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Hello Humankindness

One woman's journey coping with unseen pain may change how the world sees disabilities.

True
Dignity Health

When Annie Segarra goes about her daily life, it's not immediately obvious she's in pain 24/7.

Since she's so used to living with discomfort, she's able to walk around for a few minutes, but any longer than that, and she has to sit down and rest. However, the fact that she's not always in a wheelchair makes many passersby question wether or not she really has a disability and often results in judging looks and harsh words.

"They can't see that you're in pain because you look 'just fine,'" Segarra explains.


All photos via Annie Segarra, used with permission.

Segarra has Ehlers-Danlos syndrome (EDS), which is a rare connective tissue disorder that affects collagen in the body and causes joints to stretch farther than normal. While that may sound like some sort of superpower, it's anything but, and it's also just the tip of the iceberg in terms of the symptoms that people who have it experience.

Since collagen runs through the entire body, EDS acts as an umbrella for a seemingly endless list of disorders, including poor vision, chronic fatigue, and joint pain. It's also likely connected to postural orthostatic tachycardia syndrome (POTS), which causes a person's blood pressure to drop and heart rate to spike upon standing.

Segarra lives with all these symptoms and many others, but more often than not, they are invisible to the outside eye.

The discomfort and anxiety that accompanies this is enough of a strain, but when you tack on doctors and everyone else not believing you're in pain, everything's amplified.

"It feels like being at the bottom of a well shouting up and there's nobody there," Segarra says.

Annie with her cane dealing with a pain spike at the grocery store.

What's worse, a large part of why she went undiagnosed for so long wasbecause doctors continued to downplay and dismiss her symptoms and self-diagnoses.

Segarra actually started having symptoms as early as infancy, but she didn't realize they might be connected until she reached her early 20s.

She was working two jobs and taking care of her sister who has autism when she started experiencing severe pain in her feet while standing. One of her jobs at the time was as hostess at a restaurant, so she was confronted with that pain quite often, but she thought it might just be an intolerance to wearing heels.

When it got to the point where she could barely stand at all, she went to a see a podiatrist. He took an X-ray of her feet while she was standing, and it looked like she had flat feet. He assumed that was the root of her pain, so he prescribed orthotics. (Later Segarra would learn that people with EDS often appear to have flat feet because of how their hyperactive joints react to weight.)

After orthotics did nothing to help, the doctor suggested creating arches in her feet surgically. Not knowing what else to do, Segarra agreed.

The surgery left her in an unimaginable amount of distress and unable to walk for close to a year. But it also ultimately led to her diagnosis.

Annie in the hospital.

Segarra learned she was strangely immune to anesthesia — another EDS-related symptom. After six months in a wheelchair caused extreme back pain, she got an MRI that showed something unusual: She appeared to have dislocated joints all over her body.

By that time, she'd been documenting her journey with chronic pain via a video blog for about two years and was regularly communicating with other chronically ill and disabled people online. When she described her symptoms, EDS had kept coming up. However, every doctor she mentioned it to dismissed it until the moment she broke down in front of her spine specialist.

At that point, she had been managing escalating symptoms on her own for over a decade, and every time she tried to get answers from a doctor, they either had no advice or mocked her for self-diagnosing such a rare disorder. She was scared and exhausted and had finally had enough.

Thankfully, a doctor (who happened to be a woman) came in at that moment and really listened to what Segarra had to say. The doctor admitted to not knowing about EDS, but after looking it up on her phone, she turned to the primary specialist and said, "She could have this."

That was the tipping point. From there, Segarra was referred to a geneticist who recommended a chromosome blood test to find the genetic variant for EDS. Six months later, she had an official diagnosis.

After all that, Segarra still calls herself lucky because her diagnosis only took three years to get. Many people with similar "invisible" disorders aren't so fortunate.

The experience set her on a mission to change the misconceptions surrounding disabilities and educate others about the many ways one can be impaired.

Ever since middle school, Segarra's been an activist for one cause or another. As a queer Latinx woman, she always had a lot to fight for, but after experiencing years of blatant disregard for her disability, this fight reinvigorated the rest.

