+
Family

I've been finishing my late father's bucket list. Things got tricky when I got to the political part.

I've been finishing my late father's bucket list. Things got tricky when I got to the political part.
Adrian Bacolo (bacolosphotos.com)

The classrooms were empty.

Never did I expect to see my former high school, in Delaware, as the site of the Democratic National Convention on TV, but there it was. There was my study hall and my study hall teacher, who also happens to be the former second lady.

When I graduated college in Delaware, I hightailed it out of there, like most people my age. I had big dreams in New York. I wanted to be a writer.

That summer, my father was killed by a distracted driver. She'd gotten lost and pulled off a highway, picking up her phone at a red light to call for directions. She zoomed right through the next red and plowed into my dad, who was turning left. He died instantly. Or so I was told. I was 25, and decided to keep going. I inherited a small insurance settlement. I used it to stay in New York. It was how my dad would have wanted it, I thought.

Now, seventeen years later, those dreams had come true. I'd been published in national magazines and newspapers in addition to copyediting national magazines. But I still wasn't fulfilled. No amount of career success could erase what had happened. I was still working on making it right.



"After our son Beau died of cancer, I wondered if I would ever smile or feel joy again," the blond woman in the green shirtdress, Dr. Jill Biden, said on television. "It was summer, but there was no warmth left for me. Four days after Beau's funeral, I watched Joe shave and put on his suit. I saw him steel himself in the mirror, take a breath, put his shoulders back and walk out into a world empty of our son. He went back to work. That's just who he is. There are times when I couldn't even imagine how he did it. How he put one foot in front of the other and kept going. But I've always understood why he did it…he does it for you. Joe's purpose has always driven him forward. His strength of will is unstoppable, and his faith is unshakable. Because it's not in politicians or political parties or even in himself — it's in the providence of God."


WATCH: Jill Biden's full speech at the 2020 Democratic National Convention | 2020 DNC Night 2www.youtube.com


A week after Donald Trump was elected president in 2016, my life took an unexpected turn, too.

My brother had just moved into his first condo. My husband and I drove the four hours up to Salem, Massachusetts, to see him. Once there, my brother and future sister-in-law revealed a treasure they'd discovered in their move: our father's bucket list.

"Talk with the President." "Correspond with the Pope." "Surf in the Pacific." It was the kind of thing you find and chuckle over. His indecipherable handwriting, the wild things this man from Delaware wanted to do. But I didn't just laugh. I felt a pull to action. My husband felt it too.

"You have to finish this list," he said. "And then write a book about it."

I'd been an activist for three years, twisting my work as a journalist into a platform. But I hadn't found the right medium. And the numbers of car fatalities kept going up.

"The burdens we carry are heavy, and we need someone with strong shoulders," Dr. Biden continued. "I know that if we entrust this nation to Joe, he will do for your family what he did for ours. Bring us together and make us whole, carry us forward in our time of need, keep the promise of America for all of us."

It's not easy. Moving on, trying to make sense of unimaginable tragedy.

I've understood what families have gone through the past six months. I know the pain of getting a phone call to learn your father has died. There is a helplessness. An anger.

My dad never would have wanted me to talk about his death my whole life. My dad was hopeful, joyful, a storyteller. He would have wanted a better story.

"Be invited to a political convention" was item 53 on my dad's bucket list. After "talk with the President," it struck me as the least feasible. But in August 2019, I gave it a go. By then I'd checked off 27 of my dad's dreams.

First I wrote to every Democratic candidate. Then I wrote to every college alum who worked for the press, to every TV show who'd interviewed me. Finally, I tried a University of Delaware alum who worked at the local paper. He said he had no connection to Biden, but could put me in touch with the Delaware Democratic state party.

The Delaware Democratic chairman was kind. He said if I was a registered Democrat, I could attend their next convention.

That sounded like an invitation to me.

I walked out of the New York skyscraper where I worked and just before I reached the subway stopped and cried. Of all the conventions I could have ended up going to, I'd never imagined one in my home state. The place I'd wanted nothing to do with 20 years ago. But it was exactly where my dad would have gone, had he checked this off himself.

