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pain

A female friend once told her husband that her doctors had dismissed her when she described how much pain she was in. Her husband gave the docs the benefit of the doubt, saying that pain was subjective and maybe she just needed to describe it differently. Then he went to a doctor's appointment with her, saw the phenomenon himself, and apologized. She was right. She'd explained exactly what she was experiencing—the doctors just didn't believe that her pain was as bad as she was describing.

Gender bias in pain assessment and treatment in clinical settings is well-documented, but a new study has found that it's not just health professionals who tend to think women exaggerate pain levels. In a paper published this month in the Journal of Pain, an international group of researchers from the U.S., France, and China shared that among a sample of average adults, both men and women show a "reasonably strong gender bias" in their interpretations of patients' pain. The main takeaway is that people tend to believe that women aren't in as much pain as they really are.


The study involved two experiments, the first with 50 participants and the second with 197, in which people watched videos of both male and female patients experiencing shoulder pain. Participants were asked to observe the patients' expressions of pain and rate their pain level on a scale of zero (absolutely no pain) to 100 (the worst pain possible).

In both experiments, participants perceived female patients to be in less pain than the males, even when they were experiencing the same intensity level of pain. And across the sample, women were just as likely to underestimate women's pain as men were.

Participants were also asked how they would prescribe treatment for the patients' pain if they were doctors. Though the numbers weren't drastically different, women were more likely than men to be prescribed psychotherapy (42% for women, 38% for men), while men were more likely than women to be prescribed pain medication (58% for women, 62% for men).

Why such discrepancies? The study authors think on reason is gender expectations and stereotypes.

"Generally, boys are discouraged from expressing emotions, whereas girls are permitted to express them," the study authors told The Academic Times. "As a result, men may be more reluctant to express pain and other vulnerabilities than women. Thus, masculine gender norms are associated with high pain tolerance and stoicism whereas feminine gender norms are more permissive of expressing pain."

In other words, since people perceive men to hide their emotions more, the assumption is that they are actually in more pain than they're letting on. Since women show their emotions more, the assumption is that their pain may not be as bad as they're expressing.

Researchers also included a Gender Role Expectation of Pain Questionnaire in their second experiment, which found that women tend to believe that women are able to endure pain longer than men, and both genders believe that women are substantially more willing to report pain than men. According to the authors, those pain-related stereotypes predicted the pain estimated biases shown in the experiment.

Paradoxically, women may be perceived as exaggerating their pain precisely because they are more open and honest about it.

"Women are consistently found to report higher levels of pain than men and to be more expressive of pain than men," the authors said. "Perceivers may in turn get habituated to more frequent or more intense pain expressions in females and as a result reduce the pain they attribute to those expressions."

Such gender biases in pain estimation matter, as they can interfere with effective clinical care when coming from physicians and impact social support when coming from the people around us. Similar pain perception biases also happen along racial lines, so women of color face an even steeper climb to have their pain recognized and treated effectively.

Though biases are subconscious and can be tricky to weed out, a simple solution here is a shift in mindset to believing women when they describe what's happening in their own bodies. Pain is subjective, which should be all the more reason not to make your own judgments about what someone else is experiencing. If a woman says her pain level is a 7 out of 10, that's what she means. She knows her body. It's okay to take her at her word.

Heroes

Scientists may have found a painkiller that you can't overdose on.

A new candidate drug could help manage pain without harmful side effects.

A few years ago, I got my wisdom teeth out. Ironically, one of the worst parts of the experience was the painkillers.

I was prescribed oxycodone, an opioid painkiller, after the procedure. And though it helped with the recovery, I felt like taking those pills was a bigger deal than, you know, having part of my body surgically removed.


I disliked taking them because I ended up with killer nausea (I actually had to get another prescription to deal with that), but I also knew (and had a stern warning from the pharmacist) that opioids can sometimes be dangerous.

Don't get me wrong, I'm really glad we have opioid painkillers.

