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'Don't orient them.' Psychologist has beautiful advice for talking to people with dementia.

"This is an opportunity to communicate and treasure memories real but out of time."

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A person with dementia and their loved one.

Few things are more difficult than watching a loved one's grip on reality slipping away. Dementia can be brutal for families and caregivers, and knowing how to handle the various stages can be tricky to figure out.

The Alzheimer's Association offers tips for communicating in the early, middle and late stages of the disease, as dementia manifests differently as the disease progresses. The Family Caregiver Alliance also offers advice for talking to someone with various forms and phases of dementia. Some communication tips deal with confusion, agitation and other challenging behaviors that can come along with losing one's memory, and those tips are incredibly important. But what about when the person is seemingly living in a different time, immersed in their memories of the past, unaware of what has happened since then?

Psychologist David McPhee shared some advice with a person on Quora who asked, "How do I answer my dad with dementia when he talks about his mom and dad being alive? Do I go along with it or tell him they have passed away?"

dementia, parents with dementia, dementia treatment, psychologist, psychology, aging, hospice "Enter into his reality and enjoy it."Photo credit: Canva

McPhee wrote:

"Enter into his reality and enjoy it. He doesn't need to be 'oriented.' Thank God the days are gone when people with advanced dementia were tortured by huge calendars and reminder signs and loved ones were urged to 'orient' them to some boring current 'reality.'

If dad spends most of his time in 1959, sit with him. Ask questions he didn't have time for before. Ask about people long dead, but alive to him, learn, celebrate your heritage. His parents are alive to him. Learn more about your grandparents. If he tells the same story over and over, appreciate it as if it's music, and you keep coming back to the beautiful refrain.

This isn't 'playing along to pacify the old guy,' this is an opportunity to communicate and treasure memories real but out of time."

People on Quora loved the thoughtful, compassionate advice. Many people shared that they had taken this approach with their relatives with good results, and people who work with dementia patients confirmed it also. Some said that "orienting" to present reality may be helpful for people in the early stages of dementia, but not necessarily in the middle or later stages.

Of course, caregivers know that dementia means more than simply living in another time period in your head, and that talking with a person with dementia might require different skills and approaches on different days. But this advice to learn about a loved one's past may come in handy for family members who feel sad or hurt that they aren't being remembered in the present. It may help to see it as an opportunity to time travel with the person rather than a loss. When a person is deep in their long-term memory, you may be surprised and delighted by what you can discover.

dementia, parents with dementia, dementia treatment, psychologist, psychology, aging, hospice People with dementia don't need to be brought back to the present.Photo credit: Canva

People with dementia don't need to be brought back to the present if it's just going to confuse or irritate them. If they are in a safe place and are being watched over so they don't wander or do something dangerous, let them be. Join them in their past world and get to know them in a way you may not have had the opportunity to otherwise.

Solid advice, Dr. McPhee. Thank you for sharing it publicly.

This article originally appeared four years ago.

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Humor

Comedian's hilarious raps get nursing home residents grooving any way they can

Pauline Schantzer (aka Polly Wolly) created "The Finger Dance" so those in wheelchairs can groove.

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Comedian Polly Wolly raps and dances with nursing home residents.

You're never too old to sing or dance. And Los Angeles-based comedianomedian Pauline Schantzer (@therealpollywolly) is making it her mission to keep residents in nursing homes doing both. The actress, writer and rapper (aka Polly Wolly) has been bringing her beats, songs and dance moves to nursing and assisted living homes, inspiring them to live it up and find joy.

"I started performing in nursing homes in November 2023," Polly tells Upworthy.

She got connected with her first nursing home via her friend, Rena Hirsch, who was the director of the nursing home that first booked Polly. "At first I didn't plan to pursue [work] in nursing homes. But I grew up going to see my grandma in the nursing home, and my mom Judy who is my comedic inspiration also lives in an assisted living home," she shares. "She has minor dementia, so it means a lot to me to give people laughter. My mom used to be full of laughs and jokes, and she's lost that. So it's been really tough on me to experience that. And humor is how I've dealt with it."

Understanding her audience, Polly recently created a song called "The Finger Dance" that allows everyone to get dancing, including those in wheel chairs. In the video, Polly raps and sings as she interacts with the residents. "In the wheelchair, let's groove! What's that button do? Oh ooh. It's electric, vroom vroom. Can't get up? That's fine! Put your fingers up real high, aye!" she raps and sings in the video.

