upworthy

alzheimer's

Family

'Don't orient them.' Psychologist has beautiful advice for talking to people with dementia.

"This is an opportunity to communicate and treasure memories real but out of time."

A person with dementia and their loved one.

Few things are more difficult than watching a loved one's grip on reality slipping away. Dementia can be brutal for families and caregivers, and knowing how to handle the various stages can be tricky to figure out.

The Alzheimer's Association offers tips for communicating in the early, middle and late stages of the disease, as dementia manifests differently as the disease progresses. The Family Caregiver Alliance also offers advice for talking to someone with various forms and phases of dementia. Some communication tips deal with confusion, agitation and other challenging behaviors that can come along with losing one's memory, and those tips are incredibly important. But what about when the person is seemingly living in a different time, immersed in their memories of the past, unaware of what has happened since then?

Psychologist David McPhee shared some advice with a person on Quora who asked, "How do I answer my dad with dementia when he talks about his mom and dad being alive? Do I go along with it or tell him they have passed away?"

dementia, parents with dementia, dementia treatment, psychologist, psychology, aging, hospice "Enter into his reality and enjoy it."Photo credit: Canva

McPhee wrote:

"Enter into his reality and enjoy it. He doesn't need to be 'oriented.' Thank God the days are gone when people with advanced dementia were tortured by huge calendars and reminder signs and loved ones were urged to 'orient' them to some boring current 'reality.'

If dad spends most of his time in 1959, sit with him. Ask questions he didn't have time for before. Ask about people long dead, but alive to him, learn, celebrate your heritage. His parents are alive to him. Learn more about your grandparents. If he tells the same story over and over, appreciate it as if it's music, and you keep coming back to the beautiful refrain.

This isn't 'playing along to pacify the old guy,' this is an opportunity to communicate and treasure memories real but out of time."

People on Quora loved the thoughtful, compassionate advice. Many people shared that they had taken this approach with their relatives with good results, and people who work with dementia patients confirmed it also. Some said that "orienting" to present reality may be helpful for people in the early stages of dementia, but not necessarily in the middle or later stages.

Of course, caregivers know that dementia means more than simply living in another time period in your head, and that talking with a person with dementia might require different skills and approaches on different days. But this advice to learn about a loved one's past may come in handy for family members who feel sad or hurt that they aren't being remembered in the present. It may help to see it as an opportunity to time travel with the person rather than a loss. When a person is deep in their long-term memory, you may be surprised and delighted by what you can discover.

dementia, parents with dementia, dementia treatment, psychologist, psychology, aging, hospice People with dementia don't need to be brought back to the present.Photo credit: Canva

People with dementia don't need to be brought back to the present if it's just going to confuse or irritate them. If they are in a safe place and are being watched over so they don't wander or do something dangerous, let them be. Join them in their past world and get to know them in a way you may not have had the opportunity to otherwise.

Solid advice, Dr. McPhee. Thank you for sharing it publicly.

This article originally appeared four years ago.

Identity

Family shares beautifully practical 'sundowning' strategies for loved ones with dementia

The late afternoon and evening hours can be especially challenging for people with dementia and their caregivers.

Ty Lewis shares how she helps her mom, Gertrude, through sundowning time.

Anyone who has had a loved one with dementia knows how challenging it can be to care for a loved one whose memory is deteriorating. As they lose grip with their own reality, relationships take on new dimensions, emotions can become complicated, and love and grief walk hand in hand more often.

The good news is that no one is alone in these experiences. Nearly 6 million Americans have Alzheimer’s disease or related dementias, and according to the Alzheimer's Association, 83% of the help provided to these patients comes from family members, friends or other unpaid caregivers. Thankfully, some of those folks are utilizing social media to raise awareness and provide support and education about caring for people with dementia.

People like Ty Lewis.



Lewis‘ mother, Gertrude Jordan, was diagnosed with Alzheimer's disease in 2014, just a year after her own mother passed with dementia. Lewis has spent the years since learning and sharing all she can about caring for people with dementia, becoming an advocate and source of support for caregivers. She is now a Certified Alzheimer's Disease and Dementia Care Trainer and Certified Dementia Practitioner.

In a post on Instagram, Lewis shared some practical tips for managing “sundowning,” a term for the late afternoon and evening hours when many people with dementia have the hardest time.

In the video, Lewis' daughter Giavanni sings a song of praise that is clearly familiar while Lewis calmly and patiently talks to her mother. She doesn’t force it, but Lewis gently draws Gertrude closer to her as she starts to get upset, and we can see her calming down on the second time through the singing. "Music is a strategy," the text overlay reads.

As Lewis herself says, dementia shows up differently in every single person, but these tips might help caregivers who are feeling at a loss for what else to try.

