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The Spooners are a definite example of 'relationship goals' — and the power of love.

Silhouetted couple forms heart with sunset sky.
Photo by Dev Asangbam on Unsplash

Silhouette romance against a fiery sunset sky.

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Muscular Dystrophy Association

To be around 56-year-old Ray and Rae Spooner is to be in the presence of a not-so-ordinary couple.

Then again, that's exactly who and what they've always been.


Rae and Ray in their garden.

Long before his successful career; before her job as his full-time caregiver; before the epic, unbelievable cross-country bike ride that would go on to raise thousands of dollars for the Muscular Dystrophy Association and ALS, they were simply Ray and Rae.

Two madly-in-love 23-year-olds who decided they wanted to travel the world together.

Their motto? "Never buy a return ticket."

The adventurers got married for one primary reason: Ray, a native Brit, needed a green card. Their plan was to divorce after one year because both had seen their parents endure painful divorces, and despite their love for one another, each was a bit skeptical of this marriage thing.

That was 1983.

Rae helps Ray get dressed.

They are now 33 years into what Ray playfully calls their "failed divorce" — a marriage happily settled in Urbana, Illinois.

The past three decades have seen Ray bring over 2,000 babies into the world as a beloved male midwife, a rarity in his field. Together he and Rae have three accomplished children, one beautiful grandchild, and a global community of people connecting with them through Ray's blog and the work they have done to raise awareness for ALS, the neurodegenerative disease that affects nerve cells in the brain and spinal cord, causing weakness and eventually paralysis of all voluntary muscles.

Their marriage is proof, in more ways than one, that life doesn't always go as planned.

"People always ask us, 'How do you stay married to someone for that long?' We say we're not married to the same person. We have let each other grow individually and grown together. We have never been planners. We go with the flow and deal with whatever life sends our way."

In 2014, that life philosophy was put to the test.

Ray leans against the wall and hold Rae's hand to get downstairs safely.

While sitting in the hospital as their daughter labored with their soon-to-be-born first grandchild, their son-in-law Cory was tagged in the ALS Ice Bucket Challenge, the viral video phenomenon that asked people to donate money to help find a cure for the disease or pour ice water over their head. Most people did both.

For kicks and to pass the time during a long labor, Cory decided to accept the challenge right then and there. As his wife continued laboring, Ray and Rae poured ice water over Cory at the hospital.

None of them knew much about ALS, but challenged in turn by Cory, days later Ray too had Rae dump a bucket of ice water over his own head — continuing the viral chain to raise awareness for the rare but aggressive disease.

Little did they know that two months later, Ray would be diagnosed with the debilitating disease himself.

When Ray heard the news, he immediately knew what he wanted to do with the rest of his life.

"We're all dying. As much as we're living, we're all going to die. Now I can't say 'When we retire...' Whatever we want to do, we've got to do it now." He calls those must-do's a "f*ck it list" (not a "bucket list" because you don't have to be dying to do what you want to do). And at the top of that list was a cross-country bike trip.

A decorative bicycle hanging in their home.

Ray, an avid rider, had always wanted to do it. But that desire was no longer just about him. Now it had to have a purpose.

Despite the fact that he already had diminished use of one of his arms, he decided that it was the right time for the trip. And he would do it to raise awareness for ALS and the work of MDA, whose local care center (at the same hospital where Ray worked as a midwife) had given them the kind of medical care and support that Rae said "all care should be like."

On Oct. 18, 2015, a small group of friends, neighbors, and of course Rae, began the awareness-building cross-country bike trip with him. They called it "Ray's Little Ride."

The exciting ups and harrowing downs of that ride — three trips to emergency rooms, an accident that left Ray with several broken bones and blood clots, and an outpouring of public support — garnered quite a bit of press and, in turn, a lot of money for MDA. Videos of support from all over poured in, including from children who Ray had helped deliver over his 20-year career.

On Nov. 19, 2015, Ray finished his ride — nonfunctional arm, injuries, and all. And to date, he and the ride have helped raised over $80,000.

Ray out on a bike ride.

Today, Ray can no longer speak and has even less use of his limbs and other muscles.

He communicates now only via text to Rae. She is his primary mouthpiece. To watch them together is to see love in action. No fanfare, no false humility. Just two people who know each other intimately living life together. She can read his every chuckle, eye roll, yawn, and head nod. She intermittently leans over and wipes saliva from his mouth during conversation. The laughter is nonstop.

Rae gives Ray some water.

