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3 important tips from a former congressional staffer on how to get your voice heard.

I started working as a congressional staffer in 2009. I was 22.

I had no previous government or civic service experience, but I was idealistic and wanted to show the constituents of my district that their voices mattered.

I spent the next six years working for two members of Congress, mostly listening to stories from hundreds of people with diverse backgrounds.


My day-to-day responsibilities included answering phone calls, writing letters and emails, meeting with advocacy groups, and helping individual people navigate the federal government system. It was a mentally and emotionally challenging job, but it was also one of the most rewarding things I’ve done in my life. It taught me the power of an individual story and the serious duty of a congressional representative.

Photo by Chip Somodevilla/Getty Images.

It’s been two years since I worked as an aide, but I’m still pretty involved in politics. After the election results came in on Nov. 8, I was devastated.

I spent the next two days in bed or on my couch, reeling from the unexpected results. Donald Trump’s victory wasn’t what I’d expected. It felt like a more serious blow than any of the other political losses I’d seen throughout my career.

But then I woke up on Friday, Nov. 11, ready to take action. I saw my friends talking about their desire to stand against policies that would be harmful to their families and their friends' families.

Photo by Photo by Scott Olson/Getty Images.

I posted a series of tweets, drawing from the knowledge I had as a former congressional staffer, to show how impactful a group of citizens can be when they all work together for a cause.

I outlined which specific actions would be effective. I explained how to best leverage your voice so you can be heard. Since then, those tweets have been seen nearly 24 million times on Twitter, with millions more views in articles on Facebook, Tumblr, and LinkedIn.

But there is so much more you can do, so much more that I didn’t include in those tweets.

Here’s what you need to know about taking action now against policies that could harm your loved ones once Trump takes office. It’s not enough anymore to vote once every two or four years. It’s not enough to expect that your representative will know your opinion. Now, we must make our voices heard.

Photo by Chip Somodevilla/Getty Images.

1. Research your elected officials.

Websites such as whoismyrepresentative.com allow you to put in your ZIP code and find your representatives in Congress. It’s an easy step to take, and it ensures that you’ll know who your federal, state, and local elected officials are when you need to make your voice heard. If it’s helpful to you, put their numbers in your phone. Get a general sense of who they are by reading their websites. Figure out what committees they are on and which issues matter most to them.

If you’re unclear about the different roles of the House of Representatives and the Senate, do some internet research or visit your local library and speak to a librarian. Librarians are the masters of research and can help you find the resources you need.

Photo by Jason Redmond/AFP/Getty Images.

2. Identify your key issues and get active.

Local advocacy groups and citizen lobbyist groups are powerful in the way they combine resources and forces to educate and speak out. While you might feel like your individual voice gets lost in the crowd — remember that elected officials can represent hundreds of thousands or even millions of constituents — a large group of people speaking together will be heard. Advocacy groups such as the ACLU, the Anti-Defamation League, EMILY’S List, the Native American Rights Fund, RAINN, and many others create legislative priorities at the beginning of each session. They do research and activism on a variety of issues coming before Congress, and they can use your money as well as your time.

Getting on their political action lists means you’ll know when important legislation is coming and who to call in your state and federal government.

3. Get comfortable with the phone.

The most effective tool for advocacy is still the telephone. It works because it’s immediate and personal. The staffer on the other end of the phone needs to answer your questions and take your comments immediately. I know — I’ve been on the other side of the phone. And I can promise that with enough calls, the representative’s staff will understand that there’s a problem. They’ll know they need to take action or make a statement.

If you’ve never called your reps before, you may wonder what to say. If your phone phobia is such that you need a script, go ahead and either write one or borrow one from an advocacy group. But do not underestimate the power of your own personal story.

I received a tweet that asked if staffers were used to listening to sobbing, emotional people. The answer is yes. I’ve cried on the phone with a constituent before — more than once, actually. I always kept a box of tissues by my desk, and I listened to stories that affected me profoundly. Those messages were the ones I made sure my boss heard. So, be authentic with the person on the other end of the phone about how you are feeling. They need to know how they can represent you. Your story is more important than the nitty-gritty details of how legislation works.

