upworthy

dementia

Community

Inside a Dutch 'dementia village,' where the whole neighborhood is designed for memory loss

The Hogeweyk provides a sense of "normalcy" for people living with dementia.

Photo credit: Canva

People with dementia can roam freely in a dementia village.

Living with dementia is not easy, nor is living with someone living with dementia. No matter how much caregivers may want to keep a loved one with dementia in their home, it's not always feasible. But moving them into a traditional care facility isn't always ideal, either.

That's where a "dementia village" comes in as an alternative. Instead of trying to fit a person with dementia into a living situation that either isn't designed for them or is overly focused on their limitations, a dementia village is an environment designed specifically to help people with severe dementia feel safe and free and live as normal a life as possible.

dementia, dementia care, alzheimer's disease, dementia village, memory carePeople with dementia tend to remember distant memories and forget recent ones.Photo credit: Canva

The Hogeweyk was the world's first dementia village, founded in 2009. Since then, the idea has been replicated in dozens of locations all over the world. The concept is quite simple: A full, self-contained neighborhood where people with dementia can walk around freely without fear of getting lost, where everyone from shopkeepers to restaurant servers to salon workers are trained in dementia care, and where people who are losing their memory to dementia diseases are treated as people who still have aspirations.

Eloy van Hal, one of the founders of the Hogeweyk, explained to Vox how the guiding principle of the village is "normalcy." Traditional nursing homes keep all residents under one roof, and they are subject to whatever program the institution provides for them. In the Hogeweyk, people live in small groups of six or seven in apartments with furnishings like they'd have at home. Distinct landmarks in the public space help residents know where they are, and putting a theater, grocery store, barber shop, etc. in separate buildings encourage movement through the neighborhood.

"It's about choice, choice, choice, where you want to be during the whole day and with whom," said van Hal. The idea is to balance safe design with controlled risk, allowing for as much of a normal life as possible.

- YouTubewww.youtube.com

The one downside to the village concept, of course, is cost. Without adequate funding assistance from governments, living in a dementia village can be prohibitively expensive.

Does it really make a difference for residents, though? Has it been proven that outcomes are better than traditional care models? With dozens of villages now being used around the world, research is ongoing but the data from the Hogeweyk is promising. People in the comments of Vox's by Design video shared how such facilities have been life-changing for their loved ones and how traditional care doesn't always meet the needs of people with dementia.

"My grandmother had dementia and when her caretaker who was my grandfather (her husband) passed unexpectedly we had to scramble to get her into a memory care facility in the US. The first place she was in temporarily was so sad, I could see her spirit drain but after about a year we were able to get her into a "village" and the quality of life difference is nothing short of ASTOUNDING! She could function in a way that was familiar and comfortable to her and not be in a foreign hospital setting. The abrupt change from a home where they are familiar, to a clinical setting must be very disorienting and upsetting to these people. That side of my family had mental health issues and memory loss starts early, so I know it will happen to me to some extent and I only hope I can have people take care of me as well as in this Hogeweyk."

"I've worked in a nursing home through high school and college. While I can't say it was the worst place for dementia patients, it certainly did not work well for all of them. One patient once tried to wedge herself through the door begging to go outside with me and I even had patients confide in me that they hated being institutionalized, they missed being able to live a normal life, being part of a real community, and being able to come and go as they pleased. This concept is probably the closest thing possible to a normal life a dementia patient could ever have."

dementia, dementia care, alzheimer's disease, dementia village, memory careAll the workers in a dementia village are trained in memory care.Photo credit: Canva

"A relative of mine used to get aggressive, violent and angry when she would encounter a locked door in the institution she was in. She couldn't understand why there would be a locked room in what she understood to be 'her home', this would take a lot of calming down and management, only for her to discover another locked door, and kick off again. I love these village based models as they allow autonomy for residents, and have an individual experience. Just because someone has a brain disease doesn't mean they aren't entitled to the very best care. I hope the govt spends far more on these establishments in the future."

"As he said at the end, people with dementia are still people—even if there is proven to be no benefits to this model over a care home, I would much prefer to have dignity in my final days than live in a clinical trap. Love all the incredible ideas the Netherlands come up with."

Dementia care is something Americans are going to have to look at closely. According to The Alzheimer's Association, the number of people living with Alzheimer's is set to nearly double from seven million to 13 million by the year 2050. As more of our elders require full-time care, the more we'll have to consider prioritizing putting resources into things like dementia villages.

Everyone deserves safety and a good quality of life. The Hogeweyk is a great example of what it looks like to view people with dementia as people first and to care for them accordingly.

From Your Site Articles
dementia care
Wellness

A woman with dementia adored her haircut. Her husband's letter to the stylist is everything.

