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The incredible story of baby Eva Grace: the superhero who never lived.

My wife Keri and I went in for the standard 19-week anatomy scan of our second child. As a parent, you think that appointment is all about finding out boy or girl, but it’s about a whole lot more.

In our case, our daughter was diagnosed with a rare birth defect called anencephaly — some 3 in 10,000 pregnancies rare. The phrase our doctor used in explaining it was "incompatible with life," which looks as terrible in words as it sounds. The child fails to develop the frontal lobe of the brain or the top of their skull. The chance of survival is 0%. We sat in a doctor’s office, five months before our daughter was to be born, knowing she would die.

The options weren’t great. There was (a) inducing early, which in effect was terminating the pregnancy or (b) continuing the pregnancy to full term.


Within a minute or so of finding out, Keri asked if we could donate the baby’s organs if we went to full term. It was on her heart and mind, but we left the doctor and still spent the next 48 hours deciding what we were going to do. It was excruciating. We considered terminating. We had to. Were we capable of taking on the weight of the 20 weeks ahead? In our minds, we were intentionally taking on the loss of a child, rather than the loss of a pregnancy. And, yes, there is a difference.

We decided to continue, and we chose the name Eva for our girl, which means "giver of life."

The mission was simple: get Eva to full term, welcome her into this world to die, and let her give the gift of life to some other hurting family.

It was a practical approach, with an objective for an already settled ending point. We met with an organ procurement organization called LifeShare of Oklahoma and found out we’d be the eighth family in the state to donate the organs of an infant.

There wasn’t much of a precedent or process in place because, until only recently, most parents of anencephalic babies didn’t know it was an option. There’s this weird gray area involved because, even without a brain, these babies can’t be declared brain dead. Her heart would need to stop beating, leaving a finite window of, let’s call it, "opportunity," to recover her kidneys, liver, and maybe pancreas and heart valves. We asked about other things, like her eyes or corneas, but LifeShare told us they’d never done that before, even with an adult.

All photos by Mitzi Aylor/Alyor Photography. Used with the permission of Royce Young.

Part of the difficulty of the decision to carry on was the physical pregnancy and the mental burden of carrying a baby for 20 more weeks knowing she would die. The kicks and punches to Keri’s bladder served as a constant reminder of what was inside. (Yes, Eva kicked like any other baby; her brainstem was complete, which is what controls basic motor functions. I know, we had a hard time wrapping our minds around it too.) She feared people asking what she was having or the due date or if the nursery was ready.

What we unexpectedly found, though, was joy in the pregnancy. We happily talked about our sweet Eva, and day by day, our love for her grew. We got excited to be her parents.

I think a big part of that was connected to the decision we made to continue on, which was empowering. She had a name, an identity, and a purpose. The idea of choice in pregnancy is a complicated one, and one I kind of want to avoid here. Wherever you fall, just know, we were empowered by our decision, our responsibility to be Eva’s mom and dad for as long as we could. We went from seeing the pregnancy as a vehicle to help others to looking forward to holding her, kissing her, telling her about her brother, and being her parents.

The time we’d have was completely unknown, with it ranging anywhere from five seconds to five minutes to five hours to, in some more optimistic estimates, five days.

We decided to have a planned C-section. We wanted to maximize our chances of seeing Eva alive and be able to control as many variables as possible.

There wouldn’t be any surprise labor in the middle of the night. We could have our first child Harrison there to meet his sister and grandparents ready to hold their granddaughter even if she was only alive for an hour or so. We wanted to do what was best for our girl. That’s what parents do.

As the date neared, the meetings and appointments cranked up. We had what everyone called the "Big Meeting," a gathering at Baptist Hospital of about 30 people that included multiple people from LifeShare, NICU nurses and doctors, neonatologists, and other "Very Important Hospital People." We were the first infant organ donor ever at Baptist, and they were developing a protocol on the fly. There were plans and contingency plans and contingency plans for the contingency plans.

The process was going to be delicate, and to be frank, it seemed increasingly unlikely that it would work. There were a lot of things that were going to need to go just right, even with the intricate plans that were being put in place. It was made clear to us over and over and over again how if Eva’s kidneys or liver didn’t go directly for transplant, they would go to research, and infant organ research is incredibly valuable.

But I wanted a tangible outcome. I wanted to be able to meet and hug and shake the hand of the person my daughter saved.

I couldn’t dream about what my daughter would grow up to be, so I fantasized about the difference she could make.

