Inclusivity

Ever wonder how kids with autism see the world? That's all it may take to understand them.

Ever wonder how kids with autism see the world? That's all it may take to understand them.

This article originally appeared on 02.19.16


At one of the worst points, she was banging her head on the floor and the walls of her bedroom, raging and crying.

And I was doing the same because I just didn't know what else to do anymore.

Something had triggered a full-on, pupil-dilated tantrum for my then-3-year-old, Emma, complete with hair-pulling and biting — both herself and me.

That's Emma around age 3. That sweet kid having a meltdown? HEARTBREAKING, let me tell you. All photos by Tana Totsch-Kimsey, used with permission.

Feeling just as helpless as I had the last dozen times this happened, I ticked down a mental checklist: Weird food? Wrong clothes? Too hot? Loud sounds? Missing toy? She fitfully stripped down to nothing, finally signaling to me that yes, it was the jammies. She curled up next to me (me, still sobbing) and promptly fell asleep, quiet and stark naked with brilliantly red-purple bruises blooming on her arms.

This is autism. Or one form of it anyway. It has many, many ways of showing itself.

It can be both good and bad. I'll get to the good.

Fully known as autism spectrum disorder, it's a neurodevelopmental quirk that results in various shades of social and behavioral issues. One of the most common challenges across the spectrum is communicating with others; people with autism struggle with the give-and-take flow of conversation, understanding how to interact with others, and processing their own or other people's feelings. They may even seem lost in their own world or unable to express their thoughts or emotions either verbally or nonverbally.

"Lost in their own world" often looks like this. We took over 100 pictures on family picture day, and this was the only useable one.

I have a non-autistic child, too. She's five years older than Emma, and I remember my biggest frustration as a brand-new parent was that I just wished she could tell me what she needed. And it wasn't long before she did: "Mama" quickly became "I have this?" and "Don't like that" and "I can do it myself" and — now — "Oh-em-gee, Mom, get out of my room, please, GOD, ugh!" She's 10; it's fun. She cracks jokes, she rails against gender biases, and she's lined up for honors classes.

But when Emma came along next with an incessant buzz of energy — ripping pages from books presumably for the feel of it, climbing and jumping off tall things presumably for the thrill of it, eating rocks and grass (and just about anything really) presumably for the taste of it — and all of it without being able to tell me anything at all about what she needed ... it took me a long while to understand that autism is not me being terrible at parenting.

What I learned is that Emma calls for a different kind of parenting altogether.


A typical day at home for us includes peanut butter smearing, cabinet scaling, mud eating, and paper ripping. It's a little exhausting sometimes.

Progress actually happened when I let go of what was "wrong" with Emma and started figuring out what to do about it.

Emma was nearly 4 years old by the time she was given an official autism diagnosis. But when the panel of specialists finally handed over their "findings" of autism spectrum disorder after a particularly awful six-hour doctor appointment, I distinctly felt at that point (and still do) that I could not have cared less what they wanted to call it.

The moment of the diagnosis wasn't a big deal to me because it didn't really change anything. By then, Emma was already in speech and occupational therapy and going to preschool, and all of that was helping some. But the autism label did eventually lead us to a kind of therapy we hadn't heard about before.

It's called applied behavior analysis — ABA for short — and that has brought a lot of change.

Some doctors explain ABA as a reward system for when a child does something right, but it's much more than that.

Behavioral scholars and autism experts date ABA treatments back to at least 1968, when a group of university researchers wrote in an introduction for the Journal of Applied Behavior Analysis that ABA interventions could benefit individuals and society.

The treatment is highly individualized, with analysts measuring specific behaviors for each patient, crafting trials to change variables in controlled environments for each patient, and evaluating outcomes for each patient. It's used for both children and adults who have intellectual or developmental issues, and it can help them gain skills in language, socialization, and attention as well as in more educational areas, like reading and math.

And this kid is gonna need more skills than taking selfies ... although she's quite amazing at them, IMO.

ABA is complex stuff. But put super simply, it's empathy on an ultimate level.

It involves patiently observing and trying to understand what a person — often one who can't fully communicate (or even necessarily process the things going on in the world) — feels and thinks.

ABA is putting yourself in that person's place, realizing what is motivating them, and then tinkering with those behaviors using positive encouragement and reinforcement. These are "rewards" of a kind, but not necessarily tangible ones; Emma's greatest motivators are hugs and kisses, high-fives, and tickles.

And wagon rides. And a mom deciding that chewing on a piece of grass to satisfy a sensory need is not so terrible in the big picture.

