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When Christine Powers was diagnosed with multiple sclerosis in 1995, she took it in stride.

No one would have blamed her if she had complained, but that wasn't her way.

Christine in New York City. All photos via Gerry Powers, used with permission.


It was the same thing when Christine was diagnosed with malignant skin cancer in 2000.

Even when the cancer reappeared later, seven years after being cancer-free, she kept her composure. That time, the cancer had spread to her brain. After multiple operations and a multi-year battle, it was clear the cancer was terminal, so her family opted to get Christine hospice care.

For anyone not familiar with it, the term "hospice" can seem like it carries some mysterious and scary connotations, but it actually refers to a type of medical and emotional care for people in the last stages of a terminal illness. It helps them and their families manage the end of life with as much compassion as possible by focusing on the quality of life instead of continuing often painful treatments to prolong it.

Samantha Lee is one of the hospice aids who helped care for Christine in her last years. 

"Christine was the youngest patient I ever had," Samantha says. "I was in love with that family so much."

The Powers family.

Hospice nurses and aides try to ensure a patient isn't in pain and help them — as much as possible — live their final days with dignity.

When Samantha helped take care of Christine, she came to the house five days a week, four hours at a time. She would cook, wash clothes, run errands, talk with Christine, and then work with her to try to keep her energy and mood up. She helped her do some exercises, and she encouraged her to do one major project a day to keep her spirits up.

"Our home aides knew Christine really, really well," Gerry Powers, Christine's husband, fondly recalls.

Gerry and Christine Powers.

And they were with her until the end, making her as comfortable as possible and the family as cared for as possible.

"You can be intellectually prepared for a loss, if someone in your life is declining," Gerry says. "But I don't think you’re ever really emotionally prepared when it happens. That’s the thing."

Samantha says people's eyes get big when she tells them she's a hospice worker, caring for patients at the end of their lives.

"They'll say, 'Oh, you’re a hospice aide? Wow, must be hard. Why do you like that?'" she mimics over the phone.

But you can tell by her voice just how much she loves her job. She says she's grateful that she can be there to help the patients and their loved ones through this difficult time.

"[This job] changed me around," she says. "It made me more soft on the inside, more compassionate and humbled."

One thing Samantha has learned from her work is the importance of having conversations about death and dying early on.

It's not an easy thing to do, but talking openly about death can bring some comfort to the end of life.

Especially in Western countries, talking about death is kind of taboo and invokes anxiety and fear in many of us. But if a loved one dies without ever having shared their end-of-life wishes, it can add extra stress and confusion during crisis mode.

"You have one family member that feels that this is not the way to live, that [the loved one] should go," says Samantha. "Then you have the other family member that wants to hold on."

She says that if people start conversations about what they want when they get to the end, then it shouldn't be a problem when the time actually comes.Family members will know exactly what they need to do and be able to spend more time focusing on their loved one and taking care of themselves.

Gerry and Christine.

Samantha says that her work as a hospice worker has also given her a new perspective on life and death.

"I look at life much different," she says.

"It really doesn't make sense to be so angry and have a lot of hatred in your heart because nobody knows when their time is up."

Photo courtesy of Girls at Work

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Girls are bombarded with messages from a very young age telling them that they can’t, that is too big, this is too heavy, those are too much.

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via Lewis Speaks Sr. / Facebook

This article originally appeared on 02.25.21


Middle school has to be the most insecure time in a person's life. Kids in their early teens are incredibly cruel and will make fun of each other for not having the right shoes, listening to the right music, or having the right hairstyle.

As if the social pressure wasn't enough, a child that age has to deal with the intensely awkward psychological and biological changes of puberty at the same time.

Jason Smith, the principal of Stonybrook Intermediate and Middle School in Warren Township, Indiana, had a young student sent to his office recently, and his ability to understand his feelings made all the difference.

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All images provided by Adewole Adamson

It begins with more inclusive conversations at a patient level

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Adewole Adamson, MD, of the University of Texas, Austin, aims to create more equity in health care by gathering data from more diverse populations by using artificial intelligence (AI), a type of machine learning. Dr. Adamson’s work is funded by the American Cancer Society (ACS), an organization committed to advancing health equity through research priorities, programs and services for groups who have been marginalized.

Melanoma became a particular focus for Dr. Adamson after meeting Avery Smith, who lost his wife—a Black woman—to the deadly disease.

melanoma,  melanoma for dark skin Avery Smith (left) and Adamson (sidenote)

This personal encounter, coupled with multiple conversations with Black dermatology patients, drove Dr. Adamson to a concerning discovery: as advanced as AI is at detecting possible skin cancers, it is heavily biased.

