In Brazil, mothers are confronting prejudice by raising awareness about microcephaly.

When Germana Soares was three months pregnant, she went to see her doctor.

She was worried, as any expectant mother would be, because she had an itchy rash across her body. But since itchiness was her only symptom, her doctor simply treated her for allergies and sent her home with some medication.

It seemed to work.


Four days later, her rash had cleared up, and she stopped worrying. The rest of her pregnancy progressed relatively normally.

But when her son was born, the doctor noticed something wasn’t quite right.

Her son's head was slightly smaller than it should be, and it was a little asymmetrical, with the left side somewhat smaller than the right. Remembering her rash from months prior, her doctor ordered a series of tests.

Her son was diagnosed with microcephaly.

This condition not only causes a baby’s head to be smaller than normal, but it can also cause a number of other lifelong health problems, including intellectual and developmental disabilities. And in Soares' case, it was likely caused by a Zika virus infection (transmitted by an Aedes aegypti mosquito) while she was pregnant.

A mother in Recife, a city in Pernambuco, Brazil, holding her child with microcephaly in May 2016. Photo by Mario Tama/Getty Images.

Microcephaly is usually considered a relatively rare neurological condition, but in Brazil at that time — especially in the northeastern state of Pernambuco where Soares lives — it wasn’t. In fact, her state was at the center of a Zika pandemic that hit South America between 2015 and 2016, and it saw a huge spike in the number of microcephaly cases as a result.

By Dec. 12, 2015, Pernambuco had reported 874 cases of microcephaly — more than any other region in the country.

Soares and her husband were afraid when they got the news.

They were scared of prejudice and discrimination, she says through a translator. They were so scared that they decided they would have to hide their son’s illness from the world. They thought it was the only way they could protect him from the kids who might pick on him, the adults who might make assumptions about him, and the society that might exclude him simply because he was born different.

But when Soares took her son to his one-month doctor appointment, something wonderful happened: She met Gleise Kelly, another mother of a baby with microcephaly, and they became friends.

They talked about their babies, how they both felt alone against the world, and how they felt misunderstood. Just talking to another person who was going through a similar experience helped them both feel so much better.

And then, over the next few months as they went to the doctor, they started meeting other moms too. They all exchanged phone numbers to continue their discussions outside the waiting room. They set up a chat group on a phone app called WhatsApp.

But Soares and Kelly wanted to go one step further, so they created the Facebook group União Mães de Anjos — the Union of Mothers of Angels.

Soares and four other mothers from the União Mães de Anjos. Image via the União Mães de Anjos Facebook page, used with permission.

The Facebook group started with just eight mothers, Soares says, but within two months, they had 200. Today, about 400 mothers across Pernambuco have joined.

The page became a way to share stories and to get advice on how to cope with the disease and with prejudice. It became a place to ask questions, a place to share resources, and an emotional support group. But slowly, the group also transformed into a way for them to make themselves known to the rest of the community — a community they felt wasn’t accepting of them or their children.

“I won’t sit around,” Soares says through the translator. “I am going to do everything I can to fight for my child’s future and I am not going to just wait for people to include him in society.” And the entire group of mothers feels the same way.

A group photo of some of the União Mães de Anjos mothers and their children. Image via the União Mães de Anjos Facebook page, used with permission.

União Mães de Anjos became their way to raise awareness about microcephaly and to fight for inclusion on behalf of their children. It gave them a voice.

And it worked. Their group started getting attention in the local press, and the mayor of Pernambuco reached out to them to organize a meeting so that he could better understand what they were going through and what the government could do to help them.

The meeting has now turned into a weekly phone call or in-person meeting, allowing the mothers to advocate on behalf of their children. And Soares says she has begun to see results. For example, there are now more neurologists working in the state to support them.

They also receive donations of diapers, food, and clothes, and the group distributes those across the state.

Of course, there is still work to be done.

Fighting prejudice doesn’t happen overnight, Soares says. Instead, you have to work at fighting it from the ground up — starting inside homes and schools — so that change can happen naturally.

“People should respect everyone’s children. They are human beings. They did not choose to be born this way — they are all victims of an illness that was unknown at the time,” she says. “Everyone thinks things will never happen to them — only to others. That is, until it actually does [happen to you].”

Germana Soares and her son Guilherme. Image via Germana Soares, used with permission.

Soares' son is now 18 months old, and while he shows some motor skill developmental delays due to his microcephaly, he is showing improvement every day thanks to some early stimulation and therapy.

