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autism spectrum disorder

Love Stories

Bride planned an autism-friendly wedding so her daughter could fully participate in the moment

"Weddings aren't about perfection–they're about love. And for us, love meant creating a day that felt good for Sofia, too."

@jodiebevan08/TikTok (with permission)

Bride has an autism-friendly wedding so her daughter with special needs can be a part of her big day.

Weddings are beautiful, sentimental days–but wedding days can also being *extremely* chaotic. So when bride Jodie Bevan (@jodiebevan08) began planning her wedding to groom Matthew, every detail revolved around making it an autism-friendly day for her teenage daughter Sofia.

In a series of TikTok video, bride Jodie documented exactly how she made Sofia comfortable on her wedding day. From her outfit choice to glam, every detail centered on Sofia's needs.

"We planned our wedding day around Sofia's needs as a teen with autism and special needs. From her dress material to a calm hairstyle, to a sensory toy bag. How Sofia would be on our day was my biggest worry but she was honestly incredible and I couldn't be more proud of her 🤍," she captioned the post.

@jodiebevan08

We planned our wedding day around Sofia's needs as a teen with autism and special needs. From her dress material to a calm hairstyle, to a sensory toy bag. How Sofia would be on our day was my biggest worry but she was honestly incredible and I could be more proud of her 🤍 Thankyou again @BTS | Luxury Wedding Content for capturing all these beautiful videos 🤍. #AutismAcceptance #InclusiveWedding #SofiaStrong #SensoryFriendly #SpecialNeedsParent #NeurodivergentLove #WeddingWithHeart #weddingday #weddingdress #weddingflowers #autismawareness #senmum #senmumlife #fyp

 

"Planning our wedding with Sofia's needs first. We made all of our vendors aware of Sofia's needs beforehand, including the photographer. We got Sofia's photos done first so she could relax," she shared in the video.

Next, she noted the detail paid to Sofia's clothing as the video showed her helping Sofia get changed for the wedding ceremony. "This was the first time she's worn a dress in over 10+ years! We made sure it wasn't an itchy material, not too fussy or long," she added. "She had her comfort clothes to change into after photos were done. These are the shoes she wears every single day but in a white version." (Sofia also held a teddy bear that was dressed in a suit.)

@jodiebevan08

Reading the comments in my last video has made me realise how much more awareness we need for special needs children. I know I am doing a good job at being Sofias advocate. I am her safe place, so what ever I am doing, I’m doing it right 🤍 #sen #autismawareness #autismacceptance #senparentsoftiktok #senmum #specialneeds #fyppppppppppppppppppppppp #weddingtok #weddingday

After explaining Sofia's clothing, Jodie went on to give details on hair and makeup. "Hair is a BIG sensory trigger for Sofia, so we went for something very simple, no fuss and went at her pace," she shared. "The amazing hairdresser even managed to curl it! We asked for minimal makeup, just skincare and brows. This wasn't needed but she enjoyed this and I wanted her to feel included."

Finally, Jodie shared how she made Sofia feel comfortable during the wedding reception with sensory toys. "I packed a bag of all things she likes. Toys, pens, paper, iPad, etc and placed this on her eat at the wedding breakfast," she wrote.

@jodiebevan08

Having special needs we’ve always known Sofia will never get married or walk down the isle in a white dress - I cant tell you how much this moment means to me🤍 The moment she spots Matthew too "my matthew"🥹I couldn’t be more proud of her, not only walking into a room full of people she doesn’t know but even wearing a dress when she lives in leggins and jumpers daily! Thank you for capturing this @BTS | Luxury Wedding Content I will forever be grateful 🤍 #senmum #weddingdress #weddingvibes #specialneeds #autismawareness #weddingday #weddingtok #fyppppppppppppppppppppppp

Jodie ended the post with a sweet note about what it meant to include Sofia on her special day. "Weddings aren't about perfection–they're about love. And for us, love meant creating a day that felt good for Sofia, too."

And viewers absolutely loved every heartfelt detail Jodie paid attention to for Sofia's comfort. "I’m sorry but the teddy bear in the suit 😭😭😭💖💖💖💖," one commented, and Jodie replied, "He was her plus one 😂😂🤍." Another viewer added, "You say weddings aren't about perfection but I think this is the most perfect expression of love for your family ❤️." And another viewer shared, "My sister has autism and she was my bridesmaid, she’s 13 and it was first time she wore a dress in many years and to say she smashed it was a understatement 💗," and Jodie responded, "That’s amazing! I felt so proud of Sofia even wearing the dress as I knew how big even that was for her 🤍." And another viewer commented, "my goodness this made me so emotional. how amazing ❤️."

