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What it's like to have a miscarriage in the social media age.

I waited until I was 12 weeks along to announce my pregnancy to my "web of people" on social media.

"HEY, YOU GUYS. WE'RE HAVIN' A BAYBAY!" was plastered all over my wall, along with some super adorable pregnancy announcement photos my friend snapped a few weeks before. The support and love flew in. The predictions of the sex and the hunt to find the perfect name started. We had just announced our pregnancy to thousands of our friends and family.

Photo by Amy Lynn, used with permission from Rebecca Swift.

We were over the moon excited. And then, two days later, I started bleeding.

I called for my partner, Patrick, from the bathroom with a shaky voice. It wasn't just a dot of blood. It wasn't brown. It was bright red and there was a lot of it. I remember how huge his eyes were.

We both immediately knew this couldn't be right. After friends assured us that a little bleeding is fine and that everything was most likely OK, we called the clinic and set up an appointment for the next morning.

There wasn't any cramping (yet), and we spent the evening scouring Google and WebMD for any answers we could find. The most information we could dig up was from equally worried women begging for answers themselves on random forums. The conversations always started with blood. "What color was it? How much was there? Was there cramping? How far along are you?" But still, this was all speculation and every case seemed to vary, so we looked forward to seeing our doctor as soon as possible.

As we arrived for our appointment the next day, we walked hand-in-hand and attempted to ease the tension with jokes and banter. We opened up the famed Pokemon app our kids had been playing while we waited, and we giggled about finding a Pokemon sitting on the exam table between the stirrups and my legs. We were nervous, but at least we would have answers in the near future.

The doctor came in and we got right down to business. He poured the goop below my stomach, lifted the heart monitor, and placed it down against my skin. Pat and I took a deep breath and waited.

Image via iStock.

I heard a slow heartbeat and almost knocked the doctor over with excitement, and he said "No ... that's your heartbeat." And then, nothing. We couldn't find a beat. The tears immediately started streaming.

We moved into the ultrasound room, and once again, it was confirmed that there was no heartbeat. We cried.

We were shown that the embryo had actually stopped growing at seven weeks. They asked if I wanted the ultrasound picture. I whispered "no."

I learned there are two separate functions in the growth process, and while the fetus growth had halted, the amniotic sac had not, which is why my body continued to think and operate like I was pregnant several weeks after.

Then, I learned there are two options to remove what they now referred to as the "contents of the uterus." I could get a D&C (dilation and curettage), where they surgically open the cervix and remove or "vacuum" out the contents, or let nature run its course. I didn't know much about either, so I didn't decide right away. If I wanted to, I could have the procedure the next morning. I told them I would be in touch.

As we walked out, none of the nurses made eye contact. I have never felt so cold or alone while surrounded by a group of women. I sniffled hard one last time and tried to keep it together.

The rest of the night was a blur. We held each other, told family members and close friends. Then I thought of the thousands of people we told on Facebook. I quickly felt embarrassed. How would I dodge a million questions in parking lots and at parties and over social media over the next few months?  We would think about that later, we decided.

I was told having the D&C procedure was a "pleasant" way to speed up the process and obtain some closure, so we chose to have the procedure and scheduled an appointment for the next day. Then, the cramps started.

It was around 8:30 p.m. when I started feeling the discomfort. These "cramps" were more painful than any period cramping I had experienced. And over the next hour, as they kept coming back, the time in between was shortening from 15 minutes, to 10 minutes, to five minutes...

I decided to sleep it off and mentally prepare myself for the next day. But I couldn't sleep. I was tossing and turning.

The cramps were more painful than ever, and I raised and contorted my pelvis and scrunched into the fetal position to try to suppress it. It was excruciating.

This was more painful than giving birth to either of my two daughters (and, yes, I had pain meds back then). I realized as the cramping grew more frequent and painful, they weren't cramps at all — they were contractions. I was going into labor.

Patrick carried me to the bathtub and we ran a warm bath with Epsom salt. The words of my doctor flashed through my mind: "You may feel pain. You might not. It can happen naturally. You might not even notice."

I winced through the pain, and every time I had a contraction, a wave of blood filled the tub. Patrick held my hand (in between dry heaving into the bathroom sink), and after a half hour of the most pain I've ever experienced in my life, I said "it's coming." And I pushed out a small fluid-filled amniotic sac with a tiny embryo inside. The pain stopped all at once. We could breathe.

Image via iStock.

We didn't know it could happen this way. I didn't know you could go through the pain of childbirth with a miscarriage.

I didn't know how I felt about being 31 and not knowing that this completely natural thing thousands of women go through every single day was physically possible.

How is my body's natural way of flushing out a baby that wasn't going to thrive, and the pain involved, something I had never heard of before?

Even as we had researched our options online, nothing had led us to believe that not immediately having a D&C could leave us in this position. I feel my doctor could have better served me by preparing me for the worse-case scenario, not the best case.

