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One woman's journey coping with unseen pain may change how the world sees disabilities.

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Dignity Health

When Annie Segarra goes about her daily life, it's not immediately obvious she's in pain 24/7.

Since she's so used to living with discomfort, she's able to walk around for a few minutes, but any longer than that, and she has to sit down and rest. However, the fact that she's not always in a wheelchair makes many passersby question wether or not she really has a disability and often results in judging looks and harsh words.

"They can't see that you're in pain because you look 'just fine,'" Segarra explains.


All photos via Annie Segarra, used with permission.

Segarra has Ehlers-Danlos syndrome (EDS), which is a rare connective tissue disorder that affects collagen in the body and causes joints to stretch farther than normal. While that may sound like some sort of superpower, it's anything but, and it's also just the tip of the iceberg in terms of the symptoms that people who have it experience.

Since collagen runs through the entire body, EDS acts as an umbrella for a seemingly endless list of disorders, including poor vision, chronic fatigue, and joint pain. It's also likely connected to postural orthostatic tachycardia syndrome (POTS), which causes a person's blood pressure to drop and heart rate to spike upon standing.

Segarra lives with all these symptoms and many others, but more often than not, they are invisible to the outside eye.

The discomfort and anxiety that accompanies this is enough of a strain, but when you tack on doctors and everyone else not believing you're in pain, everything's amplified.

"It feels like being at the bottom of a well shouting up and there's nobody there," Segarra says.

Annie with her cane dealing with a pain spike at the grocery store.

What's worse, a large part of why she went undiagnosed for so long was because doctors continued to downplay and dismiss her symptoms and self-diagnoses.

Segarra actually started having symptoms as early as infancy, but she didn't realize they might be connected until she reached her early 20s.

She was working two jobs and taking care of her sister who has autism when she started experiencing severe pain in her feet while standing. One of her jobs at the time was as hostess at a restaurant, so she was confronted with that pain quite often, but she thought it might just be an intolerance to wearing heels.

When it got to the point where she could barely stand at all, she went to a see a podiatrist. He took an X-ray of her feet while she was standing, and it looked like she had flat feet. He assumed that was the root of her pain, so he prescribed orthotics. (Later Segarra would learn that people with EDS often appear to have flat feet because of how their hyperactive joints react to weight.)

After orthotics did nothing to help, the doctor suggested creating arches in her feet surgically. Not knowing what else to do, Segarra agreed.

The surgery left her in an unimaginable amount of distress and unable to walk for close to a year. But it also ultimately led to her diagnosis.

Annie in the hospital.

Segarra learned she was strangely immune to anesthesia — another EDS-related symptom. After six months in a wheelchair caused extreme back pain, she got an MRI that showed something unusual: She appeared to have dislocated joints all over her body.

By that time, she'd been documenting her journey with chronic pain via a video blog for about two years and was regularly communicating with other chronically ill and disabled people online. When she described her symptoms, EDS had kept coming up. However, every doctor she mentioned it to dismissed it until the moment she broke down in front of her spine specialist.

At that point, she had been managing escalating symptoms on her own for over a decade, and every time she tried to get answers from a doctor, they either had no advice or mocked her for self-diagnosing such a rare disorder. She was scared and exhausted and had finally had enough.

Thankfully, a doctor (who happened to be a woman) came in at that moment and really listened to what Segarra had to say. The doctor admitted to not knowing about EDS, but after looking it up on her phone, she turned to the primary specialist and said, "She could have this."

That was the tipping point. From there, Segarra was referred to a geneticist who recommended a chromosome blood test to find the genetic variant for EDS. Six months later, she had an official diagnosis.

After all that, Segarra still calls herself lucky because her diagnosis only took three years to get. Many people with similar "invisible" disorders aren't so fortunate.

The experience set her on a mission to change the misconceptions surrounding disabilities and educate others about the many ways one can be impaired.

Ever since middle school, Segarra's been an activist for one cause or another. As a queer Latinx woman, she always had a lot to fight for, but after experiencing years of blatant disregard for her disability, this fight reinvigorated the rest.

"Becoming disabled made me look at my activism real hard," Segarra says.

