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Equality

Ever wonder how kids with autism see the world? That's all it may take to understand them.

Ever wonder how kids with autism see the world? That's all it may take to understand them.

This article originally appeared on 02.19.16


At one of the worst points, she was banging her head on the floor and the walls of her bedroom, raging and crying.

And I was doing the same because I just didn't know what else to do anymore.

Something had triggered a full-on, pupil-dilated tantrum for my then-3-year-old, Emma, complete with hair-pulling and biting — both herself and me.


That's Emma around age 3. That sweet kid having a meltdown? HEARTBREAKING, let me tell you. All photos by Tana Totsch-Kimsey, used with permission.

Feeling just as helpless as I had the last dozen times this happened, I ticked down a mental checklist: Weird food? Wrong clothes? Too hot? Loud sounds? Missing toy? She fitfully stripped down to nothing, finally signaling to me that yes, it was the jammies. She curled up next to me (me, still sobbing) and promptly fell asleep, quiet and stark naked with brilliantly red-purple bruises blooming on her arms.

This is autism. Or one form of it anyway. It has many, many ways of showing itself.

It can be both good and bad. I'll get to the good.

Fully known as autism spectrum disorder, it's a neurodevelopmental quirk that results in various shades of social and behavioral issues. One of the most common challenges across the spectrum is communicating with others; people with autism struggle with the give-and-take flow of conversation, understanding how to interact with others, and processing their own or other people's feelings. They may even seem lost in their own world or unable to express their thoughts or emotions either verbally or nonverbally.

"Lost in their own world" often looks like this. We took over 100 pictures on family picture day, and this was the only useable one.

I have a non-autistic child, too. She's five years older than Emma, and I remember my biggest frustration as a brand-new parent was that I just wished she could tell me what she needed. And it wasn't long before she did: "Mama" quickly became "I have this?" and "Don't like that" and "I can do it myself" and — now — "Oh-em-gee, Mom, get out of my room, please, GOD, ugh!" She's 10; it's fun. She cracks jokes, she rails against gender biases, and she's lined up for honors classes.

But when Emma came along next with an incessant buzz of energy — ripping pages from books presumably for the feel of it, climbing and jumping off tall things presumably for the thrill of it, eating rocks and grass (and just about anything really) presumably for the taste of it — and all of it without being able to tell me anything at all about what she needed ... it took me a long while to understand that autism is not me being terrible at parenting.

What I learned is that Emma calls for a different kind of parenting altogether.


A typical day at home for us includes peanut butter smearing, cabinet scaling, mud eating, and paper ripping. It's a little exhausting sometimes.

Progress actually happened when I let go of what was "wrong" with Emma and started figuring out what to do about it.

Emma was nearly 4 years old by the time she was given an official autism diagnosis. But when the panel of specialists finally handed over their "findings" of autism spectrum disorder after a particularly awful six-hour doctor appointment, I distinctly felt at that point (and still do) that I could not have cared less what they wanted to call it.

The moment of the diagnosis wasn't a big deal to me because it didn't really change anything. By then, Emma was already in speech and occupational therapy and going to preschool, and all of that was helping some. But the autism label did eventually lead us to a kind of therapy we hadn't heard about before.

It's called applied behavior analysis — ABA for short — and that has brought a lot of change.

Some doctors explain ABA as a reward system for when a child does something right, but it's much more than that.

Behavioral scholars and autism experts date ABA treatments back to at least 1968, when a group of university researchers wrote in an introduction for the Journal of Applied Behavior Analysis that ABA interventions could benefit individuals and society.

The treatment is highly individualized, with analysts measuring specific behaviors for each patient, crafting trials to change variables in controlled environments for each patient, and evaluating outcomes for each patient. It's used for both children and adults who have intellectual or developmental issues, and it can help them gain skills in language, socialization, and attention as well as in more educational areas, like reading and math.

And this kid is gonna need more skills than taking selfies ... although she's quite amazing at them, IMO.

