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toddler, uncombable hair syndrome
Photo by Meghan Holmes on Unsplash

There are only about 100 known instances of people with uncombable hair syndrome.

This story originally appeared on 03.02.22


Have you ever come across something online that instantly made you smile? That’s what happens when people see Locklan Samples pop up on their Instagram feed. The cute dimple-faced toddler has a rare condition known as uncombable hair syndrome, which results in locks that stick straight up no matter how you try to manipulate them. It also causes the hair to be extremely fragile, so frequent combing can cause it to break off. The syndrome is so rare that Locklan is just one out of 100 people known to have it.

Locklan’s parents spoke with People magazine about how they discovered he was living with this ultra rare condition. Katelyn Samples, Locklan’s mom, explained that when he was born he had a head full of jet black hair, but eventually it fell out and was replaced with peach fuzz. A newborn baby’s hair is often completely different than the hair they end up with by the time they’re toddlers. It’s not uncommon for their hair to fall out in one spot or another, but it’s also not unheard of for their whole head to end up bald while their second sprigs of hair grow in.

Hair can grow back coarser, curlier or a completely different color. In Locklan’s case, his hair went from being jet black to platinum blonde peach fuzz, which eventually grew into hair that stood on end. Locklan’s parents said the color of his hair matched his brother’s hair, so it wasn’t a surprise, but the texture threw them for a loop.

When Katelyn posted pictures of Locklan on Instagram, a stranger messaged her asking if he had “uncombable hair syndrome.” This started Katelyn on a journey to find answers to what was going on with her infant’s hair, and if the condition was something she needed to be concerned about health-wise. Katelyn told People, it sent her into a “tailspin on Google.” Eventually, after climbing out of the Google rabbit hole, Katelyn called her son’s pediatrician to get answers. This turned out to be the first step toward an accurate diagnosis.

Locklan’s pediatrician had not heard of the condition and referred them to Atlanta's Emory Hospital to see a specialist. It was there they got the diagnosis. Katelyn explained to People, “We went to see her and she said she’d only seen this once in 19 years.” The doctor “didn’t think it was uncombable hair syndrome because of how rare it is, but they took samples and a pathologist looked at it under a special microscope,” and confirmed the diagnosis, she said.

He joins the very small club of people with the syndrome. Thankfully, this condition only affects the toddler’s hair and he is developing normally in all other aspects of his childhood. Katelyn revealed she hardly ever has to wash his hair unless it gets visibly dirty as it doesn’t collect oils at the scalp. Everywhere they go people are fascinated by Lock’s locks and ask to touch his soft tresses.

The family documents their journey on their Instagram account, and have found a support group via Facebook, where Katelyn says “it’s cool to see how other kids' hair has changed over the years—for some people it does not go away, and for others it becomes a little more manageable.” For now, Locklan enjoys the attention he gets from strangers, and he continues to bring a smile to people’s faces wherever he goes.

Photo courtesy of Girls at Work

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via Lewis Speaks Sr. / Facebook

This article originally appeared on 02.25.21


Middle school has to be the most insecure time in a person's life. Kids in their early teens are incredibly cruel and will make fun of each other for not having the right shoes, listening to the right music, or having the right hairstyle.

As if the social pressure wasn't enough, a child that age has to deal with the intensely awkward psychological and biological changes of puberty at the same time.

Jason Smith, the principal of Stonybrook Intermediate and Middle School in Warren Township, Indiana, had a young student sent to his office recently, and his ability to understand his feelings made all the difference.

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All images provided by Adewole Adamson

It begins with more inclusive conversations at a patient level

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Adewole Adamson, MD, of the University of Texas, Austin, aims to create more equity in health care by gathering data from more diverse populations by using artificial intelligence (AI), a type of machine learning. Dr. Adamson’s work is funded by the American Cancer Society (ACS), an organization committed to advancing health equity through research priorities, programs and services for groups who have been marginalized.

Melanoma became a particular focus for Dr. Adamson after meeting Avery Smith, who lost his wife—a Black woman—to the deadly disease.

melanoma,  melanoma for dark skin Avery Smith (left) and Adamson (sidenote)

This personal encounter, coupled with multiple conversations with Black dermatology patients, drove Dr. Adamson to a concerning discovery: as advanced as AI is at detecting possible skin cancers, it is heavily biased.

To understand this bias, it helps to first know how AI works in the early detection of skin cancer, which Dr. Adamson explains in his paper for the New England Journal of Medicine (paywall). The process uses computers that rely on sets of accumulated data to learn what healthy or unhealthy skin looks like and then create an algorithm to predict diagnoses based on those data sets.

This process, known as supervised learning, could lead to huge benefits in preventive care.

After all, early detection is key to better outcomes. The problem is that the data sets don’t include enough information about darker skin tones. As Adamson put it, “everything is viewed through a ‘white lens.’”

“If you don’t teach the algorithm with a diverse set of images, then that algorithm won’t work out in the public that is diverse,” writes Adamson in a study he co-wrote with Smith (according to a story in The Atlantic). “So there’s risk, then, for people with skin of color to fall through the cracks.”

Tragically, Smith’s wife was diagnosed with melanoma too late and paid the ultimate price for it. And she was not an anomaly—though the disease is more common for White patients, Black cancer patients are far more likely to be diagnosed at later stages, causing a notable disparity in survival rates between non-Hispanics whites (90%) and non-Hispanic blacks (66%).

