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What's it like to go to school and worry about being deported? An Ivy Leaguer explains.

"Administration! Come out!" chanted Camila, her voice echoing across the quad outside Brown's University Hall.

Camila was just one of hundreds in a fervent chorus of students, staff, and faculty who walked out of class at Brown University on Nov. 16, 2016, joining a nationwide protest.

Camila, a junior political science major, carried a makeshift sign on a piece of brown cardboard that read, "Yo grito lo que mi familia calla," or "I shout out what my family keeps silent." Together with the gathered crowd, she marched through the crisp autumn air to deliver a list of demands to the university administration.


What did Camila, and the other students around her, want? Among other demands, they wanted a formal declaration that would establish the campus as a sanctuary for undocumented immigrant students.

All photos by Danielle Perelman, used with permission.

Camila took part in the walkout in support of her undocumented peers. But she also participated because she knows new immigration laws could affect her life too.

Camila grew up in Mexico City and has a temporary student visa. Now, at Brown, she's heavily involved in activism and advocacy for marginalized communities. She's especially focused on helping victims of her home country's ongoing drug war. (We're withholding her last name because of the sensitivity of the situation.)

But now, things feel different for her. Donald Trump's election has engendered a new wave of hate and xenophobia across the country, inspired in part by the president-elect's own anti-immigrant stances.

Now Camila says she feels scared to walk home from the library at night. She's afraid of the angry, harassing voices that swarm her every time she logs online. She's worried about what Trump's presidency means for her future, and her friends' futures, especially if the federal government keeps their promise to crack down on immigration.

Brown University isn't the only place where this sanctuary movement has come to a head.

In fact, more than 100 other colleges reportedly held their own walkouts at the same time as this one in cooperation with an immigrant activist organization called Movimiento Cosecha.

By formally declaring itself as a sanctuary, Brown University and other universities like it could protect undocumented students from harsh or unfair targeting by federal authorities. If they lived on a sanctuary campus, undocumented students could continue to pursue their educations with less fear of being turned in for arrest or deportation.

"The university should understand that you cannot study in peace if you're worried about your health or about your legal status in the country, or if you're worried about whether to wear your hijab or not," Camila says.

This kind of sanctuary policy could be meaningful for about 150 people at Brown, including students, faculty, staff, and families who are affiliated with the university in some way.

That's still a fairly small undocumented population in the grand scheme of things, but it'd be a particularly powerful statement to have an Ivy League school with a reputation for academic progress and bright alumni leaders spearheading this kind of movement.

Which brings us to another good question: Why wouldn't the school agree to these measures? Well, sanctuary cities are already reportedly being threatened with a loss of federal funding, and campuses that declare themselves as immigrant sanctuaries might be placing themselves at a similar risk. One spokesperson for Brown has also indicated that some aspects of the sanctuary request would fall outside the school's legal jurisdiction.

This march is just one small part of a bigger movement all over the country to build safe places following Trump's election.

For an immigrant student like Camila, this matters both personally and professionally. While she is fortunate enough to be attending Brown on scholarship with the assistance of a student visa, that paperwork only offers her temporary protection. But a sanctuary title would allow her to chase her ambitious dreams with less fear.

"[I want to be] someone who can connect with marginalized communities but also kind of have the human capital to talk to government people as well, and just creating those bridges," she said.

To do this, she'll need to build that network of connections and secure a work visa to stay in the United States after college. With current rules in place, it'll be hard, but not impossible, to achieve these goals. But she worries that in Trump's America, her ambitions willbe impossible.

"Honestly one of the reasons I came here was just to feel safe," she said, referring to the work she's already done as an advocate against the drug war that has left her targeted in her home country.

"I could go back but it's really hard to find a community. Once I did here, it was the right place, and I want to stay now. And I think it's legitimate."

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Three women, three MS journeys: How multiple sclerosis looks different for everyone

Gina, Nathalie and Helga share their reactions to being diagnosed with MS and how they stay informed and positive in the face of ever-changing symptoms.

Courtesy of Sanofi

Helga, Nathalie and Gina all have MS, and their experiences show how differently the disease can manifest.

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It’s been 155 years since neurologist Jean-Martin Charcot gave the first lecture on a mysterious progressive illness he called “multiple sclerosis.” Since then, we’ve learned a lot. We know MS causes the immune system to attack healthy tissue, including damaging the brain and spinal cord. Resulting symptoms can be debilitating and include fatigue, blurred vision, memory problems and weakness. Huge advancements in our understanding of MS and its underlying causes, as well as treatment advances, have been made in the past few decades, but MS remains a complex and unpredictable reality for the 2.8 million+ people diagnosed around the world.

Ironically, the only real constant for people living with MS is change. There’s no set pattern or standard progression of the disease, so each person’s experience is unique. Some people with MS have mild symptoms that worsen slowly but sometimes improve, while others can have severe symptoms that drastically alter their daily lives.

All people with MS share some things in common, however, such as the need to stay informed on the ever-evolving research, find various lines of support and try to remain hopeful as they continue living with the disease.

To better understand what navigating life with MS really looks like, three women shared their MS stories with us. Their journeys demonstrate how MS can look different for different people and interestingly, how the language used to talk about the disease can greatly impact how people understand their realities.

woman with horse, woman riding horseGina loves riding her horse, Benita.Courtesy of Sanofi

Gina—Hamburg, Germany (diagnosed with relapsing multiple sclerosis in 2017)

When her youngest son was 4 months old, Gina started having problems with her eye. She’d soon learn she was experiencing optic neuritis—her first symptom of MS.

“Immediately after the diagnosis, I looked up facts on MS because I didn’t know anything about it,” Gina says. “And as soon as I knew what could really happen with this disease, I actually got scared.”