"Becoming disabled made me look at my activism real hard," Segarra says.

She uses her skills as a performer and storyteller to give a face and voice to her illness. On her YouTube channel, she confronts the prejudice people with less visible disabilities face on a daily basis.

Segarra has firsthand experience being called a faker simply because people don't realize that some disabilities don't require people to use an assisting device like a wheelchair all the time.

A note someone left on the car of a person with an invisible disability.

She also explores how having a disability affects things like body positivity and being in the LGBTQ community.

Unsurprisingly, Segarra's passion and strength is affecting a growing number of followers, but she knows there's still much more work to be done.

Right now, there's hardly any representation of people like her in media, which makes it easy for the world to remain ignorant about them. For example, Segarra had a heck of a time finding a character to be for Halloween because people with disabilities barely exist in pop culture.

But her activism is slowly but surely changing peoples' perceptions. She says she gets lots of comments like, "Thank you for saying this because I was one of those assholes who thought like this."

She's also helping people who are still searching for a diagnosis realize they're not alone on their journey.

Segarra hopes that one day, no one will be discounted for having a less visible disability. However, for that to happen, we have to learn to quell their snap judgements, and that starts with admitting we don't know what all disabilities look like.

Learn more about how to spot disabilities (spoiler alert, you can't) here:

Image from Pixabay.

Under the sea...

True
The Wilderness Society


You're probably familiar with the literary classic "Moby-Dick."

But in case you're not, here's the gist: Moby Dick is the name of a huge albino sperm whale.

(Get your mind outta the gutter.)


There's this dude named Captain Ahab who really really hates the whale, and he goes absolutely bonkers in his quest to hunt and kill it, and then everything is awful and we all die unsatisfied with our shared sad existence and — oops, spoilers!


OK, technically, the narrator Ishmael survives. So it's actually a happy ending (kind of)!

whales, Moby Dick, poaching endangered species

Illustration from an early edition of Moby-Dick

Image from Wikimedia Commons.

Basically, it's a famous book about revenge and obsession that was published back in 1851, and it's really, really long.

It's chock-full of beautiful passages and dense symbolism and deep thematic resonance and all those good things that earned it a top spot in the musty canon of important literature.

There's also a lot of mundane descriptions about the whaling trade as well (like, a lot). That's because it came out back when commercial whaling was still a thing we did.

conservation, ocean water conservation

A non-albino mother and baby sperm whale.

Photo by Gabriel Barathieu/Wikipedia.

In fact, humans used to hunt more than 50,000 whales each year to use for oil, meat, baleen, and oil. (Yes, I wrote oil twice.) Then, in 1946, the International Whaling Commission stepped in and said "Hey, wait a minute, guys. There's only a few handful of these majestic creatures left in the entire world, so maybe we should try to not kill them anymore?"

And even then, commercial whaling was still legal in some parts of the world until as recently as 1986.

International Whaling Commission, harpoons

Tail in the water.

Whale's tail pale ale GIF via GoPro/YouTube

And yet by some miracle, there are whales who were born before "Moby-Dick" was published that are still alive today.

What are the odds of that? Honestly it's hard to calculate since we can't exactly swim up to a bowhead and say, "Hey, how old are you?" and expect a response. (Also that's a rude question — jeez.)

Thanks to some thoughtful collaboration between researchers and traditional Inupiat whalers (who are still allowed to hunt for survival), scientists have used amino acids in the eyes of whales and harpoon fragments lodged in their carcasses to determine the age of these enormous animals — and they found at least three bowhead whales who were living prior to 1850.

Granted those are bowheads, not sperm whales like the fictional Moby Dick, (and none of them are albino, I think), but still. Pretty amazing, huh?

whale blubber, blue whales, extinction

This bowhead is presumably in adolescence, given its apparent underwater moping.

GIF via National Geographic.

This is a particularly remarkable feat considering that the entire species was dwindling near extinction.

