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Candid lessons that helped a young, grieving widow learn to live after loss.

When the doctor in the emergency room told Amelia that it was time to say goodbye, she was in disbelief. "How do you even do that?"

family, grief, therapy, education, community
Photo by Julia Caesar on Unsplash

A grieving widow shares lessons on how to live after loss.

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Prudential

This article originally appeared on 02.14.17


Amelia and Manny made clear plans when they got married.

They planned to travel around the world. They planned what they’d want their family and their futures to look like. It was all so normal and real.

And then something they couldn't have planned for happened: Manny unexpectedly passed away soon after they'd tied the knot.


When the doctor in the emergency room told Amelia that it was time to say goodbye, she was in disbelief. "How do you even do that?" she wondered.

Instead of being a young, happy newlywed, Amelia became a young, grieving widow.

It turned her life upside down. In the months that followed, she could barely wake up and get out of bed, let alone put on clothes and walk to work. Every day felt harder than the last while the world continued on around her.

"I wanted so painfully for everything to just stop," Amelia said in an interview for Prudential's Masterpiece of Love series. "I was so tired. I just wanted it to stop." But it didn't stop. Life kept going and so did she, at times reluctantly.

Amelia has come out on the other side of the most difficult journey she could have imagined, and it's taught her a lot about herself, the grieving process, and how often life doesn't go as planned.

In hopes of helping others, Amelia wrote down eight things she learned about living after loss:

1. "Moving on" is a fallacy. Amelia prefers to call it "moving forward."

"Moving on" implies letting your person go, and that's an unrealistic expectation, Amelia wrote.

"Instead, you simply swim through it until the water clears up a little more, until the profundity of the depth is less terrifying, and until it feels a little easier, because you've gotten good at swimming."

Skydiving helped Amelia to commemorate the six-month anniversary of Manny's passing. "I guess some part of me felt like I could get closer to Manny somehow by stepping into the sky," she said.

2. "Try to remain open to life."

Amelia took a chance and met someone again who turned out to be a wonderful man. Having your heart broken again after loss is a nasty slap in the face, she wrote, but you should not let it shut you down.

"Practice kindness and graciousness when others are kind to you," she said, "and compassion when they aren't. That's a good practice for any relationship,."

3. Hers is not a "success story."

The peaceful person Amelia is today has "clawed, gasped, screamed and survived." She fell in love again and had a child, but those are not successes she can claim. She says that getting to raise her baby has been a wonderful blessing, and new life gives loss slightly more perspective. Every day, as her baby learns, she is reminded that life continues.

4. This is a big one: "Release any hostility or jealousy."

"Friends will get married and have children, celebrate anniversaries and successes, all while you are alone in the dark," she wrote. "They will forget to be sensitive to your heartache, or think that you're 'over it' enough so you won't mind if they gush. They might think that it's easier for you to show up with a smile than it really is. Let that go, too."

People are going to say the wrong things. They will say unbelievably tone-deaf things. It's important to not take hurtful words to heart, as hard as that can be. She advises trying to imagine a time when it will be easier to be happy for others again without feeling heartache yourself. Doing this will be healing.

5. "It will take longer than you expect."

Amelia wrote, "Because it doesn't go away, or stop, and because you don't get over it, that old heartache keeps creeping up long after you thought it should have gotten easier. Be compassionate with yourself. Life is not a round trip voyage; why should your grieving process be? You will get better at navigating the new normal."

6. "Only you know what you're really going through."

Amelia points to how well-meaning people will come out of the woodwork, desperate to tell you about when their somebody died, for three reasons:

One, they want to be helpful. Two, society shuns them from talking about their lost loved one and they want you to be a person whom they can commiserate with. Three, see number one.

Some people will say helpful things. But every grief is different. Every relationship is different. Every person who has passed is different, and every grieving person is different. If you grieve in your own way, you're doing it right.

7. "The right partner will actively keep the memory alive with you."

"Be careful not to get so swept up in escaping your grief that you choose someone who wants you to get over it," she wrote. "Don't you dare let anyone take your grief from you."

The right partner will hold your hand on the anniversaries (if that's what you want), will wish that they could have met your person, and will admire how you still love that person today.