Even though ABA isn't a new treatment, it's gaining attention recently because of how life-changing the empathetic perspective can be. Agencies like the Centers for Disease Control and Prevention and the National Institute of Mental Health (and several autism-research organizations) recognize ABA as an effective treatment for autism. Plus, access to ABA experts is expanding: Clinics with extensive ABA support and research existed mainly in larger cities for many years, but now services are being offered in places all over the country.

For me, an intensified effort to understand Emma through ABA, and to help her understand her world, changed everything.

She's almost 6 years old now, and these days, she charms just about everyone she meets. She's still mischievous and daring, but she also runs into a room and gives out hugs to everyone there. (Even strangers! It's actually really awkward sometimes.)

Seems like a small thing, but she sings about how Old MacDonald has a cow that moos. (You should hear "Do You Wanna Build a Snowman" ... adorbs!)

She can pick out her own jammies and a book to be read and a toy to keep her hands busy and the perfect spot to cuddle while she winds herself down to sleep. She giggles and beeps noses and plays chase with the dog and likes to announce, "Happy Tuesday!" She's even learning to read and write, which blows my mind when I think of those long nights spent banging heads on floors.

Emma still has autistic-meltdown fits, of course, but I get it now.

Even I have moments where I just can't even. It's really not that hard for any parent or person to relate to that. What's great, though, is that I've noticed how people outside the ABA therapy world — teachers and family and even total strangers — use the therapy, sometimes without even realizing it.

They change how they do things to adapt to what it must seem like from Emma's perspective, and that's how they end up really connecting with her. I find myself, too, exercising those empathy muscles with people other than Emma, and it makes me wonder sometimes:

What if we all did?

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Tory Burch
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Empowered Women

Why this woman created an organization to protect an Indonesia ecosystem

Courtesy of Farwiza Farhan
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Growing up in Indonesia, Farwiza Farhan always loved the ocean. It's why she decided to study marine biology. But the more she learned, the more she realized that it wasn't enough to work in the ocean. She needed to protect it.

"I see the ocean ecosystem collapsing due to overfishing and climate change," she says. "I felt powerless and didn't know what to do [so] I decided to pursue my master's in environmental management."

This choice led her to work in environmental protection, and it was fate that brought her back home to the Leuser Ecosystem in Sumatra, Indonesia — one of the last places on earth where species such as tigers, orangutans, elephants and Sumatran rhinoceros still live in the wild today. It's also home to over 300 species of birds, eight of which are endemic to the region.

"When I first flew over the Leuser Ecosystem, I saw an intact landscape, a contiguous block of lush, diverse vegetation stretched through hills and valleys. The Leuser is truly a majestic landscape — one of a kind."

She fell in love. "I had my first orangutan encounter in the Leuser Ecosystem," she remembers. "As the baby orangutan swung from the branches, seemingly playing and having fun, the mother was observing us. I was moved by the experience."

Courtesy of Farwiza Farhan

"Over the years," she continues, "the encounters with wildlife, with people, and with the ecosystem itself compounded. My curiosity and interest towards nature have turned into a deep desire to protect this biodiversity."

So, she began working for a government agency tasked to protect it. After the agency dismantled for political reasons in the country, Farhan decided to create the HAkA Foundation.

"The goals [of HAkA] are to protect, conserve and restore the Leuser Ecosystem while at the same time catalyzing and enabling just economic prosperity for the region," she says.

"Wild areas and wild places are rare these days," she continues. "We think gold and diamonds are rare and therefore valuable assets, but wild places and forests, like the Leuser Ecosystems, are the kind of natural assets that essentially provide us with life-sustaining services."

"The rivers that flow through the forest of the Leuser Ecosystem are not too dissimilar to the blood that flows through our veins. It might sound extreme, but tell me — can anyone live without water?"

Courtesy of Farwiza Farhan

So far, HAkA has done a lot of work to protect the region. The organization played a key role in strengthening laws that bring the palm oil companies that burn forests to justice. In fact, their involvement led to an unprecedented, first-of-its-kind court decision that fined one company close to $26 million.

In addition, HAkA helped thwart destructive infrastructure plans that would have damaged critical habitat for the Sumatran elephants and rhinos. They're working to prevent mining destruction by helping communities develop alternative livelihoods that don't damage the forests. They've also trained hundreds of police and government rangers to monitor deforestation, helping to establish the first women ranger teams in the region.

"We have supported multiple villages to create local regulation on river and land protection, effectively empowering communities to regain ownership over their environment."

She is one of Tory Burch's Empowered Women this year. The donation she receives as a nominee is being awarded to the Ecosystem Impact Foundation. The small local foundation is working to protect some of the last remaining habitats of the critically endangered leatherback turtle that lives on the west coast of Sumatra.

