Cervical cancer is something that can go undetected if you're not in a position to get regular gynecological appointments. But with the new guidelines, allow for greater leeway between screenings for abnormal cervical cells. In America, the age to begin receiving pap smears, which is the test that can detect abnormal cells in the cervix, increased to age 21 and in the UK it's not given until 25.
Though, this test can detect the cells much earlier and before symptoms start, the distance between testing has been increased to every 3-5 years instead of yearly. The decrease was backed by scientific evidence showing there wasn't an increase in detection of abnormal cells by doing the test more frequently. Ethan, a man who lost his sister in 2022 to cervical cancer partly blames the delay in testing with her untimely death.
The grieving man took to TikTok to share a PSA on how important it is for women and people born with female anatomy to get their pap smears, sharing the cautionary tale of his deceased sister.
"Have you got a vagina and don't want to die? Cause if that's the case please watch this video," Ethan starts out saying. "So I'm going to tell the story of how my sister passed away and the one thing that I want anyone to take away from her death and she would want anyone to take away from hear death is to look after your health."
a woman sitting at a table with a model of a stomach
Photo by Elen Sher on Unsplash
He explains that in 2021 his sister started having a lot of large blood clots "the size of a size 10 foot" that she kept going back to the doctor for but was consistently dismissed. Ethan shares that his sister began going to the hospital weekly due to the amount of pain she was in and she continued to be dismissed for months before she was referred to the gynecologist. According to the woman's brother, the process to look to see what was going on was so painful that the gynecologist refused to continue with the appointment.
"He said 'oh, I'm not doing this because you're in too much pain,' rather than actually investigating the reason why. Because she had a f***ing tumor inside her vagina that was the size of my fist. How the man missed that is beyond me. If he found that she'd probably f***ing still be alive cause she was neglected so bad throughout the whole route of this process."
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Ethan reveals that she started having symptoms in October of 2021 but it wasn't until February of 2022 that she was diagnosed after months of trying to be taken seriously. Unfortunately, the cancer had already spread to her lungs, liver and stomach and died at the age of 31, March 2022.
"If you know something's wrong with you, only you know what's going on with your body so make sure you push harder. If you know that there's something wrong with you, you need to kick and scream and shout until you get what you f***ing want," he says as he shares what he hopes the main takeaway from his message will be.
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"Cervical cancer is so common so make sure you get your smears done because if you don't get your smears done and you've got those cells...if you've got the beginning of those cells you can just get it burned away. My mom's had it done a thousand times. My auntie's had it done. But if you leave leave them then that can lay undetected in your body for years until it's too late. Cervical cancer is a massive problem."
Ethan shares his frustration that the UK doesn't do pap smears until the age of 25 when it's the STI human papillomavirus (HPV) that causes many of the instances of cervical cancer. He's hoping that telling his sister's story will encourage people to not only get pap smears even if they have to pay for them out of pocket, but to advocate for themselves fiercely.
People in the comments are thankful he's speaking up while others are sharing their own stories of loss from delay in screenings along with not being believed.
"my daughter died aged 23 from cervical cancer. basically the same story as yours. neglected for 2 year, then by the time they diagnosed her she had i month to live," one mom shares.
"My friend passed away age 30 of cervical cancer, they need to lower the age of smears" another grieving person writes.
"As a GP nurse conducting smears everyday I’m SO proud of you for advocating for women, and your sister like this! It’s not a scary process to do, it’s over and done with in less than a minute and I absolutely don’t care if your legs are hairy," a nurse chimes in.
"Sadly women are often not believed when it comes to their pain. Keep educating people Ethan, your sis would be so proud of you," someone else shares.
Several women in the comments share that his video has caused them to schedule appointments for their pap smears after being overdue or afraid of going. So while his delivery may have included a few instances of adult language, his message seems to be heard clearly by those who are needing to hear it. Telling his sister's story may just save a few lives.