She uses her skills as a performer and storyteller to give a face and voice to her illness. On her YouTube channel, she confronts the prejudice people with less visible disabilities face on a daily basis.

Segarra has firsthand experience being called a faker simply because people don't realize that some disabilities don't require people to use an assisting device like a wheelchair all the time.

A note someone left on the car of a person with an invisible disability.

She also explores how having a disability affects things like body positivity and being in the LGBTQ community.

Unsurprisingly, Segarra's passion and strength is affecting a growing number of followers, but she knows there's still much more work to be done.

Right now, there's hardly any representation of people like her in media, which makes it easy for the world to remain ignorant about them. For example, Segarra had a heck of a time finding a character to be for Halloween because people with disabilities barely exist in pop culture.

But her activism is slowly but surely changing peoples' perceptions. She says she gets lots of comments like, "Thank you for saying this because I was one of those assholes who thought like this."

She's also helping people who are still searching for a diagnosis realize they're not alone on their journey.

Segarra hopes that one day, no one will be discounted for having a less visible disability. However, for that to happen, we have to learn to quell their snap judgements, and that starts with admitting we don't know what all disabilities look like.

Learn more about how to spot disabilities (spoiler alert, you can't) here:

Canva Photos

A viral TikTok argues that women don't want to give up the joy of their own personal peace and freedom for anyone.

There's been a lot of discourse on the state of modern dating and a lot of theories on why it seems harder than ever for people to find connection with romantic partners. Could it be that the achievement and education gaps between men and women are altering the dynamics? Have social media and dating apps broken our brains and hearts? Do we all have unrealistic expectations and unlimited options, leading to never feeling satisfied with anything or anyone?

Those are all intriguing options, but an alternate theory has recently arisen that's quickly gaining steam: Maybe being single isn't as lonely as we think. Maybe being single is actually freaking awesome.

A guy on TikTok who goes by Get To the Point Bro shared a hilarious monologue on why women who have been single for a long time "don't want to date anymore." Women say he absolutely nailed it.

 the office, andy bernard, dating, relationships, dating advice, single, romance, love The Frenchman's monologue was absolutely spot on  Giphy  

At first, it might seem like he's poking fun, either at single women or at the men who can't seem to win them over. But not so! What he's done is perfectly captured the joy many people find in being single and, frankly, able to do whatever the hell they want.

"Some women have been single for so long they don't date anymore, they grant you access to their peaceful little empire like a reluctant queen handing you a visitor's badge," he says. "You text her good morning and she's already annoyed, like 'Why are you disturbing the sacred silence of my personal growth journey?'"

He goes on, "Bro she's been sleeping diagonally in her bed for three years, she's not giving up that territory because you opened the door and paid for coffee."

"You plan a cute date, she's thinking 'That sounds nice but also I could stay home, deep clean my apartment, do a 12 steps skincare routine, order sushi and not have to listen to a man breathe.'"

"You try to check in emotionally, 'How are you feeling?' She's feeling fantastic because you're not here."

"You're not competing with other guys. There are no other guys. You're competing with her weighted blanket, her peace, her cat named Chairman Meow, and the simple joy of not having to share her fries."

These are just a few of the best lines from the nearly 2-minute rant, all delivered in the most amazing French accent you can imagine. Please, enjoy:


@gettothepointbro

DATING A GIRL WHO IS USED TO BE ALONE CAN BE VERY HARD .

The best thing about the video is the discussion in the comments. Women want to know how this man got access to this top-secret information. The rant is so eerily, frighteningly accurate that women are convinced this French guy is living in their heads. That, or someone's secretly leaking intel.

"dammit. somebody call a meeting of the council. he knows too much."

"I dont often offer this compliment to the male species but you explained it better than I ever could."

"Alright, who’s told him this info??? So exposed right now"

"The joy of sleeping diagonally across my bed cannot be fully explained."

"This is the most accurate profiling I’ve ever heard. You absolutely ailed it."

Clearly, we've tapped into a real phenomenon here.

