upworthy
Badge
Dignity Health
Dignity Health
Add Upworthy to your Google News feed.
Google News Button
Hello Humankindness

One woman's journey coping with unseen pain may change how the world sees disabilities.

True
Dignity Health

When Annie Segarra goes about her daily life, it's not immediately obvious she's in pain 24/7.

Since she's so used to living with discomfort, she's able to walk around for a few minutes, but any longer than that, and she has to sit down and rest. However, the fact that she's not always in a wheelchair makes many passersby question wether or not she really has a disability and often results in judging looks and harsh words.

"They can't see that you're in pain because you look 'just fine,'" Segarra explains.

All photos via Annie Segarra, used with permission.

Segarra has Ehlers-Danlos syndrome (EDS), which is a rare connective tissue disorder that affects collagen in the body and causes joints to stretch farther than normal. While that may sound like some sort of superpower, it's anything but, and it's also just the tip of the iceberg in terms of the symptoms that people who have it experience.

Since collagen runs through the entire body, EDS acts as an umbrella for a seemingly endless list of disorders, including poor vision, chronic fatigue, and joint pain. It's also likely connected to postural orthostatic tachycardia syndrome (POTS), which causes a person's blood pressure to drop and heart rate to spike upon standing.

Segarra lives with all these symptoms and many others, but more often than not, they are invisible to the outside eye.

The discomfort and anxiety that accompanies this is enough of a strain, but when you tack on doctors and everyone else not believing you're in pain, everything's amplified.

"It feels like being at the bottom of a well shouting up and there's nobody there," Segarra says.

Annie with her cane dealing with a pain spike at the grocery store.

What's worse, a large part of why she went undiagnosed for so long was because doctors continued to downplay and dismiss her symptoms and self-diagnoses.

Segarra actually started having symptoms as early as infancy, but she didn't realize they might be connected until she reached her early 20s.

She was working two jobs and taking care of her sister who has autism when she started experiencing severe pain in her feet while standing. One of her jobs at the time was as hostess at a restaurant, so she was confronted with that pain quite often, but she thought it might just be an intolerance to wearing heels.

When it got to the point where she could barely stand at all, she went to a see a podiatrist. He took an X-ray of her feet while she was standing, and it looked like she had flat feet. He assumed that was the root of her pain, so he prescribed orthotics. (Later Segarra would learn that people with EDS often appear to have flat feet because of how their hyperactive joints react to weight.)

After orthotics did nothing to help, the doctor suggested creating arches in her feet surgically. Not knowing what else to do, Segarra agreed.

The surgery left her in an unimaginable amount of distress and unable to walk for close to a year. But it also ultimately led to her diagnosis.

Annie in the hospital.

Segarra learned she was strangely immune to anesthesia — another EDS-related symptom. After six months in a wheelchair caused extreme back pain, she got an MRI that showed something unusual: She appeared to have dislocated joints all over her body.

By that time, she'd been documenting her journey with chronic pain via a video blog for about two years and was regularly communicating with other chronically ill and disabled people online. When she described her symptoms, EDS had kept coming up. However, every doctor she mentioned it to dismissed it until the moment she broke down in front of her spine specialist.

At that point, she had been managing escalating symptoms on her own for over a decade, and every time she tried to get answers from a doctor, they either had no advice or mocked her for self-diagnosing such a rare disorder. She was scared and exhausted and had finally had enough.

Thankfully, a doctor (who happened to be a woman) came in at that moment and really listened to what Segarra had to say. The doctor admitted to not knowing about EDS, but after looking it up on her phone, she turned to the primary specialist and said, "She could have this."

That was the tipping point. From there, Segarra was referred to a geneticist who recommended a chromosome blood test to find the genetic variant for EDS. Six months later, she had an official diagnosis.

After all that, Segarra still calls herself lucky because her diagnosis only took three years to get. Many people with similar "invisible" disorders aren't so fortunate.

The experience set her on a mission to change the misconceptions surrounding disabilities and educate others about the many ways one can be impaired.

Ever since middle school, Segarra's been an activist for one cause or another. As a queer Latinx woman, she always had a lot to fight for, but after experiencing years of blatant disregard for her disability, this fight reinvigorated the rest.

"Becoming disabled made me look at my activism real hard," Segarra says.

She uses her skills as a performer and storyteller to give a face and voice to her illness. On her YouTube channel, she confronts the prejudice people with less visible disabilities face on a daily basis.