What if the person who got her kidneys became president? What if her liver went to a little boy and he goes on to win the Heisman Trophy? I was writing the "30 for 30" script in my mind every night as I went to sleep. It was something to hold onto; it was the kind of hope I wrapped up with both arms. Research was nothing more than a fail-safe to me, a Plan B that I didn’t want any part of.

There were some concerns from the hospital's ethics team about Eva and our plans. As I explained to them — and to anyone else out there who has this idea that we grew a daughter just for her organs — Eva was a terminal child. And as her parents, we elected to make her an organ donor. That’s it. She would be born, live an indefinite amount of time, and then we were choosing to donate her organs.

Then suddenly, we were in the two-week window. In two weeks, we’d be prepping to welcome our baby girl into the world and preparing to say goodbye to her.

I planned on sitting down that day to write Eva a letter, like I did before Harrison was born to give him on his 18th birthday. She’d never read it, but I was going to read it to her. Keri didn’t feel Eva move much that morning, but we both brushed it off and went to lunch. We came home, put Harrison down for a nap, and Keri sat down in her favorite spot and prodded Eva to move. She wouldn’t.

We started to worry. Keri got up, walked around, drank cold water, ate some sugary stuff. She sat back down and waited. Maybe that was something? We decided to go to the hospital. We held on to hope that we were just being overly anxious and didn’t take any bags.

We arrived, and a nurse looked for a heartbeat on the doppler: nothing. Not unusual; it was sometimes hard to find because of the extra fluid. They brought in a bedside ultrasound machine and looked. It seemed that maybe there was a flicker of cardiac activity. They told us to get ready to rush in for a C-section.

I just remember repeating, "I’m not ready I’m not ready I’m not ready I’m not ready." I was supposed to have two more weeks. What about the plan? What about Harrison? What about Eva’s aunts and uncles and grandparents? What if they couldn’t make it in time? What about her letter?

They brought in a better ultrasound machine. Keri and I had seen enough ultrasounds to immediately know: There was no heartbeat. Eva was gone before we ever got to meet her. The brain controls steady heart functions, and Eva’s finally gave out.

Keri rolled onto her side and put both hands over her face and let out one of those raw, visceral sobbing bursts. I stood silently shaking my head.

We had tried to do everything right, tried to think of others, tried to take every possible step to make this work, and it didn’t. No organ donation. Not even for research, our fail-safe. We felt cheated.

The word I still have circling in my head is disappointment. That doesn’t really do it justice because it’s profound disappointment. The kind of disappointment that will sneak up on me at different times, like when I’m mowing the yard or rocking Harrison or driving to a game.

Since there was no reason to control variables anymore, the doctors induced Keri into labor. The rest of Sunday and into Monday morning were the darkest, most painful hours of our lives. We had previously come to terms with the outcome and had almost found a joy in the purpose of our daughter’s life. We had looked forward to meeting her and loving her. We knew we’d hurt from her loss, but there was hope in the difference she was making. We had heard from recipients of organ donation that were so encouraging and uplifting.

But the deal got altered. It felt like we were letting everyone down. (I know how ridiculous that sounds.) I felt embarrassed because all that positivity about saving lives wasn’t happening now. (I know how ridiculous that sounds.)

On top of it all, the ultimate kick in the gut: We wouldn’t even see her alive. I struggled with the idea of Eva’s existence and her humanity all along, about whether a terminal diagnosis made her dead already. I clung to knowing her humanity would be validated to me when I saw her as a living, breathing human being. I wanted to watch her die because that would mean I got to watch her live. I longed for just five minutes with her — heck, five seconds with her. All of that practical stuff about organ donation was irrelevant to me now. I just wanted to hold my baby girl and see her chest move up and down. I just wanted to be her daddy, if only for a few seconds.

Eva came surprisingly quick on Monday. Keri forced me to go get some lunch  —  a sad, lonely lunch featuring me taking bites of chicken fingers in between sobs  —  and I got back to the hospital around noon. Keri sat up and felt some pain. Then she felt another shot of pain ring through her body. Our photographer had just arrived and was setting up. Keri started to panic and asked for nurses to come in. They checked her, and it was time to have a baby. I still wasn’t ready.

At 12:20 we called our family and told them to hurry.

At 12:30, our doctor, Dr. Pinard, arrived.

At 12:33 and 12:35, Laurie from LifeShare tried calling Keri.

At 12:37, Eva Grace Young was born. I cut her umbilical cord at 12:38.

My phone rang at 12:40 and 12:41, and then a text came. It was Laurie from LifeShare. "Hey Royce, it’s Laurie . Will you give me a call when you get a chance? I think I have some good news for you."

