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He lost his parents as a child. Now he’s fighting so no child in Kenya endures the same.

When Jack Hisard was a young boy, he lost both his parents, one after the other, to diseases that could have been cured — if they had lived in other parts of the world.

First, Jack lost his father to malaria when he was only four years old.

“I remember that night clearly in my head because his last moments were spent sitting next to me in our small grass thatched hut in the village,” he writes in an email. “There was no hospital nearby where he could be treated.”


[rebelmouse-image 19397393 dam="1" original_size="700x353" caption="Jack's Father. All photos via Mama Clinic/YouTube." expand=1]Jack's Father. All photos via Mama Clinic/YouTube.

Malaria’s considered a Neglected Tropical Disease (NTD), which affect more than 1 billion people in over 149 tropical and subtropical countries. While these diseases are preventable, it’s estimated that 57 million years of life is lost due to premature disability and death from NTDs.

After Jack’s father’s death, life for his family became tough. His mother couldn’t provide for herself or her children for a number of reasons including the fact that she suffered from depression. Then, just two years after his father passed away, she had a stroke and died too.

The period after her death was difficult to say the least, but Jack was determined to find a way take care of his remaining family.

So, when he was just nine years old, he started fishing in Lake Victoria to pay for his school fees and feed his two younger siblings. He did this while still going to school, because he believed an education would ultimately make a difference in his life.

Jack (right) fishing with other kids from his village.

“Life was tough but my belief in education never faded,” he writes.

There were still some times when he couldn’t pay all of the fees associated with school so he had to miss some of it,  but he still remained the top student in his class for many years. Finally, thanks to all his hard work and dedication, he managed to graduate high school and secure scholarships that would take care of his college tuition.

But while he was in high school and college, he was thinking about how to solve the problem of the lack of health services in rural areas like his hometown.

Jack had witnessed firsthand how devastating preventable diseases can be to a community when they have limited access to health care. Aside from his parents, he saw close friends, relatives and neighbors succumb to malaria and other treatable diseases.

In their village, homeopathic medicine had been the main medicinal resource for as long as he could remember, because people could easily access the herbs they needed.

“I remember the many times I accompanied my grandmother, an herbalist, to go deep into the forest to dig for roots and tree barks which would be used as medicine for various ailments,” recalls Jack.

When it came to assisting births, traditional midwives would conduct deliveries on the floors of people’s grass thatched houses. These midwives and healers didn’t wear gloves or use any form of sterilization. They would use boiling salt water to clean wounds after deliveries and, if complications arose during a delivery, lives would be lost because they didn’t have the lifesaving tools one might find in hospitals.

So he decided he’d find a way to bring better health care to his community That’s when Mama Clinic was born.

Mama Clinic provides primary healthcare services, outpatient and inpatient care and free maternal and child health care services to people in rural Kenya. Jack started the organization back in 2012, when he was only 19 years old. In just the last six years, it’s served over 40,000 patients.

The clinic has a lab, which allows for proper screening for diseases and reliable diagnosis. They currently have 42 beds available and 14 full-time employees to attend to patients. Jack has also built partnerships with national hospitals to ensure that patients who are severely ill can be referred or transferred for more specialized care. In keeping with their mission of providing access to quality and affordable healthcare to all in rural Kenya, Mama Clinic currently manages two satellite clinics in two other remote districts in the country.  

Beyond what the facility provides, Mama Clinic also conducts Community Health Outreach programs where volunteers walk from village to village providing free health screenings and treatment to the villagers who cannot go to the facility.

"No other child should have a loved one die to a Neglected Tropical Disease (NTD), and mothers need a safe place to deliver their babies near their homes" says Jack. "My experiences as a child shaped my dreams. I knew I wanted to be a doctor… a doctor who wants to make a difference in his community because I don’t want to see another child go through what I had to go through, to live without the care and love of a parents" he explains in his Youtube video for Mama Clinic.

A mother and child at Mama Clinic.

Unfortunately he’s up against a number of obstacles. The high rates of malnutrition and the broken health care system in Kenya make people vulnerable to contracting NTDs.

Right now Kenya lacks operating facilities, medication and professionals. A mere 4,300 doctors currently work in the public healthcare sector for the country’s 38.6 million people.

What’s more, in 2017, it was estimated that around 9 million people in the country are undernourished, according to a report released by the United Nations last year. Severe malnutrition stunts growth and makes children more susceptible to diseases because it weakens their immune systems. High rates of malnutrition are also affecting almost 40,000 pregnant and nursing mothers in Kenya and their babies.