Segarra has firsthand experience being called a faker simply because people don't realize that some disabilities don't require people to use an assisting device like a wheelchair all the time.

A note someone left on the car of a person with an invisible disability.

She also explores how having a disability affects things like body positivity and being in the LGBTQ community.

Unsurprisingly, Segarra's passion and strength is affecting a growing number of followers, but she knows there's still much more work to be done.

Right now, there's hardly any representation of people like her in media, which makes it easy for the world to remain ignorant about them. For example, Segarra had a heck of a time finding a character to be for Halloween because people with disabilities barely exist in pop culture.

But her activism is slowly but surely changing peoples' perceptions. She says she gets lots of comments like, "Thank you for saying this because I was one of those assholes who thought like this."

She's also helping people who are still searching for a diagnosis realize they're not alone on their journey.

Segarra hopes that one day, no one will be discounted for having a less visible disability. However, for that to happen, we have to learn to quell their snap judgements, and that starts with admitting we don't know what all disabilities look like.

Learn more about how to spot disabilities (spoiler alert, you can't) here:

From Your Site Articles
Pop Culture

'Wicked' author says one line in 'The Wizard of Oz' inspired Elphaba and Glinda's backstory

Gregory Maguire says he "fell down to the ground" laughing when the idea hit him.

Public domain

The two witches in "The Wizard of Oz" clearly had a history together.

Have you ever watched a movie or read a book or listened to a piece of music and wondered, "How did they come up with that idea?" The creative process is so enigmatic even artists themselves don't always know where their ideas come from, so It's a treat when we get to hear the genesis of a brilliant idea straight from the horse's mouth. If you've watched "Wicked" and wondered where the idea for the friendship between Elphaba (the Wicked Witch) and Glinda (the Good Witch) came from, the author of the book has shared the precise moment it came to him.

The hit movie "Wicked" is based on the 20-year-old hit stage musical, which is based on the novel "Wicked: The Life and Times of the Wicked Witch of the West" written by Gregory Maguire. While the musical is a simplified version of the 1995 book, the basic storyline—the origin story of the two witches from "The Wizard of Oz"—lies at the heart of both. In an interview with BBC, Maguire explained how Elphaba and Glinda's friendship popped into his head.

 

Maguire was visiting Beatrix Potter's farm in Cumbria, England, and thinking about "The Wizard of Oz," which he had loved as a child and thought could be an interesting basis for a story about evil.

"I thought 'alright, what do we know about 'The Wizard of Oz' from our memories,'" he said. "We have the house falling on the witch. What do we know about that witch? All we know about that witch is that she has feet. So I began to think about Glinda and the Wicked Witch of the West…

 glinda, elphaba, wicked,  In "Wicked," the two Oz witches met as students at Shiz University.  Giphy GIF by Wicked 

"There is one scene in the 1939 film where Billie Burke [Glinda the Good Witch] comes down looking all pink and fluffy, and Margaret Hamilton [the Wicked Witch of the West] is all crawed and crabbed and she says something like, 'I might have known you'd be behind this, Glinda!' This was my memory, and I thought, now why is she using Glinda's first name? They have known each other. Maybe they've known each other for a long time. Maybe they went to college together. And I fell down onto the ground in the Lake District laughing at the thought that they had gone to college together."

In "Wicked," Glinda and the Wicked Witch, Elphaba, meet as students at Shiz University, a school of wizardry. They get placed as roommates, loathe each other at first, but eventually become best friends. The story grows a lot more complicated from there (and the novel goes darker than the stage play), but it's the character development of the two witches and their relationship with one another that force us to examine our ideas about good and evil.

  - YouTube  youtu.be  

 

Maguire also shared with the Denver Center for Performing Arts what had inspired him to use the "Wizard of Oz" characters in the first place.

"I was living in London in the early 1990’s during the start of the Gulf War. I was interested to see how my own blood temperature chilled at reading a headline in the usually cautious British newspaper, the Times of London: 'Sadaam Hussein: The New Hitler?' I caught myself ready to have a fully formed political opinion about the Gulf War and the necessity of action against Sadaam Hussein on the basis of how that headline made me feel. The use of the word Hitler – what a word! What it evokes! When a few months later several young schoolboys kidnapped and killed a toddler, the British press paid much attention to the nature of the crime. I became interested in the nature of evil, and whether one really could be born bad. I considered briefly writing a novel about Hitler but discarded the notion due to my general discomfort with the reality of those times. But when I realized that nobody had ever written about the second most evil character in our collective American subconscious, the Wicked Witch of the West, I thought I had experienced a small moment of inspiration. Everybody in America knows who the Wicked Witch of the West is, but nobody really knows anything about her. There is more to her than meets the eye."

 wizard of oz, wicked witch of the west The Wicked Witch of the West has a story of her own.  Giphy  

Authors and artists—and their ideas—help hold a mirror up to humanity for us to see and reflect on who we are, and "Wicked" is one of those stories that makes us take a hard look at what we're seeing in that mirror. Thanks, Gregory Maguire, for launching us on a collective journey that not only entertains but has the potential to change how we see one another.