Keri and I held each other and cried as the nurses cleaned Eva, and Dr. Pinard called LifeShare for us.

Then, she walked up to the foot of the bed.

"I’m on the phone with LifeShare," Dr. Pinard said, a smile cracking through on her face. "They have a recipient for Eva’s eyes."

It’s weird to say that during probably the worst experience of my life was also maybe the best moment of my life, but I think it was the best moment of my life.

The timing of it all is just something I can’t explain. It wasn’t what we planned or hoped for, but it was everything we needed in that moment. I buried my head in my arms and sobbed harder than I ever have. Keri put her hands over her face and did the same. Happy tears.

This was our reaction when Dr. Pinard told us about Eva’s eyes.

As the nurses handed her to us for the first time, much of the dread and fear was lifted from us and replaced with hope and joy again. Here comes Eva Grace Young, the superhero she was always meant to be.

None of it went as we planned. We’re trying to rest on knowing we did the best we could. We always said we wanted to limit our regret, and I think in 20 years or so, as we reflect on this, there’s not much we’d change.

We’re proud to be Eva’s parents. We’re thrilled with the impact she’s made. People from around the world have sent us messages telling us they’ve signed up to be organ donors because of Eva.

Eva’s the first ever —  not baby, but person — in the state of Oklahoma to donate a whole eye, and she donated two.

Because of her, LifeShare has made connections in other states to set up eye transplants for the future. They have an infant organ donation plan they now are working with sharing with other organ procurement organizations in Colorado and Texas. They call it the Eva Protocol.

I keep thinking about looking into her eyes some day, but more than anything, I think about her eyes seeing her mom, dad, and brother.

We always wondered things about Eva, like what color her hair would be, if she’d have Harrison’s nose, if she’d have dimples like her mama, or what color her eyes would be. In the time we spent with her, one eye was just a little bit open, and I fought the temptation to peek. I can’t ever hold my daughter again. I can’t ever talk to her or hear her giggle. But I can dream about looking into her eyes for the first time one day and finding out what color they are.

This story first appeared on the author's Medium and is reprinted here with permission.

Pop Culture

'Wicked' author says one line in 'The Wizard of Oz' inspired Elphaba and Glinda's backstory

Gregory Maguire says he "fell down to the ground" laughing when the idea hit him.

Public domain

The two witches in "The Wizard of Oz" clearly had a history together.

Have you ever watched a movie or read a book or listened to a piece of music and wondered, "How did they come up with that idea?" The creative process is so enigmatic even artists themselves don't always know where their ideas come from, so It's a treat when we get to hear the genesis of a brilliant idea straight from the horse's mouth. If you've watched "Wicked" and wondered where the idea for the friendship between Elphaba (the Wicked Witch) and Glinda (the Good Witch) came from, the author of the book has shared the precise moment it came to him.

The hit movie "Wicked" is based on the 20-year-old hit stage musical, which is based on the novel "Wicked: The Life and Times of the Wicked Witch of the West" written by Gregory Maguire. While the musical is a simplified version of the 1995 book, the basic storyline—the origin story of the two witches from "The Wizard of Oz"—lies at the heart of both. In an interview with BBC, Maguire explained how Elphaba and Glinda's friendship popped into his head.

 

Maguire was visiting Beatrix Potter's farm in Cumbria, England, and thinking about "The Wizard of Oz," which he had loved as a child and thought could be an interesting basis for a story about evil.

"I thought 'alright, what do we know about 'The Wizard of Oz' from our memories,'" he said. "We have the house falling on the witch. What do we know about that witch? All we know about that witch is that she has feet. So I began to think about Glinda and the Wicked Witch of the West…

 glinda, elphaba, wicked,  In "Wicked," the two Oz witches met as students at Shiz University.  Giphy GIF by Wicked 

"There is one scene in the 1939 film where Billie Burke [Glinda the Good Witch] comes down looking all pink and fluffy, and Margaret Hamilton [the Wicked Witch of the West] is all crawed and crabbed and she says something like, 'I might have known you'd be behind this, Glinda!' This was my memory, and I thought, now why is she using Glinda's first name? They have known each other. Maybe they've known each other for a long time. Maybe they went to college together. And I fell down onto the ground in the Lake District laughing at the thought that they had gone to college together."

In "Wicked," Glinda and the Wicked Witch, Elphaba, meet as students at Shiz University, a school of wizardry. They get placed as roommates, loathe each other at first, but eventually become best friends. The story grows a lot more complicated from there (and the novel goes darker than the stage play), but it's the character development of the two witches and their relationship with one another that force us to examine our ideas about good and evil.