@gettothepointbro

CAN YOU RELATE LADIES ? THAT’S WHY WE LOVE YOU ❤️

The truth is that many people—both men and women—are disillusioned with the sad state of the dating scene these days. App burnout is a real thing, and meeting new people in real life is a ton of work. So, it's no surprise that more and more people are just choosing to stay single and enjoy all the perks that come along with it. This is a stark change, especially for women.

According to FiveThirtyEight, "Women were also more likely than men to say that they weren’t dating because they have other priorities right now." Priorities like travel, career, friendship, and even just self-care—all things that wind up taking a backseat when people get involved in relationships. It wasn't too long ago that women of a certain age that were still single were called "spinsters," but that word has lost a significant amount of power. This new generation of women aren't embarrassed or ashamed to be single; they're loving it for exactly all the reasons this video describes.

This article originally appeared in April.

A crying baby.

The names we give to our children can be very personal. They can reflect religious beliefs, family heritage, or have a special meaning attached to them, as in Grace, which means "divine favor," or Eli, which means "ascended." In the United States, people they are protected by the Constitution's First Amendment, freedom of speech, which allows us to name our babies whatever we like.

However, there have been some cases where the courts decided that a particular name is illegal, and, although it is infrequent, it has happened at least 10 times in the country. The most notable banned names are Misteri N-Word, King, Queen, Jesus Christ, III, Santa Claus, Majesty, Adolf Hitler, @, and 1069.

 court, court reporter, legal system, plaintiff, judge, baliff A court reporter taking notes.via Canva/Photos

Why are these 10 names banned in the United States?

III (Roman numerals pronounced “three”)

Thomas Boyd Ritchie III was known by many of his friends simply as III. So, he petitioned the court to have his name changed to Roman numerals. Sadly, a California court rejected the name change because it was a symbol and a number. It’s illegal for people to have numbers in their names because they can’t be entered into state name databases.

Misteri (N-word)

In the California Superior Court case Lee v. Superior Court (1992), Russell Lawrence Lee wanted to change his name to Misteri (N-word). Lee believed that the name could be used to conquer racial hatred. Unfortunately for Lee, the court denied his request, saying the name constituted “fighting words.”

@ (pronounced “at”)

The address symbol, or @, has been banned in multiple jurisdictions because, like a numeral, it cannot be input into state database records.

Jesus Christ

The name of the Christian lord and savior has been banned in several U.S. states based on claims of blasphemy and the possibility of confusion.

 jesus christ, heaven, god, divinity, holy trinity, religion Depiction of Jesus Christ in Heaven.via Canva/Photos

1069

In 1976, the North Dakota Supreme Court told high school teacher Michael Herbert Dengler that he could not change his name to “1069.” “The only way [my] identity can be expressed is 1069. The first character, 1, stands for my concept of nature which manifests itself as one individual among the various forms of life,” he noted. “I stand as a single entity amongst millions of other entities, animate and inanimate. But yet even though I am an entity unto myself, I am part of the whole of life which is one. I am one; life is one; and together we are one.”

He later moved to Minnesota and tried to change his name, but he was rejected again. Neither state allowed people to have numbers as their names.

Santa Claus

In December 1999, Robert William Handley of Ohio filed a petition to change his name to Santa Rob Claus, because he had played the Christmas character for the past 40 years, and was known as “Santa Rob” year-round. The court rejected his petition, saying it was “misleading to the children of the community.” Two years later, the Supreme Court of Utah allowed the name change.

 santa claus, santa rob, banned names, christmas, saint nick A photo of Santa Claus.via Canva/Photos

Majesty, King, Queen

In several states, naming your child after a royal title is illegal to avoid confusion with actual royalty. Does Queen Latifah know this?

Adolf Hitler

If you want to name your child Adolf Hitler, you can’t do it in Texas. After the atrocities he committed in the 1930s and ‘40s, his name has no place in the Lone Star State. However, you can be named Adolf Hitler in New Jersey. Back in 2009, there was a big hubbub when the father of Adolf Hitler Campbell wanted his child’s name written on a birthday cake, and the proprietor of the business refused.

This article originally appeared in May.

A woman in a hot car.

