upworthy

down syndrome

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There are a lot of reasons to get a tattoo — to honor a loved one, visualize a spiritual or life goal, or just for the aesthetic appeal.

(They do look pretty cool, after all.)


Tattoos can also symbolize that you belong to and identify deeply with a certain group — like the recently famous semicolon tattoo that denotes a person's battle with depression or suicidal thoughts.

Now a group of moms is banding together through custom ink — called the Lucky Few tattoo — that symbolize their family's experience with Down syndrome.

A group of these moms recently met up at a Ruby's Rainbow retreat — a nonprofit that raises funds to get people with Down syndrome the education and training they need to succeed in the world — when they decided to get matching tattoos to commemorate their unique bond.

Designer Mica May was among those in the group, and she came up with a concept on the spot: three arrows stacked on top of one another.

They decided to call it the "Lucky Few" tattoo in reference to a popular book about Down syndrome.

Woman hugging her child while displaying a three arrow tattoomeetmrshowell/Instagram

What's the origin and meaning of the Lucky Few tattoo?

In an Instagram post, May wrote that the concept for the tattoo had come to her in a dream, though she initially wasn't sure what it meant.

The other moms noticed that the number three seemed to be incredibly symbolic of Down syndrome, also called trisomy 21, in which children are born with three copies of the 21st chromosome.

The three arrows in the tattoo represent the three copies of the 21st chromosome, as well as the ability to move forward.

This genetic irregularity puts people affected by Down syndrome at greater risk for certain health conditions and presents different challenges for them in the way they learn and move through the world.

Down syndrome affects about 6,000 babies in the United States ever year.

A woman displaying three arrow Lucky Few Tattoo on her fingersavanna.lauryn/Instagram


Now the movement is going viral, with parents, teachers, and loved ones of people with Down syndrome all over the country joining in.

People who admit they never thought they'd get a tattoo are going under the needle to show their love and support for people affected by the syndrome.

Woman displaying three arrow Lucky Few Tattoo on her forearmmeetmrshowell/Instagram

Hundreds are taking to Instagram using the hashtag #theluckyfewtattoo to share their photos and stories.

Some parents have even organized mass tattoo-ing events in their area.

The Mighty reports that one group in California had over 260 local moms sign up to get the tattoo at the same local shop.

Parenting a child with Down syndrome can be a tremendously difficult challenge. It can also be extremely rewarding.

The difficulties can be vast, but one survey found that parents of children with Down syndrome self-reported that their outlook on life was more positive than before, with the experience teaching them new depths of love and compassion.

Elle Westover, who shared her own tattoo on Instagram recently, put it like this: "The Arrows, because we can only launch forward after we have been pulled back and stretched."

There's no overestimating how much a sense of belonging can help people through hard times. The Lucky Few Tattoo is a constant, visual reminder for these parents of why the challenges are worth it.


This article originally appeared on 2.2.18

Pop Culture

Barbie introduces its first doll with Down syndrome in new Fashionistas lineup

The doll and her accessories were designed in close collaboration with the National Down Syndrome Society.

Mattel

Barbie's newest lineup of Fashionistas includes a Barbie with Down syndrome.

Ever since she made her debut in 1959, Barbie has been both celebrated for her wide range of careers and criticized for her unrealistic body image. As the first mass-produced doll toy with adult features, Barbie has been an iconic part of childhood imaginary play for decades despite her controversy, and as the hype around the new Barbie feature film shows, she's still a favorite among fans.

One way Barbie has managed to stay relevant is by evolving with the times. In her earliest years, she defied the 50s housewife expectation of women and showed girls that they could have any job they wanted. Since then, Mattel has broadened Barbie's initial blonde bombshell look to allow more girls to see themselves in Barbie's features.

For instance, meet one of the newest Barbie Fashionistas—the first Barbie to have Down syndrome.

Designed in close collaboration with the National Down Syndrome Society (NDSS), the doll was made to celebrate individuals with Down syndrome. The NDSS had input in her design from start to finish, with the goal of having her look and accessories be reflective of the Down syndrome community.

Barbie with Down syndrome

Barbie has introduced its first doll with Down syndrome.

Mattel

Some of the features that are unique to this doll are a shorter frame and longer torso, a rounder face, smaller ears, a flatter nasal bridge and sligthly slanted, almond-shaped eyes—specifications designed to make Barbie more illustrative of women with Down syndrome. Even the palms of this Barbie's hands are purposefully designed, with a single line on the palm, which is a characteristic often associated with those with Down syndrome (but can also be seen in people with other conditions).

The doll’s dress features butterflies and yellow and blue colors, which are associated with Down syndrome awareness. And her pink pendant necklace shape represents the three copies of the 21st chromosome, which is what causes the syndrome's signature characteristics.

"The three chevrons, or arrows, are a symbol that unites the Down syndrome community and are meant to represent 'the lucky few' who have someone with Down syndrome in their life," shares Mattel.

Finally, since some children with Down syndrome wear orthotics to support their feet and ankles, the doll has been fashioned with a pair of pink ankle foot orthotics (AFOs) to match her outfit.

Barbie Fashionistas

Barbie's new Fashionista lineup

Mattel

This Barbie is one of a handful of newly-released Fashionista dolls, each of which expands Barbie's range of representation with an array of features. It even includes a Ken doll with a prosthetic leg.

Mattel says Barbie is the most inclusive doll line on the market, with "over 175 looks offering a variety of eye colors, hair colors and textures, body types, disabilities and fashions to tell more stories." As Lisa McKnight, Mattel's Executive Vice President and Global Head of Barbie & Dolls, points out, not only does this Barbie give kids with Down syndrome a Barbie that represents them, but it also reflects the world all kids live in.