A few months later, a story about my mission to finish my dad's list was published in my college's alumni magazine. It was to come out that spring.



But by then, the whole world had fallen apart.

My husband came home from work early on a Wednesday in March. "I'm not going back," he said. "We have to work from home indefinitely."

We jumped in the car and drove to Whole Foods to stock up. I texted everyone I knew, asking them how they were handling this craziness. I got no response.

The pandemic hadn't hit them yet.

"We just need leadership worthy of our nation," Dr. Biden said. "Worthy of you. Honest leadership to bring us back together, to recover from this pandemic and prepare for whatever else is next. Leadership to reimagine what our nation will be."

In the next few weeks, I decided I wanted more than just an invite to a state convention. And so as the country shut down, I collected signatures to become a national delegate. I had to do it digitally because my state was sheltering in place. I attached a photo of myself in a tuxedo (another list item, "own a black tux"). I asked my neighbors to put down whatever they were doing and please sign my list. But then the governor waived the need for signatures.


A councilwoman in my town emailed me. She said she could get me in. She shared my story with a friend who shared it with another friend and next thing I knew, the Joe Biden campaign was hearing about me.

Weeks went by. My University of Delaware magazine article came out. They'd put me on the cover. People said my story gave them hope during an uncertain time. But I felt lost. Yes, my story was one of hope, but hope in a more simple time. Not hope during a time of 170,000 deaths, 5 million Americans ill and millions out of work in only five months!


My husband and I couldn't even leave our house. I couldn't see anyone I loved. How on earth could my words still make a difference?

"How do you make a broken family whole?" Dr. Biden said. "The same way you make a nation whole: with love and understanding and with small acts of kindness. With bravery, with unwavering faith. We show up for each other in big ways and small ones again and again."

The sacrifices I've seen people make for my dad's bucket list have been countless. It has changed my marriage for the better, thanks to my husband's contributions. Every sibling, cousin, aunt and uncle has chipped in, as have my mom and stepdad and every friend. Every person I know has somehow turned out to be an expert on some list item. They've given me their time for free. Even strangers.

I'm richer in love because of this project, I have friends I never would have known. And they tell me they're richer too.

In June I learned Biden had chosen his NJ delegates for the national convention, and I wasn't one of them.

But by July I felt better about not receiving an invite. Because now, thanks to the pandemic, nobody would. The convention would be virtual, in an effort to protect people's lives.

Then it was announced that even Biden wouldn't travel to Milwaukee. He'd accept the nomination right there in Delaware.

The same state I'd already been invited to for the Delaware state convention. My mom texted me an hour before the second night of the DNC.

"Jill Biden is speaking from her classroom at Brandywine High School, Room 232."

"What?" I said. "I've been in that room!"

How is it possible? I thought. I've been denied an invitation back to my own high school!

But then I suddenly knew. It was because I was too busy trying to be important to remember who I really am.

"Now, Joe is not perfect," former First Lady Michelle Obama said in her DNC speech. "And he'd be the first to tell you that. But there is no perfect candidate, no perfect president. And his ability to learn and grow—we find in that the kind of humility and maturity that so many of us yearn for right now. Because Joe Biden has served this nation his entire life without ever losing sight of who he is; but more than that, he has never lost sight of who we are, all of us.

Here she was, Dr. Jill Biden, this beautiful stateswoman, addressing our nation in a hopeless time, during the most important election of our lifetimes—from my high school. From little Delaware.

From a place that maybe wasn't so little after all.

Maybe I didn't have to make my voice seem big to be heard. Instead of spending the evening in a crowded arena, I spent it on my couch at home, cheering with my mom over the phone when we saw my old stomping grounds on TV.

And hers were the only ears I needed. The only invitation I could want.

A night with my mom at the national convention. And I know my dad was there, too.

Probably laughing at me.


Laura Carney is a writer and magazine and book copy editor in New York and is writing a book about finishing the bucket list of her late father, who was killed by a distracted driver

Sponsored

Three women, three MS journeys: How multiple sclerosis looks different for everyone

Gina, Nathalie and Helga share their reactions to being diagnosed with MS and how they stay informed and positive in the face of ever-changing symptoms.