As a computer scientist, Smith suspected this racial bias and reached out to Adamson, hoping a Black dermatologist would have more diverse data sets. Though Adamson didn’t have what Smith was initially looking for, this realization ignited a personal mission to investigate and reduce disparities.

Now, Adamson uses the knowledge gained through his years of research to help advance the fight for health equity. To him, that means not only gaining a wider array of data sets, but also having more conversations with patients to understand how socioeconomic status impacts the level and efficiency of care.

“At the end of the day, what matters most is how we help patients at the patient level,” Adamson told Upworthy. “And how can you do that without knowing exactly what barriers they face?”

american cancer society, skin cacner treatment"What matters most is how we help patients at the patient level."https://www.kellydavidsonstudio.com/

The American Cancer Society believes everyone deserves a fair and just opportunity to prevent, find, treat, and survive cancer—regardless of how much money they make, the color of their skin, their sexual orientation, gender identity, their disability status, or where they live. Inclusive tools and resources on the Health Equity section of their website can be found here. For more information about skin cancer, visit cancer.org/skincancer.

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Pop Culture

'90s kids share movies that will 'take you back to a better time'

It was a magical time when animals played sports and yet somehow things were just simpler.

YouTube/Upworthy photo illustration

Honey, I shrunk the kid named Matilda while jamming in space!

Everyone knows that '90s movies just hit different. From sports movies to rom-coms to even horror, there was an undeniable innocence, without being overly simplistic or juvenile. They didn’t have nearly the amount of money going into production as they do today, but somehow managed to transport us to magical places.

Movies of the '90s are so iconic that there have been several attempts to reboot beloved titles. Which, let’s face it, tends to be a fool's errand at a cash grab. These movies are so timeless that simply viewing the original is more than fine.

Not sure which movie to start with? You’re in luck—a Reddit user by the name of YouBrokeMyTV asked ’90s kids to share movies that took them “back to a better time,” and because the internet can be a wonderful place, tons of people responded with some beloved classics.

These answers certainly don’t make a definitive list (there are just so, so many gems) but they're a fun glimpse into what made '90s cinema so special. A nostalgic romp through memory lane, if you will.

Enjoy these 14 titles that just might leave you jonesing for a rewatch:

1. "Honey, I Shrunk the Kids"

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A perfect example of how '90s movies were silly, but smart at the same time. And oh so wholesome.

2. "The Sandlot"

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It taught us nothing about baseball, but everything about friendship, rooting for the underdog and (most important) how to make s’mores.

3. "Drop Dead Fred"

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Critics might have run this cult classic through the mud during its inception, but audiences fell in love with the bizarre charm of this story about a mischievous little girl and her anarchist imaginary friend. So take that, snotfaces!

4. "The Goonies"

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Everyone just wanted to set off an epic quest with their friends for pirate treasure after seeing this movie.

5. Tim Burton's "Batman"

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Before the superhero genre was the behemoth it is today, a quirky director and the dude who was best known for playing the creepy demon in "Beetlejuice" breathed new life into comic-book movies. Marvel might be the leader on creating stories with adult themes that are digestible for kids nowadays, but this DC film was the first of its kind. Plus, that soundtrack … forget about it.

6. "Hook"

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Pretty much any '90s film starring Robin Williams was an absolute gem, but this one in particular is timeless. His gift of balancing childlike humor with emotional gravitas lent itself so well to playing the now grown and cynical Peter Pan, who must learn to reclaim his joy (relatable, millennials?). It was a bang-a-rang-er, no question.

7. "Space Jam"

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It had Looney Tunes, it had aliens and it had Michael Jordan. That’s a winning combination.

8. "Matilda"

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I don’t think I’m out of line when I say that this movie helped a lot of kids make their way through difficult childhoods.

9. "The Parent Trap"

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Even '90s reboots were awesome. And how fun it is to see that Lisa Ann Walker—the actress who played Chessy the housekeeper—is not only yet again gracing the screens in NBC’s “Abbott Elementary,” but is also being revered as a style icon on TikTok for her ultra casual looks in the film. We all knew she was onto something with long button downs and shorts.

10. "The Land Before Time"

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No cartoon, not even “The Lion King,” was a better depiction of childhood grief. And yet, despite encapsulating tragedy, director Don Bluth still left viewers hopeful. The subsequent 14 (yes 14) sequels definitely pale in comparison to the original, but "The Land Before Time" continues to stand the test of time nonetheless.

11. "Richie Rich"

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The scene where they play tag on four-wheelers is simply iconic.

12. "Dunston Checks In"

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Man, the '90s were the golden age of animal-centered films. And not just monkeys either—we got sports playing golden retrievers and not one, but two movies starring talking pigs. What a time to be alive. These films were made before CGI had reached the levels it’s at today, and the authentic interactions between humans and creatures reached right through the screen.

13. "George of the Jungle"
george of the jungle, brendan faser

Watch out for the tree!!!

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Have I seen this movie at least 20 times? Probably. It doesn’t get any better than this in terms of silly action films with bird puppets. It’s crazy to think that this role would eventually lead Brendan Fraser to "The Mummy" franchise, turning him into a household name. Though his career has had some tragic ups and downs, we are all grateful for the glorious comeback he’s been having.

14. Anything involving Mary-Kate and Ashley Olsen
mary kate and ashley

Yes, they were professional detectives.

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Whether vacationing in London, Paris or Rome, whether playing magical witches or making a huge billboard so their father could find love … Mary-Kate and Ashley Olsen offered zany, whimsical entertainment while wearing fun outfits. Sometimes, that’s all you need.