She continues, "Move it from side to side. Yeah girl, looking real fly! Aye! Shake them fingers, don't be shy. You got arthritis? Come on just try!" Polly pans the camera to the small crowd, who have their fingers up and are grooving along with her.

The sweet video got tons of supportive comments from viewers. "Ur in those homes everyday! I love it! Respect what you do so much, laughter is the best medicine," one wrote. Another added, "👏👏 I love how you bring a moment of happiness and joy to our seniors !! ♥️" And another viewer shared, "You've got me over here doing the finger dance at my desk while at work. Lol."

Polly adds, "I wrote this song, 'The Finger Dance' because my mom always did this dance [with her fingers]. She was so cute, she was overweight and her cheeks would look all chubby and she'd point her fingers up in the air. It was inspired by her."

In another post, Polly performed another original song in another assisted living home, encouraging everyone to dance through their aches and pains with more funny lyrics. "You got aches, you got pains, da da da da da da. So groove with your cane, da da da da da da da." And viewers noted that her performance was "100x better than Coachella" and "Next stop…Coachella."

Another bop she created is called "Shake It Doll", and it's a banger that has consistently put smiles on faces when she performs it. During a recent show, she told the crowd, "Let's get wild up in here, you know? We only live once. Let's do it!" she said as the song started. "Shake it doll, shake it at the mall! Shake it doll in the bathroom stall!" The beat is irresistible, and in the video Polly dances alongside an enthusiastic woman.

"It makes me really happy to see the residents really enjoy it. A lot of times they will first refuse to dance and enjoy. But when I get a man or woman who doesn't [initially] want to dance to suddenly get up and move, it means so much to me," says Polly.

She has big plans for the future and reaching more residents in nursing and assisted living homes. "I would love to do a nursing home tour around the United States. I have a lot of big visions for it," she says. "It really warms my heart a lot seeing how many people around the world tell me how much I'm making their day and giving joy to them. It means so much to me to see people have laughter. That's what life's about."

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A 92-yr-old former ballet dancer with dementia wrote a poem that seems to defy her disease

Wow, this is powerful.

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"I am still a dancer made of song."

Humans have been writing poetry for thousands of years, communicating feelings and ideas in beautiful, powerful ways that prose just can't quite reach. Poetry can be hard to define, but you know it when you see it—or rather, when you feel it.

Emily Dickinson once wrote, “If I feel physically as if the top of my head were taken off, I know that is poetry.” A poem hits you somewhere—your brain, your heart, your gut. And one poem that packs an incredibly moving punch has come from an unlikely source—an elderly woman with dementia.

elderly woman, dementia, caregiver, poetry, former dancerA woman with dementia wrote a poem with one of her children and it's bringing people to tears.Photo credit: Canva

Poet Joseph Fasano shared a message from a fan who shared that they had brought his book, "The Magic Words: Simple Poetry Prompts That Unlock the Creativity in Everyone," to their mother, a 92-year-old former ballet dancer living with dementia. The mother was excited to write a poem, and they slowly worked through a prompt from the book together aloud.

This poem was the result:

"Let the days be warm

Let the fall be long.

Let every child inside me find her shoes

and dance wildly, softly, toward the world.

I have a story I have never told

Once, when I was small,

I looked up at the sky and saw the wind

and knew I was a dancer made of song.

I am still a dancer made of song."

Wow. What a testament to the power of poetry to reach beyond our usual modes of communication, which dementia so cruelly disrupts. In a few simple lines, we're able to see this woman as she might see herself, as the human living under the veils of age and disease: "I am still a dancer made of song."

Poetry prompts can help people express themselves

The person who shared the poem thanked Fasano for "helping people find their voices," which is exactly what his book of poetry prompts was meant to do.

The Magic Words book by Joseph Fasano, poetry prompts"The Magic Words" is a book of poetry prompts from Joseph Fasano.Amazon


In the book's introduction, Fasano shares that he'd been invited to speak to a class of second graders in New Jersey in 2022 to share "the craft and magic of poetry." As part of his efforts, he came up with a poetry prompt that could "help guide their imaginations" and "unlock the images, thoughts and feelings inside them, without asking them to worry about how to structure a poem." He called the results "astonishing." When he shared one of the students' poems on social media, it and the prompt took off like wildfire, as people who never thought of themselves as poets felt empowered to share their imaginations within that framework.