Malnutrition in childhood and pregnancy can be very dangerous. Women who are malnourished while pregnant face higher risks of mortality during labor and premature births. These are exactly the types of problems Jack’s Mama Clinic is trying to address by bringing a functioning health care facility full of professionals to his underserved community. His initiative makes screenings and treatment more accessible, which in turn is helping combat these treatable health problems.

Jack knows that in order to offer the most comprehensive health care, he’s got to flesh out his education even more.

Jack with a young patient.

That’s why he’s currently attending Michigan State University where he’s studying public health and nutrition, and focusing on the epidemiology of diseases and their relation to nutrition. He wants to learn how poor nutrition can make it easier for people to contract NTDs, because that’s such a huge problem in rural Kenya.

His next step is to become a medical doctor so he can acquire the expertise and experience to better attend to his patients, expand Mama Clinic’s work and run it long term.

He knows that this knowledge is essential for him to run the best health clinic he can and ultimately save more lives in his community.

But perhaps what’s most rewarding for Jack is seeing how his  dedication to education is inspiring other kids in his village to follow in his footsteps.  

As the first person in his village to go to college, he hopes his story will also lead to more of them attending university. “It became my dream to give that hope to other people,” he says.

Despite growing up in challenging conditions, living in a slum and losing his parents at a young age, he exceeded expectations at school, received a full ride fellowship to Watson University and has represented Kenya through the Young African Leaders Initiative. Needless to say, he’s a prime example of what hard work and dedication can lead to.

Sometimes the best motivation is overcoming the most difficult of experiences. If anyone is a testament to that, it’s Jack.  

“If you have dreams and are willing to pursue them, there is a way out of poverty."

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Three women, three MS journeys: How multiple sclerosis looks different for everyone

Gina, Nathalie and Helga share their reactions to being diagnosed with MS and how they stay informed and positive in the face of ever-changing symptoms.

Courtesy of Sanofi

Helga, Nathalie and Gina all have MS, and their experiences show how differently the disease can manifest.

True

It’s been 155 years since neurologist Jean-Martin Charcot gave the first lecture on a mysterious progressive illness he called “multiple sclerosis.” Since then, we’ve learned a lot. We know MS causes the immune system to attack healthy tissue, including damaging the brain and spinal cord. Resulting symptoms can be debilitating and include fatigue, blurred vision, memory problems and weakness. Huge advancements in our understanding of MS and its underlying causes, as well as treatment advances, have been made in the past few decades, but MS remains a complex and unpredictable reality for the 2.8 million+ people diagnosed around the world.

Ironically, the only real constant for people living with MS is change. There’s no set pattern or standard progression of the disease, so each person’s experience is unique. Some people with MS have mild symptoms that worsen slowly but sometimes improve, while others can have severe symptoms that drastically alter their daily lives.

All people with MS share some things in common, however, such as the need to stay informed on the ever-evolving research, find various lines of support and try to remain hopeful as they continue living with the disease.

To better understand what navigating life with MS really looks like, three women shared their MS stories with us. Their journeys demonstrate how MS can look different for different people and interestingly, how the language used to talk about the disease can greatly impact how people understand their realities.

woman with horse, woman riding horseGina loves riding her horse, Benita.Courtesy of Sanofi

Gina—Hamburg, Germany (diagnosed with relapsing multiple sclerosis in 2017)

When her youngest son was 4 months old, Gina started having problems with her eye. She’d soon learn she was experiencing optic neuritis—her first symptom of MS.

“Immediately after the diagnosis, I looked up facts on MS because I didn’t know anything about it,” Gina says. “And as soon as I knew what could really happen with this disease, I actually got scared.”

As her family’s primary income provider, she worried about how MS would impact her ability to work as a writer and editor. Her family was afraid she was going to end up in a wheelchair. However, for now, Gina’s MS is managed well enough that she still works full-time and is able to be active.

“When I tell somebody that I have MS, they often don't believe me the first time because I don't fulfill any stereotypes,” she says.

Overwhelmed by negative perspectives on living with MS, Gina sought support in the online MS community, which she found to be much more positive.

“I think it’s important to use as many positive words as you can when talking about MS.” It’s important to be realistic while also conveying hope, she says. “MS is an insidious disease that can cause many bad symptoms…that can be frightening, and you can't gloss over it, either.”

To give back to the online community that helped her so much, Gina started a blog to share her story and help others trying to learn about their diagnosis.

Though she deals with fatigue and cognitive dysfunction sometimes, Gina stays active swimming, biking, riding horses and playing with her sons, who are now 11 and 6.

