Man who lost all motor control due to ALS asks for 'a beer' using only his mind
An incredible innovation
A man with ALS communicating via brain waves.
I can’t imagine worse torture than being stuck in a locked-in state caused by amyotrophic lateral sclerosis (ALS). ALS is a disease of the nervous system where nerve cells slowly break down, causing muscles to weaken throughout the body.
Patients who survive through the weakening process eventually reach a "locked-in" state where even though their brain still functions, they are completely paralyzed with their eyes mostly closed.
In this state, the person is unable to communicate. People with ALS typically live two to five years after being diagnosed and usually die from paralysis of the respiratory diaphragm.
However, life may get a little better for people with ALS after a new development that has allowed a man to form sentences using only his brain waves. In 2022, Researchers at the Wyss Center for Bio and Neuroengineering in Geneva, Switzerland, developed a brain electrode that they implanted into a 36-year-old man in a locked-in state that has allowed him to communicate.
“Ours is the first study to achieve communication by someone who has no remaining voluntary movement and hence for whom the BCI is now the sole means of communication,” said Dr. Jonas Zimmermann, a senior neuroscientist at the Wyss Center.
“This study answers a long-standing question about whether people with complete locked-in syndrome–who have lost all voluntary muscle control, including movement of the eyes or mouth–also lose the ability of their brain to generate commands for communication,” Zimmermann added.
After three months of unsuccessful attempts, the patient was able to spell “yes” or “no” and to form sentences through a speller program.
One of his first requests was to be put in an elevated position when there are guests in the room. He also was able to ask for one thing he probably needed more than anything at that point: a beer. He had to be dying for a beer. He also asked for the band Tool to be played “loud.”
The electrodes allowed him to interact with his 4-year-old child, who he was able to call “my cool son.” He also asked for specific foods to be put into his feeding tube. “For food, I want to have curry with potato then Bolognese and potato soup,” he said.
This was the first time that brain electrodes were even implanted into a locked-in patient and researchers had no idea if they would work.
Completely locked-in man uses brain-computer interface to communicate. Today, Wyss Center COO, Olivier Coquoz, discussed the team\u2019s new Nature Communications paper on @RTScqfd. Listen back to the interview here: https://pages.rts.ch/la-1ere/programmes/cqfd/24-03-2022#12927261\u00a0\u2026 #neuroscience #BCIhttps://wysscenter.ch/updates/completely-locked-in-man-uses-brain-computer-interface-to-communicate\u00a0\u2026— Wyss Center (@Wyss Center) 1648138704
The scientists behind the groundbreaking technology are now seeking funding to provide similar implants for other people with ALS. “This is an important step for people living with ALS who are being cared for outside the hospital environment,” said George Kouvas, chief technology officer at the Wyss Center.
It’s stories like this that remind us that we should never take for granted the ability to communicate our basic needs. Let’s hope that the man with ALS will be able to drink as many beers as he likes and to be able to rock out to Tool as loud as possible for the rest of his days.
This article originally appeared three years ago.
- New isntrument allows disabled people to play with their eyes ... ›
- Ice Bucket Challenge creator Pete Frates passes away after tough ... ›
- These 10 genius Stephen Hawking quotes will inspire you to dream ... ›
- These 10 genius Stephen Hawking quotes will inspire you to dream big. - Upworthy ›
Beaver in water. Photo by 
An actual beaver dam on the now-thriving Price River
Not just coworkers—family, friends, strangers, kids… 
Imagine having to go so badly but being out of euros. 
Anything hobbit-esque can't be wrong. 
But what if you need pain meds AND mascara?!
Imagine how this would affect childcare.
Honestly…where's the lie? 
A brown buddha statue sits near a green mountain. Photo by 
Urgent dash to the bathroom! 🚪🏃♂️
Ladybug unexpectedly found during colonoscopyPhoto credit: 
Close-up of bottom of ladybug found in colonPhoto credit: 
There's a reason why some people can perfectly copy accents, and others can't
Turns out, there's a neurodivergent link.
A woman in black long sleeve shirt stands in front of mirror.
Have you ever had that friend who goes on vacation for four days to London and comes back with a full-on Queen's English posh accent? "Oooh I left my brolly in the loo," they say, and you respond, "But you're from Colorado!" Well, there are reasons they (and many of us) do that, and usually it's on a pretty subconscious level.
It's called "accent mirroring," and it's actually quite common with people who are neurodivergent, particularly those with ADHD (Attention Deficit Hyperactivity Disorder). According Neurolaunch, the self-described "Free Mental Health Library," "Accent mirroring, also known as accent adaptation or phonetic convergence, is the tendency to unconsciously adopt the accent or speech patterns of those around us. This linguistic chameleon effect is not unique to individuals with ADHD, but it appears to be more pronounced and frequent in this population."
Essentially, when people have conversations, we're constantly "scanning" for information—not just the words we're absorbing, but the inflection and tone. "When we hear an accent, our brains automatically analyze and categorize the phonetic features, prosody, and intonation patterns," writes Neurolaunch. For most, this does result in copying the accent of the person with whom we're speaking. But those with ADHD might be more sensitive to auditory cues. This, "coupled with a reduced ability to filter out or inhibit the impulse to mimic…could potentially explain the increased tendency for accent mirroring."
While the article explains further research is needed, they distinctly state that, "Accent mirroring in individuals with ADHD often manifests as an unconscious mimicry of accents in social situations. This can range from subtle shifts in pronunciation to more noticeable changes in intonation and speech rhythm. For example, a person with ADHD might find themselves unconsciously adopting a Southern drawl when conversing with someone from Texas, even if they’ve never lived in the South themselves."
People are having their say online. On the subreddit r/ADHDWomen, a thread began: "Taking on accents is an ADHD thing?" The OP shares, "My whole life, I've picked up accents. I, myself, never noticed, but everyone around me would be like, 'Why are you talking like that??' It could be after I watched a show or movie with an accent or after I've traveled somewhere with a different accent than my 'normal.'
They continue, "Apparently, I pick it up fast, but it fades out slowly. Today... I'm scrolling Instagram, I watch a reel from a comedian couple (Darcy and Jeremy. IYKYK) about how Darcy (ADHD) picks up accents everywhere they go. It's called ADHD Mirroring??? And it's another way of masking."
(The OP is referring to Darcy Michaels and his husband Jeremy Baer, who are both touring comedians based in Canada.)
Hundreds of people on the Reddit thread alone seem to relate. One comments, "Omfg I've done this my whole life; I'll even pick up on the pauses/spaces when I'm talking to someone who is ESL—but English is my first language lol."
Sometimes, it can be a real issue for those around the chameleon. "I accidentally mimicked a waitress's weird laugh one time. As soon as she was out of earshot, my family started to reprimand me, but I was already like 'oh my god I don’t know why I did that, I feel so bad.'"
Many commenters on TikTok were shocked to find out this can be a sign of ADHD. One jokes, "Omg, yes, at a store the cashier was talking to me and she was French. She's like 'Oh are you French too? No, I'm not lol. I'm very east coast Canada."
And some people just embrace it and make it work for them. "I mirror their words or phrase! I’m 30. I realized I start calling everyone sweetie cause my manager does & I work at coffee shop."