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A PERSONAL MESSAGE FROM UPWORTHY
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Please read this before you post another RIP on social media

There is a hierarchy of grief and it's important to know where you fall on it before posting about someone's death.

Image from GOOD.

Working through grief is a community thing.


Grieving in the technology age is uncharted territory.

I'll take you back to Saturday, June 9, 2012. At 8:20 a.m., my 36-year-old husband was pronounced dead at a hospital just outside Washington, D.C.

By 9:20 a.m., my cellphone would not stop ringing or text-alerting me long enough for me to make the necessary calls that I needed to make: people like immediate family, primary-care doctors to discuss death certificates and autopsies, funeral homes to discuss picking him up, and so on. Real things, important things, time-sensitive, urgent things.

At 9:47 a.m., while speaking to a police officer (because yes, when your spouse dies, you must be questioned by the police immediately), one call did make it through. I didn't recognize the number. But in those moments, I knew I should break my normal rule and answer all calls. "He's dead??? Oh my God. Who's with you? Are you OK? Why am I reading this on Facebook? Taya, what the heck is going on?"

Facebook? I was confused. I hadn't been on Facebook since the day before, so I certainly hadn't taken the time in the last 90 minutes to peek at the site.

"I'll call you back", I screamed and hung up. I called my best friend and asked her to search for anything someone might have written and to contact them immediately and demand they delete it. I still hadn't spoken to his best friend, or his godsister, or our godchild's parents, or a million other people! Why would someone post it to Facebook SO FAST?

While I can in no way speak for the entire planet, I certainly feel qualified to propose some suggestions — or, dare I say, rules — for social media grieving.

How many RIPs have you seen floating through your social media stream over the last month? Probably a few. Death is a fate that we will each meet at some point. The Information Age has changed the ways in which we live and communicate daily, yet there are still large voids in universally accepted norms.

This next statement is something that is impossible to understand unless you've been through it:

There is a hierarchy of grief.

Yes, a hierarchy. It's something people either don't understand or understand but don't want to think or talk about — yet we must.

There is a hierarchy of grief.

Hierarchy is defined as:

  1. a system or organization in which people or groups are ranked one above the other according to status or authority, and
  2. an arrangement or classification of things according to relative importance or inclusiveness.

What does this mean as it relates to grief? Let me explain. When someone dies — whether suddenly or after a prolonged illness, via natural causes or an unnatural fate, a young person in their prime or an elderly person with more memories behind them than ahead — there is one universal truth : The ripples of people who are affected is vast and, at times, largely unknown to all other parties.

A death is always a gut punch with varying degrees of force and a reminder of our own mortality. Most people are moved to express their love for the deceased by showing their support to the family and friends left behind.

In the days before social media, these expressions came in the form of phone calls, voicemail messages, and floral deliveries.

If you were lucky enough to be in close proximity to the family of the newly deceased, there were visits that came wrapped with hugs and tears, and deliveries of food and beverages to feed all the weary souls.

Insert social media. All of those courtesies still occur, but there is a new layer of grief expression — the online tribute in the form of Facebook posts, Instagram photo collages, and short tweets.

What's the problem with that? Shouldn't people be allowed to express their love, care, concern, support, and prayers for the soul of the recently deceased and for their family?

Yes.

And no.

Why? Because there are no established "rules," and people have adopted their own. This isn't breaking news, and you're not trying to scoop TMZ. Listen, I know you're hurt. Guess what? Me too. I know you're shocked. Guess what? Me too. Your social media is an extension of who you are. I get it. You "need" to express your pain, acknowledge your relationship with the deceased, and pray for the family.

Yes.

However...

Please give us a minute.

We are shocked.

We are heartbroken.

Give the immediate family or circle a little time to handle the immediate and time-sensitive "business" related to death. In the minutes and early hours after someone passes away, social media is most likely the last thing on their minds. And even if it does cross their mind, my earlier statement comes into play here.

There is a hierarchy of grief.

Please pause and consider your role and relationship to the newly deceased. Remember, hierarchy refers to your status and your relative importance to the deceased. I caution you to wait and then wait a little longer before posting anything. This may seem trivial, silly, and not worth talking about, but I promise you it isn't.

If the person is married, let the spouse post first.

If the person is "young" and single, let the partner, parents, or siblings post first.

