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6 unexpected and life-changing things I learned while living in a monastery.

One man explains what it's really like to live in a monastery.

In 2010, a medication-resistant form of epilepsy terrorized me.

Facing the prospect of a near-permanent state of illness, I longed for respite. I needed something — anything — to calm me down.

I had been reading the works of Christian and Buddhist monks for years, but I had never actually visited a monastery.


So I decided in a moment of panic: Why not take a retreat to a monastic community?

I knew there were some monasteries in the U.S. that invited guests to visit, so I contacted a monastery I had been following and arranged for a five-day retreat.

The view from the retreat center at the monastery. Photo by Tim Lawrence, used with permission.

During my first visit, I found myself surrounded by some of the most loving men I had ever encountered. To my delight, many of my epileptic symptoms subsided during my stay, too. I wasn’t cured by any means, but the lack of stress and centering nature of the monastery seemed to temporarily clothe me in a blanket of inner peace that I desperately needed.

And after the first retreat, I longed to have the chance to experience what this monastic life was truly like for more than a few days. After several more short retreats, I came across a program at a monastery in Boston that allowed just that.

With a handful of young people, I prepared to live alongside monks for nine months.

When I walked into the monastery on that first day, I was nervous. I had no idea what to expect. But by the time I left, I couldn't imagine my life without that time spent at the monastery.

The experience both frustrated me and blew me away: It forced me to confront my fears, examine my motivations, and take stock of how I really lived my life in a way that no other experience ever had.

Here are a few of the things I learned:

1. Living in silence is really powerful.

After the last service of the day, called the Greater Silence, complete silence was observed for 12 hours until the morning. Although the community members did speak during the day, both the monks and residents were encouraged to keep our speaking to a minimum in order to preserve an atmosphere of mindfulness and refuge for both the community and its guests.

Unexpectedly, this quiet is what I have missed most since leaving.

At the monastery, I was more present in the moment. When my dear friend Amelia lost a loved one, I found myself far more available to her. When my friend Daniel and I found ourselves with the opportunity to talk for extended periods of time during breaks at the monastery, we spoke to each other more slowly, and with far more honesty, than we normally would in the outside world.

What I learned is that silence forced me to change because I was actually living differently. I became more confident because I was less inclined to seek out the approval of others through empty words. I also chose my words carefully when I did speak, and I spoke with more authority.

2. I felt less lonely than I thought I would.

I initially worried that being cloistered at the monastery would cause me to be intensely lonely. However, although I was disconnected from the outside world for much of the time, I felt less lonely than I had in the "real world."

Why? I think it’s because the monastic community nourished me and loved me with abandon. The fact that I felt so grounded much of the time was a testament to the power of people actively connecting with one another, with intention.

3. Living minimally was freeing.

I had been living as a nomad with few possessions before I went to the monastery, but I had never embraced anything resembling a vow of poverty. And although I wasn’t obligated to partake in a formal vow of poverty, I still chose to live as simply as possible while I was there.

When you live with few possessions in a sparse, basic cell, your need for "things" dissipates rapidly. You become more adaptable, and you find that rather than trying to attain more, you learn to want what you already have. I found this to be liberating and beautiful.

4. Giving up some personal freedom for the sake of community wasn’t stifling.

In our rampantly individualistic culture, it’s easy to prize personal freedom above all else. Yet when you live in community, the needs of the community are placed above the desires of the individual. This was incredibly challenging and freeing for me because I was often asked to forego some of my own desires for the sake of the community.

I couldn’t dash off whenever I wanted, and I was expected to be present for all community activities, so I had to become willing to sacrifice some of my own selfishness in order to serve my peers. I was a part of something larger than myself, and that meant that I had to shed some of my self-absorption for the sake of others every single day.

5. My appreciation of time shifted.

The writer Sarah Manguso has said, "Time isn’t made of moments; it contains moments. There is more to it than moments."

I never understood this until I saw it in the monastery. In monastic life there’s always a "next thing" — another activity to devote one’s focus to over and over again. Whether I was chanting or eating a meal, I was expected to be fully present there, and then to let it go once it was over. Because the days were so structured, I was forced to become one with the moments I was experiencing; the "next thing" always demanded my full attention.

Time is taken more seriously as a resource in a monastery, which is something I took with me after I left.

6. Most of the spiritual "myths" about monasteries aren’t true.

I quickly found that many of my assumptions about monastic life were wrong. Contrary to what some people might think, living with monks isn’t a series of mountaintop experiences where you’re free to deepen your spirituality unimpeded by the difficulties of daily life.

In fact, the grind of life can be even more present in a monastery because everyone is expected to contribute in a series of repetitive duties. Monastic life is rhythmical, and monks hold that rhythm sacred. All services, meals, and chores are held at specific times with only occasional deviation.