To understand this bias, it helps to first know how AI works in the early detection of skin cancer, which Dr. Adamson explains in his paper for the New England Journal of Medicine (paywall). The process uses computers that rely on sets of accumulated data to learn what healthy or unhealthy skin looks like and then create an algorithm to predict diagnoses based on those data sets.

This process, known as supervised learning, could lead to huge benefits in preventive care.

After all, early detection is key to better outcomes. The problem is that the data sets don’t include enough information about darker skin tones. As Adamson put it, “everything is viewed through a ‘white lens.’”

“If you don’t teach the algorithm with a diverse set of images, then that algorithm won’t work out in the public that is diverse,” writes Adamson in a study he co-wrote with Smith (according to a story in The Atlantic). “So there’s risk, then, for people with skin of color to fall through the cracks.”

Tragically, Smith’s wife was diagnosed with melanoma too late and paid the ultimate price for it. And she was not an anomaly—though the disease is more common for White patients, Black cancer patients are far more likely to be diagnosed at later stages, causing a notable disparity in survival rates between non-Hispanics whites (90%) and non-Hispanic blacks (66%).

As a computer scientist, Smith suspected this racial bias and reached out to Adamson, hoping a Black dermatologist would have more diverse data sets. Though Adamson didn’t have what Smith was initially looking for, this realization ignited a personal mission to investigate and reduce disparities.

Now, Adamson uses the knowledge gained through his years of research to help advance the fight for health equity. To him, that means not only gaining a wider array of data sets, but also having more conversations with patients to understand how socioeconomic status impacts the level and efficiency of care.

“At the end of the day, what matters most is how we help patients at the patient level,” Adamson told Upworthy. “And how can you do that without knowing exactly what barriers they face?”

american cancer society, skin cacner treatment"What matters most is how we help patients at the patient level."https://www.kellydavidsonstudio.com/

The American Cancer Society believes everyone deserves a fair and just opportunity to prevent, find, treat, and survive cancer—regardless of how much money they make, the color of their skin, their sexual orientation, gender identity, their disability status, or where they live. Inclusive tools and resources on the Health Equity section of their website can be found here. For more information about skin cancer, visit cancer.org/skincancer.

via Pixabay

The show must go on… and more power to her.

There are few things that feel more awful than being stranded at the altar by your spouse-to-be. That’s why people are cheering on Kayley Stead, 27, from the U.K. for turning a day of extreme disappointment into a party for her friends, family and most importantly, herself.

According to a report in The Metro, on Thursday, September 15, Stead woke up in an Airbnb with her bridemaids, having no idea that her fiance, Kallum Norton, 24, had run off early that morning. The word got to Stead’s bridesmaids at around 7 a.m. the day of the wedding.

“[A groomsman] called one of the maids of honor to explain that the groom had ‘gone.’ We were told he had left the caravan they were staying at in Oxwich Bay (the venue) at 12:30 a.m. to visit his family, who were staying in another caravan nearby and hadn’t returned. When they woke in the morning, he was not there and his car had gone,” Jordie Cullen wrote on a GoFundMe page.

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Pop Culture

14 things that will remain fun no matter how old you get

Your inner child will thank you for doing at least one of these.

Photo by Annie Spratt on Unsplash

Swings can turn 80-year-olds into 8-year-olds in less that two seconds.

When we’re kids, fun comes so easily. You have coloring books and team sports and daily recess … so many opportunities to laugh, play and explore. As we get older, these activities get replaced by routine and responsibility (and yes, at times, survival). Adulthood, yuck.

Many of us want to have more fun, but making time for it still doesn’t come as easily as it did when we were kids—whether that’s because of guilt, a long list of other priorities or because we don’t feel it’s an age-appropriate thing to long for.

Luckily, we’ve come to realize that fun isn’t just a luxury of childhood, but really a vital aspect of living well—like reducing stress, balancing hormone levels and even improving relationships.

More and more people of all ages are letting their inner kids out to play, and the feelings are delightfully infectious.

You might be wanting to instill a little more childlike wonder into your own life, and not sure where to start. Never fear, the internet is here. Reddit user SetsunaSaigami asked people, “What always remains fun no matter how old you get?” People’s (surprisingly profound) answers were great reminders that no matter how complex our lives become, simple joy will always be important.

Here are 14 timeless pleasures to make you feel like a kid again:

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