This story originally appeared last year.

From Your Site Articles
wicked
Pop CultureMovies
Joy

Christmas tree farm miraculously finds a man's missing wedding ring 15 years after he lost it

It was like finding a needle in a haystack.

via Canva/Photos

A man's wedding ring and a Christmas tree lot.

Wayne Corprew, 61, cut down a Christmas tree at Joe’s Tree Farm, a family farm in Newport, Virginia, in December 2015, but after putting the tree in his truck, he realized that the wedding ring he bought two years before was missing.

“I went back up to where I dragged the tree to and searched there, but it wasn’t there. I went back to the truck and couldn’t find it there, so it was officially missing. The next day, I came back and brought a metal detector. There was snow on the ground, and I spent all day the next day looking for it, and nothing,” Corprew told WDBJ7.

In the event that the ring would turn up, he left a note with the then-owner, Sue Bostic, that read: “Lost wedding Ring Band. Do not throw away.” Bostic would sell the farm to her nephew, Darren Gilreath, and his wife, Samantha, in 2019. But, according to The Washington Post, Bostic told them never to throw the note away. “This is important,” she recalled telling Darren. “If you ever find this ring, you need to keep this.”

  - YouTube  www.youtube.com  

By the summer of 2011, Corprew gave up on finding the ring and purchased another wedding band. Two years later, the ring lost a significant amount of sentimental value after he got divorced.

Last June, Darren Gilreath was tilling soil on the farm to plant some corn when he dug up an old wedding ring. “As I’m planting corn, I’m walking through the rows, and I see this wedding band lying on the top of the ground. I said, ‘That looks like a wedding band’, so I reached down and picked it up, and sure enough, it was this nice little gold band that was just lying in the dirt,” Samantha told WDBJ7.

Just to think, if they tilled the soil a few inches to one side or the other, the ring would have remained buried, possibly forever.

 


The Gilreaths remembered the old note that their aunt told them never to throw out, and they called Corprew, who was driving for his job delivering freight. To ensure that he was the ring’s rightful owner, he recited the inscription on the inside, “WITH THIS RING I THEE WED.” Corprew could hardly believe that his tiny ring had been found on such a vast farm. “How in the world, in 50 acres of Christmas trees, you’re walking all around it, and you get a call 15 years later and they find it?” he told The Washington Post.

The next day, when Corprew returned to the farm to get his ring, the Gilreaths showed him where they had found it, and it was right where he had cut down the tree 15 years ago. Corprew was incredibly touched that the farmers kept his note and remembered to reach out to him after finding the ring. Although he's grateful to have his ring back, he likely won't be wearing it any time soon. Since remarrying in 2022, he now wears a black and blue titanium band on the finger where the lost one once sat.

From Your Site Articles
lost ring
JoyCommunity
Joy

Dad shares the hilarious conversations he has with 5-year-old daughter and folks are cracking up

"Why do people congratulate you when Mom is making the baby?

via James Breakwell/X

All parents have had similar convos with thier kiddos.

Raising kids is tough, but there's a lot of laughs along the way. Especially when actual conversations start, as kids begin trying to make sense out of the world around them, ask questions, and test mommy and daddy's resolve.

Back in 2018, comedy writer and children's book author James Breakwell, with four daughters who were all under the age of eight at the time, shared their hilarious conversations on X. From these tweets, it looks like comedy runs in the family. Here's a sampling of some Breakwell's funniest kid-inspired tweets.

 


 


 


 


 


 


 


 


 


 


 


 


 


 


 


 


 


 


 


 


 


 


 


 

While Breakwell's 7-year-old wasn't as heavily featured, when she was quoted, the sarcasm was palpable. Which makes sense, considering that kiddos begin understanding this mechanism around that age.

 


 


 


 


 


 


 


 


 


 


 


 


 

Kids really do say the darnedest things, and we love them for it. It one of the many, many ways then bring so much joy to the world. It almost makes up for the headaches and sleepless nights, doesn't it.

