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You'll rethink the luxury of having your own mailbox after learning Luis' story.

A few weeks ago, one of the volunteers who staffs the check-in desk tapped on the doorjamb of my office.

"A guy on the phone — Luis — asked if we can send him his mail," he said. "The guy says it's really important."

I was working at a nonprofit that offers services that help people living on the streets acquire permanent supportive housing. Forwarding mail is not one of those services.


"Sorry," I replied. "Bethesda Cares' policy is that we don't forward mail. We'll hold it for people, but we can't forward it. Luis has to come get it himself or send someone with written authorization to pick it up." The volunteer nodded and went back to the phone.

I turned back to my work, but the volunteer was back within a moment. "He says he just got a job. The guy's finally working, but it's during all the hours that we're open. He can't get here and doesn't know who he could send. He says the mail has important ID stuff in it. He's afraid he'll lose the job if he doesn't have it."

Well, crud.

I understand why we don't forward mail for the 375 clients who use Bethesda Cares as their mailing address (liability, workload, cost), but Luis had recently got into housing and had a job. I didn't want to go against policy, but I didn't want to bust this guy's chops either. The volunteer and I brainstormed for a moment, and we decided that Luis could send me a self-addressed, stamped envelope and that I would get it back out to him, which is exactly what happened a few days later.

Having no mailing address pretty much stinks, more than you might think.

Practically speaking, people who are trying to enter or re-enter society have to create and re-create connections, paper trails, and systems of interactions with large commercial and governmental entities. If you don't have a mailing address, this task is nearly impossible. While a lot of correspondence is now done online, plenty of agencies that process crucial paperwork like IDs and benefits information still rely on the good old U.S. Postal Service.

Emotionally speaking, having "no fixed address" — which is how law enforcement and administrators refer to someone who is homeless — leaves you untethered. Maybe you have a bus stop you call your own, but you know that's not the reality. Having an address, a place where people can find you (even if only by snail mail), reaffirms your existence. It  confirms your identity, especially when you're desperate for any permanent elements in your life.

Knowing that friends, families, and agencies can find you, even when you yourself don't know where you're going to sleep, is an anchor.

So in addition to helping people find housing, Bethesda Cares allows clients to use its mailing address as their own.

And when I say "as their own," that's exactly what I mean: We want clients to use just our street address, without our organization's name. Adding "c/o Bethesda Cares" reveals their status as homeless, and we want them to have the dignity of keeping their current situation private if that's their preference.

Some clients check their mail only sporadically; they aren't really expecting much. For others, though, coming in to ask for their mail is an important weekly touchstone. It's a layer of routine in their otherwise chaotic lives. It's a reason to come in to our safe space, where they know someone will greet them by name, address them respectfully, offer some coffee and maybe ask how they are. It's a place where they can seek respite from the elements without being told to move along.

Most importantly, it's a reason to come into the place where they will eventually seek other services — like talking to a case worker about housing.

I'm well aware that our office mailing address is a sorry substitute for a home address.

But it's not intended to be a permanent fix. Every service we offer is designed not only to ease our clients' lives, but also to serve as a tool of engagement. It's a chance to say "yes" to someone who's become deeply disenfranchised in society, who is unwilling or unable to believe that anyone will consistently have their backs.

In order to use our address, clients must have an intake interview with a caseworker. We learn their stories and a bit about their immediate needs. And we get to say "yes" — "Yes, you can get your mail here," "Yes, come have a hot meal every day of the year," "Yes, we have clean socks for you."

And, eventually, "Yes, we can help you seek housing."

Homelessness represents the total collapse of support systems, both public and personal.

Rebuilding that shattered trust takes years.

Every touchstone we provide and every indignity we soothe brings that client one step closer to taking the leap of faith they'll need to apply for housing — the leap of faith needed to hope for something better after so many years of accepting the worst.

While our office guides clients on the long path out of chronic homelessness, our greater community has a vital role, too, in making sure that our clients know they aren't forgotten and that they are worthy of our time and our resources.

