The Last Ice Bucket Challenge You Need To See — And You Really Should See It

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Sometimes we forget why we are doing things. Take dumping cold buckets of water on our heads, for example. You've probably seen a lot of videos of your friends doing it this week. Well, here's a really important reminder of the reason we're doing it. Next week the Internet will get back to its regularly scheduled cat videos, I promise. So sit back, grab a tissue, and let's remember the reason behind the fun.

I started this video after the actual challenge, so if you'd like to see the guy get covered with freezing water, go ahead and restart it at the beginning. When I saw this video, I felt it needed to be shared. If you feel the same, feel free to pass it along. And if you want to donate to ALS in his name, I would totally click here.

UPDATE: Thanks to your support, Anthony is going to be on the season premiere of “The Ellen DeGeneres Show” this Monday, Sept. 8, 2014, to spread even more awareness about the terrifying disease (and its underfunded research). We want everyone to tune in and support Anthony.

Transcript:
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This is the ALS Ice Bucket Challenge. I nominate Ellen DeGeneres; you’ve been nominated a few times. You should do it, girl, it’s for a good cause. I also nominate Miley Cyrus.

I nominate Kristen Wiig and I also nominate Michael Stevens of VSauce, and the whole sourceFed team of YouTube. You know, you have 24 hours to either do the ALS Ice Bucket Challenge or donate $100 to ALS TDI. You could find them at als.net. They’re absolutely the best organization to help find a cure for ALS. Let’s do this.

OK, that was probably the most embarrassing thing that I’ve ever done in my entire life. Holy shit, that one’s pretty crazy, right? Why did I do it? I’ve been so terrified of ALS my entire life because it runs in my family. ALS runs in my family. My grandmother had it; she was second mother to me. My mother was diagnosed when I was in high school. Five months ago, I was diagnosed at 26 years old. ALS is so, so fucking scary, you have no idea.

I hate talking about it; I really hate talking about it. That’s probably why nobody talks about it, its because it’s so challenging to watch. It’s so challenging to see and to talk about. Nobody wants to see a depressing person that’s dying, that has two to five years to live. They don’t want to talk about it. They don’t want their day ruined.

People are getting frustrated about seeing the ALS Ice Bucket Challenge right now, and that’s fine, that’s fine. That means our … you know, our awareness is working. It wouldn’t be successful if we weren’t irritating a few people, right? I promise your newsfeed will go back to cat videos and “Let It Go” covers. Right now, the ALS community has the main spotlight. For once in my entire life, I’ve seen it in the forefront. Usually when I say to someone, “I have ALS, my mom has ALS, my grandmother has ALS,” they have two responses. They either … totally confused and have no idea what ALS is; usually attributed to Lou Gehrig’s Disease, or they know completely how terrifying it is, and the conversation is usually pretty short.

Only 30,000 people in the U.S. have ALS. Not many people know about it and there’s not very much incentive for the pharmaceutical companies to invest at billions of dollars it takes to develop a drug because I’m not profitable. I’m not worth saving?

Right now my hands are starting to atrophy away; they’re getting weak; having trouble starting my car, buttoning my shirt. Eventually, I won’t be able to use my arms or hands at all. Eventually I won’t be able to walk, talk, and breathe on my own. That’s the real truth of what ALS is. It’s devastating, it’s costly, it’s not profitable.

This video is all over the place with emotions and I’m … you know, I apologize for my rant and for my tears. If I don’t … if I simply dump ice in my head, I don’t think you’re really going to get the point. I thank you for sharing this video in advance. This is the first successful advocacy we’ve every really, really, really had, and I am so, so, so grateful. You have no idea how every single challenge makes me feel; lifts my spirits, lifts every single ALS patients’ spirits. You’re really, truly making a difference and we’re so, so, so grateful. Love you.

There may be small errors in this transcript.
About:

Thanks to Anthony Carbajal for uploading this video. Follow Anthony on Twitter. Learn more about ALS here and donate here. ALS has already raised over $22 million with this challenge. If you'd like to participate, check out the rules here. Someone started a YouCaring page for Anthony. If you want to donate to him, go ahead and click here.

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