If the person is "old" and single, let the children post first.

If you can't identify the family/inner circle of the person, you probably shouldn't be posting at all.

Do you get where I'm going with this?

In theory, we should never compare grief levels, cast the grief-stricken survivors into roles, or use words like status and importance. But maybe we need to at this moment (and for the next few weeks and months).

The "RIP" posts started hitting my timeline about an hour after my husband's death, and I certainly didn't start them. This created a sense of confusion, fear, anxiety, panic, dread, and shock for the people who knew me, too. What's wrong? Who are we praying for? Did something happen? Did someone pass? Why are there RIPs on your wall and I can't reach you? Call me please! What's going on?

That's a small sample of messages on my voicemail and text inbox. I had to take a minute in the midst of it all to ask a friend to post a status to my Facebook page on my behalf.

Your love and expressions of support are appreciated and needed, but they can also be ill-timed and create unintended additional stress.

The person is no less dead and your sympathy no less heartfelt if your post, photo, or tweet is delayed by a few hours. Honestly, the first couple of hours are shocking, and many things are a blur. Most bereaved people will be able to truly appreciate your love, concern, prayers, and gestures after the first 24 hours.

I've learned this from the inside — twice within the last four years. And I assure you that if we each adopted a little patience and restraint in this area, we would help those who are in the darkest hours of their lives by not adding an unnecessary layer of stress.

A few extra hours could make all the difference.


This article originally appeared on 05.07.19

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6 alternatives to saying 'let me know if you need anything' to someone in crisis

If someone is drowning, you don't wait for them to ask for help. You just take action.

Photo by Milada Vigerova on Unsplash

People going through major struggles don't always know what they need or how to ask for help.

When we see someone dealing with the loss of a loved one or some other major life crisis, it's instinctual for many of us to ask how we can help. Often, the conversation looks something like this:

Us: I am SO sorry you're going through this. What can I do to help?

Person in crisis: I honestly don't know right now.

Us: Okay…well…you let me know if you need anything—anything at all.

Person in crisis: Okay, thank you.

Us: I mean it. Don't hesitate to ask. I'm happy to help with whatever you need.

And then…crickets. The person never reaches out to take you up on the offer.

Was it that they didn't really need any help, this person going through a major life crisis? Unlikely. As sincere as our offer may have been, the problem may be that we didn't really offer them what they actually needed.

One of those needs is to not have to make decisions. Another is to not have to directly ask for help.

When a person is in a state of crisis, they can feel like they're drowning. They might be disoriented and fatigued, and doing anything other than keeping their head above water long enough to breathe can feel like too much.

If someone is drowning, you don't ask them what you can do to help or wait for them to ask. You just take action.

Here are some specific ways you can take action to help someone who you know needs help but isn't able or willing to ask for it:

1. Make them food

It may be tempting to ask if you can make them a meal and wait for them to say yes or no, but don't. Simply ask if they or anyone in their household has any dietary restrictions, and then start shopping and cooking.

Meals that can be popped in the refrigerator or freezer and then directly into the oven or microwave are going to be your best bets. Include cooking or reheating instructions if it's not obvious. Disposable aluminum trays are great for homemade freezer-to-oven meals and can be found at just about any grocery store. Casseroles. Stir fried rices. Soups. Comfort foods.

If you don't cook, you can buy them gift cards to local restaurants that deliver, or give them a DoorDash or UberEats gift certificate (large enough to cover the delivery, service fees and tip as well, which combined can be as much as a meal sometimes).

lasagna in the oven

Easy-prep meals people can throw in the oven are great.

Photo by Milada Vigerova on Unsplash

Even better—organize a meal train

If you want to make it a community-wide effort and no one else has done so yet, set up a "meal train," where different people sign up for different days to bring meals to spread out the food help over time. There are several free websites you can use for this purpose, including Give In Kind, Meal Train, and Take Them a Meal. These sites make it super easy for anyone with the personalized link to sign up for a meal.

someone scrubbing a pot in a kitchen sink

There are always dishes to wash.

Photo by Marek Studzinski on Unsplash

2. Clean their kitchen and/or bathrooms

Kitchens are always in use, and keeping up with dishes, especially in a house full of people, is a challenge even under normal circumstances. Same with keeping the refrigerator cleaned out. Same with cleaning the bathroom.