Cognitive dysfunction is common in MS, with over half of people affected. It can impact memory, attention, planning, and word-finding. As with many aspects of MS, some people experience mild changes, while others face more challenges.

Gina says that while there’s still a lot of education about MS needed, she feels positive about the future of MS because there’s so much research being done.

woman in wheelchair holding medal, woman rowingNathalie is an award-winning rower with multiple international titles.Courtesy of Sanofi

Nathalie — Pennes Mirabeau, France (diagnosed with relapsing-remitting multiple sclerosis in 2002)

Nathalie was a teenager and a competitive athlete when she noticed her first symptoms of MS, but it would take four years of “limbo” before she was diagnosed.

“Ultimately, the diagnosis was more of a relief, than a shock,” she says. “Because when you have signs and you don’t know why, it’s worse than knowing, in the end, what you have.”

However, learning more about the disease—and the realities of disease progression—scared her.

“That glimpse of the future was direct and traumatic,” she says. Her neurologist explained that the disease evolves differently for everyone, and her situation might end up being serious or very mild. So, she decided to stop comparing herself to others with MS.

She said to herself, “We’ll see what happens, and you’ll manage it bit by bit.”

By 2005, Nathalie’s MS had progressed to the point of needing a wheelchair. However, that has not dampened her competitive spirit.

Nathalie began her international rowing career in 2009 and has won multiple world titles, including two Paralympic medals—silver in London and bronze in Tokyo. Now, at 42, she still trains 11 times a week. Fatigue can be a problem, and sometimes hard workouts leave her with muscle stiffness and shaking, but she credits her ongoing sports career for helping her feel in tune with her body’s signals.

“Over the years, I’ve learned to listen to my body, letting my body guide when I need to stop and take breaks,” she says.

Nathalie explains that she used to only look backwards because of the initial shock of her diagnosis. In time, she stopped thinking about what she couldn’t do anymore and focused on her future. She now lives in the following mindset: “Even when doors close, don’t miss out on those that open.” Instead of focusing on what she can’t do, she focuses on the opportunities she still has. Right now, this includes her training for the 2024 Paralympic Games in Paris, where she will compete for another rowing medal.

“I only go forward,” she says. “Well, I try, anyway…It’s easy to say, it’s not always easy to do. But that’s what I try to do.”

woman exiting water after swimming, woman with great daneHelga's Great Dane has become a helpful and beloved companion.Courtesy of Sanofi

Helga—Johannesburg, South Africa (diagnosed with relapsing multiple sclerosis in 2010)

When Helga first started having balance issues and numbness in her feet, she chalked it up to her training as a runner. But when the numbness moved to her face, she knew something was wrong. She never guessed it was MS.

“When I was diagnosed, I felt completely overwhelmed and clueless,” Helga says. “I felt that I had nowhere near enough information. I did not know anything about the disease…I had no idea that it was going to be a process of continually monitoring and adjusting your lifestyle.”

In the beginning, Helga’s symptoms developed slowly, and she didn’t appear ill to others. She was even able to run for a few years after her diagnosis, but she couldn’t do marathons anymore, and she began to fall frequently due to balance issues and right-foot dragging. Then her cognition issues became more problematic, especially in her job as a trainer in a printing company.

“My executive function, decision-making and short-term memory were affected to the point that I was eventually medically unfit for work,” she says. She stopped working in 2017.

However, she didn’t stop living life. Even though she could no longer run, she continued to swim competitively. She got a Great Dane puppy and trained him as a service dog to help her walk. She also serves as vice chair of the patient support organization Multiple Sclerosis South Africa, and she advises others who have been diagnosed to join a patient advocacy group as soon as possible to get reliable information and meet others with MS.

Helga says she is “hopeful” about the future of MS. “I must say that I am so grateful that we have all the new medications available, because my life would not be the same if it wasn't for that,” she adds.

Part of how she manages her MS is by looking at the positives.

“If I could tell the world one thing about MS, it would be that MS is an incurable disease of the nervous system, but it's also the greatest teacher of valuing your health, family, friends, and managing change in your life,” she says. “My life is diversified in a way that I never, ever thought it would, and MS has been honestly the greatest teacher.”

Each MS journey is unique – with each person impacted experiencing different struggles, successes, and feelings as they manage this unpredictable disease. But the common thread is clear – there is a critical need for information, support, and hope. We are proud to participate in World MS Day and share these incredible stories of living life while living with MS. To learn more about MS, go to https://www.sanofi.com/why-words-really-matter-when-it-comes-to-multiple-sclerosis.

MAT-GLB-2301642-v1.0-05/2023

This article was sponsored by Sanofi. Participants were compensated when applicable.

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