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March of Dimes

When Germana Soares was three months pregnant, she went to see her doctor.

She was worried, as any expectant mother would be, because she had an itchy rash across her body. But since itchiness was her only symptom, her doctor simply treated her for allergies and sent her home with some medication.

It seemed to work.


Four days later, her rash had cleared up, and she stopped worrying. The rest of her pregnancy progressed relatively normally.

But when her son was born, the doctor noticed something wasn’t quite right.

Her son's head was slightly smaller than it should be, and it was a little asymmetrical, with the left side somewhat smaller than the right. Remembering her rash from months prior, her doctor ordered a series of tests.

Her son was diagnosed with microcephaly.

This condition not only causes a baby’s head to be smaller than normal, but it can also cause a number of other lifelong health problems, including intellectual and developmental disabilities. And in Soares' case, it was likely caused by a Zika virus infection (transmitted by an Aedes aegypti mosquito) while she was pregnant.

A mother in Recife, a city in Pernambuco, Brazil, holding her child with microcephaly in May 2016. Photo by Mario Tama/Getty Images.

Microcephaly is usually considered a relatively rare neurological condition, but in Brazil at that time — especially in the northeastern state of Pernambuco where Soares lives — it wasn’t. In fact, her state was at the center of a Zika pandemic that hit South America between 2015 and 2016, and it saw a huge spike in the number of microcephaly cases as a result.

By Dec. 12, 2015, Pernambuco had reported 874 cases of microcephaly — more than any other region in the country.

Soares and her husband were afraid when they got the news.

They were scared of prejudice and discrimination, she says through a translator. They were so scared that they decided they would have to hide their son’s illness from the world. They thought it was the only way they could protect him from the kids who might pick on him, the adults who might make assumptions about him, and the society that might exclude him simply because he was born different.

But when Soares took her son to his one-month doctor appointment, something wonderful happened: She met Gleise Kelly, another mother of a baby with microcephaly, and they became friends.

They talked about their babies, how they both felt alone against the world, and how they felt misunderstood. Just talking to another person who was going through a similar experience helped them both feel so much better.

And then, over the next few months as they went to the doctor, they started meeting other moms too. They all exchanged phone numbers to continue their discussions outside the waiting room. They set up a chat group on a phone app called WhatsApp.

But Soares and Kelly wanted to go one step further, so they created the Facebook group União Mães de Anjos — the Union of Mothers of Angels.

Soares and four other mothers from the União Mães de Anjos. Image via the União Mães de Anjos Facebook page, used with permission.

The Facebook group started with just eight mothers, Soares says, but within two months, they had 200. Today, about 400 mothers across Pernambuco have joined.

The page became a way to share stories and to get advice on how to cope with the disease and with prejudice. It became a place to ask questions, a place to share resources, and an emotional support group. But slowly, the group also transformed into a way for them to make themselves known to the rest of the community — a community they felt wasn’t accepting of them or their children.

“I won’t sit around,” Soares says through the translator. “I am going to do everything I can to fight for my child’s future and I am not going to just wait for people to include him in society.” And the entire group of mothers feels the same way.

A group photo of some of the União Mães de Anjos mothers and their children. Image via the União Mães de Anjos Facebook page, used with permission.

União Mães de Anjos became their way to raise awareness about microcephaly and to fight for inclusion on behalf of their children. It gave them a voice.

And it worked. Their group started getting attention in the local press, and the mayor of Pernambuco reached out to them to organize a meeting so that he could better understand what they were going through and what the government could do to help them.

The meeting has now turned into a weekly phone call or in-person meeting, allowing the mothers to advocate on behalf of their children. And Soares says she has begun to see results. For example, there are now more neurologists working in the state to support them.

They also receive donations of diapers, food, and clothes, and the group distributes those across the state.

Of course, there is still work to be done.

Fighting prejudice doesn’t happen overnight, Soares says. Instead, you have to work at fighting it from the ground up — starting inside homes and schools — so that change can happen naturally.

“People should respect everyone’s children. They are human beings. They did not choose to be born this way — they are all victims of an illness that was unknown at the time,” she says. “Everyone thinks things will never happen to them — only to others. That is, until it actually does [happen to you].”

Germana Soares and her son Guilherme. Image via Germana Soares, used with permission.

Soares' son is now 18 months old, and while he shows some motor skill developmental delays due to his microcephaly, he is showing improvement every day thanks to some early stimulation and therapy.

Microcephaly exists and it isn’t going away just because people are uncomfortable with it, Soares says. The best thing they can do is raise awareness of it, help those that need it, and fight prejudice so that every child gets the respect and acceptance they deserve.

Photo courtesy of Girls at Work

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Girls are bombarded with messages from a very young age telling them that they can’t, that is too big, this is too heavy, those are too much.