Barring these few centenarian leviathans, most of the whales still kickin' it today are between 20 and 70 years old. That's because most whale populations were reduced to 10% or less of their numbers between the 18th and 20th centuries, thanks to a few over-eager hunters (and by a few, I mean all of them).

Today, sperm whales are considered one of the most populous species of massive marine mammals; bowheads, on the other hand, are still in trouble, despite a 20% increase in population since the mid-1980s. Makes those few elderly bowheads that much more impressive, huh?

population, Arctic, Great Australian Blight

Southern Right Whales hangin' with a paddleboarder in the Great Australian Bight.

GIF via Jaimen Hudson.

Unfortunately, just as things are looking up, these wonderful whales are in trouble once again.

We might not need to worry our real-life Captain Ahabs anymore, but our big aquatic buddies are still being threatened by industrialization — namely, from oil drilling in the Arctic and the Great Australian Bight.

In the off-chance that companies like Shell and BP manage not to spill millions of gallons of harmful crude oil into the water, the act of drilling alone is likely to maim or kill millions of animals, and the supposedly-safer sonic blasting will blow out their eardrums or worse.

This influx of industrialization also affects their migratory patterns — threatening not only the humans who depend on them, but also the entire marine ecosystem.

And I mean, c'mon — who would want to hurt this adorable face?

social responsibility, nature, extinction

BOOP.

Image from Pixabay.

Whales might be large and long-living. But they still need our help to survive.

If you want another whale to make it to his two-hundred-and-eleventy-first birthday (which you should because I hear they throw great parties), then sign this petition to protect the waters from Big Oil and other industrial threats.

I guarantee Moby Dick will appreciate it.


This article originally appeared on 11.04.15

Identity

Do you have a 'gay voice'? Here's how to tell.

Have you ever wondered if you have a “gay voice”?

Photo pulled from YouTube trailer "Do I sound gay?"

For anyone who's wondering if they have a gay voice and what that actually means.

This article originally appeared on June 5, 2015


Have you ever wondered if you have a “gay voice”?

If you're anything like me, the answer is yes. Many times.

For anyone who’s laid awake wondering if your voice is just as gay as you are, I've created a rigorous test for you to finally get some answers. Follow the chart below to see if you, in fact, sound like a homosexual. ***(Image needs to pulled from Robbie Couch who wrote the article.)


Temporary pic pulled as a place holder

Temporary pic pulled as a place holder******

Yes, that's correct: You do not have a "gay voice" — because a "gay voice" is not really a thing.

Unlike humans, voices do not identify as certain genders or sexual orientations. They're just ... sounds. (Crazy, I know!)

Stereotypes about what LGBTQ people sound like lead some to think their gay-dar can accurately sniff out queer folks in a crowd based on voices alone. However, research shows we actually do a pretty poor job at guessing another person's sexual orientation solely using our ears.

Even if we do wear our queerness on the tips of our tongues, though, why should it matter?

Some LGBTQ people fret over their voice, fearful their queerness is on display every time they speak. And that concern is understandable. Sometimes, it's not a matter of accepting yourself, but a matter of survival: When your voice outs you as an "other" in an environment that's hostile toward gay, transgender, or otherwise queer people, personal safety becomes a priority.

“A lot of gay men are self-conscious about sounding gay because we were persecuted for that when we were young," LGBTQ activist and media personality Dan Savage said in the 2014 documentary "Do I Sound Gay?"

CNN's Don Lemon, who is openly gay, also chimed in on the topic. Has he ever felt insecure about "sounding gay"? “I’d have to say, if I told you ‘no,’ I’d be lying," Lemon admitted in the documentary.

But we should never let a bully's bigotry convince us our voices should be silenced. You sound perfect the way you are, honey — and don't you forget it.

Checking out the documentary "Do I Sound Gay?", available on multiple streaming platforms. Here's a look at the trailer:

This article was written by Robbie Couch and originally appeared on 11.5.15

Joy

Pet cockatiel is obsessed with singing 'September' by Earth, Wind and Fire

Kiki remembers the 21st night of September ALL. THE. TIME. and it's actually quite impressive.

