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Democracy

With war on their doorstep, Romanians are rushing to help their Ukrainian neighbors

With war on their doorstep, Romanians are rushing to help their Ukrainian neighbors
All photos courtesy Balu Gaspar

On the eastern Romania-Ukraine border, volunteers help refugees find their way.

We slam the trunk of our van and hit the road toward Bucharest. We’ll spend the night and continue east toward the border with Ukraine tomorrow morning. I’m lucky to have friends who are up for most anything at a moment’s notice. It was just yesterday we started discussing a trip to one of the refugee camps on the Romania-Ukraine border. Now we’re on our way.

Only a few weeks earlier, I’d been on a bus heading toward our region’s immigration office when I learned that the war had started. As an American expat, I needed to renew my Romanian visa, and now, the unimaginable has happened. On the TVs in the office, the bombarded apartment blocks look just like where I’ve been living the past four years.


Since the war in Ukraine began, it’s been unsettling trying to go about life as normal.

While day-to-day activities continue relatively undisturbed by the chaos unfolding over the border, when I see footage of bombed neighborhoods or families crossing the borders into countries foreign to them, or civilians suddenly turning into soldiers, I am overwhelmed by this unshakeable awareness: It could be us.

The day before my friends and I leave for the border, the Ukrainian president Volodymyr Zelenskyy offered this grave encouragement to protesters in Europe: “Do not be silent. Support Ukraine. Because if Ukraine does not survive, the whole of Europe will not survive. If Ukraine falls, the whole of Europe will fall.”

The place and circumstances into which you are born can make all the difference in the world in times like these. While Romanian officials reassure the public that Romania is not likely to be under direct attack anytime soon, there is still an overwhelming sense among the population that anything is possible.

Many people start to prepare in case of power outages or food shortages. We fill empty bottles with tap water and pack bags we can grab and go if the need arises. And I’m sure I’m not the only one who pulled open the door to my apartment block’s basement to make sure that it was unlocked and accessible.

Romanians are risking their own safety to help their neighbors in Ukraine.

Ukraine is big enough that it wraps around Moldova, our Romanian-speaking neighbors, and thus shares two separate borders with Romania: a sizable one to the north and a smaller, nearly forgotten one to the east, 300 kilometers away from Odessa. It is toward this smaller border that we are heading.

Our contact in Tulcea is the pastor of a Baptist church who has become heavily involved in working with refugees at the border crossing in Isaccea. We drop off some money to him that was raised by one of the churches in our valley, and he directs us toward the biggest needs that we might work toward fulfilling.

Pastor Adrian Dordea and his wife Lidia explain the situation at the border. The vast majority of refugees are in transit toward other countries and some toward other regions of Romania, so there is a constant flow of people that need housing, transportation and basic provisions. They tell us that hundreds of people arrive on a single ferry—sometimes upwards of 700 refugees arriving at one time. The majority come on foot, either abandoning their cars on the side of the road before reaching the border, or not having one to begin with.

When the refugees arrive, many are quite nervous or afraid of what awaits them in this foreign country. Many do not speak English, let alone Romanian. Many are women who are traveling alone or with their children. And, as Dordea explains, unfortunately their fears are not unfounded. Human trafficking is a major issue in wartime, and there have already been reports of people disappearing. For this reason, all the organizations involved at the border are striving for complete transparency. Nothing is done without the knowledge of the local authorities, and personal data of both refugees and volunteers is meticulously recorded.

The church is housing refugees in transit at several locations, offering them a warm place to stay, a hot meal and money for the road. They help coordinate the refugees’ journeys onward and they send volunteers to man tents at the border. They are starting to send missions across the border, bringing blankets and food to the hundreds waiting in line to cross into Romania, or even rescuing people from Odessa who are unable to make the journey alone. It is apparent that they are exhausted by the sheer amount of work to be done. The pastor shrugs modestly, explaining in the simplest possible terms, “We help with what we can.”

Romanians are using social media platforms like Facebook to organize relief efforts.

And they’re not the only ones. When we get to the border, we’re handed bright vests by the previous shift of volunteers and they show us how to manage the provisions tents. They are eager to leave to get some rest, as several of them only got three hours of sleep the night before. Most of them have travelled here from Bucharest. Nearly all of them were strangers before they got connected online, united by the simple desire to do something to help.

“Facebook mobilizes,” one of them tells me. There is a Romanian/Ukrainian Facebook group called Uniti Pentru Ucraina (United for Ukraine) that has burgeoned into more than 250,000 members in less than two weeks. Every day, hundreds of people share resources and information, ask for advice and for help, or offer up empty apartments or rooms to anyone in need. Some posts are merely congratulatory: Ukrainians thanking the Romanians that opened their hearts and homes, or Romanians expressing a regained sense of pride in their own country and the ways their fellow citizens have stepped up to the present situation. In the words of one Romanian poster: “We may not be rich, we may not even be the most civilized, but we share our bread with those in need, and that is more noble than anything.” Motivated by a collective weight of responsibility, as Ukrainians rush to the borders of Romania, Romanians are rushing there too.