"Looking back, it was likely dozens of haircuts you gave that day. But one which revitalized a woman's sense of self and her singular beauty."

Image by Michelle Maria from Pixabay, Sara Verkuilen/Instagram

Grab a tissue, folks, because this is one of those stories that has almost too much love and goodness to bear in it.

Sara Verkuilen was working at Hair Cuttery in Round Lake Beach, Illinois last winter when an older couple walked in for a haircut. "I don't think I had ever done their hair before," Verkuilen told Upworthy. "They were walk-ins."

The man and his wife were "just really cute together," she recalled. "He was so sweet with her and obviously very in love."

Little did Verkuilen know how much of an impression her personal service and professional skills would have on both them that day.

The stylist shared a letter she received recently from the husband, signed only as "a grateful customer." The letter reads:

"Dear Sara,

This is a little bit awkward. But I've waited a really long time to pass this on to you.

My wife and I came in for haircuts shortly before Christmas of last year.

My wife was suffering from dementia, and you treated her as if you'd been working with dementia patients all your life. You let us sit next to each other, and when it came time for her cut you turned her chair towards me so I could watch her expression as you cut her hair.

It turned out even better than I thought it would.

Sadly, she died in March. And that haircut was one of the last, best moments of her life. She felt so pretty. She visited the mirror in her bathroom several times during the day and would come out beaming.

To see her so happy was priceless.

Looking back, it was likely dozens of haircuts you gave that day. But one which revitalized a woman's sense of self and her singular beauty. I hope you always realize the power of your profession.

It's so easy to take things like that for granted.

Sincerely,

A grateful customer"

Verkuilen said she wishes she could contact the man.

She doesn't remember the couple's name and the letter didn't give any personal information, but it meant a great deal to her to receive it. She says she'd been feeling kind of stuck and bored in her career, which she's been in about eight years, and this letter gave her the boost she needed.

"Receiving this letter was a huge reminder why I do what I do," she said. "It's an amazing feeling seeing someone look in the mirror after a transformation and smiling. Seeing how beautiful they feel, how confidence levels change. But it's an extremely difficult career. I get burnt out easily. I hope this letter can restore faith in other stylists that are maybe doubting if this career is right for them. We touch more than hair and I hope all the stylists out there realize how important they are and how what we do can have such an impact on our clients."

She also hopes seeing the letter helps clients understand that stylists don't "just cut hair."

What a beautiful reminder to appreciate people who work in service jobs, the little things that make us happy, the "singular beauty" of our loved ones, and the time we have with them.


This article originally appeared five years ago.

From Your Site Articles
inspiration
Mental Health

Psychologist shares beautiful advice for talking to people with dementia

"This isn't 'playing along to pacify the old guy,' this is an opportunity..."

Canva

Dr. David McPhee offers advice for talking to someone living in a different time in their head.

Few things are more difficult than watching a loved one's grip on reality slipping away. Dementia can be brutal for families and caregivers, and knowing how to handle the various stages can be tricky to figure out.

The Alzheimer's Association offers tips for communicating in the early, middle and late stages of the disease, as dementia manifests differently as the disease progresses. The Family Caregiver Alliance also offers advice for talking to someone with various forms and phases of dementia. Some communication tips deal with confusion, agitation and other challenging behaviors that can come along with losing one's memory, and those tips are incredibly important. But what about when the person is seemingly living in a different time, immersed in their memories of the past, unaware of what has happened since then?

Psychologist David McPhee shared some advice with a person on Quora who asked, "How do I answer my dad with dementia when he talks about his mom and dad being alive? Do I go along with it or tell him they have passed away?"

McPhee wrote:

"Enter into his reality and enjoy it. He doesn't need to be 'oriented.' Thank God the days are gone when people with advanced dementia were tortured by huge calendars and reminder signs and loved ones were urged to 'orient' them to some boring current 'reality.'

If dad spends most of his time in 1959, sit with him. Ask questions he didn't have time for before. Ask about people long dead, but alive to him, learn, celebrate your heritage. His parents are alive to him. Learn more about your grandparents. If he tells the same story over and over, appreciate it as if it's music, and you keep coming back to the beautiful refrain.

This isn't 'playing along to pacify the old guy,' this is an opportunity to communicate and treasure memories real but out of time."

People on Quora loved the thoughtful, compassionate advice. Many people shared that they had taken this approach with their relatives with good results, and people who work with dementia patients confirmed it also. Some said that "orienting" to present reality may be helpful for people in the early stages of dementia, but not necessarily in the middle or later stages.