Cars can become unbearably hot in the summer. Even at a seemingly mild 80 degrees outside, the temperature inside can soar to a scorching 109°F within 20 minutes. According to the CDC, in just 40 minutes it can escalate to a blistering 118°F. After an hour, it can peak at a searing 123°F. And that’s just the air temperature; a dark dashboard or seat can reach a staggering 200°F.

"These objects (e.g., dashboard, steering wheel, child seat) heat the adjacent air by conduction and convection and also give off longwave radiation (red) which is very efficient at warming the air trapped inside a vehicle," the CDC explained in their report. It can take five to 10 minutes for your car to cool down on a hot day by turning on the air conditioning, which probably means you burn your buttocks and thighs on the hot seat. That’s why Hannah Fry shared an amazing hack on TikTok, demonstrating how to cool your car down in seconds using the laws of thermodynamics.

Fry is Professor of the Public Understanding of Mathematics at the University of Cambridge. She is a mathematician, a best-selling author, an award-winning science host, and the host of numerous popular podcasts and television shows.

@fryrsquared

That age-old dilemma of choosing between having a non-sweltering car or baffling a passerby because you look like a fool who doesn't know how to use a door

Fry suggests that instead of turning on the air conditioning, which she claims is “not worth it” because of the time it takes, open one of the windows on the opposite side of the door. Then, rapidly open and close the driver’s side door, so it moves back and forth like a fan.

“The reason why it works is that when you open and close the door, especially if you do it quickly, the door, as it's moving outwards, it sweeps out all of the air that's in its way, creating this sort of area of low pressure that you get here,” Fry said. “And then that sets up something called bulk flow, which is where all of the hot, sweaty, horrible air inside the car is drawn outwards.”

 hot car, hot steering wheel, hot man, sweat, summer,  A man sweating in his car.via Canva/Photos

Fry’s super practical approach to a problem everyone deals with blew many people’s minds in the comments. “If I ever catch someone in real life doing this, I’m gonna know they’ve watched this exact video,” a commenter wrote. “I will give it a go, but while opening and closing the door, scream, ‘Be gone, heat demons! BE GONE!’” another added. “Going to remember this the next time my partner farts in the car,” someone joked.

The fact that the inside air temperature in a car and the outside temperature are often drastically different, especially in the summer, serves as a crucial reminder to dog owners everywhere to never leave their pet unattended in a parked car. "Most dog owners know that you can’t leave a pet in a hot car," the American Kennel Club writes. "Temperatures can rise to dangerous levels in just minutes, putting your dog at risk of heatstroke. But what if you open a window a little bit? Does that make it safe to leave your dog in the car? The answer is simple. You should never leave a dog alone in the car, even with the windows cracked. In some states, it’s even illegal."

The following video by The Dodo explains why leaving a dog in a hot car can be deadly, even when it doesn’t feel that hot outside.

  - YouTube  www.youtube.com  

Nature

"We were robbed": Unexpected rejects from the U.S. National Park System

“If the silver discovery hadn’t happened...Lake Tahoe almost certainly would have been a national park."

Lake Tahoe was almost a national park, but politics got in the way.

You know the adage, “Always a bridesmaid, never a bride.” Well, something similar happens out in the wild: not every natural wonder gets to become a national park. For every Yellowstone or Yosemite national park, there are dozens of equally jaw-dropping American landscapes that were denied this coveted designation—and the unparalleled federal protection that comes with it.

From Lake Tahoe’s radiant blue waters to the fossil-rich canyons of Dinosaur National Monument, there are dozens of breathtaking natural beauties across the country that are just that: natural beauties with thriving ecosystems, but not national parks. Behind each rejection, there’s always a fascinating story of politics, competing financial interests, and a constantly changing definition of what “deserves” national protection waiting in the wings.

 Lake Tahoe, national parks, blue water, natural beauty, nature Many people—including Lake Tahoe’s biggest advocate, conservationist John Muir—fought for Lake Tahoe to become a national park.Photo credit: Canva

Often called “the Jewel of the Sierra,” or “Ocean in the sky,” Lake Tahoe is a marvel. Visitors of the 2-million-year-old lake enjoy pristine snow-capped peaks, gorgeous pine trees, and the prettiest, clearest water imaginable. Mark Twain even wrote of Lake Tahoe, “I thought it must surely be the fairest picture the whole earth affords.” Naturally, many people—including Lake Tahoe’s biggest advocate, conservationist John Muir—fought for Lake Tahoe to become a national park, and multiple attempts were made from the 1880s and 1930s.