My friends and I get to work, giving people tea, coffee, sandwiches, snacks and sweets; toiletries and baby formula; pet carriers and collars; blankets, scarves, gloves and socks; SIM cards and stuffed animals. We are told to encourage people to take as much of whatever they want and to reassure them that it’s all free. Translators bring the refugees to the large, enclosed tents where they can sit down and warm up and talk to someone about their plan, if they have one.

As simple as my job is, it’s overwhelmingly emotional in the first several minutes. It feels surreal and absurd to be handing bags full of cookies, fruit and canned meats to children who have just fled a war zone. How can this be real? But I do my best to smile with them, and soon my mind begins to come to terms with this new reality.

I don’t know at first how to speak with the women. I’m almost embarrassed to ask “how are you?” but I start to realize they are glad for an opportunity to share at least a small part of their stories. Two young women tell me that they waited 30 hours to cross the border. A mother shares that she is here with her 4-year-old daughter who will turn 5 very soon. She had been planning a big party for her, but now here they are. She doesn’t know where she will go. “Most people are wanting to go on to other countries, to Germany or to Poland,” she told me, “but I just want to go home to Ukraine. Every few hours we call our men. We are worried for them, and they are worried for us.” We both shake our heads in disbelief of the life that she is now living.

It’s getting dark when another woman comes to get a sandwich and a tea. Even with limited English, she is anxious to tell us something. “I have a son who is…” she pauses, smiling apologetically as she reviews the numbers in English in her head, counting up from one to… “fourteen. Fourteen years old. I tried to tell him to come with me, but he said ‘no, I am a patriot. I will not leave my country.’” She nods her head with a melancholy sort of pride. “He is a patriot.”

Even when I cannot talk to the people who come for provisions, I feel an overwhelming sense of camaraderie with them all. Oftentimes the only words exchanged are “спасибі” (thank you) and “you’re welcome,” or sometimes we just both place our hands on our hearts and look briefly into each other’s eyes; we know everything that the other wants to say.

When my friends and I leave the camp in the middle of the night, we are no longer thinking “It could be us,” but rather, “It is us.” The borders are dissolving. We are standing side by side and we are connected in more ways than we know.

These hundreds and thousands of souls who have left their homes and crossed borders into unknown places are not engaging in an act of retreat. They are advancing into the rest of Europe, carrying their stories, their resilience and a deep love for their country into the hearts and homes of their neighbors. And around them, all of Europe, and indeed the entire world, unites for their cause.

It is a different kind of front line, but one just as necessary. Ukraine will not fall—it is being fortified in this collision of humanity, and we can be sure that if Ukraine rises, the whole of Europe will rise too.

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Three women, three MS journeys: How multiple sclerosis looks different for everyone

Gina, Nathalie and Helga share their reactions to being diagnosed with MS and how they stay informed and positive in the face of ever-changing symptoms.

Courtesy of Sanofi

Helga, Nathalie and Gina all have MS, and their experiences show how differently the disease can manifest.

True

It’s been 155 years since neurologist Jean-Martin Charcot gave the first lecture on a mysterious progressive illness he called “multiple sclerosis.” Since then, we’ve learned a lot. We know MS causes the immune system to attack healthy tissue, including damaging the brain and spinal cord. Resulting symptoms can be debilitating and include fatigue, blurred vision, memory problems and weakness. Huge advancements in our understanding of MS and its underlying causes, as well as treatment advances, have been made in the past few decades, but MS remains a complex and unpredictable reality for the 2.8 million+ people diagnosed around the world.

Ironically, the only real constant for people living with MS is change. There’s no set pattern or standard progression of the disease, so each person’s experience is unique. Some people with MS have mild symptoms that worsen slowly but sometimes improve, while others can have severe symptoms that drastically alter their daily lives.

All people with MS share some things in common, however, such as the need to stay informed on the ever-evolving research, find various lines of support and try to remain hopeful as they continue living with the disease.

To better understand what navigating life with MS really looks like, three women shared their MS stories with us. Their journeys demonstrate how MS can look different for different people and interestingly, how the language used to talk about the disease can greatly impact how people understand their realities.

woman with horse, woman riding horseGina loves riding her horse, Benita.Courtesy of Sanofi

Gina—Hamburg, Germany (diagnosed with relapsing multiple sclerosis in 2017)

When her youngest son was 4 months old, Gina started having problems with her eye. She’d soon learn she was experiencing optic neuritis—her first symptom of MS.

“Immediately after the diagnosis, I looked up facts on MS because I didn’t know anything about it,” Gina says. “And as soon as I knew what could really happen with this disease, I actually got scared.”

As her family’s primary income provider, she worried about how MS would impact her ability to work as a writer and editor. Her family was afraid she was going to end up in a wheelchair. However, for now, Gina’s MS is managed well enough that she still works full-time and is able to be active.

“When I tell somebody that I have MS, they often don't believe me the first time because I don't fulfill any stereotypes,” she says.

Overwhelmed by negative perspectives on living with MS, Gina sought support in the online MS community, which she found to be much more positive.