Watch:

Lewis shared in the caption:

“Sundowning in Dementia typically occurs in the late afternoon and evening. During this time, your LO [loved one] will experience increased confusion, agitation, mood swings, anxiety, and behaviors will increase.

Sundowning is HARD! Here are a few strategies. As always, these strategies may or may not work with your LO. Try different ones to see what works best for you through observation + data collection.

1. Create a daily consistent routine.
2. Minimize environmental triggers (bright lights, strong smells, textures, etc)
3. Stay calm
4. Use music to soothe your LO
5. Create a relaxing environment
6. Avoid OVERstimulation
7. Contact your physician to discuss alternatives like medicine if you cannot control the behaviors.

For more information, visit incaseiforgetconsulting.com.”

The video brought people to tears as they recalled their own difficult moments with their loved ones.

"This was brutally hard with my mom. You all handled that so beautifully. Thank you for sharing. ❤️" — sarahdodge9

"I take care of a woman with dementia. It’s all about heart and the present moment. ❤️ 🥹" — abanomics

"Glad this is being discussed now so people can learn about it, although I wish it was when my great aunt was still alive. Gosh was it hard. I lived with her for a time to help with care, and nighttime was simultaneously heartbreaking and scary. She’d spend most of the night repeating the same path through the rooms, opening and closing doors, agitated and afraid, looking for her late husband, wondering why I was there (& by 'I' I mean my mother which is who she thought I was). Alzheimer’s is a thief that often steals our loved ones before death." — mamalifemagic

People who have worked with dementia patients offered praise and appreciation for the post as well:

"I work in an acute care hospital and unfortunately see dementia patients at their worst. Unfamiliar environment, minimal family interaction, acutely ill, and so on. Sundowning at the hospital can be extra stressful. This is so lovely to see the care and patience in the home. 💜 And of course the music.💜" — lesismore77

"I formerly worked in recreational therapy in skilled nursing homes and was hired specifically for this purpose (distract from sun downing behavior). Music is such a powerful therapeutic tool and a beautiful way to connect with a loved one with dementia. Wonderful video! 👏❤️" – amynjoedecker

"Thank you for this! I have been a nurse for 24 years and have never seen this kind of love with a pt in an active episode of sundowners. It's tortuous for a loved one to care for someone in this condition because they can no longer regulate their emotions. Our culture here in America has to change to beautiful examples just like this. Loving touch, calm touch, calm tone of voice, beautiful heartfelt song bird of a voice...all my love to all 3 of you. ❤️❤️❤️❤️" — corinnawallen

Lewis shares lots of helpful information for caregivers on her website, www.incaseiforgetconsulting.com, and you can follow her on Instagram here. (And if you want to hear more of that angelic voice of Giavanni's, you can follow her on Instagram as well.

Health

19 musicals that are not only catchy—they could help with dementia, according to science

Back in 2013, researchers in the U.S. stumbled upon a novel new treatment for dementia patients: listening to show tunes. Seriously.

Photo by Jordhan Madec on Unsplash

A picture taken of the Broadway street sign in New York City.

Back in 2013, researchers in the U.S. stumbled upon a novel new treatment for dementia patients: listening to show tunes. Seriously.

A study of nursing home patients found that residents who sang show tunes — specifically from "Oklahoma!" "The Wizard of Oz," and "The Sound of Music" — demonstrated increased mental performance, according to a report in the New York Daily News:

"Researchers working with elderly residents at an East Coast care home found in a four-month long study ... that people who sang their favorite songs showed a marked improvement compared to those who just listened."

A similar study in Finland, cited in The Guardian, demonstrated that singing not only helped dementia patients feel better and focus, but actually improved certain types of memory as well.

Even better? There are tons of classic show tunes specifically about remembering.

Here are 23 tunes every Broadway fan needs to memorize for the day when it's not so easy to remember. It'll help to start brushing up now.

1. The one about remembering the good old days.

"Those Were the Good Old Days," "Damn Yankees"

If you're the devil in "Damn Yankees," that means the Great Depression, the Black Plague years, and when Jack the Ripper was running around. Good times!

2. The one about remembering a parade that probably never happened.

Any playlist of show tunes about memory has to include this standard from "The Music Man," in which Professor Harold Hill remembers the best day of his life, when "Gilmore, Liberati, Pat Conway, The Great Creatore, W.C. Handy, and John Phillip Sousa all came to town."

Whether or not any of it actually happened is ... up for debate, to put it mildly.

3. The one about remembering a really fun trip you took to a medium-sized Midwestern city.

"Kansas City," "Oklahoma"

"Oklahoma's" Will Parker is so psyched about his Kansas City vacation he can't help bragging about it to all the other cowboys. And why not? It's a neat city! Have you been to Joe's Kansas City Barbecue? Neither has Will Parker, since he was there in 1906, but you should totally go.