Photo via iStock.

However you choose to reach out to your representative, know that each message, letter, and phone call is important.

For the next few years, your activism will mean more than it ever has before.

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Three women, three MS journeys: How multiple sclerosis looks different for everyone

Gina, Nathalie and Helga share their reactions to being diagnosed with MS and how they stay informed and positive in the face of ever-changing symptoms.

Courtesy of Sanofi

Helga, Nathalie and Gina all have MS, and their experiences show how differently the disease can manifest.

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It’s been 155 years since neurologist Jean-Martin Charcot gave the first lecture on a mysterious progressive illness he called “multiple sclerosis.” Since then, we’ve learned a lot. We know MS causes the immune system to attack healthy tissue, including damaging the brain and spinal cord. Resulting symptoms can be debilitating and include fatigue, blurred vision, memory problems and weakness. Huge advancements in our understanding of MS and its underlying causes, as well as treatment advances, have been made in the past few decades, but MS remains a complex and unpredictable reality for the 2.8 million+ people diagnosed around the world.

Ironically, the only real constant for people living with MS is change. There’s no set pattern or standard progression of the disease, so each person’s experience is unique. Some people with MS have mild symptoms that worsen slowly but sometimes improve, while others can have severe symptoms that drastically alter their daily lives.

All people with MS share some things in common, however, such as the need to stay informed on the ever-evolving research, find various lines of support and try to remain hopeful as they continue living with the disease.

To better understand what navigating life with MS really looks like, three women shared their MS stories with us. Their journeys demonstrate how MS can look different for different people and interestingly, how the language used to talk about the disease can greatly impact how people understand their realities.

woman with horse, woman riding horseGina loves riding her horse, Benita.Courtesy of Sanofi

Gina—Hamburg, Germany (diagnosed with relapsing multiple sclerosis in 2017)

When her youngest son was 4 months old, Gina started having problems with her eye. She’d soon learn she was experiencing optic neuritis—her first symptom of MS.

“Immediately after the diagnosis, I looked up facts on MS because I didn’t know anything about it,” Gina says. “And as soon as I knew what could really happen with this disease, I actually got scared.”

As her family’s primary income provider, she worried about how MS would impact her ability to work as a writer and editor. Her family was afraid she was going to end up in a wheelchair. However, for now, Gina’s MS is managed well enough that she still works full-time and is able to be active.

“When I tell somebody that I have MS, they often don't believe me the first time because I don't fulfill any stereotypes,” she says.

Overwhelmed by negative perspectives on living with MS, Gina sought support in the online MS community, which she found to be much more positive.

“I think it’s important to use as many positive words as you can when talking about MS.” It’s important to be realistic while also conveying hope, she says. “MS is an insidious disease that can cause many bad symptoms…that can be frightening, and you can't gloss over it, either.”

To give back to the online community that helped her so much, Gina started a blog to share her story and help others trying to learn about their diagnosis.

Though she deals with fatigue and cognitive dysfunction sometimes, Gina stays active swimming, biking, riding horses and playing with her sons, who are now 11 and 6.

Cognitive dysfunction is common in MS, with over half of people affected. It can impact memory, attention, planning, and word-finding. As with many aspects of MS, some people experience mild changes, while others face more challenges.

Gina says that while there’s still a lot of education about MS needed, she feels positive about the future of MS because there’s so much research being done.

woman in wheelchair holding medal, woman rowingNathalie is an award-winning rower with multiple international titles.Courtesy of Sanofi

Nathalie — Pennes Mirabeau, France (diagnosed with relapsing-remitting multiple sclerosis in 2002)

Nathalie was a teenager and a competitive athlete when she noticed her first symptoms of MS, but it would take four years of “limbo” before she was diagnosed.