Rae calls Ray an amateur documentarian. The walls of their home are filled with pictures of their family and memories of their life together thus far. Now, they have graciously allowed photographer Justine Bursoni to come into their life and capture this phase of their journey together. According to Ray:

"It's funny really. To see your life through the eyes of someone else. Initially there were things I didn't want to be documented. But our life isn't a fairy tale. To be true to the whole narrative you have to include the hard to deal with moments. And there are many."

The hardest to deal with part of it all has been thinking about their children.

"I have had 34 years with him." Rae says. "They have not. They are all handling it differently, in their own way."

Ray and his son, Manu, programming what they called "Rayism" into an eye-gaze-operated communication program.

The second hardest part for Rae has been watching the physical deterioration of Ray's body, despite the unchanging brilliance and alertness of his mind.

"'Ray is an incredibly creative person. He's a jeweler by trade. He built a lot of things in our home and he always loved working with his hands. Now he just can't. This beautiful hand, he can't do anything with.' Rae picks up his hand as she says this and gently waves it in the air. 'Each day it deteriorates more and more. That's been the hardest part. I think in my mind, I thought maybe we wouldn't get to this point.'"

Ray wears his wedding ring on his right hand now that his left is completely paralyzed.

"When he was first diagnosed," she says, they looked for the "'Ray Spooner kind of ALS' — the one where you live another 30 years and what has happened to everyone else doesn't happen to you." But it is happening. And they, like their children, are dealing with it in their own unique way. Rae explains:

"On one visit to the clinic they hand me this huge ass book and they say 'Here, this is for the caretaker.' I'm like nooo, that's not for me. We do things the Ray and Rae way. Were we going to follow this guide? No. We were going to do what works for us. For example, our bathroom is still upstairs and we still live in a split-level home. Or, instead of hauling a wheelchair into a van, pushing Ray around and driving to our doctor's appointment, this morning Ray got on his tricycle, and I walked beside him the entire way."

Rae helps Ray onto his trike for an evening bike ride to Meadowbrook Park.

That isn't to say they don't need help. The importance of accepting and asking for help has been one of their greatest lessons. Nowadays, their house is often full of friends and visitors — everyone willing to pick up a rag or a cup or do whatever they can to help. And that has been their greatest surprise of the journey: just how much people care and are willing to help. Ray reflects on this:

"Initially I think there is a tendency on both the part of the person with the disease and their caregiver to think 'OK, we got this.' But time will come when you will have exhausted all your physical and psychological faculties. Take names. Take numbers. Don't be afraid to pick up the phone. It takes a tribe."

Their daughter, Sophia, wipes the saliva from Ray's mouth as they all enjoy the company of former co-workers on their patio.

But at the core of their tribe is each other.

"This isn't about one partner or family member putting their life on hold to help care for the other. It's about a partnership moving into the next phase of life together," Ray says, speaking about what many see as his wife's "sacrifice."

"One day Rae asked me, 'How will I know you’re still with me?' While the question surprised me, I did have an answer. But when I tried to verbalize a response, I couldn’t get the words out. The thought that one of us would not be with the other had never really occurred to me. But if one of us is not there physically, the essence of that person remains embedded within the person whose life you shared. So, really, how can we ever not be together?"

Ray now wears a BiPAP to bed. Here, he works with Rae to calm down from a panic attack.

He continues,
"I’ve been making movies as gifts for various birthdays in the future for Rae when I’m not around. Rae says I’m her memory so each mini movie is about a certain time or event in our life. I'm up to her 64th birthday. I've also made wedding/housewarming gifts for each of the kids. A book for Rae chronicling our 34 years together (its over 600 pages). A message for Jack on his bar mitzvah. You get the idea."


"Planning for the inevitable is my drug of choice. It may not work for everyone, but it's how I get through. When you're initially diagnosed everyone sends you info about therapy and miracle treatments. But as I said, preparation is my therapy. Fairly early on I decided not to spend my time chasing more time. I'm spending my time spending my time. Making sure that Rae knows I will always be with her."

Rae and Ray look in the mirror and embrace in a similar fashion, as they did for a photo taken years ago.

Ray jokes with Rae about her writing an advice book someday. It would be called, "Things You Need to Know Before You Have to Wipe Your Partner's Ass." They both laugh hysterically when she says this, but there's power in the underlying message. True love at its best requires service.

He continues to blog about his life at Ray's Little Ride.

There, he gives a raw, humorous, and poignant take on life as he knows it — not just living with ALS but the universally human experience of trying to live life as it's meant to be lived.

