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Health

This mom's empowering selfies show off life with an invisible illness.

She's reclaiming her confidence and sharing what it can really mean to be a mom with Crohn's disease.

Chron’s disease, IBD, irritable bowel syndrome
All photos by Krystal Miller, used with permission.

Krystal, Arabella, and Lukas.


There are a lot of hard things about living with Crohn's disease. Not being able to talk about it might be the worst one.

Imagine being constantly tired, but in a way that even 15 hours of sleep a day can't cure. Imagine going to dinner, but every time you eat something as simple as a roll of warm bread, it feels like it might've had broken glass inside of it.

Then, it's time to go to the bathroom. Again. Is that the fifth time this hour or the sixth? You've lost track. It's a running joke now — your friends think it's funny, but nobody really talks about what happens when you step away. Because, really, you look fine. Just tired.


Crohn's, as defined by the Centers for Disease Control and Prevention, is "a condition of chronic inflammation potentially involving any location of the gastrointestinal tract." But as defined by myself, someone with Crohn's, it's like having food poisoning all the time. The symptoms and presentation are different for every patient, but one thing is the same for all: It's an invisible illness, and it sucks.

And let's face it. Talkin' about your poop is taboo.

Chron\u2019s, GIFs, ostomy

Nothing to see here.

assets.rebelmouse.io

A little privacy, please?

Well, unless you're Krystal Miller.

Stumble over to her Facebook page, Bag Lady Mama, and nearly every post has a reference to doing the doo.

Krystal, who lives in Perth, Australia, has Crohn's. She was first diagnosed at 15 years old, and by 22, most of her intestinal tract had been badly damaged by the disease. At that point, doctors decided to remove large portions of her large and small intestines.

family, vacation, permanent ileostomy

Krystal Miller and her husband, Shannon, son, Lukas, and daughter, Arabella.

All photos by Krystal Miller, used with permission.

For the last decade, she's been living with a permanent ileostomy, a surgically made opening in the abdominal wall that connects the lower intestine to an ostomy bag.

Now, at 32, she's sharing her daily experiences through Facebook.

Her posts show raw insight into her world. They're unapologetically blunt, they're full of curse words, and they're gaining traction — quickly.

In an interview with Upworthy, Krystal said she expected to have a few hundred Likes on her page within a month or two of launching it, mostly from close friends who knew about her life with Crohn's. But since it launched Jan. 25, it's reached more than 13,000 Likes.

Krystal Miller, colostomy bag, bag lady mama

Check out her posts and you'll see some serious granny-panty love.

All photos by Krystal Miller, used with permission.

"I did expect it to reach Europe and America because I have international friends," she said. "But I never expected for it to be as expansive as it has been. It's crazy — I actually got recognized at my local shops the other day!"

Her photos show off her day-to-day life with her two children, Lukas, 4, and Arabella, five months, and her husband, Shannon. Each is filled with her unabashed love for her body.

family, feel good story, pregnancy

Krystal, 32 weeks pregnant and wearing her bag, and her husband, Shannon, during their son's fourth birthday party.

All photos by Krystal Miller, used with permission.

Scars, bag, and the ostomy itself are all on display in the hopes that she can help remove some of the stigma around Crohn's and what life with the disease is like.

It's not a comfortable thing to live with physically or socially. It took years before Krystal was willing to open up about it.

"When I was first diagnosed, I was very uncomfortable. I would be in-tears uncomfortable if someone had to go to the toilet after me. ... And when you're young, it's embarrassing and it's pretty f*cking horrific. It's been slow progress , but I just kind of got sick of caring. Like, who gives a f*ck, it is what it is, I can't do anything about it."

She would go to extreme lengths to cover up the symptoms of the disease, especially when using public restrooms. But she credits the surgery that removed her rectum with alleviating a lot of that embarrassment as well. Once her permanent ostomy was in place, many of her symptoms were alleviated, and her experiences with "number 2" became more matter-of-fact than anything else.

