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“A balm for the soul”
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GOOD PEOPLE Book
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Family

A musician's decades-long battle with the fear of inheriting his dad's incurable disease.

True
Muscular Dystrophy Association

There are certain moments in our lives that are too important not to share with the people we love.

Singer-songwriter Eric Hutchinson is having one of those moments.


Photo by Ralph Arvesen/Flickr.

Hutchinson and his band recently embarked on a tour to promote his new album, which he was proud to have independently produced. They are set to perform in Hutchinson's home state of Maryland at Merriweather Post Pavilion, an over 19,000-seat outdoor amphitheater that has hosted some of the most famed musicians in modern history.

This is one show Hutchinson doesn't want his family to miss. And he's especially excited for his dad to see him on the historic stage. But getting him there requires more than a VIP pass.

Before Hutchinson was big enough to pick up a guitar, his dad was diagnosed with an adult-onset form of muscular dystrophy (MD).

Photo from Eric Hutchinson, used with permission.

In the decades that followed, the disease progressively took away his father's control of his own body.

Though Hutchinson was too young to fully grasp the situation at the time, as his father's condition progressed, a frightening picture came slowly into focus.

"I don’t remember when I first found out about my dad’s disease, but I just knew that something was different," he said. "But the older I got, the more I understood, and the more I worried."

Then, in college, he learned more about MD that gave him concern for his own future.

Most muscular dystrophies are genetic. Hutchinson had a 50% chance of inheriting the gene flaw that caused his father’s MD.

"When am I going to wake up and feel something?" he wondered. "When my hands were tired, I worried that they were symptoms."

And as his creative interests became a full-time music career, he had a hard time facing the possibility that it could be taken away so prematurely.


"I’m a musician, and I rely on my hands to perform," he said. "So it wasn't just, 'Am I going to lose the ability to handle my day-to-day.' It was also, 'Am I going to lose the ability to do my job?'"

As his motor skills deteriorated, Hutchinson’s father had to let go of a lot of his passions. But he never stopped challenging himself.

“To my dad's amazing credit, he was always trying to do as much as possible and not allow it to limit him,” said Hutchinson.

Photo from Eric Hutchinson, used with permission.

When it would have been easy to withdraw, his dad went headfirst into parts unknown. MD made his woodworking difficult and dangerous, but he could still use a computer. So he earned a master’s degree and started a new career in web design.

Though he could no longer hold a guitar chord, he still had a voice, so he joined his synagogue choir. And, says Hutchinson, he walked for as long as his body would allow, falling often, but getting up just as many times.

While his father’s illness started as a fearful shadow to run from, his chosen life gave Hutchinson the courage to get tested.

In the winter of 2015, the day before he began recording his new album, Hutchinson met with a neurologist to give blood samples for the test. In a matter of weeks, he’d finally have the answer he’d been avoiding.

“I found my mind drifting while recording,” Hutchinson wrote in a personal essay once his work in the studio was done. “The sessions were colored by the anxiety that at any moment the doctor could be calling with results that could change my life.”

But, like his father, he chose to persevere. “I put one foot in front of the other, channeled the emotion into the songs, and kept talking to my therapist who helped me navigate it all. Slowly, I got stronger.”

Photo from Eric Hutchinson, used with permission.

Two days after he finished recording his album, he got a call from his doctor. Hutchinson tested negative for the genetic mutation for MD. But what he thought would be some of the most relieving news of his life turned out to be more bittersweet.

"I expected to have this celebratory, washing over me with elation. Of course it was a relief, but MD was still a part of my family, so I had a lot of complicated feelings around it."

For Hutchinson, an end to his fear of MD marked the beginning of a new mission to support the MD community. He's starting by simply talking about the disease.

This is something new for him, as his family tended to avoid open conversation about MD.

"It was like a secret I had to keep, which felt very isolating. So I’m proud of the fact that we’re having this conversation right now," he said. "Being able to talk about it takes away some of the fear. I can look at it more clinically and understand it for what it is."

And with his upcoming tour, he’s inviting his fans into the conversation through his music and a heartfelt open letter that speaks to his personal journey.

Photo by Ralph Arvesen/Flickr.

Hutchinson joins a long list of entertainers in that effort, dating back to 1951 with Jerry Lewis and Dean Martin’s first televised appeal for viewers to support the Muscular Dystrophy Association on “The Colgate Comedy Hour.”