"Whether we have a disease or not, there is a number to our days. There is risk inherent in walking out the door in the morning. But ALS has given me an opportunity. To not leave things undone or unsaid. That is a gift."

And that's what both Ray and Rae are focused on appreciating. With their blog and their breathtaking photos, they have laid their life bare for the world to see. And he says confidently that he would do it all over again, just to know that he is helping someone.

Rae helps Ray out the back door of their home.

A waiter talking with his hands.

One of the great things about America is that we have a relatively young culture, so many of the foods that we eat were brought over from other countries. That makes America a great place to try out all the different types of food from around the world.

However, we also like to put our own stamp on staples from around the globe that give the American version its own unique flair. Some foods that we claim originated overseas were actually first made right here in the U.S. of A. For example, chimichangas, which can be found in many Mexican restaurants, actually originated in the state of Arizona. Crab Rangoon, a popular “Chinese” dish, was actually invented in San Francisco, and spaghetti and meatballs were never a thing in Italy.

TikTok creator Gabby Donahue posted a video that’s the perfect example of how some ethnic foods get remixed once they become popular in the States. In a video with over 7 million views, her father shows a waiter in Italy a photo of chicken parmesan from Olive Garden so he can order it at the restaurant. The waiter's reaction is an excellent example of someone trying to be polite while he cannot believe what he is seeing.

“My Boston Irish father trying to order a Google image of the Olive Garden chicken parm in Italy,” Donahue wrote in the text overlay.

@gabbydonahuee

@Olive Garden ‘s biggest fan 😭😭😭😭 #italy #cultureshock #chickenparm #olivegarden


When the father showed the picture to the waiter, he seemed a bit confused about the image. “Only in the States,” he said. “It doesn’t exist in Italy.” The father couldn’t believe what he was hearing: “It doesn’t exist in Italy?”

“I don’t know what it is…on the pasta?” the waiter said, trying to make sense of the chicken breast smothered in cheese and sauce. The waiter gave his final verdict while holding his chin: “No. That’s horrible.”

“Horrible? Wow. Look at that. That doesn’t,” the father laughed. “That looks good… but,” the waiter shrugged off the father. “It does look good,” the father continued. “It tastes good. I’ll tell you what, I’m gonna mail you some. I’ll send it to you.”

“Okay? Olive Garden chicken, I’m gonna search,” the waiter said, walking away from the table.


The commenters had a field day analyzing the waiter’s body language. “‘No, that looks good’ while looking completely disgusted was the most Italian reaction ever,” one commenter wrote. “Bro remembered halfway through his disgust that he’s at work,” another added.

It’s not crazy that an American would think that chicken parmesan is an Italian dish; after all, it’s served in most Italian-American restaurants. However, according to Paesana, it was created in America by the Italian diaspora.

“In the Old World, that’s Italy prior to the Italian diaspora—the large-scale emigration of Italians from Italy to America—proteins like chicken were not widely available," according to an article on the site. "As such, the prototypical chicken parmigiana was actually made with breaded, fried slices of eggplant in place of chicken for a dish called melanzane alla Parmigiana."


Even though chicken parmesan didn’t originate in the old country, Pasquale Sciarappa, a popular Italian-born food influencer living in America, has no problem cooking the dish.

"'That’s not Italian!’ I hear this every time I share a dish like Chicken Parmigiana. And you know what? They’re right — it’s not something you’d traditionally find in Italy. But you know what else is true? It’s Italian-American. It was born in immigrant kitchens — from people who left Italy, landed in the U.S., and made do with what they had. They took inspiration from dishes like melanzane alla parmigiana and recreated comfort from memory using what was available,” he wrote.

It’s understandable that an American could go to Italy without knowing that something he’d had in Italian restaurants wasn’t actually from Italy. It’s understandable for an Italian server to balk at a photo of a dish served in an American restaurant that you’d find in a shopping mall.

But we should all agree that one of the wonderful things about American culture is that it's an amalgamation of different cultures stirred around in the same pot, and if that means we get a fresh variation on the burrito, a new way to eat Chinese crab, or a tasty piece of chicken where eggplant used to be, the more the better.

Humor

Massachusetts woman writes her own obituary, leaving her grieving family laughing at her wit

"Well, if you're reading this obituary, I'm dead. WOW, it actually happened..."