About a quarter of people with autism spectrum disorder (ASD) are nonverbal, and while that number seems high, there's been sharp decline from a generation ago when the number was closer to half.

This positive shift is due to an increase in studies on ASD which have resulted in more effective, therapeutic strategies. Children with ASD are often nonverbal, but many go onto acquire language skills. According to a 2013 study, up to 70% of nonverbal children become fluent speakers or can use simple phrases.

Having a child that is nonverbal or speech-delayed can be terribly frustrating because you want them to be able to clearly communicate how they're feeling emotionally and physically. It's also very hard to see them interact with other children without being able to express their full selves like everyone else. So, when a child with autism spectrum disorder makes their first language breakthrough it's a monumental moment for themselves and those close to them.

Photographer Haley McGuire shared her son Micah's wonderful achievement on TikTok in the Fall of 2020, and the inspiring video was favorited over 730,000 times. Today, the video, which stays pinned at the top of McGuire's TikTok page, has been shared nearly 30,000 times and still garners attention and delight from followers and viewers.

The first video she shared was of Micah repeating the names of his family members as they cheer in the background. Every time Micah gets a name right, he leaps in excitement and beams with pure pride.

@haley_mcguire

We love you, Micah 💙 #autisim #autistiktok #fyp #learningtospeak

Since the video was first recorded, Micah has shown no signs of slowing his progress.

"It's been a day and a half now, and everything we ask him to say, he's copying," McGuire told Newsweek.

"He's not going out of his way to say anything on his own, but he's literally copying everything we say, which is crazy because he wasn't talking at all," McGuire continued. "Every now and then, he'd blurt out a word. But when I say 'wasn't talking,' he would go weeks without saying anything. This is crazy. He's been doing great."

The video of Micah repeating the names of his family members was followed up by a new recording where he says his name for the first time that received over 2 million favorites.

@haley_mcguire

Micah 💙 #autisim #speak #ohio #words #proudparents

McGuire says Micah is a very loving child and it's easy to see on the videos.

"Micah has always been a really sweet, tender-hearted, quiet kid," she said. "Obviously, he doesn't talk, but he kind of keeps to himself. He's always been extremely loving. I know that that's not necessarily normal for kids with autism. They like to not be touched and they like to be alone. But he's very affectionate and loving. It's been easy for us to be so happy and encouraging with him."

The videos have warmed a lot of people's hearts online and have been source of inspiration for the McGuire family. But, maybe the best part about the videos is they also give hope to families of children with an autism spectrum disorder, especially those who long for the day they can hear their child first speak.

Nearly five years later, Micah's progress is still going strong. Today, the McGuire family is on a journey to help Micah learn to spell, buoyed by the 2023 documentary, Spellers, inspired by the 2021 book Underestimated: An Autism Miracle (Children's Health Defense) by J.B. Handley and Jamison Handley.

Both the book and film challenge assumptions by "experts" about non-speakers with autism, namely that they're cognitively disabled. McGuire has shared clips of the documentary on her TikTok and has even begun teaching Micah S2C or "spelling to communicate." The method is an augmentative and alternative communication (AAC) designed to help people with autism who also have limited or no verbal abilities to communicate. S2C claims to provide non-speakers with a way to express their thoughts, needs, and feelings through spelling using a letter board or keyboard.

Watch Micah during a lesson:

@haley_mcguire

Learning this new process together #spellingtocommunicate #s2c #spellers #autismawareness #nonverbal

Already, he's moving along wonderfully and making progress.


@haley_mcguire

Working on longer pokes, less prompts and working not to “scroll” as much on his way to the correct letter, or touches the outside letters before hitting the correct one. (This is training him to use his AAC fluently, eventually, for open communication. We still work with AAC and SLP, please don’t continue to tell me what I am already aware of.)

The McGuire's advocacy for this communication method is providing hope, inspiration, and awareness for other families on the same journey. Keep up the good work, Micah!

This article originally appeared five years ago.

Photo pulled from YouTube video

What kids with autism see.

Imagine everything you'd experience while strolling through a mall — the smells, the sights, the things to touch...

Now imagine all of those feelings and sensations times, like, a hundred.


For many people with autism, overstimulation is their reality.

Being over- or undersensitive when processing sensory information (like sights and smells) is common for people on the autism spectrum.

So an everyday thing that many people might not even notice at the mall, like the spraying of a perfume bottle...

overstimulation, autism, spraying perfume

Autism and coping with overstimulation.

Photo pulled from YouTube video.

... can be overwhelming for someone with autism.

To Jo Wincup, whose 15-year-old son, Ben, has autism, this reality hits close to home.