Rather than asking if they want it done, as many people won't want to say yes even if they would appreciate the help, try saying something like, "I want to come and make sure your kitchen is ready for you to make food whenever you want to and that your bathroom is a clean space for you to escape to whenever you feel like it. Is Tuesday or Wednesday at 1:00 better for you?"

The fewer complex decisions a person in crisis has to make the better, so saying, "Is this or that better?" rather than offering open-ended possibilities can be helpful.

woman folding clothes

There is always laundry to fold, too.

Photo by Marek Studzinski on Unsplash

3. Do laundry

Offer to sit and chat with them, let them vent if they need to…and fold their laundry while you're at it.

Are they the kind of people who might be embarrassed by you seeing or handling their underclothes? Fine. Wash, dry and fold towels or bedsheets instead. Just keep the laundry moving for them.

And if it doesn't feel appropriate or desirable for you to do their laundry at their house, you can offer a pick-up laundry service, either yourself or an actual hired service. Tell the person to put bags or bins of laundry at the door and you (or the service) will come pick it up and bring it back clean and folded the next day. That's a great way to be of service without feeling like you're intruding.

man pulling food and toilet paper out of the car

Offer to pick stuff up when you're on a grocery run.

Photo by Marek Studzinski on Unsplash

4. Run errands for them

"Hey, I'm heading out to the store, what can I grab you while I'm there?" is always a welcome phone call or text. Let them know when you're going to be running your own errands and see if there's anything they need dropped at the post office, picked up from the pharmacy, or anything else.

You can also offer to run errands with them. "Hey, I've got some errands to run. Do you want to join me?" They may have no desire to leave the house, or they may desperately want to leave the house, so be prepared for either answer, but the offer is solid. Even just not having to drive might be a relief if they have things they need to pick up or drop off places.

woman holding hands with a small child as they walk

Caring for someone's kids is one of the most helpful things you can do.

Photo by Kelli McClintock on Unsplash

5. Provide childcare

If the person is a parent, taking their kid(s) out for a chunk of the day can be a big help. Caring for yourself is hard when you're going through a difficult time, and the energy a person might use to actually do that often gets usurped by caring for others. Obviously, parents can't just neglect their children, so anything you can do to relieve them of that responsibility for a while is gold.

Offering to take the kids to do something fun—a day at the park, ice skating, etc. is even better. A parent knowing their kid is safe, occupied and happy is its own form of relief.

6. Ask what they're struggling with and focus your help there

While all of these practical household things are helpful, there might be some people who find comfort or solace in doing those things themselves. If that's the case, talk with them about what their immediate needs are and what they're having a hard time dealing with. Then focus your energies there. "What can I do to help?" may not be as effective a question as "What are you having a hard time doing right now?" They may not know what kind of help they need, but they probably know how they're struggling.

One person might be lonely and just want some company. Another person might need a creative outlet or a mindless distraction or something physical like going for a walk or a hike. Someone else might have pets they need help caring for, a garden that need tending or the oil changed in their car. Someone might even need a person to serve as a shield or buffer between them and all the people coming to offer their condolences.

Note that many of these things are basic life maintenance stuff—those are often the things that get hard for people when they're dealing with the emotional and logistical stuff surrounding whatever they're going through, and they're often the easiest things other people can do for them. A time of crisis is not a normal time, so normal etiquette, such as asking if you can or should do something rather than just letting them know you're going to do it, doesn't always apply.

If there's a specific thing with specific tasks, such as planning a funeral, that might be a good opportunity to ask how you can help. But people deep in the throes of grief or struggle often need someone to the reins on basic things without being asked to. Again, there's a good chance they feel like they're drowning, so don't wait for an invitation. Just grab the life preserver, put it around them and do whatever needs to be done to get them to shore.


This article originally appeared on 2.5.24

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27-year-old who died of cancer left behind final advice that left the internet in tears

"Don't feel pressured to do what other people might think is a fulfilling life. You might want a mediocre life and that is so OK."

Photo courtesy of Remembering Holly Butcher/Facebook used with permission.

Holly Butcher left behind her best life advice before she passed away at 27.

The world said goodbye to Holly Butcher, a 27-year-old woman from Grafton, Australia.