ABA is complex stuff. But put super simply, it's empathy on an ultimate level.

It involves patiently observing and trying to understand what a person — often one who can't fully communicate (or even necessarily process the things going on in the world) — feels and thinks.

ABA is putting yourself in that person's place, realizing what is motivating them, and then tinkering with those behaviors using positive encouragement and reinforcement. These are "rewards" of a kind, but not necessarily tangible ones; Emma's greatest motivators are hugs and kisses, high-fives, and tickles.

And wagon rides. And a mom deciding that chewing on a piece of grass to satisfy a sensory need is not so terrible in the big picture.

Even though ABA isn't a new treatment, it's gaining attention recently because of how life-changing the empathetic perspective can be. Agencies like the Centers for Disease Control and Prevention and the National Institute of Mental Health (and several autism-research organizations) recognize ABA as an effective treatment for autism. Plus, access to ABA experts is expanding: Clinics with extensive ABA support and research existed mainly in larger cities for many years, but now services are being offered in places all over the country.

For me, an intensified effort to understand Emma through ABA, and to help her understand her world, changed everything.

She's almost 6 years old now, and these days, she charms just about everyone she meets. She's still mischievous and daring, but she also runs into a room and gives out hugs to everyone there. (Even strangers! It's actually really awkward sometimes.)

Seems like a small thing, but she sings about how Old MacDonald has a cow that moos. (You should hear "Do You Wanna Build a Snowman" ... adorbs!)

She can pick out her own jammies and a book to be read and a toy to keep her hands busy and the perfect spot to cuddle while she winds herself down to sleep. She giggles and beeps noses and plays chase with the dog and likes to announce, "Happy Tuesday!" She's even learning to read and write, which blows my mind when I think of those long nights spent banging heads on floors.

Emma still has autistic-meltdown fits, of course, but I get it now.

Even I have moments where I just can't even. It's really not that hard for any parent or person to relate to that. What's great, though, is that I've noticed how people outside the ABA therapy world — teachers and family and even total strangers — use the therapy, sometimes without even realizing it.

They change how they do things to adapt to what it must seem like from Emma's perspective, and that's how they end up really connecting with her. I find myself, too, exercising those empathy muscles with people other than Emma, and it makes me wonder sometimes:

What if we all did?

Harvard researcher Arthur C. Brooks studies what leads to human happiness.

We live in a society that prizes ambition, celebrating goal-setting, and hustle culture as praiseworthy vehicles on the road to success. We also live in a society that associates successfully getting whatever our hearts desire with happiness. The formula we internalize from an early age is that desire + ambition + goal-setting + doing what it takes = a successful, happy life.

But as Harvard University happiness researcher Arthur C. Brooks has found, in his studies as well as his own experience, that happiness doesn't follow that formula. "It took me too long to figure this one out," Brooks told podcast host Tim Ferris, explaining why he uses a "reverse bucket list" to live a happier life.

bucket list, wants, desires, goals, detachment Many people make bucket lists of things they want in life. Giphy

Brooks shared that on his birthday, he would always make a list of his desires, ambitions, and things he wanted to accomplish—a bucket list. But when he was 50, he found his bucket list from when he was 40 and had an epiphany: "I looked at that list from when I was 40, and I'd checked everything off that list. And I was less happy at 50 than I was at 40."

As a social scientist, he recognized that he was doing something wrong and analyzed it.

"This is a neurophysiological problem and a psychological problem all rolled into one handy package," he said. "I was making the mistake of thinking that my satisfaction would come from having more. And the truth of the matter is that lasting and stable satisfaction, which doesn't wear off in a minute, comes when you understand that your satisfaction is your haves divided by your wants…You can increase your satisfaction temporarily and inefficiently by having more, or permanently and securely by wanting less."

Brooks concluded that he needed a "reverse bucket list" that would help him "consciously detach" from his worldly wants and desires by simply writing them down and crossing them off.