The problem? Virginia City, Nevada in 1859.

Eighteen hundred and fifty-nine was the year silver was discovered there, and as local historian David Antonucci explains, “If the silver discovery in Virginia City hadn’t happened, the course of history in Lake Tahoe would have been a lot different. It almost certainly would have been a national park."

 Skiing, lake tahoe, national park, rejection, silver If not for that darn silver....Photo credit: Canva

The resulting mining rush altered Lake Tahoe’s landscape forever, most significantly impacting the tall, ancient trees that dotted the Tahoe Basin, which were systematically chopped down to build mine shafts. Twenty years later, it was estimated that more than 33 million board feet of timber were being cut down annually. To put that into perspective, that’s the equivalent of 2,749,999 cubic feet: the amount of wood required to fill 1,150 shipping containers or 88,000 Olympic-sized pools.

Due to this massive degradation of Lake Tahoe’s precious resources, the National Park Service later concluded that the extensive tourism and land development had compromised the lake’s nature beyond repair, ruling it unsuitable for national park designation.

 judge, gavel, overruled, rejection, no Sadly, Lake Tahoe's proposals were overruled.  Giphy  

Why do places seek national park status in the first place? Lake Tahoe has no ego; the land itself does not seek fame, fortune, or glory. But there are several incentives both for the land and the surround communities that make the fight for national park status worth it. National parks enjoy certain VIP privileges, including an army of park rangers and maintenance crews provided by the federal government.

National parks, like the scenic Great Smoky Mountains National Park, Grand Canyon National Park, and Zion National Park, are protected to the highest degree possible against resource extraction, land development and other harmful practices. The are nothing short of astounding: miraculous havens for animals and native plants, flourishing wildlife habitats, and the preservation of vital cultural resources.

Then, there’s the tourism aspect: another powerful motivation for communities to support national park designation is the incredible bump in sightseers—paying visitors—that begin to arrive. National parks are tourist magnets, with Great Smoky Mountain National Park welcoming more than 12 million visitors in 2020. It’s the type of tourism that can turn a rural town into a bucket list destination and economically alter a community forever. Think of the last national park you visited and the crop of tourism-related businesses that surrounded it: lodging, restaurants, themed retail stores, guided tours, and more.

 yellowstone, national park, tourism, economy, nature  National parks are the ultimate tourism magnets. Photo credit: Canva


 car, national park, economy, money, tourism Entire economies depend on a local national park. via TravelinUSA

Sadly, Dinosaur National Monument is another destination that never enjoyed national park status and the plethora of perks that come with it. Nestled in the rugged borderlands straddling Colorado and Utah, this huge national treasure spans over 210,000 acres—that’s larger than Bryce Canyon and Zion National Park combined. The natural wonder features an unparalleled 800 paleontology sites and the Carnegie Quarry, which boasts a 150-million-year-old wall full of roughly 1,500 exposed fossilized dinosaur bones.

Dinosaur National Monument also offers astonishing views of the nighttime sky, deeming it an International Dark Sky Park (IDSP) in honor of its exceptional nocturnal environment and supreme views of the cosmos. Obviously, this archaeological beauty would be a shoo-in for national park status, right?

 dinosaur national park, rejected, natural beauty, national park, national monument Dinosaur National Monument looks like a national park, but is it?Photo credit: Canva

Unfortunately, meddling outside forces struck again: after multiple attempts, Dinosaur National Monument has not been formally rejected as a national park, but it's progress has been stalled for a long time due to local opposition. Commissioners and stakeholders in the area feared that a national park designation would jeopardize their various ranching and energy investments and blocked any attempts to elevate Dinosaur National Monument to national park status.

Becoming a national park is no walk in the park. Rules are scrupulous, community support is vital, and the power of public perception matters. In many ways, that’s a good thing: the National Park Service’s uncompromising criterion ensures precious American tax-payer money is reserved for only the most exemplary resources in the country, both natural and cultural, in a world that, increasingly, seeks to destroy them. But what of Lake Tahoe, Dinosaur National Park, Silver Falls in Oregon, or the Adirondack Mountains?