"It's been slow progress , but I just kind of got sick of caring. Like, who gives a f*ck, it is what it is, I can't do anything about it."

From there, it became about reclaiming her sexiness and self-confidence, which started with revisiting how she looked at herself.

"When we look at other women, we don't see the same flaws that we see in ourself. And I've had to retrain myself to see myself the way others might see me, to not notice the finer intricacies that I see on myself. Other people don't see the sh*t that we see."

ileostomy, fashion tips, advice

Krystal, Arabella, and Lukas.

All photos by Krystal Miller, used with permission.

But she hasn't stopped there. She also posts fashion tips for other women with Crohn's and shares advice on how to dress the way you want while still being comfortable with a bag.

Fremantle Hospital, stomal therapist, public speaking

Krystal speaking at Fremantle Hospital. She's studying to become a stomal therapist.

All photos by Krystal Miller, used with permission.

Krystal does have one thing she wants to say to other people who have Crohn's and other IBDs: It's not always going to be easy, and that's OK.

"We have earned that right to f*cking hate the world," she said. "We are entitled to f*cking be angry and to be sad and to have bad days. If you need to feel sorry for yourself, then feel sorry for yourself. But then pick yourself up and keep going."


This article originally appeared on 04.04.16

Years after it happened, Patagonia's approach to the "family-friendly workplace" is a whole new level that still deserves our attention - and praise.

The outdoor clothing and gear company has made a name for itself by putting its money where its mouth is. From creating backpacks out of 100% recycled materials to donating their $10 million tax cut to fight climate change to refusing to sell to clients who harm the environment, Patagonia leads by example.

That dedication to principle is clear in its policies for parents who work for them, as evidenced by a 2019 viral post from Holly Morisette, a recruiter at Patagonia.


Morisette wrote on LinkedIn:

"While nursing my baby during a morning meeting the other day after a recent return from maternity leave, our VP (Dean Carter) turned to me and said...'There is no way to measure the ROI on that. But I know it's huge.'

It got me thinking...with the immense gratitude that I have for on-site childcare at Patagonia comes a responsibility to share a 'call to action'. A PSA to tout the extraordinary benefits that come along with not asking employees to make the gut wrenching decision to either leave their jobs or leave their babies. TO HAVE TO LEAVE THEIR JOBS OR LEAVE THEIR BABIES. That perhaps just one person will brave the subject with their employer (big or small) in the hopes that it gets the wheels turning to think differently about how to truly support working families.

That with a bit of creativity, and a whole lot of guts, companies can create a workplace where mothers aren't hiding in broom closets pumping milk, but rather visiting their babies for large doses of love and serotonin before returning to their work and kicking ass.

It's no wonder that Patagonia has 100% retention of moms. Keeping them close to their babies keeps them engaged. And engaged mothers (and fathers!) get stuff done. Thank you, Patagonia, for leading the way. "


Holly Morissette on LinkedIn: "While nursing my baby during a morning meeting the other day after a recent return from maternity leave, our VP (Dean Carter) turned to me and said..."There is no way to measure the ROI on that. But I know it's huge." It got me thinking...with the immense gratitude that I have for on-site childcare at Patagonia comes a responsibility to share a “call to action". A PSA to tout the extraordinary benefits that come along with not asking employees to make the gut wrenching decision to either leave their jobs or leave their babies. TO HAVE TO LEAVE THEIR JOBS OR LEAVE THEIR BABIES. That perhaps just one person will brave the subject with their employer (big or small) in the hopes that it gets the wheels turning to think differently about how to truly support working families. That with a bit of creativity, and a whole lot of guts, companies can create a workplace where mothers aren't hiding in broom closets pumping milk, but rather visiting their babies for large doses of love and serotonin before returning to their work and kicking ass. It's no wonder that Patagonia has 100% retention of moms. Keeping them close to their babies keeps them engaged. And engaged mothers (and fathers!) get stuff done. Thank you, Patagonia, for leading the way. " www.linkedin.com


Just the first eight words of Morisette's post are extraordinary. "While nursing my baby during a morning meeting..."