Opioids are a class of drugs named after the opium poppy. They include medicines like oxycodone and morphine as well as medicines-turned-illicit drugs like heroin. They're an indispensable part of modern medicine. Few other drugs approach their ability to reduce pain.

But there are big drawbacks to using them.

They can be incredibly addictive. In fact, the U.S. currently has an epidemic of people addicted to either prescription or illicit opioids.

They also come with some serious side effects, including halting your respiration. The Centers for Disease Control and Prevention estimates than more than 70 people a day die from an opioid overdose.

Overdose kits can save lives but only if they get there in time. Photo by John Moore/Getty Images.

So that begs the question: What if we could make an opioid without all those drawbacks?

Scientists might have just created an overdose-proof opioid. Oh, and early tests hint that it might not be addictive, either.

A new study published online Aug. 17, 2016, in Nature explained that a team of scientists just developed a candidate drug that kills pain without interfering with our ability to breathe.

They also think the drug might circumvent the brain's addiction circuit, although they need to do more work to see if this holds up.

One of the coolest things about this is how they created the drug.

Instead of tweaking an existing medicine, they started from scratch.

Opioids work by locking on to molecules in our cells known as receptors, especially one called the mu opioid receptor. For a long time this was a black box, but we recently figured out the mu opioid receptor's atomic structure.

It might look like a tie-die Rorschach test, but to a scientist, this could be a treasure map. Image from Protein Data Bank/Wikimedia Commons.

Why is this a big deal? It's like the difference between trying random keys in a door and being given the lock's specific blueprint. So rather than having to try chemicals one by one, the scientists were able to create a custom design on a computer.  Over a few weeks, they ran four trillion virtual experiments, looking for the perfect key — one that'd hit only the mu opioid receptor while avoiding the ones that influenced breathing.

After a while, they ended up with about two dozen candidates, which they then synthesized and tested in mice. Those experiments led to the new drug.

There's a long, long way to go with this new drug. But if this works, it could help a lot of people someday.

Kim Sullivan's son died of an opioid overdose. She's since become a public health education advocate. Photo by John Moore/Getty Images.

"Morphine transformed medicine," said one of the scientists, professor Brian Shoichet, in a press release. "There are so many medical procedures we can do now because we know we can control the pain afterwards. But it's obviously dangerous too. People have been searching for a safer replacement for standard opioids for decades."

It's premature to say whether this drug'll hit the shelves. But who knows — one day someone might be able to walk into a pharmacy after getting their wisdom teeth out, secure in the knowledge that their painkiller is not only effective but safer than ever before.

A few months ago, my feet began to hurt.

At first, I thought that it was just from standing a lot for work, but then it continued to get worse. The day the pain spread to my hands, I knew something was wrong.

But it was when it spread to the rest of my body — my shoulders, elbows, knees, and ankles — that I panicked. What was happening to me? All of a sudden everything hurt, all the time: sitting, standing, walking. At first, lying down was my only relief. But then the pain got so bad every joint would throb, no matter how comfortable I was.


Within two months, I went from being a personal trainer, strong and fit with a passion for hanging upside down and balancing on my hands to not being able to dress myself, cut my own food, or tie my shoelaces.

Me playing around pre-arthritis. All photos provided by Ashley Hunt, used with permission.

Rheumatoid arthritis is an autoimmune disease that causes inflammation and swelling in the joints. It's extremely painful. Around 10 million people in the U.K. have arthritis, 700,000 of which have RA. It is most common in women aged 45-60.

This is the third autoimmune condition I've been diagnosed with (I also have celiac disease and Berger's disease). That's the unfortunate thing with autoimmune conditions: Once you have one, you are more likely to develop another.

RA is often called the silent illness because people with RA don't look sick.

I'm a generally positive person, but I'll be honest: These last few months have really challenged me.

Every day is a constant struggle as I try to move through life in constant pain. It's a dark and isolating place to be. On top of the physical pain, there is also the fear that my body is changing, that it's completely out of my control, and the realization there are some things I will never be able to do again.