4. The one about remembering how fun it was to murder that guy that one time...

"Cell Block Tango," "Chicago"

...while glancing nervously over your shoulder to make sure Queen Latifah isn't around.

5. The one about remembering the questionable choices it's too late to go back in time and not make.

"Where Did We Go Right?" from "The Producers"

Looking back doesn't always go well for characters in musicals. It definitely doesn't for "The Producers'" Bialystock and Bloom, as they tear around their office wondering how their incompetently directed, poorly acted, aggressively pro-Hitler musical wound up becoming a massive hit despite their every attempt to make it fail.

6. The one about remembering the little things.

"I Remember/Stranger Than You Dreamt It," "Phantom of the Opera"

Perhaps the greatest testament to how emotionally transporting "Phantom of the Opera" is: Christine, removing the phantom's mask for the first time, can just straight-up claim to remember mist like, one mist in particular — and no one calls her on it ever.

7. The one about remembering the worst day of your life.

"The Barber and his Wife," "Sweeney Todd"

No character in musical theater is more nostalgic than Sweeney Todd, who, just moments after we meet him, croons this delightful ditty reminiscing about the time he was framed for a crime he didn't commit and banished from England so that an evil judge could rape his wife who subsequently poisoned herself.

A tune you can hum!

8. The one about remembering things differently than everyone else around you.

"Satisfied," "Hamilton"

Not sure if you've heard, but "Hamilton" is good, you guys.

After Alex and Eliza Schuyler meet and fall in love in "Helpless," Angelica Schuyler basically goes "Wicked" on her sister's song, recalling how agonizing it was watching her sister and the man who she herself is super into get together. But she sucks it up and buries it! Older siblings are the best.

9. The one about remembering that cute girl you just met like five seconds ago.

"Maria," "West Side Story"

A classic from "West Side Story." Sure, it's about remembering a meet-cute that literally just happened — Tony and Maria's orchestral-swell-assisted gaze across a crowded gym — but Tony is super jazzed about it, so it makes the list.

Gosh, I sure hope those crazy kids work out!

10. The one about remembering all the worst things from when you were a kid, and one kind-of-OK thing.

"At the Ballet," "A Chorus Line"

The ballet isn't that great, but it's better than devastating childhood trauma. Score one for the ballet! Thanks, "A Chorus Line!"

11. The one about remembering old hobbies.

"Dentist!" from "Little Shop of Horrors"

"Little Shop of Horrors'" Orin Scrivello, DDS, is just misunderstood. I mean, who among us didn't "shoot puppies," "poison guppies," or "take a pussycat and bash in its head" now and again as a kid? The '50s were a simpler time!

12. The one about remembering watching a dude die on the battlefield and feeling feelings about it.

"Momma Look Sharp," "1776"

47 years before "Hamilton" brought us the swaggery, ass-kicking side of the Revolutionary War, "1776" tore our guts out with this song, in which a courier to the Continental Congress recalls watching a mother comfort a young soldier as he dies at the battles of Lexington and Concord.

Hercules Mulligan does the guest rap. (Just kidding. There is no guest rap. It's just gorgeously somber for a while and then over.)

13. The one about remembering the best four years of your life.

"I Wish I Could Go Back to College," "Avenue Q"

Of course the sad-sack puppet man- and woman-children of "Avenue Q" want to go back to college! Who among us doesn't long for the days of term papers, humiliating romantic encounters, and crushing, debilitating debt? And meal-plan ice cream, too!

14. The one about remembering some A-plus advice from your best friend.

"Cabaret," "Cabaret"

Ladies and gentlemen, Sally Bowles from "Cabaret" is no fool! No matter how many lovers leave, or how much her career nosedives, or how nutty local politics get, she always remembers this important life lesson she learned from her good friend Elsie.

If only you had such a great, wise friend, maybe your outlook would be as good as Sally's. You could be so lucky!

15. The one about remembering last Christmas.

"Halloween," "Rent"

When it comes to the science of memory and cognition, "Rent" asks the big questions:

"Why are entire years strewn on the cutting room floor of memories? When single frames from one magic night forever flicker in close-up on the 3-D Imax of my mind?"

Poetic? Pathetic? We report, you decide.

16. The one about remembering everything and realizing how terrible it all was.

"Rose's Turn," "Gypsy"

Ah, yes. "Rose's Turn." The 11 o'clock number to end all 11 o'clock numbers in "Gypsy," the most musical of all musicals. Truly, there aren't many things more enjoyable than listening to Mama Rose replay the events of the last decade and change inside her own brain in a slow-motion nervous breakdown as the notion that her entire life has been completely worthless gradually dawns on her with ever-increasing dread.