Representative hoto by Saqib Iqbal Digital on Unsplash

Apparently, "September" is all the rage with cockatiels.

“Do you remember…the 21st night of September?” has been one of the most iconic song openings of the past 45 years, as the R&B hit by Earth, Wind and Fire perpetually serves as a catchy favorite for dance clubs, movie scenes and TikTok clips alike.

However, "September" has also gained wild popularity among an unlikely group—pet cockatiels.


One cockatiel in particular has taken a shining to the song to the point of obsession, to the combined delight and chagrin of his owner. You see, Kiki doesn’t just like listening to the song, he sings and dances to it. Loudly. Over and over. At uncomfortable hours of the morning.

Kiki’s owner has shared multiple examples of her pet bird reveling in his favorite song, and it’s hilarious every time.

Watch:

@kiki.tiel

Send help plz wheres the off button on parrot #fyp #foryou #bird #cockatiel #parrotsoftiktok #birdsoftiktok

"Kiki…it's 7 o'clock in the morning…" Yeah, Kiki does not care. Kiki is feelin' the groove.

This isn't just a one-off and it's also not just a random song. Here we can see that Kiki recognizes it and sings it when his owner plays it. (Just after pooing on her leg—the reality of having a bird, in case these videos make you want one).

@kiki.tiel

Babywipes handy at all hours 🫡 #bird #cockatiel #fyp #foryou #september #parrot

But Kiki doesn't even need anyone else around in order to sing his favorite song. Here he is singing and dancing all by himself when his owner left the room and left her camera running to see what he would do.

@kiki.tiel

Partying without me :( #cockatielsoftiktok #birds #fyp #for you

As cute and hilarious as this is, it surely gets old after a while, right? It's one thing to watch in a video—it's got to be entirely another to hear it all the time at home.

It's also not just a Kiki quirk. Apparently, "September" is a "thing" among cockatiels. Other cockatiels have been known to love it and sing it, though not quite as well as Kiki does.

Someone on Reddit asked why so many cockatiels love the song—one person even said it was basically the cockatiel national anthem at this point. No one knows exactly why, but this explanation by Reddit user nattiecakes is as good an explanation as any:

"Yeah, cockatiels genuinely like the song in a way they don’t universally take to many other songs. My cockatiel is 17 and early in life basically seemed to max out his harddrive space learning a little bit of La Cucaracha, The Flintstones theme, the phrase 'pretty bird,' and this horrible alarm clock sound that is similar to the hungry baby cockatiel sound. We thought we could not get him to learn anything else because they do have some limits.

Then 'September' came. Every cockatiel loved it. We decided to see if our cockatiel loved it.

I sh*t y’all not, within a DAY he whistled the first three notes, which is really all that matters. He hasn’t been able to learn more, but he loves it.

Now our African grey whistles it to him constantly. He used to reliably whistle La Cucaracha to our cockatiel when our cockatiel would get angry and upset, and our cockatiel would start singing instead and forget he’d been upset. But almost immediately our grey switched to using 'September' 90% of the time. Like, it’s so plain even to our grey that 'September' is the song to unlock a cockatiel’s better nature. I think the grey likes it a lot too, but he has many other songs he likes better.

As for why cockatiels like this song so much… all I can guess is it really resonates with their cheery vibe. I think the inside of a cockatiel’s mind is usually like a disco."

Rock on, Kiki. Just maybe not so early in the morning.

Identity

High school girl’s response to ‘Ugly Girls’ poll inspires positive reaction

This brave high school student stood up to her school’s cyberbullies.

Lynelle Cantwell/Facebook.

Lynelle Cantwell had a response on her own Facebook page.

Lynelle Cantwell is in 12th grade at Holy Trinity High School in Torbay, Newfoundland and Labrador (that's Canada).

On Monday, she found out that she had been featured on another student's anonymous online poll entitled "Ugly Girls in Grade 12," along with several other classmates.


Cantwell responded via Facebook with her own message, which has already been shared more than 2,000 times and counting.

cyber bullying, bullies, kindness

The unkind poll.

