Her Baby Had A Secret. She Learned It On The Day She Died.

Congenital heart defects are the most common birth defect, affecting 1 in 110 babies. Many of them don't show up on an ultrasound. Pulse ox screening could help doctors discover and repair heart defects before they turn deadly. Sounds like a good idea to me. Warning: This is the tragic story of a baby who died. It includes an image of her shortly before her death.

Taryn looked perfectly healthy when her parents brought her home. She was growing — thriving, even.

Then one day, the baby made a strange sound. Her breathing became difficult. Her mom called 911 and started CPR.


Taryn died that night in the hospital. She had a heart defect, but no one had thought to check her heart before it stopped working.

Less than 50% of congenital heart defects are diagnosed before birth.

A baby who appears healthy might have a heart that is moments away from stopping.

Luckily, there is a simple, inexpensive, and non-invasive screening called pulse oximetry.

A pulse oximeter shines a red light through the baby's toe, and reports the oxygen levels in the blood. Low levels are cause for further investigation. Practically all hospitals have pulse oximeters on hand.

In 2011, New Jersey became the first state to require pulse ox screening as part of the standard tests a newborn receives. As a result of this screening, over the following three years, 13 babies were diagnosed with a heart defect that could have been fatal if left undetected.

Since 2011, many states have added pulse ox to their newborn screening protocol. Here's a handy map to see if yours is one of them. If you live in one of the seven states that doesn't have a law requiring it, pulse ox should still be available to you in most hospitals. Ask your doctor.

If a law like this could save families from preventable heartbreak at minimal cost, it seems like common sense to me.

Feb. 7-14, 2015, is Congenital Heart Disease Awareness Week.

I don't want you to freak anyone out, but could you maybe spread the awareness by sharing this? You never know whose life you could be saving.

<span class="redactor-invisible-space"></span>Warning: The auto-generated captions on this video are awful and in some cases upsetting. Upworthy neither makes them nor has the ability to control them. However, if you scroll down below the video and click "Show Transcript," you'll see an Upworthy-created version that is much better.
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Comedy legend Carol Burnett once said, "Giving birth is like taking your lower lip and forcing it over your head." She wasn't joking.

Going through childbirth is widely acknowledged as one of the most grueling things a human can endure. Having birthed three babies myself, I can attest that Burnett's description is fairly accurate—if that seemingly impossible lip-stretching feat lasted for hours and involved a much more sensitive part of your body.

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Christopher Walken is one of the greatest actors of his generation. He's been nominated for an Academy Award twice for best supporting actor, winning once for 1978's "The Deer Hunter" and receiving a nomination for 2002's "Catch Me if You Can."

He's played memorable roles in "Annie Hall," "Pulp Fiction," "Wedding Crashers," "Batman Returns," and countless other films. He's also starred in Shakespeare on the stage and began his career as a dancer.

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Disney has come under fire for problematic portrayals of non-white and non-western cultures in many of its older movies. They aren't the only one, of course, but since their movies are an iconic part of most American kids' childhoods, Disney's messaging holds a lot of power.

Fortunately, that power can be used for good, and Disney can serve as an example to other companies if they learn from their mistakes, account for their misdeeds, and do the right thing going forward. Without getting too many hopes up, it appears that the entertainment giant may have actually done just that with the new Frozen II film.

According to NOW Toronto, the producers of Frozen II have entered into a contract with the Sámi people—the Indigenous people of the Scandinavian regions—to ensure that they portray the culture with respect.

RELATED: This fascinating comic explains why we shouldn't use some Native American designs.

Though there was not a direct portrayal of the Sámi in the first Frozen movie, the choral chant that opens the film was inspired by an ancient Sámi vocal tradition. In addition, the clothing worn by Kristoff closely resembled what a Sámi reindeer herder would wear. The inclusion of these elements of Sámi culture with no context or acknowledgement sparked conversations about cultural appropriation and erasure on social media.

Frozen II features Indigenous culture much more directly, and even addressed the issue of Indigenous erasure. Filmmakers Jennifer Lee and Chris Buck, along with producer Peter Del Vecho, consulted with experts on how to do that respectfully—the experts, of course, being the Sámi people themselves.

Sámi leaders met with Disney producer Peter Del Vecho in September 2019.Sámediggi Sametinget/Flickr

The Sámi parliaments of Norway, Sweden and Finland, and the non-governmental Saami Council reached out to the filmmakers when they found out their culture would be highlighted in the film. They formed a Sámi expert advisory group, called Verddet, to assist filmmakers in with how to accurately and respectfully portray Sámi culture, history, and society.

In a contract signed by Walt Disney Animation Studios and Sámi leaders, the Sámi stated their position that "their collective and individual culture, including aesthetic elements, music, language, stories, histories, and other traditional cultural expressions are property that belong to the Sámi," and "that to adequately respect the rights that the Sámi have to and in their culture, it is necessary to ensure sensitivity, allow for free, prior, and informed consent, and ensure that adequate benefit sharing is employed."

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Disney agreed to work with the advisory group, to produce a version of Frozen II in one Sámi language, as well as to "pursue cross-learning opportunities" and "arrange for contributions back to the Sámi society."

Anne Lájla Utsi, managing director at the International Sámi Film Institute, was part of the Verddet advisory group. She told NOW, "This is a good example of how a big, international company like Disney acknowledges the fact that we own our own culture and stories. It hasn't happened before."

"Disney's team really wanted to make it right," said Utsi. "They didn't want to make any mistakes or hurt anybody. We felt that they took it seriously. And the film shows that. We in Verddet are truly proud of this collaboration."

Sounds like you've done well this time, Disney. Let's hope such cultural sensitivity and collaboration continues, and that other filmmakers and production companies will follow suit.

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Gerrymandering is a funny word, isn't it? Did you know that it's actually a mashup of the name "Gerry" and the word "salamander"? Apparently, in 1812, Massachusetts governor Elbridge Gerry had a new voting district drawn that seemed to favor his party. On a map, the district looked like a salamander, and a Boston paper published it with the title The GerryMander.

That tidbit of absurdity seems rather tame compared to an entire alphabet made from redrawn voting districts a century later, and yet here we are. God bless America.

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