Of course, caregivers know that dementia means more than simply living in another time period in your head, and that talking with a person with dementia might require different skills and approaches on different days. But this advice to learn about a loved one's past may come in handy for family members who feel sad or hurt that they aren't being remembered in the present. It may help to see it as an opportunity to time travel with the person rather than a loss. When a person is deep in their long-term memory, you may be surprised and delighted by what you can discover.

People with dementia don't need to be brought back to the present if it's just going to confuse or irritate them. If they are in a safe place and are being watched over so they don't wander or do something dangerous, let them be. Join them in their past world and get to know them in a way you may not have had the opportunity to otherwise.

Solid advice, Dr. McPhee. Thank you for sharing it publicly.


This article originally appeared four years ago.

From Your Site Articles
well-being
Joy

92-year-old former ballet dancer with dementia wrote a poem that has us all wrecked

What a beautiful gut punch.

Photo credit: Canva

"I am still a dancer made of song."

Humans have been writing poetry for thousands of years, communicating feelings and ideas in beautiful, powerful ways that prose just can't quite reach. Poetry can be hard to define, but you know it when you see it—or rather, when you feel it.

Emily Dickinson once wrote, “If I feel physically as if the top of my head were taken off, I know that is poetry.” A poem hits you somewhere—your brain, your heart, your gut. And one poem that packs an incredibly moving punch has come from an unlikely source—an elderly woman with dementia.

Poet Joseph Fasano shared a message from a fan who shared that they had brought his book, "The Magic Words: Simple Poetry Prompts That Unlock the Creativity in Everyone," to their mother, a 92-year-old former ballet dancer living with dementia. The mother was excited to write a poem, and they slowly worked through a prompt from the book together aloud.

This poem was the result:

"Let the days be warm

Let the fall be long.

Let every child inside me find her shoes

and dance wildly, softly, toward the world.

I have a story I have never told

Once, when I was small,

I looked up at the sky and saw the wind

and knew I was a dancer made of song.

I am still a dancer made of song."

Wow. What a testament to the power of poetry to reach beyond our usual modes of communication, which dementia so cruelly disrupts. In a few simple lines, we're able to see this woman as she might see herself, as the human living under the veils of age and disease: "I am still a dancer made of song."

Poetry prompts can help people express themselves

The person who shared the poem thanked Fasano for "helping people find their voices," which is exactly what his book of poetry prompts was meant to do.

The Magic Words book"The Magic Words" is a book of poetry prompts from Joseph Fasano.Amazon

In the book's introduction, Fasano shares that he'd been invited to speak to a class of second graders in New Jersey in 2022 to share "the craft and magic of poetry." As part of his efforts, he came up with a poetry prompt that could "help guide their imaginations" and "unlock the images, thoughts and feelings inside them, without asking them to worry about how to structure a poem." He called the results "astonishing." When he shared one of the students' poems on social media, it and the prompt took off like wildfire, as people who never thought of themselves as poets felt empowered to share their imaginations within that framework.

From 7-year-olds to 92-year-olds, anyone can benefit from the self-expression that poetry facilitates, but many people feel hesitant or intimidated by the idea of writing a poem. Fasano writes, "Poetry is what happens when we let ourselves be," and this idea seems so clear than in the former dancer's poem above. Dementia can create roadblocks, but poetry provides a different avenue of communication.

younger woman looking at a book with an older womanCaregivers try many different ways to communicate with people living with dementia.Photo credit: Canva

The arts can be a powerful tool for people with dementia

Using poetry to help dementia patients communicate and express themselves isn't just wishful thinking. Studies have demonstrated that cultural arts interventions, including poetry specifically, can be beneficial for people with dementia. In fact, the Alzheimer's Poetry Project (APP) aims to use poetry as a means of improving the quality of life of people living with dementia by facilitating creative expression. "We do not set boundaries in our beliefs in what possible for people with memory impairment to create," the APP website states. "By saying to people with dementia, we value you and your creativity; we are saying we value all members of our community."

Poet Gary Glazner founded APP and shared a story with WXPR radio about how he came up with the idea while studying poetry at Sonoma State University:

“I applied for a grant and got a grant to work at an adult care program. The moment I love to share with people is there was a guy in the group, head down, not participating and I said the Longfellow poem. ‘I shot an arrow into the air’ and his eyes popped open and he said, ‘It fell to earth I know not where.’ And suddenly he was with us and participating. It was just this powerful moment to see how poetry could be of use to elders but specifically with people with dementia."

Whether we read it, write it, speak it or hear it, poetry has the power to reach people of all ages in all kinds of mysterious ways.

You can follow Joseph Fasano on Twitter and Instagram, and find his books on Amazon.

This article originally appeared last year.

From Your Site Articles
poetry
Trending Stories