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If you spot a 'sensory room' at a sports stadium, you likely have this couple to thank.

autism, sensory room, parenting, society, events
Images from Pixabay.

Autistic children at high-energy events benefit from a place to get quiet.

When Julian Maha and Michele Kong's first child was diagnosed with autism, their world turned upside down.

Maha and Kong's son Abram was an easy, delightful, precocious baby at first. Around age 2, his behavior suddenly changed. He stopped talking. He stopped sleeping. He cried inconsolably half the night.

Though they are both physicians themselves, his parents were at a loss. They consulted several doctors, finally landing an appointment with one of the top speech delay specialists in the country.


After a short examination, the doctor abruptly delivered the daunting news: Abram has autism. He would probably never speak, never say, "I love you." And the doctor's opinion was that there was a good chance Maha and Kong would end up institutionalizing him because he was only going to get worse.

Maha and Kong were stunned.

"It was as if someone had dropped a bomb in our lives, and we were just standing there holding the pieces," Maha said in a TED Talk (video link below.) Abram's diagnosis changed everything — including what would become the couple's life calling.

Maha and Kong quickly learned that families affected by autism often feel isolated and excluded from society.

The couple found themselves thrust into a whole new world, and soon discovered that many parents of kids with autism find themselves with little social support.

Some people with an autism spectrum disorder are nonverbal completely or just at times, which can make communication difficult. The vocalizations that sometimes come with autism can be unnerving to people without autism who are unfamiliar with them. Too many noises, lights, people, or other stimuli can push people with autism into sensory overload, which can lead to meltdowns.

And then there are the assumptions. Because they communicate differently, people with autism are often perceived to be unintelligent or unfeeling.

However, Maha and Kong realized that many of society's perceptions of autism are simply wrong. People with autism are often highly intelligent and experience a full range of emotions. Many absolutely can and do feel and understand — it's just that sometimes, they just can't show it in ways that most of us without autism understand.

Maha and Kong believe that many of these prejudices can be dissolved through awareness, acceptance, and inclusion. So they set out on a major mission.

They founded KultureCity, an all-volunteer nonprofit that advocates for acceptance and inclusion of people with autism — and helps make it happen.

Based out of Birmingham, Alabama, where Maha and Kong live, KultureCity seeks to transform our society to be accepting and inclusive of neurodiversity.

"Everyone's aware of autism now," says Maha. "I think it's the next step of acceptance and inclusion that's really going to start making changes for so many kids."

Noise-cancelling headphones can help a child with autism in sensory overload.

Photo by Alireza Attari on Unsplash

KultureCity works toward that goal by training people in guest service positions on how to interact with guests with sensory processing differences. They also help make spaces more inclusive through minor adjustments and accommodations. The training is the most important thing, though, Maha says. When non-autistic people know what to expect and have tools for interacting with someone who may hit sensory overload, everyone's experience is more positive.

KultureCity has helped create sensory-inclusive spaces at more than half of NBA stadiums, in addition to other venues.

The organization works with zoos, aquariums, professional sports venues, and other public spaces around the country to help them be more sensory-inclusive.

Maha points out that there's a difference between a sensory-friendly space or event and a sensory-inclusive one. A sensory-friendly space provides lower noise levels and crowds, but such accommodations might hinder the experiences of others. A sensory-inclusive space provides accommodations that have little to no impact on anyone else, but make a big difference for people prone to sensory overload.

Such an accommodation might be a room where people can escape the crowds and noise in a sports stadium, for example. Or it could be a grab bag filled with things like noise-cancelling headphones, stimming tools, and weighted lap pads (which can help people feel grounded).

Calm lighting, minimal decor, and various grounding activities give people a respite from sensory overload.

Photo by Ralph (Ravi) Kayden on Unsplash

It can be a challenging diagnosis, but Maha wants people to know that people with autism are no different from your children or loved ones who don't have it.

"They view the world differently and they take in the world differently from us, but their wants and needs are still similar," Maha notes. "They still seek acceptance and inclusion, they want to be part of the community, and it's our mission to help embrace them regardless of their differences."

All images provided by Prudential Emerging Visionaries

Collins after being selected by Prudential Emerging Visionaries

True

A changemaker is anyone who takes creative action to solve an ongoing problem—be it in one’s own community or throughout the world.

And when it comes to creating positive change, enthusiasm and a fresh perspective can hold just as much power as years of experience. That’s why, every year, Prudential Emerging Visionaries celebrates young people for their innovative solutions to financial and societal challenges in their communities.

This national program awards 25 young leaders (ages 14-18) up to $15,000 to devote to their passion projects. Additionally, winners receive a trip to Prudential’s headquarters in Newark, New Jersey, where they receive coaching, skills development, and networking opportunities with mentors to help take their innovative solutions to the next level.

For 18-year-old Sydnie Collins, one of the 2023 winners, this meant being able to take her podcast, “Perfect Timing,” to the next level.

Since 2020, the Maryland-based teen has provided a safe platform that promotes youth positivity by giving young people the space to celebrate their achievements and combat mental health stigmas. The idea came during the height of Covid-19, when Collins recalled social media “becoming a dark space flooded with news,” which greatly affected her own anxiety and depression.

Knowing that she couldn’t be the only one feeling this way, “Perfect Timing” seemed like a valuable way to give back to her community. Over the course of 109 episodes, Collins has interviewed a wide range of guests—from other young influencers to celebrities, from innovators to nonprofit leaders—all to remind Gen Z that “their dreams are tangible.”

That mission statement has since evolved beyond creating inspiring content and has expanded to hosting events and speaking publicly at summits and workshops. One of Collins’ favorite moments so far has been raising $7,000 to take 200 underserved girls to see “The Little Mermaid” on its opening weekend, to “let them know they are enough” and that there’s an “older sister” in their corner.

Of course, as with most new projects, funding for “Perfect Timing” has come entirely out of Collins’ pocket. Thankfully, the funding she earned from being selected as a Prudential Emerging Visionary is going toward upgraded recording equipment, the support of expert producers, and skill-building classes to help her become a better host and public speaker. She’ll even be able to lease an office space that allows for a live audience.

Plus, after meeting with the 24 other Prudential Emerging Visionaries and her Prudential employee coach, who is helping her develop specific action steps to connect with her target audience, Collins has more confidence in a “grander path” for her work.

“I learned that my network could extend to multiple spaces beyond my realm of podcasting and journalism when industry leaders are willing to share their expertise, time, and financial support,” she told Upworthy. “It only takes one person to change, and two people to expand that change.”

Prudential Emerging Visionaries is currently seeking applicants for 2024. Winners may receive up to $15,000 in awards and an all-expenses-paid trip to Prudential’s headquarters with a parent or guardian, as well as ongoing coaching and skills development to grow their projects.

If you or someone you know between the ages of 14 -18 not only displays a bold vision for the future but is taking action to bring that vision to life, click here to learn more. Applications are due by Nov. 2, 2023.
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This validates my burn out, right? #momtok #momsoftiktok #sahm #boymom #toddlermom #toddlersoftiktok #3under5

@jothemama

This validates my burn out, right? #momtok #momsoftiktok #sahm #boymom #toddlermom #toddlersoftiktok #3under5

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