While a cure is yet to be discovered, MD research has led to potentially game-changing developments.

Among them are advancements in physical therapy, experimental drugs that could help control MD symptoms and gene editing using revolutionary CRISPR technology.

Image by Ernesto del Aguila III, NHGRI/Wikimedia Commons.

We can see the value of all that work in recent stories like those of 18-year-old Latondra Chappell, a teen with MD who worked hard in physical therapy to get out of her wheelchair and walk the stage at graduation; 23-year-old Jon Piacentino, an aspiring scientist who has benefited hugely from experimental MD drug treatment; and 14-year-old Devin Argall, who’s participating in an MD drug clinical trial and was named a "goodwill ambassador" in the state of Wisconsin for his advocacy.

For the first time in years, Hutchinson feels he's on the right emotional bearing, and he wants to spread good along the way.

Connecting with people through music is one way he wants to do that. And if he ever veers off course, he knows just where to look to get back on track:

"I reflect on my dad. I got to see his resolve and endless determination up close. He fell, but he got up. Now I fall, but I get up."

As for the big show in Maryland, Hutchinson and his manager were making door-to-door arrangements and ensuring there was wheelchair access every step of the way.

Because beyond his son's music success, hearing his newfound voice on MD — and on such a massive stage — would be too proud a moment for Hutchinson's dad to miss.

Joy

'90s kid shares the 10 lies that everyone's parent told them

"Don't swallow that gum. If you do, it'll take 7 years to come out."

via 90sKid4lyfe/TikTok (used with permission)

90sKidforLife shares 10 lies everyone's parents told in the era.


Children believe everything their parents tell them. So when parents lie to prevent their kids to stop them from doing something dumb, the mistruth can take on a life of its own. The lie can get passed on from generation to generation until it becomes a zombie lie that has a life of its own.

Justin, known as 90sKid4Lyfe on TikTok and Instagram, put together a list of 10 lies that parents told their kids in the ‘90s, and the Gen X kids in the comments thought it was spot on.


“Why was I told EVERY ONE of these?” Brittany, the most popular commenter, wrote. “I heard all of these plus the classic ‘If you keep making that face, it will get stuck like that,’” Amanda added. After just four days of being posted, it has already been seen 250,000 times.

Parents were always lying #90s #90skids #parenting

@90skid4lyfe

Parents were always lying #90s #90skids #parenting

Here are Justin’s 10 lies '90s parents told their kids:

1. "You can't drink coffee. It'll stunt your growth."

2. "If you pee in the pool, it's gonna turn blue."

3. "Chocolate milk comes from brown cows."

4. "If you eat those watermelon seeds, you'll grow a watermelon in your stomach."

5. "Don't swallow that gum. If you do, it'll take 7 years to come out."

6. "I told you we can't drive with the interior light on. ... It's illegal."

7. "Sitting that close to the TV is going to ruin your vision."

8. "If you keep cracking your knuckles, you're gonna get arthritis."

8. "You just ate, you gotta wait 30 minutes before you can swim."

10. "If you get a tattoo, you won't find a job."


This article originally appeared on 4.26.24

via YouTube

Over the past few years, there has been a growing number of people who believe the Earth is flat. A recent YouGov survey of more than 8,000 Americans found that as many as one in six are "not entirely certain the world is round."

Maybe there wouldn't be so much scientific illiteracy in this world if we still had Carl Sagan around.

Sagan hosted the original version of TV's "Cosmos" in 1980. It would be revived in 2014 with astrophysicist Neil deGrasse Tyson at the helm.


In the first episode of "Cosmos," Sagan easily proved the Earth was a sphere using a piece of cardboard, some sticks, and the work of an ancient Libyan-Greek scholar, Eratosthenes.

Carl Sagan explains how Eratostenes knows the earth is curvewww.youtube.com

"How could it be, that at the same moment, a stick in Syene would cast no shadow and a stick in Alexandria, 800 km to the north, would cast a very definite shadow? Sagan asked.

"The only answer was that the surface of the Earth is curved," he added. "Not only that but the greater the curvature, the bigger the difference in the length of the shadows."

Considering the distance between the two cities and the lengths of the shadows they produced, Eratosthenes was able to determine that the Earth had a seven-degree curve. He used that calculation to speculate the Earth was 25,000 miles in circumference.

