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Heroes

91-yr-old Holocaust survivor Ben Lesser is sharing his story. It's one we all need to hear.

91-yr-old Holocaust survivor Ben Lesser is sharing his story. It's one we all need to hear.
ZACHOR Foundation

"What's 'the Holocaust'?" my 11-year-old son asks me. I take a deep breath as I gauge how much to tell him. He's old enough to understand that prejudice can lead to hatred, but I can't help but feel he's too young to hear about the full spectrum of human horror that hatred can lead to.

I wrestle with that thought, considering the conversation I recently had with Ben Lesser, a 91-year-old Holocaust survivor who was just a little younger than my son when he witnessed his first Nazi atrocity.

It was September of 1939 and the Blitzkrieg occupation of Poland had just begun. Ben, his parents, and his siblings were awakened in their Krakow apartment by Nazi soldiers who pistol-whipped them out of bed and ransacked their home. As the men with the shiny black boots filled burlap sacks with the Jewish family's valuables, a scream came from the apartment across the hall. Ben and his sister ran toward the cry.

They found a Nazi swinging their neighbors' baby upside down by its legs, demanding that the baby's mother make it stop crying. As the parents screamed, "My baby! My baby!" the Nazi smirked—then swung the baby's head full force into the door frame, killing it instantly.

This story and others like it feel too terrible to tell my young son, too out of context from his life of relative safety and security. And yet Ben Lesser lived it at my son's age. And it was too terrible—for anyone, much less a 10-year-old. And it was also completely out of context from the life of relative safety and security Ben and his family had known before the Nazi tanks rolled in.


ZACHOR Foundation

Before I spoke with Ben, I had prepared myself for what I was going to hear. The baby story was brutal, but I'd read enough Holocaust stories to expect all manner of horror. The Jews being rounded up and taken to the woods to dig their own graves before being shot and thrown into them. The cattle cars crammed with bodies so tightly no one could move—where men, women, and children languished in hunger and thirst, standing in their own excrement for days. The Nazi commandant who made every 10th prisoner in line hold their body over a sawhorse and take 25 lashes, shooting in the head anyone whose body touched the sawhorse through the beating.

The concentration camps, the death camps, the gas chambers. I was prepared for all of that.

What I wasn't prepared for was the fact that Ben Lesser's dad was a chocolate maker. He was one of the first, Ben explained to me proudly, to make chocolate-covered wafer cookies, like a Kit-Kat, only he made his in the shape of animals.

Hearing Ben describe the way he and his siblings would excitedly run to their father when he got home from work, knowing he'd have pockets full of chocolate for them—that was the detail that did me in. The simple sweetness of it. The fact that their life was so delightfully normal before it turned into a nightmare. That backdrop made hearing about the horrors Ben witnessed and experienced from age 10 to 16 all the more heinous.

ZACHOR Foundation

Ben was 15 when he and two of his siblings were shoved into a cattle car and transported to Auschwitz-Birkenau, the largest Nazi concentration camp complex where Nazis systematically murdered 1.1 million people in five years. When they exited the car, a man was directing people to go left or right. Ben, a strong young man, was sent to the right with his uncle and cousin—they were going to work. His sister Goldie and younger brother Tuli were sent to the left.

Ben only learned that his sister and brother had gone straight to the gas chambers when a guard later explained, with a twisted sense of satisfaction, that the ash gently falling from the sky was made up of the bodies of the workers' loved ones.

By the time the war ended, Ben would lose his parents, three of his four siblings, and countless extended family members and friends to Hitler and his followers' hatred. His older sister, Lola, was the only member of his immediate family to survive.

The stories Ben shared from Auschwitz-Birkenau, from the "Death March" to Buchenwald, and from Dachau—where he would ultimately be liberated when the war ended—are every bit as horrific as everything I've described so far. It would take far more space than I have here to share it all, but Ben has written it all down—the tragedy and suffering as well as the miracles that occurred both during and after the war—in his autobiography.

But simply putting it all down in writing wasn't enough.

ZACHOR Foundation

"In my mind there are questions that have never been answered," Ben writes in the opening of his memoir. "You might be surprised to learn that my first unanswered question is not, Why did that insane Hitler try to destroy the Jewish People? Instead, my first unanswered question is, Why did the so-called sane world stand by and let this Genocide happen?

"Having experienced the savagery of genocide first-hand as a child, while living in a supposedly modern, cultured, European country, I also have two additional questions: One, What are the circumstances and choices that led up to this and other genocides? And two: What must we do to prevent it from happening again? Anywhere. Because, sadly, as the old saying tells us, 'The more things change, the more they stay the same.'"

These are the questions Ben seeks to help all of us answer as time takes us further and further away from the Holocaust. Ben is one of a handful of survivors who are able to share first-hand experiences as Jews under Nazi terror—a fact he was keenly aware of when he founded the ZACHOR Holocaust Remembrance Foundation in 2009. "ZACHOR" means "REMEMBER," and the purpose of the foundation is to make sure the world never forgets the lessons of the Holocaust or the millions of individual lives that were taken there.