To my surprise, this rhythm served as a great catalyst for personal transformation, though. In monastic life, I was taught not to separate "spiritual" time from "normal" time but to explore the vagaries of my spiritual life precisely when I was doing mundane, trivial work. This turned out to not only be enriching but life-changing.

My moments of greatest peace and transcendence came when I was cleaning out a kitchen or raking leaves or sitting in a chapel, alone, reflecting on my infinitesimal place in the world.

I learned to feel adequate in what could easily be described as an inadequate setting.

The transition out of the monastery wasn’t easy.

I left early because of my epilepsy; the long 16-hour days took a toll on me. I remember going to New York shortly after leaving and feeling a strong sense of panic: I was panicked because everyone else seemed so panicked. Society seemed strained to me, and I had a difficult time adjusting to "civilian life" again.

It took a few months to find my footing and to retain my monastic identity in a world that seems to place so much value on what monasticism has little need for — namely: status, wealth, and success.

But shortly before I left, the wisest monk I know told me something that made me weep, something that I will take with me everywhere: He said that I was a walking miracle.

This stopped me in my tracks because his words showed that he had chosen to love me as unconditionally as an imperfect, fragile human is capable of. This is a rare thing.

Me with the superior at the monastery. Photo via Tim Lawrence, used with permission.

My experience in the monastery revealed more of our human ability to love and be loved than I've ever seen before.

I was forced to evaluate how I related to the world not just for a day, but continually. I didn’t rise above all of my weaknesses or transform my entire life, but that was OK. I am deeply indebted to my fellow brothers and residents for caring for me so thoroughly.

In the end, I found the courage to experience being alive differently. The change was subtle yet profound, and I will carry that with me forever.

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Three women, three MS journeys: How multiple sclerosis looks different for everyone

Gina, Nathalie and Helga share their reactions to being diagnosed with MS and how they stay informed and positive in the face of ever-changing symptoms.

Courtesy of Sanofi

Helga, Nathalie and Gina all have MS, and their experiences show how differently the disease can manifest.

True

It’s been 155 years since neurologist Jean-Martin Charcot gave the first lecture on a mysterious progressive illness he called “multiple sclerosis.” Since then, we’ve learned a lot. We know MS causes the immune system to attack healthy tissue, including damaging the brain and spinal cord. Resulting symptoms can be debilitating and include fatigue, blurred vision, memory problems and weakness. Huge advancements in our understanding of MS and its underlying causes, as well as treatment advances, have been made in the past few decades, but MS remains a complex and unpredictable reality for the 2.8 million+ people diagnosed around the world.

Ironically, the only real constant for people living with MS is change. There’s no set pattern or standard progression of the disease, so each person’s experience is unique. Some people with MS have mild symptoms that worsen slowly but sometimes improve, while others can have severe symptoms that drastically alter their daily lives.

All people with MS share some things in common, however, such as the need to stay informed on the ever-evolving research, find various lines of support and try to remain hopeful as they continue living with the disease.

To better understand what navigating life with MS really looks like, three women shared their MS stories with us. Their journeys demonstrate how MS can look different for different people and interestingly, how the language used to talk about the disease can greatly impact how people understand their realities.

woman with horse, woman riding horseGina loves riding her horse, Benita.Courtesy of Sanofi

Gina—Hamburg, Germany (diagnosed with relapsing multiple sclerosis in 2017)

When her youngest son was 4 months old, Gina started having problems with her eye. She’d soon learn she was experiencing optic neuritis—her first symptom of MS.

“Immediately after the diagnosis, I looked up facts on MS because I didn’t know anything about it,” Gina says. “And as soon as I knew what could really happen with this disease, I actually got scared.”

As her family’s primary income provider, she worried about how MS would impact her ability to work as a writer and editor. Her family was afraid she was going to end up in a wheelchair. However, for now, Gina’s MS is managed well enough that she still works full-time and is able to be active.

“When I tell somebody that I have MS, they often don't believe me the first time because I don't fulfill any stereotypes,” she says.

Overwhelmed by negative perspectives on living with MS, Gina sought support in the online MS community, which she found to be much more positive.

“I think it’s important to use as many positive words as you can when talking about MS.” It’s important to be realistic while also conveying hope, she says. “MS is an insidious disease that can cause many bad symptoms…that can be frightening, and you can't gloss over it, either.”

To give back to the online community that helped her so much, Gina started a blog to share her story and help others trying to learn about their diagnosis.

Though she deals with fatigue and cognitive dysfunction sometimes, Gina stays active swimming, biking, riding horses and playing with her sons, who are now 11 and 6.