I dried off, tossed on a robe, and scooped up the amniotic sac in my hands. I placed it in a tiny gold jewelry box of my daughter's. It was the best thing I could find at 1 a.m. Somehow it felt to me like a gold encrusted shrine wouldn't have sufficed for this poor little baby. Biased mother, you know.

It rained that night. Patrick and I found an area in our garden in the backyard. He grabbed a shovel and started digging as the rain fell on us. It was serene and quiet out, and I was thankful to have his support and kindness there by my side.

Watching a father-to-be dig a hole and then place a golden box into the dirt — something I thought was going to be our child we would raise for the rest of our lives — was one of the hardest things I have experienced in this lifetime. I was glad it was over.

The next day, I woke up tired, defeated, and sick to my stomach because, although the hard part was over, I still had to admit to the world what had happened.

I like to keep a positive attitude on social media, but I couldn't ignore this. So I trudged over to the computer and laid it all out:

Image via Rebecca Swift.

"It's with a heavy, heavy heart that I share this. Although it's not the preferred platform, you have all been so wonderfully supportive in sharing our happiness. I thought we were in the clear at 12 weeks, but unfortunately our little one didn't make it past that. Thank you so much for the kindness, the love and support, and the thoughts and prayers. It means the world to us."

The thing I was mortifyingly embarrassed to admit and dreaded putting out there quickly became my saving grace. Love surrounded us. The support and the uplifting messages poured in. We didn't feel alone.

Friends and acquaintances from high school and college and all walks of life, husbands of wives who had gone through it themselves, women who had braved the dreaded bathtub scene all reached out to send their love. It felt so good to talk about it. I know a lot of people suffer in silence.

An estimated 1 in 6 pregnancies end in miscarriage. There are up to a million cases in the United States alone per year.

For me, learning these statistics and knowing how common miscarriage is hugely helped me with the grieving process. I know we all grieve differently, some publicly and some privately, but the support and stories that have been shared with me since publicly announcing my miscarriage have made me feel less alone.

I wonder how more prepared I would have been in making a decision about my D&C had I been able to find more detailed information from women who had been through this.

That's why it's been heavy on my heart to share my personal experience. As real and painful and horrifying as it was, I've decided not to sugarcoat it for a second. Because if I'd known what a miscarriage could really be like, I would have been more prepared for what happened to me that night.

For those of you who have gone through or are going through a miscarriage, know that I'm grieving with you and surrounding you with my love. Know that it's more than OK to talk about, and there are millions of women just like you. You are not alone.

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Three women, three MS journeys: How multiple sclerosis looks different for everyone

Gina, Nathalie and Helga share their reactions to being diagnosed with MS and how they stay informed and positive in the face of ever-changing symptoms.

Courtesy of Sanofi

Helga, Nathalie and Gina all have MS, and their experiences show how differently the disease can manifest.

True

It’s been 155 years since neurologist Jean-Martin Charcot gave the first lecture on a mysterious progressive illness he called “multiple sclerosis.” Since then, we’ve learned a lot. We know MS causes the immune system to attack healthy tissue, including damaging the brain and spinal cord. Resulting symptoms can be debilitating and include fatigue, blurred vision, memory problems and weakness. Huge advancements in our understanding of MS and its underlying causes, as well as treatment advances, have been made in the past few decades, but MS remains a complex and unpredictable reality for the 2.8 million+ people diagnosed around the world.

Ironically, the only real constant for people living with MS is change. There’s no set pattern or standard progression of the disease, so each person’s experience is unique. Some people with MS have mild symptoms that worsen slowly but sometimes improve, while others can have severe symptoms that drastically alter their daily lives.

All people with MS share some things in common, however, such as the need to stay informed on the ever-evolving research, find various lines of support and try to remain hopeful as they continue living with the disease.

To better understand what navigating life with MS really looks like, three women shared their MS stories with us. Their journeys demonstrate how MS can look different for different people and interestingly, how the language used to talk about the disease can greatly impact how people understand their realities.

woman with horse, woman riding horseGina loves riding her horse, Benita.Courtesy of Sanofi

Gina—Hamburg, Germany (diagnosed with relapsing multiple sclerosis in 2017)

When her youngest son was 4 months old, Gina started having problems with her eye. She’d soon learn she was experiencing optic neuritis—her first symptom of MS.

“Immediately after the diagnosis, I looked up facts on MS because I didn’t know anything about it,” Gina says. “And as soon as I knew what could really happen with this disease, I actually got scared.”

As her family’s primary income provider, she worried about how MS would impact her ability to work as a writer and editor. Her family was afraid she was going to end up in a wheelchair. However, for now, Gina’s MS is managed well enough that she still works full-time and is able to be active.

“When I tell somebody that I have MS, they often don't believe me the first time because I don't fulfill any stereotypes,” she says.

Overwhelmed by negative perspectives on living with MS, Gina sought support in the online MS community, which she found to be much more positive.

“I think it’s important to use as many positive words as you can when talking about MS.” It’s important to be realistic while also conveying hope, she says. “MS is an insidious disease that can cause many bad symptoms…that can be frightening, and you can't gloss over it, either.”