The story of the Holocaust isn't just in the masses of humanity killed, but in the individual stories of those who survived. For years, Ben spoke at schools, sharing his story with young people. At 91, Ben has retired from the school circuit, but he's not slowing down in his efforts to teach the lesson of what hate can lead to.

ZACHOR has just launched an online Holocaust curriculum—the first to be created and facilitated by and through the firsthand testimonial of a survivor. Ben told Upworthy that he wanted to create a curriculum that would be free and easy for teachers to access so there would be no excuse for schools not to teach about the Holocaust.

Considering the study findings that came out today, Ben's curriculum could not be more timely.

The 50-state survey of young adults in the U.S. found that nearly two-thirds were unaware that 6 million Jews were killed in the Holocaust, nearly 1 in 4 say they think the Holocaust is a myth or that it's exaggerated, and approximately 1 in 10 had either had never heard of it, didn't think it happened at all, or—perhaps most alarmingly—think Jews were responsible for it.

Clearly, we need to be doing a better job of educating our kids about the Holocaust. If we don't, the online disinformation machine will lead them to believe it was all a hoax.

The Zachor Holocaust Curriculum consists of eight lessons, which interweave Ben's personal story with facts about the Eastern European part of the war, how Hitler and the Nazis operated, and the Holocaust in general. It includes written content, fact inserts, photographs, and videos. It is free to register to use, and available to anyone with internet.

Perhaps the most unique element of the ZACHOR curriculum is the interactive component. Ben has created a Storyfile—a mix of artificial intelligence and hologram technology that will enable people to ask Ben questions and get answers long after he's no longer here. He spent hours answering thousands of questions, all of which was recorded from various angles and put into the Storyfile program, so people will always be able to hear Ben's answers to their questions from his own mouth.

Ben's foundation has also launched an anti-bullying campaign called "I SHOUT OUT." Anyone can go to the website i-shout-out.org and share what they shout out for—equality, peace, human rights, etc.—to let the world they stand against hatred.

I asked Ben what is the main message he wants people to take from the horrors of the Holocaust. He said, "It's very simple. Stop the hatred."

We all need to listen and heed Ben's words. Even just this five-minute video in which he shares how the Holocaust got started is worth viewing and sharing with our kids.

3 - Ben's Testimony. It all started with hatred.youtu.be

It may be a few more years before I share the full scope of Nazi cruelty with my son. But I will absolutely make sure that he knows what happened during WWII, about the millions of lives destroyed by hatred, and how, as Ben says, "One person with the gift of gab could turn the minds of millions."

Zachor indeed. We will remember.

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Three women, three MS journeys: How multiple sclerosis looks different for everyone

Gina, Nathalie and Helga share their reactions to being diagnosed with MS and how they stay informed and positive in the face of ever-changing symptoms.

Courtesy of Sanofi

Helga, Nathalie and Gina all have MS, and their experiences show how differently the disease can manifest.

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It’s been 155 years since neurologist Jean-Martin Charcot gave the first lecture on a mysterious progressive illness he called “multiple sclerosis.” Since then, we’ve learned a lot. We know MS causes the immune system to attack healthy tissue, including damaging the brain and spinal cord. Resulting symptoms can be debilitating and include fatigue, blurred vision, memory problems and weakness. Huge advancements in our understanding of MS and its underlying causes, as well as treatment advances, have been made in the past few decades, but MS remains a complex and unpredictable reality for the 2.8 million+ people diagnosed around the world.

Ironically, the only real constant for people living with MS is change. There’s no set pattern or standard progression of the disease, so each person’s experience is unique. Some people with MS have mild symptoms that worsen slowly but sometimes improve, while others can have severe symptoms that drastically alter their daily lives.

All people with MS share some things in common, however, such as the need to stay informed on the ever-evolving research, find various lines of support and try to remain hopeful as they continue living with the disease.

To better understand what navigating life with MS really looks like, three women shared their MS stories with us. Their journeys demonstrate how MS can look different for different people and interestingly, how the language used to talk about the disease can greatly impact how people understand their realities.

woman with horse, woman riding horseGina loves riding her horse, Benita.Courtesy of Sanofi

Gina—Hamburg, Germany (diagnosed with relapsing multiple sclerosis in 2017)

When her youngest son was 4 months old, Gina started having problems with her eye. She’d soon learn she was experiencing optic neuritis—her first symptom of MS.

“Immediately after the diagnosis, I looked up facts on MS because I didn’t know anything about it,” Gina says. “And as soon as I knew what could really happen with this disease, I actually got scared.”

As her family’s primary income provider, she worried about how MS would impact her ability to work as a writer and editor. Her family was afraid she was going to end up in a wheelchair. However, for now, Gina’s MS is managed well enough that she still works full-time and is able to be active.

“When I tell somebody that I have MS, they often don't believe me the first time because I don't fulfill any stereotypes,” she says.

Overwhelmed by negative perspectives on living with MS, Gina sought support in the online MS community, which she found to be much more positive.