These days we know that the earth is 24,860 in circumference, so Eratosthenes was 140 miles off, not bad for over 2,000 years ago.


This article originally appeared on 7.22.20

@organizedchaos4/TikTok

"It costs you nothing, and it creates this ripple effect of kindness."

The corner of the internet devoted to grime and muck being scrubbed away to oh-so satisfying perfection, otherwise known as #CleanTok, is mostly wholesome, cathartic fun. But every once in a while, controversy comes in.

For a mom named Audrey (who clearly has a passion for cleaning hacks, given her TikTok handle of @organizedchaos4), that moment came after she filmed herself doing a deep clean on her 12-year-old daughter’s room. Several people chimed in to accuse her of spoiling her kid, essentially.

Granted, Audrey admitted that she had posted the video “hoping that the trolls would get those thumbs a-movin’.” So when they did indeed come after her, she was ready.


“I surprised my daughter by cleaning her room for her. She's been getting herself up for 6 a.m. practices, she gets herself to school, she's out of the house before the rest of us have even woken up,” Audrey says in the clip.

“Keep in mind she's 12. In return for all that she's been doing, I thought it would be a nice treat if I just did a quick speed clean of her room. It was no big deal.”

Audrey goes on to say that the point of her follow-up video was to reiterate the importance of “extending grace.”


@organizedchaos4 When we throw empathy out the window, we throw grace out the window. If you saw the video and your first reaction was to say, “why isn’t she doing it herself?” Ask yourself, “have I EVER left a room messy because I was overwhelmed, tired, busy?” If so, then you are in no position to judge a child for the same thing. #grace #kindness #help #parenting #cleaning #kids #mom ♬ original sound - Organized Chaos | Audrey


That's what I did for my daughter. She had fallen behind on her room and I helped her.,” she says. “It costs you nothing, and it creates this ripple effect of kindness. We all have setbacks, we all have failures, we all make mistakes and if you say you don't you're lying. By extending grace we are spreading kindness, we are spreading compassion. If you can't extend grace to your own children then there's no way you're going to extend it to anyone else in the world and that's a scary world to live in.”

Audrey then argues that being kind to others often makes it “easier” to be kind to ourselves, which is “vital for our mental health.”

She then concludes, “so if you watched the video yesterday or you're watching this one today and you're thinking negative thoughts, ask yourself, ‘Am I quick to judge, be resentful, be negative or am I quick to extend grace or ask yourself have I ever stumbled and wish grace had been extended to me?’”

Down in the comments, we see that Audreynis certainly not alone in her thinking.

“Kindness costs nothing and provides everything,” one person wrote.

“This will only inspire your daughter to keep working hard and give back when she has a chance to, and know she can rely on you when she struggles,” added another.

Several other moms even chimed in about doing something similar for their kids.

“Exactly I did the same thing for my 23-year-old daughter who works full-time and is a full-time college student. She’s 100% independent. I just want to take some off stress off her plate,” one mom shared

Another said, “I do this for my daughter still, and it's her house.”

As with all things in parenting, balance is key. Of course we don’t want to instill laziness, but at the same time, kids can’t be expected to overachieve in all areas, at all times. Adults can’t even manage this without a little help. Sounds like this is truly a case of a good kid acting as responsibly as humanly possible, and a mom just wanting to help out where she can, all why'll teaching her the world can be a safe place. Hard to see anything wrong with that.

via wap rem x / Twitter

As society has become more accepting of LGBTQ people, the average age people come out of the closet has dropped significantly, from 37 among those in their 60s to 21 for those in their 30s.

However, many people, especially those who are older, are never able to come out because of societal or familial pressures.

An adorable new video that went viral on TikTok shows it's never too late to be your true self. A woman named Aimee was having a conversation with her grandmother — who she assumed was straight — when she admitted to being attracted to women.

Aimee thought it was so important that she had to capture the conversation on video.


Aimee wanted to know if it was just a sisterly love or sexual attraction. "Do you like prefer women's bodies?" Aimee asked.

"I think so, yeah" the grandmother answered. "I think boobs are nice. I think the penis, not that keen on it," she said with a grimace.

Aimee asked her grandmother what age the perfect woman would be and she said, "late 60s," and Aimee jokingly called her a "cougar."