As if that's totally normal. As if everyone understands that working moms can be much more engaged and efficient in their jobs if they can feed their baby while they go over sales figures. As if the long-held belief that life and work must be completely separate is a construct that deserves to be challenged.

And then the comment from her male colleague about the ROI (Return on Investment) of breastfeeding—witty, considering the time and place, and yet so supportive.

On-site childcare so that parents don't have to choose between leaving their jobs or leaving their babies. Letting life integrate with work so that working families don't have to constantly feel torn in two different directions. Flexibility in meetings and schedules. Allowing for the natural rhythms and needs of breastfeeders. Making childcare as easy and accessible as possible so that employees can be more effective in their jobs.

All of this seems so profoundly logical, it's a wonder that more companies have not figured this out sooner. Clearly, it works. I mean, who has ever heard of a 100% retention rate for mothers?

Patagonia's got it goin' on. Let's hope more companies take their lead.


This article originally appeared on 8.16.19

No better time to grab a little shut eye.

For those in the military, sleep can mean the difference between life and death. But shut-eye can be very hard to come by, especially during active conflict.

According to Sharon Ackman, the U.S. Navy Pre-Flight School developed a scientific method to help its pilots fall asleep. Through this technique, 96% of the pilots were able to fall asleep in two minutes or less.


If pilots could fall asleep during war, you should be able to use it to knock out in the comfort of your bedroom.

Here's how to do it:

Step 1: Relax in your seat

health, military sleep, meditation

Sleeping in difficult environments.

via DVIDShub / Flickr

Given the space restraints of a typical plane, the pilots were taught to sleep in a seated position. They put their feet flat on the ground, while relaxing their hands in their laps.

Breathe slow, deep breaths while relaxing every muscle in your face and letting your forehead, cheeks, mouth, tongue, and jaw go limp.

Step 2: Relax your upper body

Let your shoulders drop as low as you can. Allow the muscles in your neck go lifeless.

Starting with your dominant side, let your bicep feel like it's falling off your body. Then move to your forearm, hand, and fingers. If a muscle isn't relaxing, tense it first, then let it go loose.

Slowly exhale your tension.


Step 3: Relax your lower body

Tell your right thigh muscle to sink, then move down your leg, saying the same thing to your calf, ankle, and foot. Your leg should feel like it has sunk into the ground. Then move on to your left leg.

The final step is to clear your mind for ten seconds. You can do this by paying attention to your breath as it moves through your nostrils or holding a static image in your mind.

Once your body is relaxed and your mind quiet, you should slip away into darkness.

For more information on this sleep technique, check out Ackman's Medium blog.


This article originally appeared on 04.11.19

Internet

Woman's rare antique turned away from 'Antique Roadshow' for beautiful heart-wrenching reason

"I just love you for bringing it in and thank you so much for making me so sad."

Photos by Murat Rahim Caglak and Antoni Shkraba via Canva

Woman's antique turned away from 'Antique Roadshow'

People come by things in all sorts of ways. Sometimes you find something while at a garage sale and sometimes it's because a family member passed away and it was left to them. After coming into possession of the item, the owner may be tempted to see how much it's worth so it can be documented for insurance purposes or sold.

On a recent episode of BBC One's Antique Roadshow, a woman brought an ivory bracelet to be appraised. Interestingly enough, the expert didn't meet this rare find with excitement, but appeared somber. The antique expert, Ronnie Archer-Morgan carefully explains the purpose of the bracelet in what appears to be a tense emotional exchange.

There would be no appraisal of this antique ivory bracelet adorned with beautiful script around the circumference. Archer-Morgan gives a brief disclaimer that he and the Antique Roadshow disapprove of the trade of ivory, though that was not his reason for refusing the ivory bangle.