Courtesy of Sanofi

Helga, Nathalie and Gina all have MS, and their experiences show how differently the disease can manifest.

True

It’s been 155 years since neurologist Jean-Martin Charcot gave the first lecture on a mysterious progressive illness he called “multiple sclerosis.” Since then, we’ve learned a lot. We know MS causes the immune system to attack healthy tissue, including damaging the brain and spinal cord. Resulting symptoms can be debilitating and include fatigue, blurred vision, memory problems and weakness. Huge advancements in our understanding of MS and its underlying causes, as well as treatment advances, have been made in the past few decades, but MS remains a complex and unpredictable reality for the 2.8 million+ people diagnosed around the world.

Ironically, the only real constant for people living with MS is change. There’s no set pattern or standard progression of the disease, so each person’s experience is unique. Some people with MS have mild symptoms that worsen slowly but sometimes improve, while others can have severe symptoms that drastically alter their daily lives.

All people with MS share some things in common, however, such as the need to stay informed on the ever-evolving research, find various lines of support and try to remain hopeful as they continue living with the disease.

To better understand what navigating life with MS really looks like, three women shared their MS stories with us. Their journeys demonstrate how MS can look different for different people and interestingly, how the language used to talk about the disease can greatly impact how people understand their realities.

woman with horse, woman riding horseGina loves riding her horse, Benita.Courtesy of Sanofi

Gina—Hamburg, Germany (diagnosed with relapsing multiple sclerosis in 2017)

When her youngest son was 4 months old, Gina started having problems with her eye. She’d soon learn she was experiencing optic neuritis—her first symptom of MS.

“Immediately after the diagnosis, I looked up facts on MS because I didn’t know anything about it,” Gina says. “And as soon as I knew what could really happen with this disease, I actually got scared.”

As her family’s primary income provider, she worried about how MS would impact her ability to work as a writer and editor. Her family was afraid she was going to end up in a wheelchair. However, for now, Gina’s MS is managed well enough that she still works full-time and is able to be active.

“When I tell somebody that I have MS, they often don't believe me the first time because I don't fulfill any stereotypes,” she says.

Overwhelmed by negative perspectives on living with MS, Gina sought support in the online MS community, which she found to be much more positive.

“I think it’s important to use as many positive words as you can when talking about MS.” It’s important to be realistic while also conveying hope, she says. “MS is an insidious disease that can cause many bad symptoms…that can be frightening, and you can't gloss over it, either.”

To give back to the online community that helped her so much, Gina started a blog to share her story and help others trying to learn about their diagnosis.

Though she deals with fatigue and cognitive dysfunction sometimes, Gina stays active swimming, biking, riding horses and playing with her sons, who are now 11 and 6.

Cognitive dysfunction is common in MS, with over half of people affected. It can impact memory, attention, planning, and word-finding. As with many aspects of MS, some people experience mild changes, while others face more challenges.

Gina says that while there’s still a lot of education about MS needed, she feels positive about the future of MS because there’s so much research being done.

woman in wheelchair holding medal, woman rowingNathalie is an award-winning rower with multiple international titles.Courtesy of Sanofi

Nathalie — Pennes Mirabeau, France (diagnosed with relapsing-remitting multiple sclerosis in 2002)

Nathalie was a teenager and a competitive athlete when she noticed her first symptoms of MS, but it would take four years of “limbo” before she was diagnosed.

“Ultimately, the diagnosis was more of a relief, than a shock,” she says. “Because when you have signs and you don’t know why, it’s worse than knowing, in the end, what you have.”

However, learning more about the disease—and the realities of disease progression—scared her.

“That glimpse of the future was direct and traumatic,” she says. Her neurologist explained that the disease evolves differently for everyone, and her situation might end up being serious or very mild. So, she decided to stop comparing herself to others with MS.

She said to herself, “We’ll see what happens, and you’ll manage it bit by bit.”

By 2005, Nathalie’s MS had progressed to the point of needing a wheelchair. However, that has not dampened her competitive spirit.