For reasons that have nothing to do with their importance, significance, or natural beauty, these landscapes lack national park designation and the protections that come with it. But that doesn’t mean they’re not worth visiting. So, the next time you’re planning a nature trip, consider adding these beauties to your list. You just might be pleasantly surprised.

This article originally appeared in May.

A woman in black long sleeve shirt stands in front of mirror.

Have you ever had that friend who goes on vacation for four days to London and comes back with a full-on Queen's English posh accent? "Oooh I left my brolly in the loo," they say, and you respond, "But you're from Colorado!" Well, there are reasons they (and many of us) do that, and usually it's on a pretty subconscious level.

It's called "accent mirroring," and it's actually quite common with people who are neurodivergent, particularly those with ADHD (Attention Deficit Hyperactivity Disorder). According Neurolaunch, the self-described "Free Mental Health Library," "Accent mirroring, also known as accent adaptation or phonetic convergence, is the tendency to unconsciously adopt the accent or speech patterns of those around us. This linguistic chameleon effect is not unique to individuals with ADHD, but it appears to be more pronounced and frequent in this population."

 Chameleon, science, reptile, adaptation, mirroring A chameleon rolls its eyes.   Giphy SWR Kindernetz 

Essentially, when people have conversations, we're constantly "scanning" for information—not just the words we're absorbing, but the inflection and tone. "When we hear an accent, our brains automatically analyze and categorize the phonetic features, prosody, and intonation patterns," writes Neurolaunch. For most, this does result in copying the accent of the person with whom we're speaking. But those with ADHD might be more sensitive to auditory cues. This, "coupled with a reduced ability to filter out or inhibit the impulse to mimic…could potentially explain the increased tendency for accent mirroring."

While the article explains further research is needed, they distinctly state that, "Accent mirroring in individuals with ADHD often manifests as an unconscious mimicry of accents in social situations. This can range from subtle shifts in pronunciation to more noticeable changes in intonation and speech rhythm. For example, a person with ADHD might find themselves unconsciously adopting a Southern drawl when conversing with someone from Texas, even if they’ve never lived in the South themselves."

 Sam Elliott, cowboy, southern accents Sam Elliott gives a tip of his cowboy hat.   Giphy, Sam Elliott, Grit TV  

People are having their say online. On the subreddit r/ADHDWomen, a thread began: "Taking on accents is an ADHD thing?" The OP shares, "My whole life, I've picked up accents. I, myself, never noticed, but everyone around me would be like, 'Why are you talking like that??' It could be after I watched a show or movie with an accent or after I've traveled somewhere with a different accent than my 'normal.'

They continue, "Apparently, I pick it up fast, but it fades out slowly. Today... I'm scrolling Instagram, I watch a reel from a comedian couple (Darcy and Jeremy. IYKYK) about how Darcy (ADHD) picks up accents everywhere they go. It's called ADHD Mirroring??? And it's another way of masking."

(The OP is referring to Darcy Michaels and his husband Jeremy Baer, who are both touring comedians based in Canada.)

Hundreds of people on the Reddit thread alone seem to relate. One comments, "Omfg I've done this my whole life; I'll even pick up on the pauses/spaces when I'm talking to someone who is ESL—but English is my first language lol."

Sometimes, it can be a real issue for those around the chameleon. "I accidentally mimicked a waitress's weird laugh one time. As soon as she was out of earshot, my family started to reprimand me, but I was already like 'oh my god I don’t know why I did that, I feel so bad.'"

@theweirdocoach

Anyone else? #adhdawareness #adhdinwomen #neurodivergent


Many commenters on TikTok were shocked to find out this can be a sign of ADHD. One jokes, "Omg, yes, at a store the cashier was talking to me and she was French. She's like 'Oh are you French too? No, I'm not lol. I'm very east coast Canada."

And some people just embrace it and make it work for them. "I mirror their words or phrase! I’m 30. I realized I start calling everyone sweetie cause my manager does & I work at coffee shop."

This article originally appeared in May.