"This ivory bangle here is not about trading in ivory, it’s about trading in human life, and it’s probably one of the most difficult things that I’ve ever had to talk about. But talk about it we must," Archer-Morgan says.

Turns out the woman had no idea what she had in her possession as she purchased it from an estate sale over 30 years before. One of the elderly residents she cared for passed away and the woman found the ivory bracelet among the things being sold. Finding the bangle particularly intriguing with the fancy inscription around it, she decided to purchase the unique piece of jewelry.

After explaining that his great-grandmother was once enslaved in Nova Scotia, Canada before being returned to Sierra Leone, Archer-Morgan concluded he could not price the item.

"I just don’t want to value it. I do not want to put a price on something that signifies such an awful business. But the value is in the lessons that this can tell people," he tells the woman.

In the end the woman leaves without knowing the monetary value of the item but with a wealth of knowledge she didn't have before visiting. Now she can continue to share the significance of the antique with others. Watch the full explanation below.

This article originally appeared on 4.3.24

Education

A teacher asked a great question about superintendent pay. Then, all hell broke loose.

Her earnest question about inequality in our education system was met with a grotesque abuse of power.


Why should a superintendent get a raise while teachers in the same district struggling to make ends meet see their paychecks flatline — year after year after year?

Teacher Deyshia Hargrave begged the question. Minutes later, she was handcuffed and placed in the backseat of a cop car.

The scene was captured below by YouTube user Chris Rosa, who attended a board meeting for Vermilion Parish Schools in Louisiana.

You can watch Hargrave begin speaking about 33 seconds in. The situation starts becoming contentious around 6:35 minutes. Hargrave is arrested at 8:35, and then walked outside in handcuffs and placed in the back of police vehicle.




Teacher Deyshia Hargrave was questioning the school board how they can vote to give the superintendent a raise when school employees have not gotten a raise ...

"We work very hard with very little to maintain the salaries that we have," Hargrave, who teaches middle school language arts, said during a public comment portion of the meeting, stating that she's seen classroom sizes balloon during her time at the school with no increased compensation. "We're meeting those goals, while someone in that position of leadership [the superintendent] is getting raise? It's a sad, sad day to be a teacher in Vermilion Parish."

According to comments Hargrave made to BuzzFeed News, she believes Superintendent Jerome Puyau was already making $110,000 before the board voted to give him a raise of $38,000. The raise alone is roughly the salary of "a teacher, or two cafeteria workers, or two janitors," Hargrave told the outlet.

After Hargrave spoke out again later in the meeting, a city marshal on duty asked her to leave — even though the school board was still addressing her.

"You're going to leave, or I'm going to remove you," the officer told her, as seen in the video. Many people in attendance seemed shocked. "Are you serious?" someone asked, aghast, in the crowd.

Hargrave leaves the room, followed by the officer. But moments later, someone chimed in, "he's putting her in handcuffs" — and the room erupts in disarray.

"I am not [resisting], you just pushed me to the floor!" Hargrave is heard screaming at the officer, as he forcibly removes her down the hallway and out the building in handcuffs. "Sir, hold on! I am way smaller than you!"

Teacher removed from Vermilion school board meeting in handcuffs

According to KATV News, Hargrave was booked in the city jail for resisting an officer — a fact that left many commenters online flabbergasted. School officials are reportedly not pressing charges. "Umm ... what charges could they possibly make?" one Redditor noted.

With help from the Reddit community, Rosa's video has gone viral, garnering more than 600,000 views in less than 24 hours. Clearly, Hargrave's earnest question about inequality in our education system — met with a grotesque abuse of power — has clearly touched a nerve with people across the country.

"I don't know how this teacher could have been more polite and patient in her earnest desire to find out why the superintendent deserves a raise while the teachers work harder with less," YouTube commenter Scott Wells chimed in. "She continued to press because they refused to come up with an answer. Seems like a good question to me."