As her family’s primary income provider, she worried about how MS would impact her ability to work as a writer and editor. Her family was afraid she was going to end up in a wheelchair. However, for now, Gina’s MS is managed well enough that she still works full-time and is able to be active.

“When I tell somebody that I have MS, they often don't believe me the first time because I don't fulfill any stereotypes,” she says.

Overwhelmed by negative perspectives on living with MS, Gina sought support in the online MS community, which she found to be much more positive.

“I think it’s important to use as many positive words as you can when talking about MS.” It’s important to be realistic while also conveying hope, she says. “MS is an insidious disease that can cause many bad symptoms…that can be frightening, and you can't gloss over it, either.”

To give back to the online community that helped her so much, Gina started a blog to share her story and help others trying to learn about their diagnosis.

Though she deals with fatigue and cognitive dysfunction sometimes, Gina stays active swimming, biking, riding horses and playing with her sons, who are now 11 and 6.

Cognitive dysfunction is common in MS, with over half of people affected. It can impact memory, attention, planning, and word-finding. As with many aspects of MS, some people experience mild changes, while others face more challenges.

Gina says that while there’s still a lot of education about MS needed, she feels positive about the future of MS because there’s so much research being done.

woman in wheelchair holding medal, woman rowingNathalie is an award-winning rower with multiple international titles.Courtesy of Sanofi

Nathalie — Pennes Mirabeau, France (diagnosed with relapsing-remitting multiple sclerosis in 2002)

Nathalie was a teenager and a competitive athlete when she noticed her first symptoms of MS, but it would take four years of “limbo” before she was diagnosed.

“Ultimately, the diagnosis was more of a relief, than a shock,” she says. “Because when you have signs and you don’t know why, it’s worse than knowing, in the end, what you have.”

However, learning more about the disease—and the realities of disease progression—scared her.

“That glimpse of the future was direct and traumatic,” she says. Her neurologist explained that the disease evolves differently for everyone, and her situation might end up being serious or very mild. So, she decided to stop comparing herself to others with MS.

She said to herself, “We’ll see what happens, and you’ll manage it bit by bit.”

By 2005, Nathalie’s MS had progressed to the point of needing a wheelchair. However, that has not dampened her competitive spirit.

Nathalie began her international rowing career in 2009 and has won multiple world titles, including two Paralympic medals—silver in London and bronze in Tokyo. Now, at 42, she still trains 11 times a week. Fatigue can be a problem, and sometimes hard workouts leave her with muscle stiffness and shaking, but she credits her ongoing sports career for helping her feel in tune with her body’s signals.

“Over the years, I’ve learned to listen to my body, letting my body guide when I need to stop and take breaks,” she says.

Nathalie explains that she used to only look backwards because of the initial shock of her diagnosis. In time, she stopped thinking about what she couldn’t do anymore and focused on her future. She now lives in the following mindset: “Even when doors close, don’t miss out on those that open.” Instead of focusing on what she can’t do, she focuses on the opportunities she still has. Right now, this includes her training for the 2024 Paralympic Games in Paris, where she will compete for another rowing medal.

“I only go forward,” she says. “Well, I try, anyway…It’s easy to say, it’s not always easy to do. But that’s what I try to do.”

woman exiting water after swimming, woman with great daneHelga's Great Dane has become a helpful and beloved companion.Courtesy of Sanofi

Helga—Johannesburg, South Africa (diagnosed with relapsing multiple sclerosis in 2010)

When Helga first started having balance issues and numbness in her feet, she chalked it up to her training as a runner. But when the numbness moved to her face, she knew something was wrong. She never guessed it was MS.

“When I was diagnosed, I felt completely overwhelmed and clueless,” Helga says. “I felt that I had nowhere near enough information. I did not know anything about the disease…I had no idea that it was going to be a process of continually monitoring and adjusting your lifestyle.”

In the beginning, Helga’s symptoms developed slowly, and she didn’t appear ill to others. She was even able to run for a few years after her diagnosis, but she couldn’t do marathons anymore, and she began to fall frequently due to balance issues and right-foot dragging. Then her cognition issues became more problematic, especially in her job as a trainer in a printing company.

“My executive function, decision-making and short-term memory were affected to the point that I was eventually medically unfit for work,” she says. She stopped working in 2017.

However, she didn’t stop living life. Even though she could no longer run, she continued to swim competitively. She got a Great Dane puppy and trained him as a service dog to help her walk. She also serves as vice chair of the patient support organization Multiple Sclerosis South Africa, and she advises others who have been diagnosed to join a patient advocacy group as soon as possible to get reliable information and meet others with MS.

Helga says she is “hopeful” about the future of MS. “I must say that I am so grateful that we have all the new medications available, because my life would not be the same if it wasn't for that,” she adds.

Part of how she manages her MS is by looking at the positives.

“If I could tell the world one thing about MS, it would be that MS is an incurable disease of the nervous system, but it's also the greatest teacher of valuing your health, family, friends, and managing change in your life,” she says. “My life is diversified in a way that I never, ever thought it would, and MS has been honestly the greatest teacher.”

Each MS journey is unique – with each person impacted experiencing different struggles, successes, and feelings as they manage this unpredictable disease. But the common thread is clear – there is a critical need for information, support, and hope. We are proud to participate in World MS Day and share these incredible stories of living life while living with MS. To learn more about MS, go to https://www.sanofi.com/why-words-really-matter-when-it-comes-to-multiple-sclerosis.

MAT-GLB-2301642-v1.0-05/2023

This article was sponsored by Sanofi. Participants were compensated when applicable.

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via Pixabay

A sad-looking Labrador Retriever

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America's Got Talent/Youtube

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