“I think it’s important to use as many positive words as you can when talking about MS.” It’s important to be realistic while also conveying hope, she says. “MS is an insidious disease that can cause many bad symptoms…that can be frightening, and you can't gloss over it, either.”

To give back to the online community that helped her so much, Gina started a blog to share her story and help others trying to learn about their diagnosis.

Though she deals with fatigue and cognitive dysfunction sometimes, Gina stays active swimming, biking, riding horses and playing with her sons, who are now 11 and 6.

Cognitive dysfunction is common in MS, with over half of people affected. It can impact memory, attention, planning, and word-finding. As with many aspects of MS, some people experience mild changes, while others face more challenges.

Gina says that while there’s still a lot of education about MS needed, she feels positive about the future of MS because there’s so much research being done.

woman in wheelchair holding medal, woman rowingNathalie is an award-winning rower with multiple international titles.Courtesy of Sanofi

Nathalie — Pennes Mirabeau, France (diagnosed with relapsing-remitting multiple sclerosis in 2002)

Nathalie was a teenager and a competitive athlete when she noticed her first symptoms of MS, but it would take four years of “limbo” before she was diagnosed.

“Ultimately, the diagnosis was more of a relief, than a shock,” she says. “Because when you have signs and you don’t know why, it’s worse than knowing, in the end, what you have.”

However, learning more about the disease—and the realities of disease progression—scared her.

“That glimpse of the future was direct and traumatic,” she says. Her neurologist explained that the disease evolves differently for everyone, and her situation might end up being serious or very mild. So, she decided to stop comparing herself to others with MS.

She said to herself, “We’ll see what happens, and you’ll manage it bit by bit.”

By 2005, Nathalie’s MS had progressed to the point of needing a wheelchair. However, that has not dampened her competitive spirit.

Nathalie began her international rowing career in 2009 and has won multiple world titles, including two Paralympic medals—silver in London and bronze in Tokyo. Now, at 42, she still trains 11 times a week. Fatigue can be a problem, and sometimes hard workouts leave her with muscle stiffness and shaking, but she credits her ongoing sports career for helping her feel in tune with her body’s signals.

“Over the years, I’ve learned to listen to my body, letting my body guide when I need to stop and take breaks,” she says.

Nathalie explains that she used to only look backwards because of the initial shock of her diagnosis. In time, she stopped thinking about what she couldn’t do anymore and focused on her future. She now lives in the following mindset: “Even when doors close, don’t miss out on those that open.” Instead of focusing on what she can’t do, she focuses on the opportunities she still has. Right now, this includes her training for the 2024 Paralympic Games in Paris, where she will compete for another rowing medal.

“I only go forward,” she says. “Well, I try, anyway…It’s easy to say, it’s not always easy to do. But that’s what I try to do.”

woman exiting water after swimming, woman with great daneHelga's Great Dane has become a helpful and beloved companion.Courtesy of Sanofi

Helga—Johannesburg, South Africa (diagnosed with relapsing multiple sclerosis in 2010)

When Helga first started having balance issues and numbness in her feet, she chalked it up to her training as a runner. But when the numbness moved to her face, she knew something was wrong. She never guessed it was MS.

“When I was diagnosed, I felt completely overwhelmed and clueless,” Helga says. “I felt that I had nowhere near enough information. I did not know anything about the disease…I had no idea that it was going to be a process of continually monitoring and adjusting your lifestyle.”

In the beginning, Helga’s symptoms developed slowly, and she didn’t appear ill to others. She was even able to run for a few years after her diagnosis, but she couldn’t do marathons anymore, and she began to fall frequently due to balance issues and right-foot dragging. Then her cognition issues became more problematic, especially in her job as a trainer in a printing company.

“My executive function, decision-making and short-term memory were affected to the point that I was eventually medically unfit for work,” she says. She stopped working in 2017.

However, she didn’t stop living life. Even though she could no longer run, she continued to swim competitively. She got a Great Dane puppy and trained him as a service dog to help her walk. She also serves as vice chair of the patient support organization Multiple Sclerosis South Africa, and she advises others who have been diagnosed to join a patient advocacy group as soon as possible to get reliable information and meet others with MS.

Helga says she is “hopeful” about the future of MS. “I must say that I am so grateful that we have all the new medications available, because my life would not be the same if it wasn't for that,” she adds.

Part of how she manages her MS is by looking at the positives.

“If I could tell the world one thing about MS, it would be that MS is an incurable disease of the nervous system, but it's also the greatest teacher of valuing your health, family, friends, and managing change in your life,” she says. “My life is diversified in a way that I never, ever thought it would, and MS has been honestly the greatest teacher.”

Each MS journey is unique – with each person impacted experiencing different struggles, successes, and feelings as they manage this unpredictable disease. But the common thread is clear – there is a critical need for information, support, and hope. We are proud to participate in World MS Day and share these incredible stories of living life while living with MS. To learn more about MS, go to https://www.sanofi.com/why-words-really-matter-when-it-comes-to-multiple-sclerosis.

MAT-GLB-2301642-v1.0-05/2023

This article was sponsored by Sanofi. Participants were compensated when applicable.

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