Did I mention how fun musicals are?

Trivia time! You know that thing in music where trumpets go, "Ya da da da daaaa DA. Da DA da DA!" You know that thing? This is the song that thing comes from.

17. The one about remembering the first time you knew what you wanted to be when you grew up.

"Ring of Keys," "Fun Home"

There's nothing better than a song that makes you want to shout: "I am so glad I'm watching a musical instead of a basketball game right now." This moment in "Fun Home," where Alison recalls seeing a delivery woman — the first person who looked like the woman she felt like — is really, really one of them.

"This is a song of identification that is a turning moment, when you think you’re an alien and you hear someone else say, 'Oh, me too,'" composer Jeanine Tesori told Variety. "It’s a gamechanger for Alison. And that’s just Musical Theater 101."

...And the entire audience bursts into happy tears forever.

18. The one about remembering a nice dream you dreamed.

"I Dreamed a Dream," "Les Misérables"

When your life isn't going so great, it's good to remember the positive! Things didn't exactly go super well for Fantine in "Les Mis." But, hey, she had a pretty good dream once!

19. The one about remembering your single greatest regret and vowing to never remember it again.

"Turn It Off," "The Book of Mormon"

What's the ticket to living as fun-loving and guilelessly as the Mormon elders in "The Book of Mormon?" Don't just bury those traumatic, scary, impure memories — CRUSH THEM, OK?!

20. The one about remembering a really successful first date.

"Sarah Brown Eyes," "Ragtime"

Ah, young love. Even in "Ragtime," a musical that features racism, state violence, attempted child murder, and terrorism, at least we have this song, in which Coalhouse Walker Jr. recalls how he got his beloved Sarah to fall truly, madly, deeply in love with him with his peerless piano skills? So romantic.

Gosh, I sure hope those crazy kids work out!

21. The one about remembering a scary dream.

"Sit Down, You're Rockin' the Boat," "Guys and Dolls"

With, perhaps, only a smidge more credibility than grifter-from-another-mother Professor Harold Hill, "Guys and Dolls'" third-most-degenerate gambler Nicely-Nicely Johnson recalls a terrifying dream where he had to convince a group of skeptical evangelical crusaders that he's decided to give up the dice once and for all.

Side note: People in musicals are unbelievably good at remembering dreams. This is, like, full detail. I'd be like, "Um, I was at the Statue of Liberty, and you were there? I think? It wasn't really you, it was like a combination of you and my dad. And we were in prison. But at the Statue of Liberty."

22. The one about remembering how it used to be when you were young and full of hope instead of old and bitter and jaded.

"Our Time," "Merrily We Roll Along"

The closing number of "Merrily We Roll Along" is actually the first chronologically, since the musical goes backward. It's the play's happiest moment — Frank, Charley, and Mary on a roof watching Sputnik go by, giddily talking about how thrilling, perfect, and successful their futures are going to be. It's so hopeful! But so sad, 'cause you already know all the achingly bittersweet stuff that's going to happen.

Ach! So poignant! I'm dead from poignant.

23. The one about remembering.

"Memory," "Cats"

"Cats." The OG.

All right team, what did I miss?

This article originally appeared on 02.26.16

It's probably not dementia.

If you’re anything like most overwhelmed adults, you may sometimes find yourself forgetting why you walked into a room. Perhaps you've wondered if it's an early sign of dementia. You let the thought flow while knowing you’re likely too young … but what about early onset dementia, you might think to yourself? If you've had this thought more than once, watch this video as it ought to put your mind at ease. Teepa Snow from Positive Approach to Care (PAC) demonstrates the difference between normal forgetfulness and dementia (a general term for a variety of conditions, one of which is Alzheimer's disease).

In the video, Snow sits in a chair and thinks out loud that she would like to make a cup of coffee but on her way to do so, her phone rings. The conversation involves several details and by the time she hangs up, she’s forgotten why she was standing up in the first place. It’s an occurrence that probably happens multiple times a day in most households. You start to do something and get distracted by a pet, child or phone call, then completely forget what you were going to do in the first place. The feeling is frustrating, but sometimes it turns into concern, especially if it happens multiple times a week.

Snow effectively demonstrates how dementia differs from forgetfulness and the contrast is mind-blowing. When Snow sits back in the chair to set the stage for the dementia example, the audience appears shocked by the notable difference. She gets up to make coffee, answers the phone then begins rambling about someone stealing her drinking glasses before tucking it away safely in the freezer. Yes, the freezer.

The stark contrast between average forgetfulness and dementia is so effectively displayed that it should ease the minds of many overworked and overly stressed people.