"I know that these things are going to occur to me as natural goals," Brooks said, citing human evolutionary psychology. "But I do not want to be owned by them. I want to manage them." He discussed moving those desires from the instinctual limbic system to the conscious pre-frontal cortex by examining each one and saying, "Maybe I get it, maybe I don't," but crossing them off as attachments. "And I'm free…it works," he said.

- YouTube www.youtube.com

"When I write them down, I acknowledge that I have the desire," he explained on X. "When I cross them out, I acknowledge that I will not be attached to this goal."

The idea that attachment itself causes unhappiness is a concept found in many spiritual traditions, but it is most closely associated with Buddhism. Mike Brooks, PhD, explains that humans need healthy attachments, such as an attachment to staying alive and attachments to loved ones, to avoid suffering. But many things to which we are attached are not necessarily healthy, either by degree (over-attachment) or by nature (being attached to things that are impermanent).

"We should strive for flexibility in our attachments because the objects of our attachment are inherently in flux," Brooks writes in Psychology Today. "In this way, we suffer unnecessarily when we don't accept their impermanent nature."

What Arthur C. Brooks suggests that we strive to detach ourselves from our wants and desires because the simplest way to solve the 'haves/wants = happiness' formula is to reduce the denominator. The reverse bucket list, in which you cross off desires before you fulfill them, can help free you from attachment and lead to a happier overall existence.

Education

Stop struggling with small talk by using the easy 'COST method'

This simple acronym will make your next social gathering a lot more enjoyable.

A man and woman chatting at a dinner party.

There are several reasons why people are hesitant to engage in small talk at a party or around the water cooler at work. Some people simply avoid it because they don’t find chatting about the weather, sports, or what they saw on television the night before very interesting.

Others are afraid that they may run out of things to say or that there will be an awkward pause that makes them want to hide their head in the sand, like an ostrich. Mary, a friendship educator with a degree in interpersonal communication, has a solution for those of us who want to be friendly and meet people but abhor small talk; she calls it the COST method.

What is the COST method for making small talk?

According to Mary, who goes by @better.social.skills on TikTok, COST stands for Compliment, Observation, Story, and Tip. These are four options you can turn to when you're in need of a conversation topic.

@better.social.skills

Remember the acronym C.O.S.T. and you’ll always have something to talk about at parties or events. C stands for compliment. Tell somebody you like their shirt or shoes, for example, and see where the conversation leads. O stands for observation. Remark on something happening around you, like if you enjoy the music or feel a certain way about the weather. A stands for story, in which you share a little anecdote about yourself. For example, maybe you were late to the party for some reason, or you’re excited to get home and watch a show you’re loving. T stands for tip, in which you give a small recommendation to someone. For example, where the shortest bathroom lines are, which food is particular particularly delicious, or point out an interesting person they might want to talk to. What do you think? Would you use these? #creatorsearchinsights #conversationstarters

1. Compliment

“Tell somebody you like their shirt or shoes, for example, and see where the conversation leads,” Mary says.

“Oh, I like your shoes.”

“I like your shirt.”

“You have such a soothing voice.”

2. Observation

“Remark on something happening around you,” Mary says.

“This song is amazing.”

“I really love how Jeanie decorated this room.”

“There’s a lot more people here than last night.”

3. Story

“Share a little anecdote about yourself. For example, maybe you were late to the party for some reason, or you’re excited to get home and watch a show you’re loving,” she said.

4. Tip

“Give a small recommendation to someone. For example, where the shortest bathroom lines are, which food is particularly delicious, or point out an interesting person they might want to talk to,” Mary said.

“I don’t know if you’ve tried the new Mexican place on South Street yet…”

“I’d have one of Jeanie’s margaritas now, before they are all gone.”