Anyone can help restore a person's dignity. Just find a local organization working to end homelessness and drop off a package of cookies. Drop off clean socks or unopened toiletries. Maybe include a note filled with kind thoughts.

That way, when clients come in to check on their mail, you'll be helping to reinforce, in any way you can, that they matter.

This story originally appeared on amylfreeman.com and is reprinted here with permission.

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Three women, three MS journeys: How multiple sclerosis looks different for everyone

Gina, Nathalie and Helga share their reactions to being diagnosed with MS and how they stay informed and positive in the face of ever-changing symptoms.

Courtesy of Sanofi

Helga, Nathalie and Gina all have MS, and their experiences show how differently the disease can manifest.

True

It’s been 155 years since neurologist Jean-Martin Charcot gave the first lecture on a mysterious progressive illness he called “multiple sclerosis.” Since then, we’ve learned a lot. We know MS causes the immune system to attack healthy tissue, including damaging the brain and spinal cord. Resulting symptoms can be debilitating and include fatigue, blurred vision, memory problems and weakness. Huge advancements in our understanding of MS and its underlying causes, as well as treatment advances, have been made in the past few decades, but MS remains a complex and unpredictable reality for the 2.8 million+ people diagnosed around the world.

Ironically, the only real constant for people living with MS is change. There’s no set pattern or standard progression of the disease, so each person’s experience is unique. Some people with MS have mild symptoms that worsen slowly but sometimes improve, while others can have severe symptoms that drastically alter their daily lives.

All people with MS share some things in common, however, such as the need to stay informed on the ever-evolving research, find various lines of support and try to remain hopeful as they continue living with the disease.

To better understand what navigating life with MS really looks like, three women shared their MS stories with us. Their journeys demonstrate how MS can look different for different people and interestingly, how the language used to talk about the disease can greatly impact how people understand their realities.

woman with horse, woman riding horseGina loves riding her horse, Benita.Courtesy of Sanofi

Gina—Hamburg, Germany (diagnosed with relapsing multiple sclerosis in 2017)

When her youngest son was 4 months old, Gina started having problems with her eye. She’d soon learn she was experiencing optic neuritis—her first symptom of MS.

“Immediately after the diagnosis, I looked up facts on MS because I didn’t know anything about it,” Gina says. “And as soon as I knew what could really happen with this disease, I actually got scared.”

As her family’s primary income provider, she worried about how MS would impact her ability to work as a writer and editor. Her family was afraid she was going to end up in a wheelchair. However, for now, Gina’s MS is managed well enough that she still works full-time and is able to be active.

“When I tell somebody that I have MS, they often don't believe me the first time because I don't fulfill any stereotypes,” she says.

Overwhelmed by negative perspectives on living with MS, Gina sought support in the online MS community, which she found to be much more positive.

“I think it’s important to use as many positive words as you can when talking about MS.” It’s important to be realistic while also conveying hope, she says. “MS is an insidious disease that can cause many bad symptoms…that can be frightening, and you can't gloss over it, either.”

To give back to the online community that helped her so much, Gina started a blog to share her story and help others trying to learn about their diagnosis.

Though she deals with fatigue and cognitive dysfunction sometimes, Gina stays active swimming, biking, riding horses and playing with her sons, who are now 11 and 6.

Cognitive dysfunction is common in MS, with over half of people affected. It can impact memory, attention, planning, and word-finding. As with many aspects of MS, some people experience mild changes, while others face more challenges.

Gina says that while there’s still a lot of education about MS needed, she feels positive about the future of MS because there’s so much research being done.

woman in wheelchair holding medal, woman rowingNathalie is an award-winning rower with multiple international titles.Courtesy of Sanofi

Nathalie — Pennes Mirabeau, France (diagnosed with relapsing-remitting multiple sclerosis in 2002)

Nathalie was a teenager and a competitive athlete when she noticed her first symptoms of MS, but it would take four years of “limbo” before she was diagnosed.