8. And finally: "You can do this."

"There may be times you're pretty sure I'm wrong on this point," she wrote. "That's ok, rest when it's too hard. Find something — anything — and hang on like hell. These peaks and valleys gradually get less steep. It takes a long time, but they do. And there is sunshine again out there somewhere."

As many of us know, life often doesn't go according to plan.

It's still hard for Amelia every single day. But she says it also makes her experience things on a deeper level. Whether it’s raindrops on her skin or the feeling of breath going in and out of her lungs, everything is more vivid.

She says Manny's passing has a lot to do with that; he reminds her that every single day is a gift.

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Three women, three MS journeys: How multiple sclerosis looks different for everyone

Gina, Nathalie and Helga share their reactions to being diagnosed with MS and how they stay informed and positive in the face of ever-changing symptoms.

Courtesy of Sanofi

Helga, Nathalie and Gina all have MS, and their experiences show how differently the disease can manifest.

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It’s been 155 years since neurologist Jean-Martin Charcot gave the first lecture on a mysterious progressive illness he called “multiple sclerosis.” Since then, we’ve learned a lot. We know MS causes the immune system to attack healthy tissue, including damaging the brain and spinal cord. Resulting symptoms can be debilitating and include fatigue, blurred vision, memory problems and weakness. Huge advancements in our understanding of MS and its underlying causes, as well as treatment advances, have been made in the past few decades, but MS remains a complex and unpredictable reality for the 2.8 million+ people diagnosed around the world.

Ironically, the only real constant for people living with MS is change. There’s no set pattern or standard progression of the disease, so each person’s experience is unique. Some people with MS have mild symptoms that worsen slowly but sometimes improve, while others can have severe symptoms that drastically alter their daily lives.

All people with MS share some things in common, however, such as the need to stay informed on the ever-evolving research, find various lines of support and try to remain hopeful as they continue living with the disease.

To better understand what navigating life with MS really looks like, three women shared their MS stories with us. Their journeys demonstrate how MS can look different for different people and interestingly, how the language used to talk about the disease can greatly impact how people understand their realities.

woman with horse, woman riding horseGina loves riding her horse, Benita.Courtesy of Sanofi

Gina—Hamburg, Germany (diagnosed with relapsing multiple sclerosis in 2017)

When her youngest son was 4 months old, Gina started having problems with her eye. She’d soon learn she was experiencing optic neuritis—her first symptom of MS.

“Immediately after the diagnosis, I looked up facts on MS because I didn’t know anything about it,” Gina says. “And as soon as I knew what could really happen with this disease, I actually got scared.”

As her family’s primary income provider, she worried about how MS would impact her ability to work as a writer and editor. Her family was afraid she was going to end up in a wheelchair. However, for now, Gina’s MS is managed well enough that she still works full-time and is able to be active.

“When I tell somebody that I have MS, they often don't believe me the first time because I don't fulfill any stereotypes,” she says.

Overwhelmed by negative perspectives on living with MS, Gina sought support in the online MS community, which she found to be much more positive.

“I think it’s important to use as many positive words as you can when talking about MS.” It’s important to be realistic while also conveying hope, she says. “MS is an insidious disease that can cause many bad symptoms…that can be frightening, and you can't gloss over it, either.”

To give back to the online community that helped her so much, Gina started a blog to share her story and help others trying to learn about their diagnosis.

Though she deals with fatigue and cognitive dysfunction sometimes, Gina stays active swimming, biking, riding horses and playing with her sons, who are now 11 and 6.

Cognitive dysfunction is common in MS, with over half of people affected. It can impact memory, attention, planning, and word-finding. As with many aspects of MS, some people experience mild changes, while others face more challenges.

Gina says that while there’s still a lot of education about MS needed, she feels positive about the future of MS because there’s so much research being done.

woman in wheelchair holding medal, woman rowingNathalie is an award-winning rower with multiple international titles.Courtesy of Sanofi

Nathalie — Pennes Mirabeau, France (diagnosed with relapsing-remitting multiple sclerosis in 2002)

Nathalie was a teenager and a competitive athlete when she noticed her first symptoms of MS, but it would take four years of “limbo” before she was diagnosed.