Butcher had been battling Ewing's sarcoma, a rare bone cancer that predominantly affects young people. In a statement posted on Butcher's memorialized Facebook account, her brother, Dean, and partner, Luke, confirmed the heartbreaking news to friends.

"It is with great sadness that we announce Holly's passing in the early hours of this morning," they wrote on Jan. 4, 2018. "After enduring so much, it was finally time for her to say goodbye to us all. The end was short and peaceful; she looked serene when we kissed her forehead and said our final farewells. As you would expect, Holly prepared a short message for you all, which will be posted above."

Butcher's message, which Dean and Luke did, in fact, post publicly shortly thereafter, has brought the internet to tears.

We believe her powerful message — which has amassed an incredible 72,000 Likes and 56,000 shares across the world so far — deserves to be spread far and wide.

Butcher used her final post to reflect on what she's learned in her short but beautiful life, offering some advice to those of us who are willing to listen.

"It's a strange thing to [realize] and accept your mortality at 26 years young," she began. "I always imagined myself growing old, wrinkled and gray — most likely caused by the beautiful family (lots of kiddies) I planned on building with the love of my life. I want that so bad it hurts. That's the thing about life; It is fragile, precious and unpredictable and each day is a gift, not a given right."

Butcher's poignant post is definitely worth reading in full. But here are 16 especially powerful points:

1. "I just want people to stop worrying so much about the small, meaningless stresses in life and try to remember that we all have the same fate after it all, so do what you can to make your time feel worthy and great, minus the bullshit. ... Those times you are [whining] about ridiculous things (something I have noticed so much these past few months), just think about someone who is really facing a problem. Be grateful for your minor issue and get over it. It's OK to acknowledge that something is annoying but try not to carry on about it and negatively affect other people's days."

2. "Once you do that, get out there and take a freaking big breath of that fresh Aussie air deep in your lungs, look at how blue the sky is and how green the trees are; It is so beautiful. Think how lucky you are to be able to do just that — breathe. You might have got caught in bad traffic today, or had a bad sleep because your beautiful babies kept you awake, or your hairdresser cut your hair too short. ... I swear you will not be thinking of those things when it is your turn to go. It is all SO insignificant when you look at life as a whole. I'm watching my body waste away right before my eyes with nothing I can do about it and all I wish for now is that I could have just one more birthday or Christmas with my family, or just one more day with my partner and dog. Just one more."

cherishing today, thoughts on life, premature death, youth, family

Holly Butcher shares a big smile for the camera.

Photo courtesy of Remembering Holly Butcher/Facebook used with permission.

3. "I hear people complaining about how terrible work is or about how hard it is to exercise — be grateful you are physically able to. Work and exercise may seem like such trivial things…until your body doesn't allow you to do either of them… Appreciate your good health and functioning body — even if it isn't your ideal size. Look after it and embrace how amazing it is."

4. "Give, give, give. It is true that you gain more happiness doing things for others than doing them for yourself. I wish I did this more. Since I have been sick, I have met the most incredibly giving and kind people and been the receiver of the most thoughtful and loving words and support from my family, friends and strangers; more than I could ever give in return. I will never forget this and will be forever grateful to all of these people."

5. "This year, our family agreed to do no presents and despite the tree looking rather sad and empty (I nearly cracked Christmas Eve!), it was so nice because people didn't have the pressure of shopping and the effort went into writing a nice card for each other. Plus, imagine my family trying to buy me a present knowing they would probably end up with it themselves ... strange! ... but those cards mean more to me than any impulse purchase could. ... Anyway, moral of the story — presents are not needed for a meaningful Christmas."

6. "Use your money on experiences ... or at least don't miss out on experiences because you spent all your money on material shit. Put in the effort to do that day trip to the beach you keep putting off. Dip your feet in the water and dig your toes in the sand. Wet your face with salt water."

7. "Try just enjoying and being in moments rather than capturing them through the screen of your phone. Life isn't meant to be lived through a screen nor is it about getting the perfect photo."

music is therapy, love, courtesy, life and death, positive messages

"Try just enjoying and being in moments rather than capturing them..." Holly Butcher.

Photo courtesy of Remembering Holly Butcher/Facebook used with permission.

8. "Listen to music ... really listen. Music is therapy."