“Ultimately, the diagnosis was more of a relief, than a shock,” she says. “Because when you have signs and you don’t know why, it’s worse than knowing, in the end, what you have.”

However, learning more about the disease—and the realities of disease progression—scared her.

“That glimpse of the future was direct and traumatic,” she says. Her neurologist explained that the disease evolves differently for everyone, and her situation might end up being serious or very mild. So, she decided to stop comparing herself to others with MS.

She said to herself, “We’ll see what happens, and you’ll manage it bit by bit.”

By 2005, Nathalie’s MS had progressed to the point of needing a wheelchair. However, that has not dampened her competitive spirit.

Nathalie began her international rowing career in 2009 and has won multiple world titles, including two Paralympic medals—silver in London and bronze in Tokyo. Now, at 42, she still trains 11 times a week. Fatigue can be a problem, and sometimes hard workouts leave her with muscle stiffness and shaking, but she credits her ongoing sports career for helping her feel in tune with her body’s signals.

“Over the years, I’ve learned to listen to my body, letting my body guide when I need to stop and take breaks,” she says.

Nathalie explains that she used to only look backwards because of the initial shock of her diagnosis. In time, she stopped thinking about what she couldn’t do anymore and focused on her future. She now lives in the following mindset: “Even when doors close, don’t miss out on those that open.” Instead of focusing on what she can’t do, she focuses on the opportunities she still has. Right now, this includes her training for the 2024 Paralympic Games in Paris, where she will compete for another rowing medal.

“I only go forward,” she says. “Well, I try, anyway…It’s easy to say, it’s not always easy to do. But that’s what I try to do.”

woman exiting water after swimming, woman with great daneHelga's Great Dane has become a helpful and beloved companion.Courtesy of Sanofi

Helga—Johannesburg, South Africa (diagnosed with relapsing multiple sclerosis in 2010)

When Helga first started having balance issues and numbness in her feet, she chalked it up to her training as a runner. But when the numbness moved to her face, she knew something was wrong. She never guessed it was MS.

“When I was diagnosed, I felt completely overwhelmed and clueless,” Helga says. “I felt that I had nowhere near enough information. I did not know anything about the disease…I had no idea that it was going to be a process of continually monitoring and adjusting your lifestyle.”

In the beginning, Helga’s symptoms developed slowly, and she didn’t appear ill to others. She was even able to run for a few years after her diagnosis, but she couldn’t do marathons anymore, and she began to fall frequently due to balance issues and right-foot dragging. Then her cognition issues became more problematic, especially in her job as a trainer in a printing company.

“My executive function, decision-making and short-term memory were affected to the point that I was eventually medically unfit for work,” she says. She stopped working in 2017.

However, she didn’t stop living life. Even though she could no longer run, she continued to swim competitively. She got a Great Dane puppy and trained him as a service dog to help her walk. She also serves as vice chair of the patient support organization Multiple Sclerosis South Africa, and she advises others who have been diagnosed to join a patient advocacy group as soon as possible to get reliable information and meet others with MS.

Helga says she is “hopeful” about the future of MS. “I must say that I am so grateful that we have all the new medications available, because my life would not be the same if it wasn't for that,” she adds.

Part of how she manages her MS is by looking at the positives.

“If I could tell the world one thing about MS, it would be that MS is an incurable disease of the nervous system, but it's also the greatest teacher of valuing your health, family, friends, and managing change in your life,” she says. “My life is diversified in a way that I never, ever thought it would, and MS has been honestly the greatest teacher.”

Each MS journey is unique – with each person impacted experiencing different struggles, successes, and feelings as they manage this unpredictable disease. But the common thread is clear – there is a critical need for information, support, and hope. We are proud to participate in World MS Day and share these incredible stories of living life while living with MS. To learn more about MS, go to https://www.sanofi.com/why-words-really-matter-when-it-comes-to-multiple-sclerosis.

MAT-GLB-2301642-v1.0-05/2023

This article was sponsored by Sanofi. Participants were compensated when applicable.

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