To give back to the online community that helped her so much, Gina started a blog to share her story and help others trying to learn about their diagnosis.

Though she deals with fatigue and cognitive dysfunction sometimes, Gina stays active swimming, biking, riding horses and playing with her sons, who are now 11 and 6.

Cognitive dysfunction is common in MS, with over half of people affected. It can impact memory, attention, planning, and word-finding. As with many aspects of MS, some people experience mild changes, while others face more challenges.

Gina says that while there’s still a lot of education about MS needed, she feels positive about the future of MS because there’s so much research being done.

woman in wheelchair holding medal, woman rowingNathalie is an award-winning rower with multiple international titles.Courtesy of Sanofi

Nathalie — Pennes Mirabeau, France (diagnosed with relapsing-remitting multiple sclerosis in 2002)

Nathalie was a teenager and a competitive athlete when she noticed her first symptoms of MS, but it would take four years of “limbo” before she was diagnosed.

“Ultimately, the diagnosis was more of a relief, than a shock,” she says. “Because when you have signs and you don’t know why, it’s worse than knowing, in the end, what you have.”

However, learning more about the disease—and the realities of disease progression—scared her.

“That glimpse of the future was direct and traumatic,” she says. Her neurologist explained that the disease evolves differently for everyone, and her situation might end up being serious or very mild. So, she decided to stop comparing herself to others with MS.

She said to herself, “We’ll see what happens, and you’ll manage it bit by bit.”

By 2005, Nathalie’s MS had progressed to the point of needing a wheelchair. However, that has not dampened her competitive spirit.

Nathalie began her international rowing career in 2009 and has won multiple world titles, including two Paralympic medals—silver in London and bronze in Tokyo. Now, at 42, she still trains 11 times a week. Fatigue can be a problem, and sometimes hard workouts leave her with muscle stiffness and shaking, but she credits her ongoing sports career for helping her feel in tune with her body’s signals.

“Over the years, I’ve learned to listen to my body, letting my body guide when I need to stop and take breaks,” she says.

Nathalie explains that she used to only look backwards because of the initial shock of her diagnosis. In time, she stopped thinking about what she couldn’t do anymore and focused on her future. She now lives in the following mindset: “Even when doors close, don’t miss out on those that open.” Instead of focusing on what she can’t do, she focuses on the opportunities she still has. Right now, this includes her training for the 2024 Paralympic Games in Paris, where she will compete for another rowing medal.

“I only go forward,” she says. “Well, I try, anyway…It’s easy to say, it’s not always easy to do. But that’s what I try to do.”

woman exiting water after swimming, woman with great daneHelga's Great Dane has become a helpful and beloved companion.Courtesy of Sanofi

Helga—Johannesburg, South Africa (diagnosed with relapsing multiple sclerosis in 2010)

When Helga first started having balance issues and numbness in her feet, she chalked it up to her training as a runner. But when the numbness moved to her face, she knew something was wrong. She never guessed it was MS.

“When I was diagnosed, I felt completely overwhelmed and clueless,” Helga says. “I felt that I had nowhere near enough information. I did not know anything about the disease…I had no idea that it was going to be a process of continually monitoring and adjusting your lifestyle.”

In the beginning, Helga’s symptoms developed slowly, and she didn’t appear ill to others. She was even able to run for a few years after her diagnosis, but she couldn’t do marathons anymore, and she began to fall frequently due to balance issues and right-foot dragging. Then her cognition issues became more problematic, especially in her job as a trainer in a printing company.

“My executive function, decision-making and short-term memory were affected to the point that I was eventually medically unfit for work,” she says. She stopped working in 2017.

However, she didn’t stop living life. Even though she could no longer run, she continued to swim competitively. She got a Great Dane puppy and trained him as a service dog to help her walk. She also serves as vice chair of the patient support organization Multiple Sclerosis South Africa, and she advises others who have been diagnosed to join a patient advocacy group as soon as possible to get reliable information and meet others with MS.

Helga says she is “hopeful” about the future of MS. “I must say that I am so grateful that we have all the new medications available, because my life would not be the same if it wasn't for that,” she adds.

Part of how she manages her MS is by looking at the positives.

“If I could tell the world one thing about MS, it would be that MS is an incurable disease of the nervous system, but it's also the greatest teacher of valuing your health, family, friends, and managing change in your life,” she says. “My life is diversified in a way that I never, ever thought it would, and MS has been honestly the greatest teacher.”

Each MS journey is unique – with each person impacted experiencing different struggles, successes, and feelings as they manage this unpredictable disease. But the common thread is clear – there is a critical need for information, support, and hope. We are proud to participate in World MS Day and share these incredible stories of living life while living with MS. To learn more about MS, go to https://www.sanofi.com/why-words-really-matter-when-it-comes-to-multiple-sclerosis.

MAT-GLB-2301642-v1.0-05/2023

This article was sponsored by Sanofi. Participants were compensated when applicable.

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