“As the most diverse doll line on the market, Barbie plays an important role in a child’s early experiences, and we are dedicated to doing our part to counter social stigma through play,” McKnight said in a statement. “Our goal is to enable all children to see themselves in Barbie, while also encouraging children to play with dolls who do not look like themselves. Doll play outside of a child’s own lived experience can teach understanding and build a greater sense of empathy, leading to a more accepting world. We are proud to introduce a Barbie doll with Down syndrome to better reflect the world around us and further our commitment to celebrating inclusion through play.”

Three cheers for Barbie in all her diverse attributes, abilities and ambitions, and kudos to those who keep trying to make her world more inclusive and representative of everyone.

Vernon Jackson with his buddy Ellison at the Noble Barber and Beauty salon in Cincinnati, Ohio.

It’s a godsend for parents when they can take their kids who have specific needs somewhere they won’t be judged. Parenting a child with disabilities or neurodivergence is hard enough without dealing with the stares, judgment and misunderstandings that can happen in public places.

Haircuts can be especially stressful for children with sensory issues and their parents.

Vernon Jackson, barber and owner of Noble Barber and Beauty salon in Cincinnati, Ohio, understands these families' unique needs. So he opens up his shop one day a month for what he calls "The Gifted Event,” where he welcomes them for a free haircut.

The most common medical conditions he sees are autism, Down syndrome and spina bifida.


Jackson told Today there are a few things that these children worry about in the barber’s chair. Specifically, many don’t like the sound of the clippers and the feeling of hair falling on their skin. “One child told me it feels like needles,” he told Today.

The barber’s sweet approach while giving a haircut to Ellison, a child with Down syndrome, went viral on TikTok, earning over 3 million views. It’s touching because Ellison is all smiles and loves having some control over the stressful situation by telling Jackson when to “stop” and “start” with the clippers.

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Visit TikTok to discover videos!

The viral video shows what can happen when a barber has the time to focus on the child as an individual and create an atmosphere where they are comfortable.

“Every child is different and I need to be present with them and meet them in the moment,” Jackson told Today. For Julie Eubanks, Ellison’s mother, who took the heartwarming video, being able to have Jackson cut his hair is a huge relief.

"I'm always in the state of anticipating the worst because you never know with these types of situations with Ellison, or with any kid with special needs, they can turn with a blink of the eye," Eubanks told WLWT. "I was trying to enjoy it and record and peaking my head out of the side of my phone to be like, 'Is this really going on?'"

The commenters on TikTok thought the video was adorable.

"Thank you for having such a kind soul with these precious children that just need a little extra attention in a different way! This is awesome," Jackie Griggs wrote. "Hard to tell who had more fun here. This is great!" Carrie Deal added.

Jackson has set up a GoFundMe where people can donate free haircuts to children with disabilities and he’s received over $17,000 in donations.

“As a barber, I saw the need for a place where children with disabilities are supported during a haircut and an environment where parents or caregivers don't have to explain their child's behavior or apologize for something they may do or say,” Jackson wrote on the GoFundMe page.

It’s incredible that Jackson sets aside time every month so that his business can focus on those who need a little extra love and attention. It’s a beautiful gift to these children and their parents and a wonderful example to share with the rest of the business community.

Chris Nikic wins the Panama City Ironman

The great Taoist philosopher Lao Tzu is known for saying, "The journey of a thousand miles begins with one step." It's a simple but powerful way of approaching goals by seeing them as a series of simple actions, rather than a massive undertaking.

Chris Nikic, 22, has a similar life philosophy that he says helped him become the first person with Down syndrome to complete an Ironman. An Ironman is an incredible feat of endurance where athletes must complete a 2.4-mile swim in open water, a 112-mile bike ride and a full marathon of 26.2 miles, in 17 hours or less.

In November 2020, Chris completed his first Ironman at Panama City Beach, Florida.

Chris attributes his success by trying 1% more every day. That could mean an extra push up, a few more seconds on the treadmill or one more sit up. "It represents me better than I was yesterday," Chris told News 6.

Chris' father, Nik Nikic, says the philosophy is a way for people to achieve great things without overdoing it and injuring themselves. It also prevents people from biting off more than they can chew and giving up.




"1% is pretty powerful," Nik told Today. "Our hope is that people can take it and apply it in their life. It's a really simple way to get them started on that journey to achieving their potential."

Nik has seen these small incremental changes result in big improvements in Chris' performance.

"He always does a little bit more or a little bit faster each time," Nik said. "It requires a lot of patience to do the 1% … This is designed to be easy and long-term sustainable."

Chris also follows three rules to create lifelong habits. Rule No. 1 is have fun. Rule No. 2 is "there can't be any residual pain." Rule No. 3 is "always just one more."


The 1% philosophy can be applied to a lot more than running a marathon. Imagine if you got 1% better at any skill. After 100 days, you'd be 100% better than when you started. The philosophy can apply to anything from learning a musical instrument to improving your parenting skills.

Eating 1% better every day could completely transform your body in just a few months.

All you have to do is create a plan and stick to it.

Chris and Nik have outlined their philosophy in a new book "1% Better: Reaching My Full Potential and How You Can Too." The book explains how Chris implements the philosophy to achieve his goals such as completing the Ironman or the Boston Marathon.

Nik believes that Chris' achievements are about a lot more than just meeting his personal goals. They give people with Down syndrome a road map for independence.

"The message that we wanna send is: It takes us as parents to be willing to trust to have our kids really be included in the rest of the world," Nik said. "When other people start doing for you, you're not gonna get the benefits of life. You're always gonna be counting on someone else. So our kids need to do more for themselves."