“Be careful if you talk to Brian. He can get a bit long-winded.”

chatting before movie, popcorn, movie theater, snacks, small talk Three people chatitng before a movie.via Canva/Photos

The great thing, if you’re a little shy about making small talk, is that studies show that you definitely don’t need to do all the heavy lifting in the conversation. In fact, a Gong.io study found that the best way to make a connection with someone is to speak 43% of the time and let your new friend talk for the other 57% of the conversation.

Further proof that the best way to make a great first impression is a study published in the Journal of Personality and Social Psychology. It found that when meeting someone for the first time, ask them a question and then be sure to ask two additional follow-ups before discussing yourself. This has been found to dramatically increase your likability.

“We identify a robust and consistent relationship between question-asking and liking,” the authors of the study write. “People who ask more questions, particularly follow-up questions, are better liked by their conversation partners.”

For those of you who have always felt that you're bad at making small talk. while others seemed to do it naturally, realize that people aren’t born great communicators; it’s a skill that can be learned just like anything else. With a few tips from the experts, you can go from dreading small talk to enjoying striking up a conversation with just about anyone.

A man and woman chatting over some wine.

A lot of people are uncomfortable making small talk, but it’s an essential skill that can make or break your love life, career, and social experiences. Many people believe that being good at chatting with others is something innate, but those who excel at it work at their craft and pick up small tips along the way to become better communicators.

One of the tricks that all great communicators know is that you will be more likable when you're more interested than interesting. Study after study shows that people love talking about themselves, and if you ask people more questions, they will like you a lot more than if you did all the talking. So, how do we do this without creating a one-sided conversation where your conversation partner learns nothing about you? The folks at the Science of People have shared the statement-plus question technique.

The statement-plus technique

“One of the smoothest ways to keep conversation flowing is to share a brief personal statement followed by a question,” the Science of People writes. “This technique accomplishes two things: it gives the other person information about you (making you seem more approachable and interesting) while also redirecting focus to them.”

small talk, conversation, office party, people talking, wine Coworkers having a nice conversation.via Canva/Photos

Here are some examples:

Instead of asking “What do you do for work?” say:

“I’m a writer for Upworthy, and I enjoy seeing my work read by millions of people. What excites you about your job?”

Instead of asking, “Where do you live?” try:

“I live in Long Beach, California, and it’s really nice living by the ocean. What do you love the most about where you live?”

Instead of asking, “How do you know the person who threw the party?” say:

“I met Sarah at a church meeting seven years ago. Do you remember the first time you met her?”

These questions enable you to discuss yourself while maintaining the focus on the other person. They are also open-ended, so you don’t just get a one-word answer. You learn their job and what excites them about it. You know where they live, and they get to brag about what they like about the city. The technique also broadens the conversation because, according to the psychological phenomenon known as reciprocal self-disclosure, people are more likely to disclose things about themselves after you share something about yourself.

- YouTube youtu.be

What is reciprocal self-disclosure?

“The most likely result of your self-disclosure is that other people will do the same. In the field of communication, we refer to this as 'reciprocity.' When you share information about yourself, the most likely result is that people will start to disclose a similar type of information from their own lives," communication coach Alexander Lyon says. "In our presentations, we talk about this as a magic wand. Disclosure is the closest thing we have to a magic wand in terms of a concept in communication. When you disclose, other people almost automatically reciprocate."

Ultimately, people love to talk about themselves, and if you give them the opportunity, they will like you more for it. However, that doesn’t mean you can’t reveal some aspects of yourself at the same time while keeping the focus on them. The statement-plus question technique allows you to reveal some things about yourself while making the other person feel seen and comfortable telling you more about themselves. It’s sure to elevate your small talk to something more substantial in a relaxed way that doesn’t feel like an interview.

Did Julius Caesar have his armpits plucked? Probably.

Modern life may have us shaving, waxing, microblading, laser treating, Botoxing, and altering our natural appearance in all manner of ways in the name of beauty, but the idea of grooming to specific societal standards is nothing new. In cultures all around the world and throughout history, humans have found countless creative ways to make ourselves (ostensibly) look better.