“Four years ago, my son had a meltdown in a shopping center after becoming overloaded by the crowds, bright lights, and smells. He started kicking me, shouting, and swearing. We tried to get him outside to help him calm down, but the people [lining up] for buses just stared, some even said really hurtful things. This upset Ben even more. He ran off into the bushes and refused to come out. I just wanted to cry, for the ground to swallow us up."

The National Autistic Society is hoping to give viewers a peek into this reality with a new and gripping PSA.

Seen through the eyes of a boy with autism, the video by the U.K.-based group takes viewers through a shopping center, allowing them to experience what living on the spectrum can feel like.

After he's overwhelmed by his surroundings and struggling with his mother (as onlookers gape at what appears to be a child acting out), the boy explains to viewers: "I’m not naughty, I’m autistic."

cafeteria, judgmental, awkward

How can we understand what autism feels like?

Video pulled from YouTube video.

It's important that we all understand what autism can feel like so that we can build a more empathetic world.

Although a large majority of people have heard of autism, a very small number of people actually understand how living on the spectrum can affect behavior. Many kids aren't necessarily naughty; they're dealing with a condition most of us can't experience firsthand.

A new report from the National Autistic Society found that 87% of families say people stare at their child who has autism, and 84% of people on the spectrum say others perceive them as "strange." Unfortunately, this contributes to the reason why nearly 8 in 10 folks with autism report feeling socially isolated.

"It isn’t that the public sets out to be judgmental towards autistic people," Mark Lever, chief executive of the organization, said in a statement, noting the research provided "shocking" results.

"They tell us that they want to be understanding but often just don’t ‘see’ the autism. They see a ‘strange’ man pacing back and forth in a shopping center, or a ‘naughty’ girl having a tantrum on a bus, and don’t know how to respond."

It doesn't have to be this way, though.

The more we all understand autism, the more people on the spectrum can feel OK about being themselves.

“Autism is complex and autistic people and their families don’t expect or want people to be experts," Lever explained. But a "basic understanding could transform lives."

Watch The National Autistic Society's PSA below:


Family

Helicopter's thermal imaging helps save a young autistic girl lost in a Florida swamp

“I just love how the deputy greeted her. What a beautiful ending. You guys are the best!”

A deputy locates a missing girl in a Florida swamp.

A 5-year-old with autism spectrum disorder (ASD) wandered off into a swamp near Tampa, Florida, around 5:00 pm on Monday, February 26. The good news is that the girl was saved in about an hour thanks to the work of some brave sheriff’s officers and their incredible thermal technology.

The girl wandered from her home and was quickly reported missing by her family to the Hillsborough County Sheriff’s Department. The sheriff quickly dispatched its aviation unit that used thermal imaging technology to scan the nearby swamplands to try to find the young girl before nightfall.

Thermal imaging technology captures images based on the heat emitted by objects, allowing us to see temperature differences even in the dark, making it super handy for night vision and heat detection. The thermal technology helped the officers quickly identify the girl from high above the trees.


"Hey, I think I got her in the woods," a deputy in the helicopter told deputies on the ground. "She might be able to hear her name if you call her. She might be about 80 feet in front of you."

When the deputy on the ground spotted the girl, she lifted her arms and walked toward him. He picked her up and brought her to safety. "Let's get you out of the water. I'll get you to everyone," he told her as they walked out of the swamp.

The sheriff’s department said it was all in a day’s work for the deputies. "Their quick action saved the day, turning a potential tragedy into a hopeful reunion," it said in a statement. "Their dedication shows what service and protection are all about here at the Hillsborough County Sheriff's Office."

The Sheriff’s Office shared a video of the rescue on its Facebook page and people loved how the deputy greeted the girl, who must have been extremely scared. “I love how happy they were when they found her—they made it seem normal and a good time, keeping her calm. Well done!” Jan Murray wrote. “I just love how the deputy greeted her. What a beautiful ending. You guys are the best!” Sandy Schlabaugh-Kmentt added.

florida, autism, thermal imaging

Young girl lost in a swamp safely in police custody.

via WPBF 25/YouTube

Crime and safety analyst explained how the thermal technology works to News4Jax in Jacksonville, Florida. “It is a piece of equipment that actually will lock on to that heat signature,” Hackney said. “So no matter where that helicopter is moving, trying to orbit a certain area to look for the missing child, once it picks up on that heat signature and identifies it, it doesn’t lose it. So the units on the ground are able to move in like you saw.”

It is common for children with ASD to wander off from their caregivers or secure locations. The behavior is known as eloping. Children with ASD elope for a wide variety of reasons. Loud, frantic situations such as a child’s birthday party may be too stressful for a child with ASD, so they may leave the event unaccompanied to get to somewhere more calm. Others may elope because they enjoy the thrill of being chased by a parent or caregiver, even though it may unknowingly place them into a dangerous situation.