This article originally appeared seven years ago.

From Your Site Articles
kids
JoyHumor
Community

30 cheap and delicious meals frugal people swear they never get sick of

"I could eat one every day of my life if I allowed it to happen."

Image via Canva

Frugal people share cheap meals they love.

Groceries are a major expense these days. And grocery prices are continuing to go up in 2025, according to the USDA. Still, making meals at home versus going out to eat is cheaper, and a big way to save money. But getting creative with low-cost ingredients can be a hang-up.

In an online community of frugal people, member samdaz712 posed the question to fellow savers: "What’s the cheapest meal you actually enjoy eating regularly?"

They continued, "We all have that one budget meal that somehow never gets old. For me, it’s rice, eggs, and frozen mixed veggies with soy sauce and chili flakes. Costs next to nothing, takes 10 minutes, and I actually look forward to it."

The post wrapped up with a call-out for others' favorite and frugal meals. "Curious what everyone else’s go-to cheap meals are not the I’ll suffer through this to save money kind, but the ones you genuinely like and would still eat even if you weren’t budgeting. Always looking for new ideas that don’t break the bank," they added.

Frugal people happily shared their cheap (and yummy) go-to meals. Here are 30 cheap meals that they never get sick of.

"PB&J sandwiches. I could eat one every day of my life if I allowed it to happen. If I'm feeling fancy, I'll make a PB, banana, and honey sandwich. Then I'll pan toast with a generous amount of butter on each side until the bread is golden brown and the PB starts to melt. It's so decadent yet so cheap." - Kom4K

"Fried egg sandwich." - Major9000

"Every week-ish we make pinto beans, smash em up into a refried situation, melt some cheese, spread them on toasted torta bread with avocado. Then use leftovers in your eggs the next day or make burritos for lunch. You can never go wrong with a pot of beans." - BoardNo1459

"A pot of pinto beans with a link of kielbasa sausage and corn bread...Absolute baller." - Bigram03

"'Hobo-potatoes,' diced potatoes, onions, salt and pepper, mixed up in a bag of foil with oil and left to cook in the coals of a camp fire. Goes great with any protein and has more potassium per serving than bananas." - BlaqueNight

"Pasta and butter. Sometimes with grated parmesan." - RuthlessLidia

"Quesadilla." - babe_ruthless3

"Toast." - FrauAmarylis

"Pan fried tofu slabs braised in a pan with chopped kimchi, green onion, kimchi liquid or rice vinegar, soy sauce, sesame oil, bit of water to make it saucy, a tsp of sugar seems to help it meld together. Takes 10-12 min. Served over short grain rice. Optional toppings, toasted sesame seeds, chopped cilantro, sliced green onion. Edit: this was from The NY Times food, from Sue Li for exact proportions." - LavaPoppyJax

"Costco’s $1.50 hot dog and drink." - StarWolf478

"Rice and eggs for me too. It can be enjoyed in so many ways! My favorite is a crispy egg that’s still yolky on sushi rice with seaweed, salt and sesame oil." - theyrejusttoys

"For me it's an egg foo young - type dish! Stir raw eggs into leftover cooked vegetables (and optional protein, like leftover chicken or whatever you have). Ladle the mixture into a hot pan with a little oil, and fry up into patties. Serve over rice, and top with a drizzle of some kind of Asian sauce and a little hot pepper. You can look up a recipe for Egg Foo Young sauce, but that's not necessary; it tastes great with almost any kind of Asian sauce, or simply soy sauce. The cooked patties last for days in the refrigerator and can be reheated. Bonus: This is a fantastic way to use up any small bits of leftover veggies or meat. And if I have wilted vegetables that are in danger of spoiling, I just chop them up and quickly sauté them together, and freeze them in small containers. Now I have lots of veggies ready to go to make delicious egg foo young." - TIL_eulenspiegel

"For me, it’s instant noodles with a soft-boiled egg, some greens, and a splash of sesame oil. Dirt cheap but feels like comfort food every time!" - Wajid-H-Wajid