“Ultimately, the diagnosis was more of a relief, than a shock,” she says. “Because when you have signs and you don’t know why, it’s worse than knowing, in the end, what you have.”

However, learning more about the disease—and the realities of disease progression—scared her.

“That glimpse of the future was direct and traumatic,” she says. Her neurologist explained that the disease evolves differently for everyone, and her situation might end up being serious or very mild. So, she decided to stop comparing herself to others with MS.

She said to herself, “We’ll see what happens, and you’ll manage it bit by bit.”

By 2005, Nathalie’s MS had progressed to the point of needing a wheelchair. However, that has not dampened her competitive spirit.

Nathalie began her international rowing career in 2009 and has won multiple world titles, including two Paralympic medals—silver in London and bronze in Tokyo. Now, at 42, she still trains 11 times a week. Fatigue can be a problem, and sometimes hard workouts leave her with muscle stiffness and shaking, but she credits her ongoing sports career for helping her feel in tune with her body’s signals.

“Over the years, I’ve learned to listen to my body, letting my body guide when I need to stop and take breaks,” she says.

Nathalie explains that she used to only look backwards because of the initial shock of her diagnosis. In time, she stopped thinking about what she couldn’t do anymore and focused on her future. She now lives in the following mindset: “Even when doors close, don’t miss out on those that open.” Instead of focusing on what she can’t do, she focuses on the opportunities she still has. Right now, this includes her training for the 2024 Paralympic Games in Paris, where she will compete for another rowing medal.

“I only go forward,” she says. “Well, I try, anyway…It’s easy to say, it’s not always easy to do. But that’s what I try to do.”

woman exiting water after swimming, woman with great daneHelga's Great Dane has become a helpful and beloved companion.Courtesy of Sanofi

Helga—Johannesburg, South Africa (diagnosed with relapsing multiple sclerosis in 2010)

When Helga first started having balance issues and numbness in her feet, she chalked it up to her training as a runner. But when the numbness moved to her face, she knew something was wrong. She never guessed it was MS.

“When I was diagnosed, I felt completely overwhelmed and clueless,” Helga says. “I felt that I had nowhere near enough information. I did not know anything about the disease…I had no idea that it was going to be a process of continually monitoring and adjusting your lifestyle.”

In the beginning, Helga’s symptoms developed slowly, and she didn’t appear ill to others. She was even able to run for a few years after her diagnosis, but she couldn’t do marathons anymore, and she began to fall frequently due to balance issues and right-foot dragging. Then her cognition issues became more problematic, especially in her job as a trainer in a printing company.

“My executive function, decision-making and short-term memory were affected to the point that I was eventually medically unfit for work,” she says. She stopped working in 2017.

However, she didn’t stop living life. Even though she could no longer run, she continued to swim competitively. She got a Great Dane puppy and trained him as a service dog to help her walk. She also serves as vice chair of the patient support organization Multiple Sclerosis South Africa, and she advises others who have been diagnosed to join a patient advocacy group as soon as possible to get reliable information and meet others with MS.

Helga says she is “hopeful” about the future of MS. “I must say that I am so grateful that we have all the new medications available, because my life would not be the same if it wasn't for that,” she adds.

Part of how she manages her MS is by looking at the positives.

“If I could tell the world one thing about MS, it would be that MS is an incurable disease of the nervous system, but it's also the greatest teacher of valuing your health, family, friends, and managing change in your life,” she says. “My life is diversified in a way that I never, ever thought it would, and MS has been honestly the greatest teacher.”

Each MS journey is unique – with each person impacted experiencing different struggles, successes, and feelings as they manage this unpredictable disease. But the common thread is clear – there is a critical need for information, support, and hope. We are proud to participate in World MS Day and share these incredible stories of living life while living with MS. To learn more about MS, go to https://www.sanofi.com/why-words-really-matter-when-it-comes-to-multiple-sclerosis.

MAT-GLB-2301642-v1.0-05/2023

This article was sponsored by Sanofi. Participants were compensated when applicable.

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