Lynelle Cantwell/Facebook.

Take a look:

bullying, brave response, community support

“Just because we don’t look perfect on the outside does not mean we are ugly.” - Lynelle Cantwell.

Lynelle Cantwell/Facebook.

Since posting her brave response on Facebook, more people have come out to show support than people who voted in the first place.

Check out some of the responses:

appreciation, confidence, self esteem, love and support

Some responses to her post.

Lynelle Cantwell/Facebook.

The School District of Newfoundland and Labrador has announced that it will be looking into the incident further. For Cantwell, the positive outpouring of love and support vastly outweighs the initial cyberbullying and is raising her confidence in new ways.


This article originally appeared on 08.20.17

Health

Artists got fed up with these 'anti-homeless spikes.' So they made them a bit more ... comfy.

"Our moral compass is skewed if we think things like this are acceptable."

Photo courtesy of CC BY-ND, Immo Klink and Marco Godoy

Spikes line the concrete to prevent sleeping.


These are called "anti-homeless spikes." They're about as friendly as they sound.

As you may have guessed, they're intended to deter people who are homeless from sitting or sleeping on that concrete step. And yeah, they're pretty awful.

The spikes are a prime example of how cities design spaces to keep homeless people away.


Not all concrete steps have spikes on them, but outdoor seating in cities like Montreal and Tokyo have been sneakily designed to prevent people from resting too comfortably for too long.

This guy sawing through a bench was part of a 2006 protest in Toulouse, France, where public seating intentionally included armrests to prevent people from lying down.

Of course, these designs do nothing to fight the cause or problem of homelessness. They're just a way of saying to homeless people, "Go somewhere else. We don't want to look at you,"basically.

One particular set of spikes was outside a former night club in London. And a local group got sick of staring at them.

Leah Borromeo is part of the art collective "Space, Not Spikes" — a group that's fed up with what she describes as "hostile architecture."

"Spikes do nothing more than shoo the realities of poverty and inequality away from your backyard — so you don't have to see it or confront what you can do to make things more equal," Borromeo told Upworthy. "And that is really selfish."

"Our moral compass is skewed if we think things like this are acceptable."

charity, social consciousness, artist

A bed covers up spikes on the concrete.

assets.rebelmouse.io

The move by Space, Not Spikes has caused quite a stir in London and around the world. The simple but impactful idea even garnered support from music artist Ellie Goulding.

"That was amazing, wasn't it?" Borromeo said of Goulding's shout-out on Instagram.

books, philanthropy, capitalism

Artist's puppy books and home comforts.

assets.rebelmouse.io

"[The project has] definitely touched a nerve and I think it is because, as a whole, humans will still look out for each other," Borromeo told Upworthy. "Capitalism and greed conditions us to look out for ourselves and negate the welfare of others, but ultimately, I think we're actually really kind."

"We need to call out injustice and hypocrisy when we see it."
anti-homeless laws, legislation, panhandling

A message to offer support in contrast with current anti-homeless laws.

assets.rebelmouse.io

These spikes may be in London, but the U.S. definitely has its fair share of anti-homeless sentiment, too.

Spikes are pretty obvious — they're a visual reminder of a problem many cities are trying to ignore. But what we can't see on the street is the rise of anti-homeless laws that have cropped up from sea to shining sea.

Legislation that targets homeless people — like bans on panhandling and prohibiting people from sleeping in cars — has increased significantly in recent years.

For instance, a report by the National Law Center on Homelessness & Poverty that analyzed 187 American cities found that there's been a 43% hike in citywide bans on sitting or lying down in certain spaces since 2011.

Thankfully, groups like "Space, Not Spikes" are out there changing hearts and minds. But they need our help.

The group created a video to complement its work and Borromeo's hoping its positive underlying message will motivate people to do better.

"[The world] won't always be happy-clappy because positive social change needs constructive conflict and debate," she explained. "But we need to call out injustice and hypocrisy when we see it."

Check out their video below:

This article originally appeared on 07.24.15