Linda Murphy Obituary/McCarthy Funeral Home and Photo credit: Canva

Massachusetts woman's obituary leaves her family laughing

It can be depressing to think about your own mortality, but inevitably, everyone will eventually die. Those diagnosed with a terminal illness have the unfortunate task of thinking about the inevitability much sooner than their peers. Still, those like Linda Murphy aren't letting a diagnosis steal their humor.

Murphy seemed to be the life of the party, always ready to have a good time with friends and family. But over a decade ago, she was diagnosed with breast cancer; after beating that disease, she was diagnosed with Bulbar ALS, which runs in her family.

In her self-written obituary, she shares that her father, who passed away shortly before Murphy, lost his own mother to the same disease. Although devastating, the disease allowed her time to write her own obituary, which left her family and others giggling.

\u200bMassachusetts; Linda Murphy; ALS; obituary; death; dying; funny obituary Glowing tealights in peaceful ambiance.Photo credit: Canva

She starts by pointing out the obvious, "Well, if you are reading this obituary, it looks like I'm dead." That's when the humor kicks in as she jokes about dying from fear of missing out, "WOW, it actually happened ... I died of FOMO due to complications of Bulbar ALS."

Murphy points out that she was just 60 years old and way too young to die, but unfortunately, ALS had other plans. She was loved, as evidenced by her daughter's interview with the local news station. One section of her obituary is all about the yummy food she missed out on due to her no longer being able to swallow.

Linda Murphy; ALS; obituary; death; dying; funny obituary Friends enjoying a delicious meal together.Photo credit: Canva

"As far as eating, it totally stinks to sit at the table while people around you are eating juicy burgers hot off the grill, heaping piles of Chinese food, a healthy portion of pasta Alfredo, or Chipotle — and I just have to smile and act like I'm enjoying my bowl of puréed baby mush!" she wrote.

Even though she expressed how hard it was to live with her disease, Murphy still made sure to throw in some laughs.

While talking about her 42-year marriage to husband David, she teases about the couple becoming a throuple when she had to be put on a respirator. "We both agreed, I was an "A" wife and he was a "B+" husband for a total "A-" which is pretty decent for 42 years together!!!" she wrote. "We became a thruple about 1.5 years ago when, Hosee, (my respirator) moved into our marital bed. From then on, David woke up next to what looked like a fighter pilot with smooshed hair!"

Linda Murphy; ALS; obituary; death; dying; funny obituary Saying goodbye with lilies and love.Photo credit: Canva

Murphy highlights her superpowers before her final plea for kindness. The woman was joyous even after death. Maybe it was her way of easing things for her family members or for herself. Maybe it was simply because that's who she was as a person, and she used her obituary as the final moment to give others a glimpse into her personality. Either way, her reminders about kindness and living life fully are lessons that can extend far beyond her family and friends.

"I lived my life with two super powers," she wrote. "My first, of which everyone was jealous, was that I could drink as much as I wanted and never seemed to get a hangover ... the real wonder is why I didn't die of liver failure. My second super power is that I was always genuinely happy and absolutely loved to be with nice people. Please be kind to everyone: the telemarketer, the grocery clerk, the Dunkin's staff, the tailgater, your family, your friends. Speak nicely and positively. Is there really ever a reason to be negative? I don't think so…"

Harvard researcher Arthur C. Brooks studies what leads to human happiness.

We live in a society that prizes ambition, celebrating goal-setting, and hustle culture as praiseworthy vehicles on the road to success. We also live in a society that associates successfully getting whatever our hearts desire with happiness. The formula we internalize from an early age is that desire + ambition + goal-setting + doing what it takes = a successful, happy life.

But as Harvard University happiness researcher Arthur C. Brooks has found, in his studies as well as his own experience, that happiness doesn't follow that formula. "It took me too long to figure this one out," Brooks told podcast host Tim Ferris, explaining why he uses a "reverse bucket list" to live a happier life.

bucket list, wants, desires, goals, detachment Many people make bucket lists of things they want in life. Giphy

Brooks shared that on his birthday, he would always make a list of his desires, ambitions, and things he wanted to accomplish—a bucket list. But when he was 50, he found his bucket list from when he was 40 and had an epiphany: "I looked at that list from when I was 40, and I'd checked everything off that list. And I was less happy at 50 than I was at 40."

As a social scientist, he recognized that he was doing something wrong and analyzed it.

"This is a neurophysiological problem and a psychological problem all rolled into one handy package," he said. "I was making the mistake of thinking that my satisfaction would come from having more. And the truth of the matter is that lasting and stable satisfaction, which doesn't wear off in a minute, comes when you understand that your satisfaction is your haves divided by your wants…You can increase your satisfaction temporarily and inefficiently by having more, or permanently and securely by wanting less."