I've been in some dark places. I've felt sorry for myself. I've spent whole days in bed, I've used alcohol to numb the pain. It has been a process to come to terms with these changes taking over my body. But every day, I wake up and fight this battle again, getting stronger each time as I learn to accept the hand I've been dealt.

These are the lessons I have learned from living with chronic pain:

1. There is a time and a place for modern medicine.

While I am a huge advocate for natural health, we are so lucky to live in a modern world with amazing pharmaceuticals. I wish I could tell an inspirational story about how I rejected the drugs and decided to cure myself naturally, but it is so far from the truth. After the pain that I was feeling, when the doctors offered me a chance to have even half of it taken away by a steroid injection, even after listing the plethora of potential side effects, I jumped at it without hesitating for a second. As the kind of person who would never even take meds for a headache, this was a tough pill to swallow. Sometimes your values will be challenged as your circumstances change.

2. It's OK to ask for help.

I have always been stubbornly independent, never wanting to rely on anyone, priding myself on being completely self-sufficient. I'd never even let anyone open a jar for me, but oh, how the mighty have fallen!

I've had no choice but to put all of my pride aside as I begin to require assistance for almost everything. Now I understand the importance of having a strong support network and the gratitude that comes with having around me people I love who would do anything to help me.

3. Self-care isn't an option; it is a necessity.

I used to race through life, with clients morning and evening, full-time PR work during the day, pole dancing, yoga, travel, writing, friends, family... I used to feel that any moment I wasn't productive was wasted. I even used to meditate with the sole purpose of being more productive!

When I was first diagnosed, I got so frustrated with myself for not being able to do as much as I used to do. Now, I have learned to accept my situation, and I understand that I need to look after myself. I put myself first because I have to, and I listen to my body. If I need to spend an afternoon in bed, that's what I do. And it's OK. If I need to turn away a potential new client because I don't have the time or energy, that's fine too. You can't do it all. Make yourself a priority. Turns out, resting is pretty f*cking awesome.

4. Positive thinking is not always the answer.

Instagram mantras like "positive mind, positive life," "I'm in charge of how I feel and today I'm choosing happiness," and "wake up and be awesome," may seem inspirational, but I've learned that life is not so simple.

While I see a huge difference in my pain when I am in a good mood versus when I'm in a bad mood and I'm a big believer in the mind-body connection, it only goes so far. Telling someone like me to "think positive" or telling me that the reason this happened to me is that I poisoned myself with negative thoughts is insulting and so far from the truth.

Sometimes I wake up feeling like crap. I have a crap day. The people around me are being crappy. And that's fine. Then I go to bed and hope that tomorrow will be different. It's a new day.

5. Chronic pain can be extremely isolating.

People with RA are twice as likely as others to develop depression, and up to 4 of every 10 people with RA lose their job within five years due to their condition. 1 in 7 give up work altogether within one year of their diagnosis.

When I explain my illness to people, they nod and offer sympathies, but they don't really get it. The most valuable thing for me since being diagnosed has been to connect with other young sufferers, to know that I am not alone. There is unique solace to be found in someone else who also has issues pouring a cup of tea and who fully understands my fear of being locked in a public bathroom as my hands struggle with locks and handles.

6. It's never too early to start meditating.

Living with chronic pain conditions can take a huge toll on your mental health. For me, years of developing a meditation practice has made a big difference in my ability to handle difficult situations. It has been vital in allowing me to come to terms with my condition as well as staying positive, overcoming anxiety, and making the most out of my situation.

And meditation is not just for people with illnesses; it's an amazing tool for everyone! Stress and anxiety play a huge role in developing and worsening chronic illnesses. Meditation is a way of working on your well-being at the best of times so that when challenges come along, you have tools to help you gain control.

In the end, I've realized that my struggles have made me stronger.

It sounds cliché, but I can't even explain how true this rings for me right now. Even when I'm feeling my worst, I'm constantly realizing what I'm capable of. Every time I conquer yet another day of pain, I remind myself that I can get through this.

And if I can get through this, I can get through anything.

More

My husband was leading a double life. How I fell apart, then found strength.