“I think it’s important to use as many positive words as you can when talking about MS.” It’s important to be realistic while also conveying hope, she says. “MS is an insidious disease that can cause many bad symptoms…that can be frightening, and you can't gloss over it, either.”

To give back to the online community that helped her so much, Gina started a blog to share her story and help others trying to learn about their diagnosis.

Though she deals with fatigue and cognitive dysfunction sometimes, Gina stays active swimming, biking, riding horses and playing with her sons, who are now 11 and 6.

Cognitive dysfunction is common in MS, with over half of people affected. It can impact memory, attention, planning, and word-finding. As with many aspects of MS, some people experience mild changes, while others face more challenges.

Gina says that while there’s still a lot of education about MS needed, she feels positive about the future of MS because there’s so much research being done.

woman in wheelchair holding medal, woman rowingNathalie is an award-winning rower with multiple international titles.Courtesy of Sanofi

Nathalie — Pennes Mirabeau, France (diagnosed with relapsing-remitting multiple sclerosis in 2002)

Nathalie was a teenager and a competitive athlete when she noticed her first symptoms of MS, but it would take four years of “limbo” before she was diagnosed.

“Ultimately, the diagnosis was more of a relief, than a shock,” she says. “Because when you have signs and you don’t know why, it’s worse than knowing, in the end, what you have.”

However, learning more about the disease—and the realities of disease progression—scared her.

“That glimpse of the future was direct and traumatic,” she says. Her neurologist explained that the disease evolves differently for everyone, and her situation might end up being serious or very mild. So, she decided to stop comparing herself to others with MS.

She said to herself, “We’ll see what happens, and you’ll manage it bit by bit.”

By 2005, Nathalie’s MS had progressed to the point of needing a wheelchair. However, that has not dampened her competitive spirit.

Nathalie began her international rowing career in 2009 and has won multiple world titles, including two Paralympic medals—silver in London and bronze in Tokyo. Now, at 42, she still trains 11 times a week. Fatigue can be a problem, and sometimes hard workouts leave her with muscle stiffness and shaking, but she credits her ongoing sports career for helping her feel in tune with her body’s signals.

“Over the years, I’ve learned to listen to my body, letting my body guide when I need to stop and take breaks,” she says.

Nathalie explains that she used to only look backwards because of the initial shock of her diagnosis. In time, she stopped thinking about what she couldn’t do anymore and focused on her future. She now lives in the following mindset: “Even when doors close, don’t miss out on those that open.” Instead of focusing on what she can’t do, she focuses on the opportunities she still has. Right now, this includes her training for the 2024 Paralympic Games in Paris, where she will compete for another rowing medal.

“I only go forward,” she says. “Well, I try, anyway…It’s easy to say, it’s not always easy to do. But that’s what I try to do.”

woman exiting water after swimming, woman with great daneHelga's Great Dane has become a helpful and beloved companion.Courtesy of Sanofi

Helga—Johannesburg, South Africa (diagnosed with relapsing multiple sclerosis in 2010)

When Helga first started having balance issues and numbness in her feet, she chalked it up to her training as a runner. But when the numbness moved to her face, she knew something was wrong. She never guessed it was MS.

“When I was diagnosed, I felt completely overwhelmed and clueless,” Helga says. “I felt that I had nowhere near enough information. I did not know anything about the disease…I had no idea that it was going to be a process of continually monitoring and adjusting your lifestyle.”

In the beginning, Helga’s symptoms developed slowly, and she didn’t appear ill to others. She was even able to run for a few years after her diagnosis, but she couldn’t do marathons anymore, and she began to fall frequently due to balance issues and right-foot dragging. Then her cognition issues became more problematic, especially in her job as a trainer in a printing company.

“My executive function, decision-making and short-term memory were affected to the point that I was eventually medically unfit for work,” she says. She stopped working in 2017.

However, she didn’t stop living life. Even though she could no longer run, she continued to swim competitively. She got a Great Dane puppy and trained him as a service dog to help her walk. She also serves as vice chair of the patient support organization Multiple Sclerosis South Africa, and she advises others who have been diagnosed to join a patient advocacy group as soon as possible to get reliable information and meet others with MS.

Helga says she is “hopeful” about the future of MS. “I must say that I am so grateful that we have all the new medications available, because my life would not be the same if it wasn't for that,” she adds.

Part of how she manages her MS is by looking at the positives.

“If I could tell the world one thing about MS, it would be that MS is an incurable disease of the nervous system, but it's also the greatest teacher of valuing your health, family, friends, and managing change in your life,” she says. “My life is diversified in a way that I never, ever thought it would, and MS has been honestly the greatest teacher.”

Each MS journey is unique – with each person impacted experiencing different struggles, successes, and feelings as they manage this unpredictable disease. But the common thread is clear – there is a critical need for information, support, and hope. We are proud to participate in World MS Day and share these incredible stories of living life while living with MS. To learn more about MS, go to https://www.sanofi.com/why-words-really-matter-when-it-comes-to-multiple-sclerosis.

MAT-GLB-2301642-v1.0-05/2023

This article was sponsored by Sanofi. Participants were compensated when applicable.

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