Brooks concluded that he needed a "reverse bucket list" that would help him "consciously detach" from his worldly wants and desires by simply writing them down and crossing them off.

"I know that these things are going to occur to me as natural goals," Brooks said, citing human evolutionary psychology. "But I do not want to be owned by them. I want to manage them." He discussed moving those desires from the instinctual limbic system to the conscious pre-frontal cortex by examining each one and saying, "Maybe I get it, maybe I don't," but crossing them off as attachments. "And I'm free…it works," he said.

- YouTube www.youtube.com

"When I write them down, I acknowledge that I have the desire," he explained on X. "When I cross them out, I acknowledge that I will not be attached to this goal."

The idea that attachment itself causes unhappiness is a concept found in many spiritual traditions, but it is most closely associated with Buddhism. Mike Brooks, PhD, explains that humans need healthy attachments, such as an attachment to staying alive and attachments to loved ones, to avoid suffering. But many things to which we are attached are not necessarily healthy, either by degree (over-attachment) or by nature (being attached to things that are impermanent).

"We should strive for flexibility in our attachments because the objects of our attachment are inherently in flux," Brooks writes in Psychology Today. "In this way, we suffer unnecessarily when we don't accept their impermanent nature."

What Arthur C. Brooks suggests that we strive to detach ourselves from our wants and desires because the simplest way to solve the 'haves/wants = happiness' formula is to reduce the denominator. The reverse bucket list, in which you cross off desires before you fulfill them, can help free you from attachment and lead to a happier overall existence.

A 27-year-old woman and a 62-year-old woman.

Ben Keenan, a travel and culture content creator and podcaster, did a great job of saying out loud what many people feel but can’t put into words. When it comes to age, some people feel younger or older regardless of their chronological age. It’s like we get to a certain point where we feel like aging is accelerating, and then, suddenly, context changes, and we feel younger again. Different eras hit differently.

A lot of it has to do with juxtaposing ourselves with our younger or older peers, or whether we are new or experienced in certain phases of life. Like, some people feel like they are an old young person at 39, but suddenly, they hit 40 and feel like a young older person. It’s a beautiful thing knowing that, although you may feel like you’re at an "old age" right now, you may suddenly feel younger on your next birthday.

In a viral Instagram video, Keenan laid out the ages that feel young or old.


Which ages are young and which are old (according to Ben Keenan)

21 to 26, YOUNG

27 to 32, OLD

33 to 36, YOUNG

37 to 39, OLD

40 to 45, YOUNG

46 to 49, OLD

50, YOUNG

51 to 52, OLD

53 to 59, YOUNG

60 to 61, OLD

62 to 65, YOUNG

66 to 68, OLD

69 to 74, YOUNG

75 and up, OLD

The video received nearly unanimous love in the comments, where many people tried to explain why Keenan makes so much emotional sense, though it’s a little shaky on logic.

ahah moment, lightbulb moment, brilliant idea, thought, inspired man A man has a brilliant idea.via Canva/Photos

"People call 30 'old’ because it’s the first collision with real adulthood—the end of carefree youth. Then 31–36 feels young again as you realize nothing truly changed and you’re still growing, just with more confidence. Around 37–39, life’s weight reappears—aging parents, shifting priorities, subtle reminders of time—so it feels “old” again. But by 40, you’ve accepted it all; you stop comparing, start owning who you are, and that acceptance brings back a sense of youth. Rinse and repeat," Ulises wrote.

“Can confirm that when I turned 37, I felt old. I turn 40 this week and feel SO YOUNG. I guess I’ll look forward to following your pattern for the rest of my life,” Heather commented.

“When I turned 60 last year, I decided that I’d gone from a very old young person, to a very young old person - the youngest in my cohort. Cheered me right up,” Jane added.


Does the aging process speed up?

Keenan’s post points out that feeling young or old isn’t necessarily a matter of age, but scientists say there are two significant moments in life when we experience spurts in aging. Researchers at Stanford tracked thousands of different molecules in people aged 25 to 75 and found that people tend to make two big leaps—one around 44 and another around 60.

Keenan’s theory of aging and his followers' rapturous support of the idea should make everyone feel a little better about getting older. If you feel old today, wait a few years, and then you may feel young again. It makes the adage, “Age ain’t nothing but a number,” seem true. According to Keenan, age isn’t really a number, but a phase.