"I just like women anyhow," the grandma said. "I've never liked men that much."

However, Aimee's grandma isn't quite ready to hit the dating scene yet. "At the moment Aimee, all I want to do is survive," she admitted.


This article originally appeared on 9.19.20

Culture

People in the '90s and early 2000s trying to explain the internet is pure comedy gold

Some were hilariously wrong, but David Bowie's was so spot on it’s almost scary.

Some in the late '90s and early '00s thought the internet was an overhyped idea doomed to fizzle.

Those of us who are old enough to remember the world before we became completely dependent on the internet could never have predicted what life would be like now. Some of the things the internet has enabled us to do—wireless video chats with friends halfway around the globe, ordering food to be delivered to our door at the click of a few buttons, virtual support groups for every possible interest or ailment—were the stuff of imaginary, far-futuristic worlds, surely not realistic to expect in our lifetimes. (I mean, I figured we'd have flying cars before we'd have computers we could fit in our pockets, yet here we are.)

The 1990s were this weird in-between phase where the tech geeks were all about the .com world and tech-reluctant normies were all, "Gretchen, stop trying to make the internet happen. It's not going to happen." Once the internet started becoming popular, some people did try to predict how it would all turn out.

Some predictions were wrong. Ridiculously, hilariously wrong. And on the flip side, David Bowie, in his apparently infinite wisdom, was so spot on it's almost scary.


Let's look at a prediction that turned out to be embarrassingly off-base. Former Head of Strategy at Amazon Studios Matthew Ball shared a clip from the Daily Mail newspaper in the year 2000 with the headline "Internet 'may be just a passing fad as millions give up on it.'"

"Researchers found that millions were turning their back on the world wide web, frustrated by its limitations and unwilling to pay high access charges," it reads.

"They say that e-mail, far from replacing other forms of communication, is adding to an overload of information."

(Go ahead and pause for maniacal laughter here.)

"Many teenagers are using the internet less now than previously, they conclude, and the future of online shopping is limited."

Ah, the adorable, pre-Amazon naivete.

Even a counter to that piece written by one Jane Wakefield a few days later had some hilarious lines in it. While urging not to throw out the the baby internet with the bathwater, Wakefield wrote, "It should come as no surprise to us that people are failing to see the point of the Internet. If you don't need access to a huge online encyclopaedia, if you don't fancy trying to buy a cheapish CD online, if you don't enjoy watching jerky videos of hardcore porn, then you might be right to question why you need a Net connection. Unlike TV (how many times have you heard the phrase "former TV watcher") the Internet is still dispensable.

Except of course for email."

BWAAHAAHHAAA. That's right. The only indispensable part of the web in 2000 was e-mail, which in some ways feels like the most archaic part of the internet now. Too funny.

David Bowie, on the other hand, predicted the impact the internet would have on society in 1999 and totally nailed it.

He was so right in that we had barely seen the tip of the iceberg in 1999. He was also right in that the impact to society—both good and bad—was unimaginable. Exhilarating and terrifying. We're living that now.

"The context and state of content is going to be so different to anything that we can really envisage at the moment," he said. "Where the interplay between the user and the provider will be so in sympatico it's going to crush our ideas of what mediums are all about."

Whoa. That's some seriously prescient prognosticating there, Bowie. (He really did see what was coming. He even started his own internet service provider in 1998 while other musicians scoffed at the world wide web.)

Going back just a bit further, Matthew Ball also shared an op-ed from a 1995 Newsweek in which Clifford Stoll writes that he is "most uneasy about this trendy and oversold community" of the internet. Ball said it "reads exactly like Metaverse criticisms."

Indeed, Stoll basically describes our current living situation with "telecommuting workers, interactive libraries and multimedia classrooms…electronic town meetings and virtual communities" and more as if it were some kind of absurdity.

And maybe it is. After all, he accurately described the other part of our current living situation, which is that "Every voice can be heard cheaply and instantly. The result? Every voice is heard. The cacophony more closely resembles citizens band radio, complete with handles, harassment, and anonymous threats. When everyone shouts, few listen."

Wowsers. Yep. Good times.

So what did we learn here?

Don't underestimate the future of technology. And always listen to David Bowie. The end.


This article originally appeared on 12.22.21