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The brilliant way this woman brought the Women's March to the disabled community.

'People who are disabled are here and we can help in a million ways, especially with Internet access. Do not write us off as less-than or incapable.'

Sonya Huber, a professor at Fairfield University, very much wanted to attend the Women's March in Washington, D.C., on January 21. Her autoimmune diseases, however, posed a problem.

While she can walk, the diseases take a toll on her energy, and she fears exhaustion after extensive mobility would overtake her. And she's not alone. 22% of American adults are living with a disability, and 13% of adults have trouble with mobility.

Even though a record-shattering number of people with a disability are expected to attend the Women's March (perhaps the most in United States history), that shouldn't prevent the countless others who want to show their support, but physically can't make it happen.


So Huber, along with a few like-minded individuals, decided to create a virtual march for activists for whom the Women's March proved inaccessible.

Image via Disability March.

"I think that especially with big marches, the logistics of getting in and out of a city can be prohibitive," writes Huber in an email, although she believes the Women's March has been very active and responsive in terms of marchers' needs.

Their mission is the same as the Women's March, part of which states "in the spirit of democracy and honoring the champions of human rights, dignity, and justice who have come before us, we join in diversity to show our presence in numbers too great to ignore."

Participants are signing up on the Disability March website by entering their names, a photo, and a short explanation of why they're marching.

When she was younger and had more mobility, Huber admits she didn't always give the disabled community the consideration it deserves. Of course that changed when she herself became disabled.

Image via Sonya Huber.

"I struggled for a long time with putting myself in that category because social stigma and fear makes that category seem something separate and very hard," Huber wrote in her Disability March bio. "Hello, ableism and internalized ableism."

Today, she knows all too well how much that stigma negatively affects the disabled community and has thus made it her mission to turn it around.

"People who are disabled are here and we can help in a million ways, especially with Internet access," wrote Huber. "Do not write us off as less-than or incapable."

The response they've received from the disabled community has been overwhelming, which proves people were indeed looking for an accessible activist outlet.

Participants have been asked to tweet messages of solidarity using the hashtag #DisabilityMarch and direct tweets at elected officials explaining why better health care matters to them. Their goal is to make themselves as visible as possible — virtually speaking.

in solidarity from the global south, #WomensMarch #MarchingForward #DisabilityMarch

A photo posted by Shahana Hanif🍌🍌🍌 (@sha.banana) on

The Disability March is a reminder to allies as well as elected officials that the disabled community has a voice and deserves a space in protest movements.

In the next four years, there will likely be many more calls to action and moments of protest, and accessibility should be a key consideration of those organizing.

As is evident by the Disability March, and the many other disabled activist movements currently taking shape around the country, people living with disabilities are just as capable of fighting for their rights as anyone else. Just because some of them may need to do it from home doesn't mean their action will be any less effective or should be taken any less seriously.

Sometimes, in the rush to get a movement organized, the disabled community gets left out or tacked on at the end as an afterthought. At a time when their rights may be among those most threatened, they should be at the center of activist agendas, not the outskirts.

As the conclusion of the Women's March mission states, "We stand together, recognizing that defending the most marginalized among us is defending all of us."

Pop Culture

Artist uses AI to create ultra realistic portraits of celebrities who left us too soon

What would certain icons look like if nothing had happened to them?

Mercury would be 76 today.

Some icons have truly left this world too early. It’s a tragedy when anyone doesn’t make it to see old age, but when it happens to a well-known public figure, it’s like a bit of their art and legacy dies with them. What might Freddie Mercury have created if he were granted the gift of long life? Bruce Lee? Princess Diana?

Their futures might be mere musings of our imagination, but thanks to a lot of creativity (and a little tech) we can now get a glimpse into what these celebrities might have looked like when they were older.

Alper Yesiltas, an Istanbul-based lawyer and photographer, created a photography series titled “As If Nothing Happened,” which features eerily realistic portraits of long gone celebrities in their golden years. To make the images as real looking as possible, Yesiltas incorporated various photo editing programs such as Adobe Lightroom and VSCO, as well as the AI photo-enhancing software Remini.

“The hardest part of the creative process for me is making the image feel ‘real’ to me,” Yesiltas wrote about his passion project. “The moment I like the most is when I think the image in front of me looks as if it was taken by a photographer.”

Yesiltas’ meticulousness paid off, because the results are uncanny.