Microcephaly exists and it isn’t going away just because people are uncomfortable with it, Soares says. The best thing they can do is raise awareness of it, help those that need it, and fight prejudice so that every child gets the respect and acceptance they deserve.

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Don't test on animals. That's something we can all agree on, right? No one likes to think of defenseless cats, dogs, hamsters, and birds being exposed to a bunch of things that could make them sick (and the animals aren't happy about it, either). It's no wonder so many people and organizations have fought to stop it. But did you ever think that maybe brands are testing products on us too, they're just not telling us they're doing it?

I know, I know, it sounds like a conspiracy theory, but that's exactly what e-cigarette brands like JUUL (which corners the e-cigarette market) are doing in this country right now, and young people are on the frontlines of the fallout. Most people assume that the government would have looked at devices that allow people to inhale unknown chemicals into their lungs BEFORE they hit the market. You would think that someone in the government would have determined that they are safe. But nope, that hasn't happened. And vape companies are fighting to delay the government's ability to evaluate these products.

So no one really knows the long-term health effects of e-cigarette use, not even JUUL's CEO, nor are they informing the public about the potential risks. On top of that, according to the FDA, there's been a 78% increase in e-cigarette usage among high school and middle school-aged children in just the last two years, prompting the U.S. Surgeon General to officially recognize the trend as an epidemic and urge action against it.

These facts have elicited others to take action, as well.

Truth Initiative, the nonprofit best known for dropping the real facts about smoking and vaping since 2000 through its truth campaign. We don't do PSAs. We also need to update so to explain truth – the nonprofit behind the truth youth smoking prevention campaign – you could also say this in a funny way – best known for sharing the facts about smoking and vaping or pull from some old campaigns. Just layer in a description of truth and who the campaign is., is now on a mission to confront e-cigarette brands like JUUL about the lack of care they've taken to inform consumers of the potential adverse side effects of their products. And they're doing it with the help of animal protesters who are tired of seeing humans treated like test subjects.

The March Against JUUL | Tested On Humans | truth www.youtube.com

"No one knows the long-term effects of JUULing so any human who uses one is being used as a lab rat," says, appropriately, Mario the Sewer Rat.

"I will never stop fighting JUUL. Or the mailman," notes Doug the Pug, the Instagram-famous dog star.

Truth, the national counter-marketing campaign for youth smoking prevention, hopes this fuzzy, squeaky, snorty animal movement arms humans with the facts about vaping and inspires them to demand transparency from JUUL and other e-cigarette companies. You can get your own fur babies involved too by sharing photos of them wearing protest gear with the hashtag #DontTestOnHumans. Here's some adorable inspo for you:

The dangerous stuff is already out there, but with knowledge on their side, young people will hopefully make the right choices and fight companies making the wrong ones. If you need more convincing, here are the serious facts.

Over the last decade, 127 e-cigarette-related seizures were reported, which prompted the FDA to launch an official investigation in April 2019. Since then, over 215 cases of a new, severe lung illness have sprung up all over the country, with six deaths to date. While scientists aren't yet sure of the root cause, the majority of victims were young adults who regularly vaped and used e-cigarettes. As such, the CDC has launched an official investigation into the potential link.

Sixteen-year-old Luka Kinard, a former frequent e-cigarette-user, is one of the many teens who experienced severe side effects. "Vaping was my biggest addiction," he told NowThis. "It lasted for about 15 months of my high school career." In 2018, Kinard was hospitalized after having a seizure. He also had severe nausea, chest pains, and difficulty breathing.

After the harrowing experience, he quit vaping, and began speaking out about his experience to help inform others and hopefully inspire them to quit and/or take action. "It shouldn't take having a seizure as a result of nicotine addiction like I had for teens to realize that these companies are taking advantage of what we don't know," Kinard said.

Teens are 16 times more likely to use e-cigarettes than adults, and four times more likely to take up traditional smoking as a result, according to truth, and yet the e-cigarette market remains virtually unregulated and untested. In fact, companies like JUUL continue to block and prevent FDA regulations, investing more than $1 million in lawyers and lobbying efforts in the last quarter alone.

Photo by Lindsay Fox/Pixabay

Consumers have a right to know what they're putting in their bodies. If everyone (and their pets) speaks up, the e-cigarette industry will have to make a change. Young people are already taking action across the country. They're hosting rallies nationwide and on October 9 as part of a National Day of Action, young people are urging their friends and classmates to "Ditch JUUL." Will you join them?

For help with quitting e-cigarettes, visit thetruth.com/quit or text DITCHJUUL to 88709 for free, anonymous resources.

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