"Baked potatoes. So cheap, so good." - killyergawds

"Over-night oats. Eat it every morning before work." - Non_Binary_Goddess

"Nachos for the win." - HappyBear4Ever

"Rice and lentils cooked together." - RichCoast7186

"Potatoes, baked beans, fried eggs. Potatoes, corned beef, fried eggs. Rice (Mexican, Spanish, or Asian), beans, fried eggs. Cottage cheese, bran, frozen blueberries, milk. Home made salsa or pico de gallo on anything. Ground beef, rice, tomato and whatever else I have around. Rotisserie chicken, use the carcass to make soup with rice. Use the chicken that you can get off with tortillas and verde/enchilada sauce. With rice and beans. My advice, get really good at cooking rice, beans, and potatoes. Make sure you have a good selection of spices. Throw whatever extra money you have at whatever meats you can." - himthatspeaks

"Sweet potato black bean burrito a la moosewood. The most basic version is just a sweet potato and a can of black beans (but much better with an upgrade of caramelized onions and some cumin)." - Upbeat-Poetry7672

"Sardines on toast with a over easy egg." - Gandi1200

"Green bean casserole! Takes 10mins and lasts me all week for dinner and lunch." - Kihakiru

"Pan fried Spam, sunny side up egg, over rice. Furikake seasoning to taste." - Cajunsalmon

"I don't make meals I don't enjoy eating, but these are easy, quick, healthy and yummy. 1/2 rice , 1/2 red lentils + cubed veggies (frozen or fresh) eventually crushed tomatoes or coconut milk. Baked savory oats : shredded veggies +oats and eventually eggs or cheese or tomato sauce. Dhal sooooooo delicious. Split pea soup." - sohereiamacrazyalien


From Your Site Articles
cheap meals
CommunityJoy
Joy

Author Ray Bradbury noticed a specific trait that made Walt Disney tremendously successful

This is how creative giants understand one another.

via Alan Light/Wikimedia Commons and Wikimedia Commons

Walt Disney and Ray Bradbury.

The world’s greatest innovators think and behave differently from us mere mortals. They have a unique view of the world and are dedicated to their craft in ways that most would deem obsessive. But without that type of dedication, Steve Jobs could never have given us the Macintosh, Michael Jordan would never have been able to fly, and Michelangelo would have never painted the Sistine Chapel.

It’s hard for the average person to understand what makes a cultural innovator tick, which is why an interview with groundbreaking author Ray Bradbury on Walt Disney is so inspiring. It lifts the veil on what great artists see in one another that most of us can’t. Bradbury is the acclaimed author of classics such as Fahrenheit 451 and The Martian Chronicles, who was a friend of Disney and worked with his legendary company as a creative consultant.

What did Ray Bradbury think of Walt Disney?

In a 2004 interview, Bradbury explained where the incredibly ambitious and creative Disney got his drive and determination.


“If there’s any secret at all, it’s because Walt, like myself, is not an optimist but an optimal behaviorist. Which means that every day of your life, if you behave well, you begin to feel well,” Bradbury said. “So that’s not false, that’s real. You get your work done every day, and at the end of a week, a month, a year, you’ll turn around and say, hey, look what I did. So you feel good. That’s real optimism. Optimal behavior.”

“He could look back at the end of each year and see his behavior, and it made him want to go on. A lot of people are pessimists because they’ve never done anything,” Bradbury continued. “If you go to bed every night having not done anything, you’re going to wake up unhappy, aren’t you? So the answer to that is do something every day. Be busy, for God’s sake, be busy.”

 walt disney, disney world, mickey mouse, disney company, disney theme parks, A statue of Walt Disney and Mickey Mouse.via Paul Beattie/Flickr

What is a behavioral optimist?

Although “behavioral optimist” isn’t an official psychological term, it’s one that Bradbury often used to describe himself. “I’ve learned that by doing things, things get done. I’m not an optimist; I’m an optimal behaviorist. We ensure the future by doing it,” he said. “Optimists and pessimists are blind. But I’m not either. I’m an optimal behaviorist. In other words, I behave at the top of my lungs every day. There’s no guarantee, but you’re going to have a heck of a lot of fun. You’ll come to the end of your life with the secure knowledge that you tried everything.”

There are just two critical things in life, he said, “Being in love with your wife or husband and being in love with your work. And then everything’s fine.”

If you’ve always dreamed of living a life like Walt Disney, using your imagination to entertain and uplift humanity, you can start by looking at life in the same way. Big goals can often seem too lofty when we think about the finished product. Instead, take small, consistent steps every day towards achieving your goal. Writing a 300-page book may seem like too much work, but if you write a page a day, you’ll have a book before the end of the year. The key is to stay focused and consistent, just like Uncle Walt.

From Your Site Articles
walt disney
JoyArt
Trending Stories