"The funds will help the organization keep their ranger employed so they can continue protecting the islands, endangered birds and sea turtle habitats," she says.

To learn more about Tory Burch and Upworthy's Empowered Women program visit https://www.toryburch.com/empoweredwomen. Do you know an inspiring woman like Farwiza? Nominate her today!

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Mother proudly teaches her five daughters that 'virginity doesn't exist' and it makes total sense

via @Book_Mama/TikTok

Cayce LaCorte explains why virginity doesn't exist.

The concept of virginity is a very loaded issue in American culture. If a woman loses hers when she's too young she can be slut-shamed. If a man remains a virgin for too long, he can be bullied for not being manly enough.

There is also a whole slew of religious mind games associated with virginity that can give people some serious psychological problems associated with sex.

Losing one's virginity has also been blown up way beyond proportion. It's often believed that it's a magical experience—it's usually not. Or that after having sex for the first time people can really start to enjoy living life—not the case.

What if we just dropped all of the stigmas surrounding virginity and instead, replaced them with healthy attitudes toward sex and relationships?

Writer Cayce LaCorte is going viral on TikTok for the simple way she's taught her five daughters to think about virginity. They don't have to. LaCorte shared her parenting ideas on TikTok in response to mom-influencer Nevada Shareef's question: "Name something about the way you raised your kids that people think is weird but you think is healthy."

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The Allstate Foundation
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This Teacher Is Using Inclusive Coloring Books To Encourage Acceptance in Her Classroom

Courtesy of Ms. Lopez
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Marcella Lopez didn't always want to be a teacher — but once she became one, she found her passion. That's why she's stayed in the profession for 23 years, spending the past 16 at her current school in Los Angeles, where she mostly teaches children of color.

"I wanted purpose, to give back, to live a life of public service, to light the spark in others to think critically and to be kind human beings," she says. "More importantly, I wanted my students to see themselves when they saw me, to believe they could do it too."

Ms. Lopez didn't encounter a teacher of color until college. "That moment was life-changing for me," she recalls. "It was the first time I felt comfortable in my own skin as a student. Always remembering how I felt in that college class many years ago has kept me grounded year after year."

It's also guided her teaching. Ms. Lopez says she always selects authors and characters that represent her students and celebrate other ethnicities so students can relate to what they read while also learning about other cultures.

"I want them to see themselves in the books they read, respect those that may not look like them and realize they may have lots in common with [other cultures] they read about," she says.

She also wants her students to have a different experience in school than she did.

When Ms. Lopez was in first grade, she "was speaking in Spanish to a new student, showing her where the restroom was when a staff member overheard our conversation and directed me to not speak in Spanish," she recalls. "In 'this school,' we only speak English," she remembers them saying. "From that day forward, I was made to feel less-than and embarrassed to speak the language of my family, my ancestors; the language I learned to speak first."

Part of her job, she says, is to find new ways to promote acceptance and inclusion in her classroom.

"The worldwide movement around social justice following the death of George Floyd amplified my duty as a teacher to learn how to discuss racial equity in a way that made sense to my little learners," she says. "It ignited me to help them see themselves in a positive light, to make our classroom family feel more inclusive, and make our classroom a safe place to have authentic conversations."

One way she did that was by raising money through DonorsChoose to purchase books and other materials for her classroom that feature diverse perspectives.

Courtesy of Ms. Lopez

The Allstate Foundation recently partnered with DonorsChoose to create a Racial Justice and Representation category to encourage teachers like Ms. Lopez to create projects that address racial equity in the classroom. To launch the category, The Allstate Foundation matched all donations to these projects for a total of $1.5 million. Together, they hope to drive awareness and funding to projects that bring diversity, inclusion, and identity-affirming learning materials into classrooms across the country. You can see current projects seeking funding here.

When Ms. Lopez wanted to incorporate inclusive coloring books into her lesson plans, The Allstate Foundation fully funded her project so she was able to purchase them.

"I'm a lifelong learner, striving to be my best version of myself and always working to inspire my little learners to do the same," she says. Each week, Ms. Lopez and the students would focus on a page in the book and discuss its message. And she plans to do the same again this school year.

"DonorsChoose has been a gamechanger for my students. Without the support of all the donors that come together on this platform, we wouldn't have a sliver of what I've been able to provide for my students, especially during the pandemic," she says.

"My passion is to continue striving to be excellent, and to continue to find ways to use literature as an anchor, depicting images that reflect my students," she says.

To help teachers like Ms. Lopez drive this important mission forward, donate on DonorsChoose.

Courtesy of Ms. Lopez

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