Of course, what looks better is subjective and always has been. Take, for example, the ancient Romans. If you wanted to be seen as a studly man 2,000 years ago in the Roman Empire, you'd remove as much of your body hair as possible. That meant tweezing—or being tweezed by someone else, most likely an enslaved person.

armpit hair, grooming, hair removal, hairless, beauty standard Armpit hair wasn't cook in ancient Rome. Giphy

The Romans, in general, weren't big on body hair for men or women.

"You had to have the look,” Cameron Moffett, English Heritage’s curator at the Wroxeter Roman City museum in Shropshire, U.K., told The Times. “And the look was hairlessness, particularly the underarms.” A collection of 50 tweezers on display at the museum, recovered from the archeological site that was once the Roman city of Viriconium, speaks to Roman tweezing habits, but that's not the only evidence we have.

Stoic philosopher Seneca once wrote in a letter lamenting how the noise from the Roman baths was disrupting his work: "Besides those who just have loud voices, imagine the skinny armpit-hair plucker whose cries are shrill to draw people's attention and never stop except when he's doing his job and making someone else shriek for him."

When we picture the ancient Romans, "skinny armpit-hair plucker" may not be the image that comes to mind, yet here we are.


teeth brushing, toothbrush, oral hygiene, toothpaste, dental hygiene They brushed with what now? Giphy

While we fret over fluoride, the Romans brushed their teeth with pee and mouse brains.

Toothpastes of the past were made with all kinds of things—herbs, spices, salts, crushed bone, and more. For the ancient Romans, that "more" included mouse brains and human urine, according to Decisions in Dentistry. Mouse brains were believed to enhance the effectiveness of toothpaste, and urine, imported in large quantities from Portugal, was utilized for its ammonia content and whitening properties. A standard Roman toothpaste would be a mixture of herbs, mouse brains, urine, and a binder such as honey. Oddly enough, it appeared to be somewhat effective, with archeological findings showing a relatively low number of cavities and tooth decay.

@charissekenion

Sailorr has everyone talking about her sound - and her teeth. Here’s my super short history lesson on the practice of ohaguro #ohaguro #geisha #japanese #japantok #aapi #history #japan #historytok #sailorr #japanesebeauty

Meanwhile, in ancient Japan, women tried to blacken their teeth

Teeth whitening is all the rage in modern times, but in the distant past in parts of Asia, making your teeth black was considered beautiful. The practice known as ohaguro was a traditional Japanese practice that, ironically, was intended to prevent tooth decay.

According to a letter in the British Dental Journal, women in ancient Japan would paint a solution of ferric acetate (from iron filings), vinegar, and tannin from tea or vegetables. It was called kanemizuonto and made the teeth appear black. The practice has made a comeback among some rural areas of Southeast Asia, and the Vietnamese-American singer Sailorr has made waves with her blackened teeth as well.

ear picker, history, artifact, grooming, beauty An ornate ear picker.The Swedish History Museum, Stockholm/Wikimedia Commons

Ear pickers were much prettier than Q-tips. In fact, they were an accessory.

The old saying, "Don't put anything in your ear except your elbow," may not be as old as it seems, as people have been inserting objects into their ears to remove wax for a long time.

In the 16th and 17th centuries, it was common to see beautiful, ornate "ear pickers"—small metal tools with a small scoop at the end for cleaning ears as well as teeth and fingernails. According to Jamestown Rediscovery, it was fashionable to wear gold and silver toiletry tools, such as ear pickers or toothpicks, as accessories. It's hard to imagine wearing Q-tips and toothpicks around. Also, ew. But if you look up "ear pickers," you'll find ornate examples from various parts of the world.

At the very least, it's nice to know that modern humans are not the first ones to go to great—and sometimes interesting—lengths to meet an arbitrary social standard of beauty. (And three cheers for modern toothpaste. Seriously.)