We agree.


This article originally appeared on 01.09.18

Health

Psychologist explains why everyone feels exhausted right now and it makes so much sense

Psychologist Naomi Holdt beautifully explained what's behind the overarching exhaustion people are feeling and it makes perfect sense.

Photo by Jamie Street on Unsplash

It seems like most people are feeling wiped out these days. There's a reason for that.

We're about to wrap up year three of the COVID-19 pandemic, and it's been a weird ride, to say the least. These years have been hard, frustrating, confusing and tragic, and yet we keep on keeping on.

Except the keeping on part isn't quite as simple as it sounds. Despite the fact that COVID-19 is still wreaking havoc, we've sort of collectively decided to move on, come what may. This year has been an experiment in normalcy, but one without a testable hypothesis or clear design. And it's taken a toll. So many people are feeling tired, exhausted, worn thin ("like butter scraped over too much bread," as Bilbo Baggins put it) these days.

But why?



Psychologist and speaker Naomi Holdt beautifully explained what's behind the overarching exhaustion people are feeling as we close out 2022, and it makes perfect sense.

In a post on Facebook, she wrote:

"A gentle reminder about why you are utterly exhausted…

No one I know began this year on a full tank. Given the vicious onslaught of the previous two years (let’s just call it what it was) most of us dragged ourselves across the finish line of 2021… frazzled, spent, running on aged adrenaline fumes…

We crawled into 2022 still carrying shock, trauma, grief, heaviness, disbelief… The memories of a surreal existence…

And then it began… The fastest hurricane year we could ever have imagined. Whether we have consciously processed it or not, this has been a year of more pressure, more stress, and a race to 'catch up' in all departments… Every. Single. One. Work, school, sports, relationships, life…

Though not intentionally aware, perhaps hopeful that the busier we are, the more readily we will forget… the more easily we will undo the emotional tangle… the more permanently we will wipe away the scarring wounds…

We can’t.

And attempts to re-create some semblance of 'normal' on steroids while disregarding that for almost two years our sympathetic nervous systems were on full alert, has left our collective mental health in tatters. Our children and teens are not exempt. The natural byproduct of fighting a hurricane is complete and utter exhaustion…

So before you begin questioning the absolutely depleted and wrung-dry state you are in- Pause. Breathe. Remind yourself of who you are and what you have endured. And then remind yourself of what you have overcome.

Despite it all, you’re still going. (Even on the days you stumble and find yourself face down in a pile of dirt).

Understanding brings compassion… Most of the world’s citizens are in need of a little extra TLC at the moment. Most are donning invisible 'Handle with care' posters around their necks and 'Fragile' tattoos on their bodies…

Instead of racing to the finish line of this year, tread gently.

Go slowly. Amidst the chaos, find small pockets of silence. Find compassion. Allow the healing. And most of all… Be kind. There’s no human being on earth who couldn’t use just a little bit more of the healing salve of kindness."

Putting it like that, of course we're exhausted. We're like a person who thinks they're feeling better at the end of an illness so they dive fully back into life, only to crash mid-day because their body didn't actually have as much energy as their brain thought it did. We tried to fling ourselves into life, desperate to feel normal and make up for lost time, without taking the time to fully acknowledge the impact of the past two years or to fully recover and heal from it.

Of course, life can't just stop, but we do need to allow some time for our bodies, minds and spirits to heal from what they've been through. The uncertainty, the precariousness of "normal," the after-effects of everything that upended life as we knew it are real. The grief and trauma of those who have experienced the worst of the pandemic are real. The overwhelm of our brains and hearts as we try to process it all is real.

So let's be gentle with one another and ourselves as we roll our harried selves into another new year. We could all use that little extra measure of grace as we strive to figure out what a true and healthy "normal" feels like.

You can follow Naomi Holdt on Facebook.


This article originally appeared on 12.23.22