Nathalie began her international rowing career in 2009 and has won multiple world titles, including two Paralympic medals—silver in London and bronze in Tokyo. Now, at 42, she still trains 11 times a week. Fatigue can be a problem, and sometimes hard workouts leave her with muscle stiffness and shaking, but she credits her ongoing sports career for helping her feel in tune with her body’s signals.

“Over the years, I’ve learned to listen to my body, letting my body guide when I need to stop and take breaks,” she says.

Nathalie explains that she used to only look backwards because of the initial shock of her diagnosis. In time, she stopped thinking about what she couldn’t do anymore and focused on her future. She now lives in the following mindset: “Even when doors close, don’t miss out on those that open.” Instead of focusing on what she can’t do, she focuses on the opportunities she still has. Right now, this includes her training for the 2024 Paralympic Games in Paris, where she will compete for another rowing medal.

“I only go forward,” she says. “Well, I try, anyway…It’s easy to say, it’s not always easy to do. But that’s what I try to do.”

woman exiting water after swimming, woman with great daneHelga's Great Dane has become a helpful and beloved companion.Courtesy of Sanofi

Helga—Johannesburg, South Africa (diagnosed with relapsing multiple sclerosis in 2010)

When Helga first started having balance issues and numbness in her feet, she chalked it up to her training as a runner. But when the numbness moved to her face, she knew something was wrong. She never guessed it was MS.

“When I was diagnosed, I felt completely overwhelmed and clueless,” Helga says. “I felt that I had nowhere near enough information. I did not know anything about the disease…I had no idea that it was going to be a process of continually monitoring and adjusting your lifestyle.”

In the beginning, Helga’s symptoms developed slowly, and she didn’t appear ill to others. She was even able to run for a few years after her diagnosis, but she couldn’t do marathons anymore, and she began to fall frequently due to balance issues and right-foot dragging. Then her cognition issues became more problematic, especially in her job as a trainer in a printing company.

“My executive function, decision-making and short-term memory were affected to the point that I was eventually medically unfit for work,” she says. She stopped working in 2017.

However, she didn’t stop living life. Even though she could no longer run, she continued to swim competitively. She got a Great Dane puppy and trained him as a service dog to help her walk. She also serves as vice chair of the patient support organization Multiple Sclerosis South Africa, and she advises others who have been diagnosed to join a patient advocacy group as soon as possible to get reliable information and meet others with MS.

Helga says she is “hopeful” about the future of MS. “I must say that I am so grateful that we have all the new medications available, because my life would not be the same if it wasn't for that,” she adds.

Part of how she manages her MS is by looking at the positives.

“If I could tell the world one thing about MS, it would be that MS is an incurable disease of the nervous system, but it's also the greatest teacher of valuing your health, family, friends, and managing change in your life,” she says. “My life is diversified in a way that I never, ever thought it would, and MS has been honestly the greatest teacher.”

Each MS journey is unique – with each person impacted experiencing different struggles, successes, and feelings as they manage this unpredictable disease. But the common thread is clear – there is a critical need for information, support, and hope. We are proud to participate in World MS Day and share these incredible stories of living life while living with MS. To learn more about MS, go to https://www.sanofi.com/why-words-really-matter-when-it-comes-to-multiple-sclerosis.

MAT-GLB-2301642-v1.0-05/2023

This article was sponsored by Sanofi. Participants were compensated when applicable.

@geaux75/TikTok

Molly was found tied to a tree by the new owners of the house.

Molly, an adorable, affectionate 10-year-old pit bull, found herself tied to a tree after her owners had abandoned her.

According to The Dodo, Molly had “always been a loyal dog, but, unfortunately, her first family couldn’t reciprocate that same love back,” and so when the house was sold, neither Molly nor the family’s cat was chosen to move with them. While the cat was allowed to free roam outside, all Molly could do was sit and wait. Alone.

Luckily, the young couple that bought the house agreed to take the animals in as part of their closing agreement, and as soon as the papers were signed, they rushed over to check in.
Keep ReadingShow less
Joy

Fitness coach and child with cerebral palsy inspire each other through long-distance mentorship

"I want Colbie to know that she can pick up the phone and call me for whatever reason."

