helga share their reactions to being diagnosed with MS and how they stay informed and positive in the face of ever-changing symptoms.

Courtesy of Sanofi

Helga, Nathalie and Gina all have MS, and their experiences show how differently the disease can manifest.

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It’s been 155 years since neurologist Jean-Martin Charcot gave the first lecture on a mysterious progressive illness he called “multiple sclerosis.” Since then, we’ve learned a lot. We know MS causes the immune system to attack healthy tissue, including damaging the brain and spinal cord. Resulting symptoms can be debilitating and include fatigue, blurred vision, memory problems and weakness. Huge advancements in our understanding of MS and its underlying causes, as well as treatment advances, have been made in the past few decades, but MS remains a complex and unpredictable reality for the 2.8 million+ people diagnosed around the world.

Ironically, the only real constant for people living with MS is change. There’s no set pattern or standard progression of the disease, so each person’s experience is unique. Some people with MS have mild symptoms that worsen slowly but sometimes improve, while others can have severe symptoms that drastically alter their daily lives.

All people with MS share some things in common, however, such as the need to stay informed on the ever-evolving research, find various lines of support and try to remain hopeful as they continue living with the disease.

To better understand what navigating life with MS really looks like, three women shared their MS stories with us. Their journeys demonstrate how MS can look different for different people and interestingly, how the language used to talk about the disease can greatly impact how people understand their realities.

woman with horse, woman riding horseGina loves riding her horse, Benita.Courtesy of Sanofi

Gina—Hamburg, Germany (diagnosed with relapsing multiple sclerosis in 2017)

When her youngest son was 4 months old, Gina started having problems with her eye. She’d soon learn she was experiencing optic neuritis—her first symptom of MS.

“Immediately after the diagnosis, I looked up facts on MS because I didn’t know anything about it,” Gina says. “And as soon as I knew what could really happen with this disease, I actually got scared.”

As her family’s primary income provider, she worried about how MS would impact her ability to work as a writer and editor. Her family was afraid she was going to end up in a wheelchair. However, for now, Gina’s MS is managed well enough that she still works full-time and is able to be active.

“When I tell somebody that I have MS, they often don't believe me the first time because I don't fulfill any stereotypes,” she says.

Overwhelmed by negative perspectives on living with MS, Gina sought support in the online MS community, which she found to be much more positive.

“I think it’s important to use as many positive words as you can when talking about MS.” It’s important to be realistic while also conveying hope, she says. “MS is an insidious disease that can cause many bad symptoms…that can be frightening, and you can't gloss over it, either.”

To give back to the online community that helped her so much, Gina started a blog to share her story and help others trying to learn about their diagnosis.

Though she deals with fatigue and cognitive dysfunction sometimes, Gina stays active swimming, biking, riding horses and playing with her sons, who are now 11 and 6.

Cognitive dysfunction is common in MS, with over half of people affected. It can impact memory, attention, planning, and word-finding. As with many aspects of MS, some people experience mild changes, while others face more challenges.

Gina says that while there’s still a lot of education about MS needed, she feels positive about the future of MS because there’s so much research being done.

woman in wheelchair holding medal, woman rowingNathalie is an award-winning rower with multiple international titles.Courtesy of Sanofi

Nathalie — Pennes Mirabeau, France (diagnosed with relapsing-remitting multiple sclerosis in 2002)

Nathalie was a teenager and a competitive athlete when she noticed her first symptoms of MS, but it would take four years of “limbo” before she was diagnosed.

“Ultimately, the diagnosis was more of a relief, than a shock,” she says. “Because when you have signs and you don’t know why, it’s worse than knowing, in the end, what you have.”

However, learning more about the disease—and the realities of disease progression—scared her.

“That glimpse of the future was direct and traumatic,” she says. Her neurologist explained that the disease evolves differently for everyone, and her situation might end up being serious or very mild. So, she decided to stop comparing herself to others with MS.

She said to herself, “We’ll see what happens, and you’ll manage it bit by bit.”

By 2005, Nathalie’s MS had progressed to the point of needing a wheelchair. However, that has not dampened her competitive spirit.

Nathalie began her international rowing career in 2009 and has won multiple world titles, including two Paralympic medals—silver in London and bronze in Tokyo. Now, at 42, she still trains 11 times a week. Fatigue can be a problem, and sometimes hard workouts leave her with muscle stiffness and shaking, but she credits her ongoing sports career for helping her feel in tune with her body’s signals.

“Over the years, I’ve learned to listen to my body, letting my body guide when I need to stop and take breaks,” she says.

Nathalie explains that she used to only look backwards because of the initial shock of her diagnosis. In time, she stopped thinking about what she couldn’t do anymore and focused on her future. She now lives in the following mindset: “Even when doors close, don’t miss out on those that open.” Instead of focusing on what she can’t do, she focuses on the opportunities she still has. Right now, this includes her training for the 2024 Paralympic Games in Paris, where she will compete for another rowing medal.

“I only go forward,” she says. “Well, I try, anyway…It’s easy to say, it’s not always easy to do. But that’s what I try to do.”

woman exiting water after swimming, woman with great daneHelga's Great Dane has become a helpful and beloved companion.Courtesy of Sanofi

Helga—Johannesburg, South Africa (diagnosed with relapsing multiple sclerosis in 2010)

When Helga first started having balance issues and numbness in her feet, she chalked it up to her training as a runner. But when the numbness moved to her face, she knew something was wrong. She never guessed it was MS.

“When I was diagnosed, I felt completely overwhelmed and clueless,” Helga says. “I felt that I had nowhere near enough information. I did not know anything about the disease…I had no idea that it was going to be a process of continually monitoring and adjusting your lifestyle.”

In the beginning, Helga’s symptoms developed slowly, and she didn’t appear ill to others. She was even able to run for a few years after her diagnosis, but she couldn’t do marathons anymore, and she began to fall frequently due to balance issues and right-foot dragging. Then her cognition issues became more problematic, especially in her job as a trainer in a printing company.

“My executive function, decision-making and short-term memory were affected to the point that I was eventually medically unfit for work,” she says. She stopped working in 2017.

However, she didn’t stop living life. Even though she could no longer run, she continued to swim competitively. She got a Great Dane puppy and trained him as a service dog to help her walk. She also serves as vice chair of the patient support organization Multiple Sclerosis South Africa, and she advises others who have been diagnosed to join a patient advocacy group as soon as possible to get reliable information and meet others with MS.

Helga says she is “hopeful” about the future of MS. “I must say that I am so grateful that we have all the new medications available, because my life would not be the same if it wasn't for that,” she adds.

Part of how she manages her MS is by looking at the positives.

“If I could tell the world one thing about MS, it would be that MS is an incurable disease of the nervous system, but it's also the greatest teacher of valuing your health, family, friends, and managing change in your life,” she says. “My life is diversified in a way that I never, ever thought it would, and MS has been honestly the greatest teacher.”

Each MS journey is unique – with each person impacted experiencing different struggles, successes, and feelings as they manage this unpredictable disease. But the common thread is clear – there is a critical need for information, support, and hope. We are proud to participate in World MS Day and share these incredible stories of living life while living with MS. To learn more about MS, go to https://www.sanofi.com/why-words-really-matter-when-it-comes-to-multiple-sclerosis.

MAT-GLB-2301642-v1.0-05/2023

This article was sponsored by Sanofi. Participants were compensated when applicable.

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