From 7-year-olds to 92-year-olds, anyone can benefit from the self-expression that poetry facilitates, but many people feel hesitant or intimidated by the idea of writing a poem. Fasano writes, "Poetry is what happens when we let ourselves be," and this idea seems so clear than in the former dancer's poem above. Dementia can create roadblocks, but poetry provides a different avenue of communication.

Caregivers try many different ways to communicate with people living with dementia.Photo credit: Canva

The arts can be a powerful tool for people with dementia

Using poetry to help dementia patients communicate and express themselves isn't just wishful thinking. Studies have demonstrated that cultural arts interventions, including poetry specifically, can be beneficial for people with dementia. In fact, the Alzheimer's Poetry Project (APP) aims to use poetry as a means of improving the quality of life of people living with dementia by facilitating creative expression. "We do not set boundaries in our beliefs in what possible for people with memory impairment to create," the APP website states. "By saying to people with dementia, we value you and your creativity; we are saying we value all members of our community."

Fasano has shared that a team of doctors has begun using his poetry prompts to "give people with dementia a voice again."

Poet Gary Glazner, who founded APP, shared a story with WXPR radio about how he came up with the idea while studying poetry at Sonoma State University:

“I applied for a grant and got a grant to work at an adult care program. The moment I love to share with people is there was a guy in the group, head down, not participating and I said the Longfellow poem. ‘I shot an arrow into the air’ and his eyes popped open and he said, ‘It fell to earth I know not where.’ And suddenly he was with us and participating. It was just this powerful moment to see how poetry could be of use to elders but specifically with people with dementia."

Whether we read it, write it, speak it or hear it, poetry has the power to reach people of all ages in all kinds of mysterious ways.

You can follow Joseph Fasano on Twitter and Instagram, and find his books on Amazon.

This article originally appeared last year.


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Man honors his father's caregiver with emotional speech at his funeral

"Caregivers like him don't get the recognition they deserve."

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Man publicly honors his father's caregiver at his funeral.

Caregiving is often a thankless job. But when author Carlos Whittaker's (@loswhit) father Fermin passed away from dementia, he made sure to publicly honor his caregiver, Bradley, at his funeral.

In an emotional video shared on Instagram, while giving a speech at his father Fermin's funeral, Whittaker called out Bradley to sincerely thank him for the diligent care he provided throughout his father's life. And there was not a dry eye in the church.

"At my father’s funeral, I took a moment to honor someone special—Bradley, his full-time caregiver," he shared in the post's caption. "He stood by my mom and cared for my dad with unwavering dedication. Caregivers like him don’t get the recognition they deserve, and I’m so grateful. Thank you, Bradley, for everything. If you know someone who is a caregiver…Send them a message and thank them today."

The video beings with Whittaker standing behind a pulpit in a church where the funeral is being held. In part of his speech, he acknowledges Bradley for his selfless care of Fermin.

"I want to thank someone that cared for my dad the past year. Bradley, are you in the room? Can you actually stand up if you wouldn't mind?" he says as his voice cracks. "This man right here stood next to my mother and helped care for my father, and I want to say thank you. Caregivers do not get the respect and honor they deserve. And I want to say thank you so much for taking care of my father."

The camera pans to Bradley, who is standing up and wiping away tears as the crowd gives him a round of applause. After the speech, the camera pans back to Whittaker, who is also wiping away tears with a tissue.

In the comment section Bradley himself commented on the video. "It was my pleasure 🙏 I'm forever grateful and honored that I got to care for your father. You all will forever be apart of my journey ❤️," he wrote.

The impactful video resonated deeply with viewers. "As a nurse it means a lot to see caregivers recognized, what an angel on earth he was for your family and I’m sure so many others 🙌🏻🥹," one wrote. Another commented, "My grandma just passed away from dementia last week & her full time caregiver loved her so incredibly well. We are forever thankful." Another viewer added, "So wonderful that Bradley could be there and you could honor him. He clearly loves your parents 💜."

In another touching post, Whittaker honored his dad by sharing a poem he wrote on the day he was to be buried about dealing with his grief. "I hate this. I hate that I don’t get to smell your bald head again. I hate that I don’t get to feel your wink across the room. I hate that I don’t get to hold your hand. But I love—so much—that I got to be your son."

It was another impactful post for his followers. "I know these feelings. I weep as I read your words. They are a reminder that my dad is more alive than ever," one commented. And another shared, "I know these words are your heart, but they said so much of what is in mine, too. Thank you. Praying for you and your family."

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