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Pop Culture

Artist uses AI to create ultra realistic portraits of celebrities who left us too soon

What would certain icons look like if nothing had happened to them?

Mercury would be 76 today.

Some icons have truly left this world too early. It’s a tragedy when anyone doesn’t make it to see old age, but when it happens to a well-known public figure, it’s like a bit of their art and legacy dies with them. What might Freddie Mercury have created if he were granted the gift of long life? Bruce Lee? Princess Diana?

Their futures might be mere musings of our imagination, but thanks to a lot of creativity (and a little tech) we can now get a glimpse into what these celebrities might have looked like when they were older.

Alper Yesiltas, an Istanbul-based lawyer and photographer, created a photography series titled “As If Nothing Happened,” which features eerily realistic portraits of long gone celebrities in their golden years. To make the images as real looking as possible, Yesiltas incorporated various photo editing programs such as Adobe Lightroom and VSCO, as well as the AI photo-enhancing software Remini.

“The hardest part of the creative process for me is making the image feel ‘real’ to me,” Yesiltas wrote about his passion project. “The moment I like the most is when I think the image in front of me looks as if it was taken by a photographer.”

Yesiltas’ meticulousness paid off, because the results are uncanny.

Along with each photo, Yesiltas writes a bittersweet message “wishing” how things might have gone differently … as if nothing happened.
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All images provided by Adewole Adamson

It begins with more inclusive conversations at a patient level

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Adewole Adamson, MD, of the University of Texas, Austin, aims to create more equity in health care by gathering data from more diverse populations by using artificial intelligence (AI), a type of machine learning. Dr. Adamson’s work is funded by the American Cancer Society (ACS), an organization committed to advancing health equity through research priorities, programs and services for groups who have been marginalized.

Melanoma became a particular focus for Dr. Adamson after meeting Avery Smith, who lost his wife—a Black woman—to the deadly disease.

melanoma,  melanoma for dark skin Avery Smith (left) and Adamson (sidenote)

This personal encounter, coupled with multiple conversations with Black dermatology patients, drove Dr. Adamson to a concerning discovery: as advanced as AI is at detecting possible skin cancers, it is heavily biased.

To understand this bias, it helps to first know how AI works in the early detection of skin cancer, which Dr. Adamson explains in his paper for the New England Journal of Medicine (paywall). The process uses computers that rely on sets of accumulated data to learn what healthy or unhealthy skin looks like and then create an algorithm to predict diagnoses based on those data sets.

This process, known as supervised learning, could lead to huge benefits in preventive care.

After all, early detection is key to better outcomes. The problem is that the data sets don’t include enough information about darker skin tones. As Adamson put it, “everything is viewed through a ‘white lens.’”

“If you don’t teach the algorithm with a diverse set of images, then that algorithm won’t work out in the public that is diverse,” writes Adamson in a study he co-wrote with Smith (according to a story in The Atlantic). “So there’s risk, then, for people with skin of color to fall through the cracks.”

Tragically, Smith’s wife was diagnosed with melanoma too late and paid the ultimate price for it. And she was not an anomaly—though the disease is more common for White patients, Black cancer patients are far more likely to be diagnosed at later stages, causing a notable disparity in survival rates between non-Hispanics whites (90%) and non-Hispanic blacks (66%).

As a computer scientist, Smith suspected this racial bias and reached out to Adamson, hoping a Black dermatologist would have more diverse data sets. Though Adamson didn’t have what Smith was initially looking for, this realization ignited a personal mission to investigate and reduce disparities.

Now, Adamson uses the knowledge gained through his years of research to help advance the fight for health equity. To him, that means not only gaining a wider array of data sets, but also having more conversations with patients to understand how socioeconomic status impacts the level and efficiency of care.

“At the end of the day, what matters most is how we help patients at the patient level,” Adamson told Upworthy. “And how can you do that without knowing exactly what barriers they face?”

american cancer society, skin cacner treatment"What matters most is how we help patients at the patient level."https://www.kellydavidsonstudio.com/

The American Cancer Society believes everyone deserves a fair and just opportunity to prevent, find, treat, and survive cancer—regardless of how much money they make, the color of their skin, their sexual orientation, gender identity, their disability status, or where they live. Inclusive tools and resources on the Health Equity section of their website can be found here. For more information about skin cancer, visit cancer.org/skincancer.

Pop Culture

'90s kids share movies that will 'take you back to a better time'

It was a magical time when animals played sports and yet somehow things were just simpler.

YouTube/Upworthy photo illustration

Honey, I shrunk the kid named Matilda while jamming in space!

Everyone knows that '90s movies just hit different. From sports movies to rom-coms to even horror, there was an undeniable innocence, without being overly simplistic or juvenile. They didn’t have nearly the amount of money going into production as they do today, but somehow managed to transport us to magical places.