“Ultimately, the diagnosis was more of a relief, than a shock,” she says. “Because when you have signs and you don’t know why, it’s worse than knowing, in the end, what you have.”

However, learning more about the disease—and the realities of disease progression—scared her.

“That glimpse of the future was direct and traumatic,” she says. Her neurologist explained that the disease evolves differently for everyone, and her situation might end up being serious or very mild. So, she decided to stop comparing herself to others with MS.

She said to herself, “We’ll see what happens, and you’ll manage it bit by bit.”

By 2005, Nathalie’s MS had progressed to the point of needing a wheelchair. However, that has not dampened her competitive spirit.

Nathalie began her international rowing career in 2009 and has won multiple world titles, including two Paralympic medals—silver in London and bronze in Tokyo. Now, at 42, she still trains 11 times a week. Fatigue can be a problem, and sometimes hard workouts leave her with muscle stiffness and shaking, but she credits her ongoing sports career for helping her feel in tune with her body’s signals.

“Over the years, I’ve learned to listen to my body, letting my body guide when I need to stop and take breaks,” she says.

Nathalie explains that she used to only look backwards because of the initial shock of her diagnosis. In time, she stopped thinking about what she couldn’t do anymore and focused on her future. She now lives in the following mindset: “Even when doors close, don’t miss out on those that open.” Instead of focusing on what she can’t do, she focuses on the opportunities she still has. Right now, this includes her training for the 2024 Paralympic Games in Paris, where she will compete for another rowing medal.

“I only go forward,” she says. “Well, I try, anyway…It’s easy to say, it’s not always easy to do. But that’s what I try to do.”

woman exiting water after swimming, woman with great daneHelga's Great Dane has become a helpful and beloved companion.Courtesy of Sanofi

Helga—Johannesburg, South Africa (diagnosed with relapsing multiple sclerosis in 2010)

When Helga first started having balance issues and numbness in her feet, she chalked it up to her training as a runner. But when the numbness moved to her face, she knew something was wrong. She never guessed it was MS.

“When I was diagnosed, I felt completely overwhelmed and clueless,” Helga says. “I felt that I had nowhere near enough information. I did not know anything about the disease…I had no idea that it was going to be a process of continually monitoring and adjusting your lifestyle.”

In the beginning, Helga’s symptoms developed slowly, and she didn’t appear ill to others. She was even able to run for a few years after her diagnosis, but she couldn’t do marathons anymore, and she began to fall frequently due to balance issues and right-foot dragging. Then her cognition issues became more problematic, especially in her job as a trainer in a printing company.

“My executive function, decision-making and short-term memory were affected to the point that I was eventually medically unfit for work,” she says. She stopped working in 2017.

However, she didn’t stop living life. Even though she could no longer run, she continued to swim competitively. She got a Great Dane puppy and trained him as a service dog to help her walk. She also serves as vice chair of the patient support organization Multiple Sclerosis South Africa, and she advises others who have been diagnosed to join a patient advocacy group as soon as possible to get reliable information and meet others with MS.

Helga says she is “hopeful” about the future of MS. “I must say that I am so grateful that we have all the new medications available, because my life would not be the same if it wasn't for that,” she adds.

Part of how she manages her MS is by looking at the positives.

“If I could tell the world one thing about MS, it would be that MS is an incurable disease of the nervous system, but it's also the greatest teacher of valuing your health, family, friends, and managing change in your life,” she says. “My life is diversified in a way that I never, ever thought it would, and MS has been honestly the greatest teacher.”

Each MS journey is unique – with each person impacted experiencing different struggles, successes, and feelings as they manage this unpredictable disease. But the common thread is clear – there is a critical need for information, support, and hope. We are proud to participate in World MS Day and share these incredible stories of living life while living with MS. To learn more about MS, go to https://www.sanofi.com/why-words-really-matter-when-it-comes-to-multiple-sclerosis.

MAT-GLB-2301642-v1.0-05/2023

This article was sponsored by Sanofi. Participants were compensated when applicable.

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