Fitness coach and child with cerebral palsy inspire each other.

Everybody needs someone who can relate to them; it's one of the things that connects the human experience. For a 5-year-old New Jersey girl named Colbie Durborow, that connection came just in time. Colbie has been noticing people staring at her lately as she gets around using leg braces, a walker and sometimes a wheelchair, and she told her mom that she doesn't like it when people stare.

"She said, 'Mommy I don't like when people stare at me. Mommy, I don't like it, I want them to stop,'" Colbie's mom, Amanda Durborow, told CBS Mornings.

Colbie was born 17 weeks early and has cerebral palsy (CP), a group of disorders that affect balance, mobility and posture, according to the Centers for Disease Control and Prevention. Her mom connected with former CrossFit trainer Steph Roach on Instagram, and the two became friends.

Keep ReadingShow less

A woman is upset with her husband and wants to leave him.

There are a few big reasons why 70% of divorces in the United States among heterosexual couples are filed by women. Women have more economic opportunities than in decades past and are better positioned to care for themselves and their children without a husband’s income.

Another big reason is that even though the world has become much more egalitarian than in the past, women still bear the brunt of most of the emotional labor in the home. Gilza Fort-Martinez, a Florida, US-based licensed couples’ therapist, told the BBC that men are socialized to have lower emotional intelligence than women, leaving their wives to do most of the emotional labor.

Secondly, studies show that women still do most of the domestic work in the home, so many are pulling double duty for their households.

Keep ReadingShow less
Joy

Photographer doesn't force young girls to smile in photos and the results are powerful

“Allow girls to show up, take up space and not smile if they don’t want to.”

@bdlighted/TikTok

Smiling is overrated.

The expectation to put on an air of happy, fun, pleasant nonconfrontation through baring teeth, otherwise known as smiling, is something many, if not most, women know very well. What’s more, this pressure is often introduced to women at a very early age.

And obviously, while there’s nothing inherently wrong with naturally being a happy, smiling person, issues arise when kids are taught that being themselves, just as they are, isn’t acceptable.

That’s why people are so impressed with North Carolina-based photographer Brooke Light’s (@bdlighted on TikTok) hands-off approach when it comes to taking pictures of young girls.

Her philosophy is simple, but oh so poignant: Allow girls to show up, take up space, and perhaps most importantly, not smile if they don’t want to.

Keep ReadingShow less

Xavier Jones is given his scholarship to Harris-Stowe Stete University in St. Louis.

A story out of St. Louis shows how some students have to overcome many more barriers than others on their road to success. But in this student's case, people in important positions recognized his perseverance and rewarded him in a way that could make his future less of a struggle.

According to a report from KAKE, 14-year-old Xavier Jones had no ride to his 8th-grade graduation ceremony, so he walked six miles to pick up his diploma.

“I was going to tell an adult, but my grandpa’s car was down. So I was just going to walk there,” he told KAKE.

Jones was graduating from Yeatman Middle School, but the ceremony was held at Harris-Stowe State University, a public historically-Black university in St. Louis.

“I looked up Harris-Stowe University on Google Maps and then I saw the walking distance and then I said I could probably make it,” Xavier told KAKE. “I wanted to walk across the stage.”

Keep ReadingShow less
Joy

10 things that made us smile this week

Upworthy's weekly roundup of joy

We've got a recovery day photo recreation, Halle Bailey's sweet humming habit, energetic elders and more in this week's list.

Hey, everyone!

It's officially June, the kickoff of summer excitement, when people's calendars fill with graduations, weddings, Pride celebrations, barbecues, longed-for vacations and more. So much fun to be had in June!

But with the good comes the not-so-good, of course. Summer also means annoying construction, pesky mosquitos, sticky hot grossness when the temp gets too high, spending a fortune on sunscreen, etc.

We can always find things to be happy about and we can always find things to complain about. That's just life. The more we shift our focus to the positive, even while we grapple our way through the tough stuff, the better off we'll be. That's not just airy-fairy fluff—there's science behind the power of positivity.

Keep ReadingShow less