Cognitive dysfunction is common in MS, with over half of people affected. It can impact memory, attention, planning, and word-finding. As with many aspects of MS, some people experience mild changes, while others face more challenges.

Gina says that while there’s still a lot of education about MS needed, she feels positive about the future of MS because there’s so much research being done.

woman in wheelchair holding medal, woman rowingNathalie is an award-winning rower with multiple international titles.Courtesy of Sanofi

Nathalie — Pennes Mirabeau, France (diagnosed with relapsing-remitting multiple sclerosis in 2002)

Nathalie was a teenager and a competitive athlete when she noticed her first symptoms of MS, but it would take four years of “limbo” before she was diagnosed.

“Ultimately, the diagnosis was more of a relief, than a shock,” she says. “Because when you have signs and you don’t know why, it’s worse than knowing, in the end, what you have.”

However, learning more about the disease—and the realities of disease progression—scared her.

“That glimpse of the future was direct and traumatic,” she says. Her neurologist explained that the disease evolves differently for everyone, and her situation might end up being serious or very mild. So, she decided to stop comparing herself to others with MS.

She said to herself, “We’ll see what happens, and you’ll manage it bit by bit.”

By 2005, Nathalie’s MS had progressed to the point of needing a wheelchair. However, that has not dampened her competitive spirit.

Nathalie began her international rowing career in 2009 and has won multiple world titles, including two Paralympic medals—silver in London and bronze in Tokyo. Now, at 42, she still trains 11 times a week. Fatigue can be a problem, and sometimes hard workouts leave her with muscle stiffness and shaking, but she credits her ongoing sports career for helping her feel in tune with her body’s signals.

“Over the years, I’ve learned to listen to my body, letting my body guide when I need to stop and take breaks,” she says.

Nathalie explains that she used to only look backwards because of the initial shock of her diagnosis. In time, she stopped thinking about what she couldn’t do anymore and focused on her future. She now lives in the following mindset: “Even when doors close, don’t miss out on those that open.” Instead of focusing on what she can’t do, she focuses on the opportunities she still has. Right now, this includes her training for the 2024 Paralympic Games in Paris, where she will compete for another rowing medal.

“I only go forward,” she says. “Well, I try, anyway…It’s easy to say, it’s not always easy to do. But that’s what I try to do.”

woman exiting water after swimming, woman with great daneHelga's Great Dane has become a helpful and beloved companion.Courtesy of Sanofi

Helga—Johannesburg, South Africa (diagnosed with relapsing multiple sclerosis in 2010)

When Helga first started having balance issues and numbness in her feet, she chalked it up to her training as a runner. But when the numbness moved to her face, she knew something was wrong. She never guessed it was MS.

“When I was diagnosed, I felt completely overwhelmed and clueless,” Helga says. “I felt that I had nowhere near enough information. I did not know anything about the disease…I had no idea that it was going to be a process of continually monitoring and adjusting your lifestyle.”

In the beginning, Helga’s symptoms developed slowly, and she didn’t appear ill to others. She was even able to run for a few years after her diagnosis, but she couldn’t do marathons anymore, and she began to fall frequently due to balance issues and right-foot dragging. Then her cognition issues became more problematic, especially in her job as a trainer in a printing company.

“My executive function, decision-making and short-term memory were affected to the point that I was eventually medically unfit for work,” she says. She stopped working in 2017.

However, she didn’t stop living life. Even though she could no longer run, she continued to swim competitively. She got a Great Dane puppy and trained him as a service dog to help her walk. She also serves as vice chair of the patient support organization Multiple Sclerosis South Africa, and she advises others who have been diagnosed to join a patient advocacy group as soon as possible to get reliable information and meet others with MS.

Helga says she is “hopeful” about the future of MS. “I must say that I am so grateful that we have all the new medications available, because my life would not be the same if it wasn't for that,” she adds.

Part of how she manages her MS is by looking at the positives.

“If I could tell the world one thing about MS, it would be that MS is an incurable disease of the nervous system, but it's also the greatest teacher of valuing your health, family, friends, and managing change in your life,” she says. “My life is diversified in a way that I never, ever thought it would, and MS has been honestly the greatest teacher.”

Each MS journey is unique – with each person impacted experiencing different struggles, successes, and feelings as they manage this unpredictable disease. But the common thread is clear – there is a critical need for information, support, and hope. We are proud to participate in World MS Day and share these incredible stories of living life while living with MS. To learn more about MS, go to https://www.sanofi.com/why-words-really-matter-when-it-comes-to-multiple-sclerosis.

MAT-GLB-2301642-v1.0-05/2023

This article was sponsored by Sanofi. Participants were compensated when applicable.

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