9. "Cuddle your dog. Far out, I will miss that."

10. "Talk to your friends. Put down your phone. Are they doing OK?"

11. "Travel if it's your desire, don't if it's not."

12. "Work to live, don't live to work."

13. "Seriously, do what makes your heart feel happy."

14. "Don't feel pressured to do what other people might think is a fulfilling life. You might want a mediocre life and that is so OK."

15. "Tell your loved ones you love them every time you get the chance and love them with everything you have."

16. "Oh and one last thing. If you can, do a good deed for humanity (and myself) and start regularly donating blood. It will make you feel good with the added bonus of saving lives. Blood donation (more bags than I could keep up with counting) helped keep me alive for an extra year — a year I will be forever grateful that I got to spend here on Earth with my family, friends and dog. A year I had some of the greatest times of my life."

Butcher may be gone, but her impact will live on in the hearts and minds of people around the world.

"Never [met] her, but I am very touched and in tears," one Facebook user commented. "Such a bright light for a seemingly dark world at times," another chimed in. "Beautiful."

"What a wise soul she is," someone concluded. "I'm off to donate my blood."

Rest in peace, Holly. You made this world a better place. ❤️

If you are in the U.S. and inspired by Butcher's message, consider finding a blood donation center near you. You could save a life.



This article originally appeared on 01.08.18


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Devastated father makes an unbelievable discovery while cleaning out his deceased daughter's room

The 3,000-word letter was written on the back of a mirror.

On May 28, 2014, 13-year-old Athena Orchard of Leicester, England, died of bone cancer. The disease began as a tumor in her head and eventually spread to her spine and left shoulder. After her passing, Athena's parents and six siblings were completely devastated. In the days following her death, her father, Dean, had the difficult task of going through her belongings. But the spirits of the entire Orchard family got a huge boost when he uncovered a secret message written by Athena on the backside of a full-length mirror.


After removing the mirror from the wall, Dean discovered a 3,000-word letter written all the way down its backside in black pen. "She never mentioned it, but it's the kind of thing she'd do," her father told People magazine. "She was a very spiritual person, she'd go on about stuff that I could never understand – she was so clever." The moving letter revealed her deepest feelings about her fight with the dreaded disease. "Every day is special, so make the most of it, you could get a life-ending illness tomorrow so make the most of every day," she wrote. "Life is only bad if you make it bad."

via YouTube

Although Athena is gone, the mirror now serves as a powerful memory of her undying spirit. "We're keeping the mirror forever, it is a part of her we can keep in the house, it will always be in her room," her mother, Caroline, said. "Just reading her words felt like she was still here with us, she had such an incredible spirit."



Athena's full message:

"Happiness depends upon ourselves. Maybe it's not about the happy ending, maybe it's about the story. The purpose of life is a life of purpose. The difference between ordinary and extraordinary is that little extra. Happiness is a direction not a destination. Thank you for existing. Be happy, be free, believe, forever young. You know my name, not my story.

You have heard what I've done, but not what I've been through. Love is like glass, looks so lovely but it's easy to shatter.

Love is rare, life is strange, nothing lasts and people change. Every day is special, so make the most of it, you could get a life ending illness tomorrow so make the most of every day. Life is only bad if you make it bad. If someone loves you, then they wouldn't let you slip away no matter how hard the situation is. Remember that life is full of ups and downs.

Never give up on something you can't go a day without thinking about. I want to be that girl who makes the bad days better and the one that makes you say my life has changed since I met her!

Love is not about how much you say I love you – it's about how much you can prove it's true. Love is like the wind, you can feel it but you can't see it. I'm waiting to fall in love with someone I can open my heart to. Love is not about who you can see spending your future with, it's about who you can't see spending your life without… Life is a game for everyone but love is the prize. Only I can judge me.

Sometimes love hurts. Now I'm fighting myself. Baby I can feel your pain. Dreams are my reality. It hurts but it's okay, I'm used to it. Don't be quick to judge me, you only see what I choose to show you… you don't know the truth. I just want to have fun and be happy without being judged.

This is my life, not yours, don't worry about what I do. People gonna hate you, rate you, break you, but how strong you stand, that's what makes you… you!

There's no need to cry because I know you'll be by my side."


This article originally appeared on 04.15.19

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