Movies of the '90s are so iconic that there have been several attempts to reboot beloved titles. Which, let’s face it, tends to be a fool's errand at a cash grab. These movies are so timeless that simply viewing the original is more than fine.

Not sure which movie to start with? You’re in luck—a Reddit user by the name of YouBrokeMyTV asked ’90s kids to share movies that took them “back to a better time,” and because the internet can be a wonderful place, tons of people responded with some beloved classics.

These answers certainly don’t make a definitive list (there are just so, so many gems) but they're a fun glimpse into what made '90s cinema so special. A nostalgic romp through memory lane, if you will.

Enjoy these 14 titles that just might leave you jonesing for a rewatch:

1. "Honey, I Shrunk the Kids"

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A perfect example of how '90s movies were silly, but smart at the same time. And oh so wholesome.

2. "The Sandlot"

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It taught us nothing about baseball, but everything about friendship, rooting for the underdog and (most important) how to make s’mores.

3. "Drop Dead Fred"

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Critics might have run this cult classic through the mud during its inception, but audiences fell in love with the bizarre charm of this story about a mischievous little girl and her anarchist imaginary friend. So take that, snotfaces!

4. "The Goonies"

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Everyone just wanted to set off an epic quest with their friends for pirate treasure after seeing this movie.

5. Tim Burton's "Batman"

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Before the superhero genre was the behemoth it is today, a quirky director and the dude who was best known for playing the creepy demon in "Beetlejuice" breathed new life into comic-book movies. Marvel might be the leader on creating stories with adult themes that are digestible for kids nowadays, but this DC film was the first of its kind. Plus, that soundtrack … forget about it.

6. "Hook"

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Pretty much any '90s film starring Robin Williams was an absolute gem, but this one in particular is timeless. His gift of balancing childlike humor with emotional gravitas lent itself so well to playing the now grown and cynical Peter Pan, who must learn to reclaim his joy (relatable, millennials?). It was a bang-a-rang-er, no question.

7. "Space Jam"

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It had Looney Tunes, it had aliens and it had Michael Jordan. That’s a winning combination.

8. "Matilda"

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I don’t think I’m out of line when I say that this movie helped a lot of kids make their way through difficult childhoods.

9. "The Parent Trap"

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Even '90s reboots were awesome. And how fun it is to see that Lisa Ann Walker—the actress who played Chessy the housekeeper—is not only yet again gracing the screens in NBC’s “Abbott Elementary,” but is also being revered as a style icon on TikTok for her ultra casual looks in the film. We all knew she was onto something with long button downs and shorts.

10. "The Land Before Time"

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No cartoon, not even “The Lion King,” was a better depiction of childhood grief. And yet, despite encapsulating tragedy, director Don Bluth still left viewers hopeful. The subsequent 14 (yes 14) sequels definitely pale in comparison to the original, but "The Land Before Time" continues to stand the test of time nonetheless.

11. "Richie Rich"

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The scene where they play tag on four-wheelers is simply iconic.

12. "Dunston Checks In"

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Man, the '90s were the golden age of animal-centered films. And not just monkeys either—we got sports playing golden retrievers and not one, but two movies starring talking pigs. What a time to be alive. These films were made before CGI had reached the levels it’s at today, and the authentic interactions between humans and creatures reached right through the screen.

13. "George of the Jungle"
george of the jungle, brendan faser

Watch out for the tree!!!

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Have I seen this movie at least 20 times? Probably. It doesn’t get any better than this in terms of silly action films with bird puppets. It’s crazy to think that this role would eventually lead Brendan Fraser to "The Mummy" franchise, turning him into a household name. Though his career has had some tragic ups and downs, we are all grateful for the glorious comeback he’s been having.

14. Anything involving Mary-Kate and Ashley Olsen
mary kate and ashley

Yes, they were professional detectives.

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Whether vacationing in London, Paris or Rome, whether playing magical witches or making a huge billboard so their father could find love … Mary-Kate and Ashley Olsen offered zany, whimsical entertainment while wearing fun outfits. Sometimes, that’s all you need.

Joy

Nurse turns inappropriate things men say in the delivery room into ‘inspirational’ art

"Can you move to the birthing ball so I can sleep in the bed?"

Holly the delivery nurse.

After working six years as a labor and delivery nurse Holly, 30, has heard a lot of inappropriate remarks made by men while their partners are in labor. “Sometimes the moms think it’s funny—and if they think it’s funny, then I’ll laugh with them,” Holly told TODAY Parents. “But if they get upset, I’ll try to be the buffer. I’ll change the subject.”

Some of the comments are so wrong that she did something creative with them by turning them into “inspirational” quotes and setting them to “A Thousand Miles” by Vanessa Carlton on TikTok.

“Some partners are hard to live up to!” she jokingly captioned the video.

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