Along with each photo, Yesiltas writes a bittersweet message “wishing” how things might have gone differently … as if nothing happened.
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All images provided by Adewole Adamson

It begins with more inclusive conversations at a patient level

True

Adewole Adamson, MD, of the University of Texas, Austin, aims to create more equity in health care by gathering data from more diverse populations by using artificial intelligence (AI), a type of machine learning. Dr. Adamson’s work is funded by the American Cancer Society (ACS), an organization committed to advancing health equity through research priorities, programs and services for groups who have been marginalized.

Melanoma became a particular focus for Dr. Adamson after meeting Avery Smith, who lost his wife—a Black woman—to the deadly disease.

melanoma,  melanoma for dark skin Avery Smith (left) and Adamson (sidenote)

This personal encounter, coupled with multiple conversations with Black dermatology patients, drove Dr. Adamson to a concerning discovery: as advanced as AI is at detecting possible skin cancers, it is heavily biased.

To understand this bias, it helps to first know how AI works in the early detection of skin cancer, which Dr. Adamson explains in his paper for the New England Journal of Medicine (paywall). The process uses computers that rely on sets of accumulated data to learn what healthy or unhealthy skin looks like and then create an algorithm to predict diagnoses based on those data sets.

This process, known as supervised learning, could lead to huge benefits in preventive care.

After all, early detection is key to better outcomes. The problem is that the data sets don’t include enough information about darker skin tones. As Adamson put it, “everything is viewed through a ‘white lens.’”

“If you don’t teach the algorithm with a diverse set of images, then that algorithm won’t work out in the public that is diverse,” writes Adamson in a study he co-wrote with Smith (according to a story in The Atlantic). “So there’s risk, then, for people with skin of color to fall through the cracks.”

Tragically, Smith’s wife was diagnosed with melanoma too late and paid the ultimate price for it. And she was not an anomaly—though the disease is more common for White patients, Black cancer patients are far more likely to be diagnosed at later stages, causing a notable disparity in survival rates between non-Hispanics whites (90%) and non-Hispanic blacks (66%).

As a computer scientist, Smith suspected this racial bias and reached out to Adamson, hoping a Black dermatologist would have more diverse data sets. Though Adamson didn’t have what Smith was initially looking for, this realization ignited a personal mission to investigate and reduce disparities.

Now, Adamson uses the knowledge gained through his years of research to help advance the fight for health equity. To him, that means not only gaining a wider array of data sets, but also having more conversations with patients to understand how socioeconomic status impacts the level and efficiency of care.

“At the end of the day, what matters most is how we help patients at the patient level,” Adamson told Upworthy. “And how can you do that without knowing exactly what barriers they face?”

american cancer society, skin cacner treatment"What matters most is how we help patients at the patient level."https://www.kellydavidsonstudio.com/

The American Cancer Society believes everyone deserves a fair and just opportunity to prevent, find, treat, and survive cancer—regardless of how much money they make, the color of their skin, their sexual orientation, gender identity, their disability status, or where they live. Inclusive tools and resources on the Health Equity section of their website can be found here. For more information about skin cancer, visit cancer.org/skincancer.

via Dion Merrick / Facebook

This article originally appeared on 02.09.21


At 1:30 am on Monday morning an AMBER Alert went out in southern Louisiana about a missing 10-year-old girl from New Iberia. It was believed she had been kidnapped and driven away in a 2012 silver Nissan Altima.

A few hours later at 7 am, Dion Merrick and Brandon Antoine, sanitation workers for Pelican Waste, were on their daily route when they noticed a vehicle that fit the description in the alert.

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Joy

Nurse turns inappropriate things men say in the delivery room into ‘inspirational’ art

"Can you move to the birthing ball so I can sleep in the bed?"

Holly the delivery nurse.

After working six years as a labor and delivery nurse Holly, 30, has heard a lot of inappropriate remarks made by men while their partners are in labor. “Sometimes the moms think it’s funny—and if they think it’s funny, then I’ll laugh with them,” Holly told TODAY Parents. “But if they get upset, I’ll try to be the buffer. I’ll change the subject.”

Some of the comments are so wrong that she did something creative with them by turning them into “inspirational” quotes and setting them to “A Thousand Miles” by Vanessa Carlton on TikTok.

“Some partners are hard to live up to!” she jokingly captioned the video.

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