One woman's story of finding strength during divorce and deceit.

A few weeks after giving birth to my first baby, I was wracked with pain to the point that I could barely move.

Swinging my legs, one after another, out of bed took nearly all my willpower. This pain had nothing to do with the physical stress of childbirth or the stitches still holding my swollen private area together.

This pain came from a place so deep within me that I could not determine where the pain ended and I began. We were intertwined. It was all-consuming.


It felt as if half of my DNA had been ripped out of my body and I was left with a dangling half-strand.

Until that moment, I hadn't realized that my husband had become a part of me. Now, in his absence, I felt an emptiness where he had been. I knew I would never be whole again.

In “Wired to Create: Unraveling the Mysteries of the Creative Mind,” psychologist Scott Barry Kaufman and writer Carolyn Gregoire explore what happens in the aftermath of a traumatic event:

“The more we are shaken, the more we must let go of our former selves and assumptions, and begin again from the ground up. ... Rebuilding can be an incredibly challenging process. ... It can be grueling, excruciating, and exhausting. But it can open the door to a new life.”

I know that door.

I found out my husband was leading a double life almost immediately after I gave birth to my daughter.

There was another girlfriend, and a secret credit card. Then other women started to come forward.

I was suddenly on my own with a newborn baby. I grieved him, and the future I thought we would have together, like a death.

Photo from me, used with permission.

While these have been without a doubt the most difficult months of my life, there was also something incredibly freeing in being ripped to shreds and then rebuilding myself piece by piece.

I told my therapist that everything seemed somehow clearer. “I feel like the human interactions I do have are very genuine now. I used to make kind of superficial small talk a lot, and I don’t do that anymore. I can’t really explain it. I just feel like I see people now.”

She told me that these moments of clarity are made possible precisely because you no longer have room for a lot of the crap you used to spend so much time thinking about. You are stripped clean.

You’ve always possessed this power. Maybe you just never knew how to access it.

Before experiencing trauma, I cared very much what people thought of me, from close family and friends to strangers. I had trouble making decisions because I wanted to please everyone. Even navigating a grocery store could be stressful — all those strangers silently observing and judging me.

Then, for months, I was trapped in my own body, forced to sit in the pain. Let me be clear. When I say “sit in the pain” I mean not running into someone else’s arms, not getting sloshed every night, and not hiding behind work.

Being trapped in my body meant that I couldn’t run from the darkness or try to do whatever it took to feel “good” again.

We humans naturally try to avoid feelings of discomfort — especially today, when instant gratification is just a click away on social media or a swipe away on an online dating app, when endorphins can be produced and manipulated simply by picking up an iPhone. People are even less likely to be still. To just feel.

But as I sat in my pain, I slowly started to trust my own intuition. I became grounded in a very clear sense of self.

When you begin to truly trust and like yourself, you tap into an immense amount of power.

Photo by me, used with permission.

You’ve always possessed this power. Maybe you just never knew how to access it. You find a power within yourself that’s like an anchor, freeing you from a lot of life’s insecurities that seemed so important before.

Dr. Sharon Dekel says, “Post-traumatic growth can be defined as a workable coping mechanism, a way of making and finding meaning involved in the building of a more positive self-image and the perception of personal strength."

The other side of pain is not comfort, or health, or well-being. It is truth.

When this truth comes pouring in, you begin to see all the grimy layers of protection lift away, and you discover that your journey has just begun. You begin to let the light in and, what’s more, you begin to seek out the light.

One morning I woke up and had a sudden realization. The thought entered my mind like a lightning bolt:

“You were always whole to begin with.”

So as much as I sometimes want to scream and rage at my ex-husband, I also want to thank him. I want to thank him for forcing me to become the person I was always meant to be, for showing me that I am a fighter and that I will never give up.

But most importantly, I thank him for allowing me to become this person before my daughter ever knew anyone else.

You can read more about Jen's journey in her memoir "A Beautiful, Terrible Thing: A Memoir of Marriage and Betrayal."