  - YouTube  youtu.be  

 

Maguire also shared with the Denver Center for Performing Arts what had inspired him to use the "Wizard of Oz" characters in the first place.

"I was living in London in the early 1990’s during the start of the Gulf War. I was interested to see how my own blood temperature chilled at reading a headline in the usually cautious British newspaper, the Times of London: 'Sadaam Hussein: The New Hitler?' I caught myself ready to have a fully formed political opinion about the Gulf War and the necessity of action against Sadaam Hussein on the basis of how that headline made me feel. The use of the word Hitler – what a word! What it evokes! When a few months later several young schoolboys kidnapped and killed a toddler, the British press paid much attention to the nature of the crime. I became interested in the nature of evil, and whether one really could be born bad. I considered briefly writing a novel about Hitler but discarded the notion due to my general discomfort with the reality of those times. But when I realized that nobody had ever written about the second most evil character in our collective American subconscious, the Wicked Witch of the West, I thought I had experienced a small moment of inspiration. Everybody in America knows who the Wicked Witch of the West is, but nobody really knows anything about her. There is more to her than meets the eye."

 wizard of oz, wicked witch of the west The Wicked Witch of the West has a story of her own.  Giphy  

Authors and artists—and their ideas—help hold a mirror up to humanity for us to see and reflect on who we are, and "Wicked" is one of those stories that makes us take a hard look at what we're seeing in that mirror. Thanks, Gregory Maguire, for launching us on a collective journey that not only entertains but has the potential to change how we see one another.

This story originally appeared last year.

via Josie Bowers / TikTok

Josie Bowers, a 19-year-old woman from Canada, shared the story of how she thwarted an intruder when she was 15. The viral TikTok video is a harrowing tale and a valuable lesson for everyone to learn. Josie was staying with her family at the Ocean City Hilton in Ocean City, Maryland, when the incident occurred.

She went to her hotel room alone to take a shower while her family was on the beach. After getting out of the shower, she was alarmed when she noticed a long wire with a hook at the end wiggling its way out of the crack at the bottom of the front door. The hook was waving around, trying to catch the handle to open the door. It's amazing that no one in the hallway noticed the incredibly suspicious activity.

The intruders eventually caught the handle with the wire and pulled it down to enter the room. Without hesitation, Josie slammed the door shut and put on the deadbolt. "My main thought was holy sh*t, I'm in a towel right now and someone is about to break in and get me," she said on TikTok. "So the door opens a crack, and I just slammed it back shut and put the deadbolt on."

After the door was shut on the intruders, they pretended to work for the hotel. "So they tell me your keycard is broken and we need to get into the room and fix your keypad for you," she continued. "And so I open the door a tad bit, to see if it was a worker. It clearly wasn't, they were in jeans and a T-shirt. Hilton keeps it pretty classy, not the attire."

@josiebowers10

Reply to @emmade1rey #part2

Josie then remembered a trick that her stepfather, who's a police officer, once told her: Never let people know you're alone.

"I yelled 'Hey dad, there's someone here to fix the door.' As soon as they thought that I wasn't alone – and potentially my dad was there – they ran, they were gone," she said. A lot of people freeze in such a stressful situation but Josie was able to remember her stepfather's advice and it made all the difference.

Given their reaction, it's pretty clear that the intruders must have followed her up from the beach or had some inside information to know that she was alone. They didn't want anything to do with her father. "So I think I'm very smart for this one, my stepdad is a police officer, he taught me never to let people know you're alone. I yelled 'Hey dad, there's someone here to fix the door.' As soon as they thought that I wasn't alone, and potentially my dad was there. They ran, they were gone," she said.

@josiebowers10

Reply to @lionacreates #part3 #oceancity

The TikTokker shared the video to show others what they should do in a similar situation and to remind them to never let anyone know they are alone.

"I'm glad I had this experience so I can teach people about it. Obviously, I'm safe but it could have ended up a lot worse," she said. "Be safe, you can get door stoppers, always put on the deadbolt."


This article originally appeared four years ago.

via James Breakwell/X

All parents have had similar convos with thier kiddos.

Raising kids is tough, but there's a lot of laughs along the way. Especially when actual conversations start, as kids begin trying to make sense out of the world around them, ask questions, and test mommy and daddy's resolve.

Back in 2018, comedy writer and children's book author James Breakwell, with four daughters who were all under the age of eight at the time, shared their hilarious conversations on X. From these tweets, it looks like comedy runs in the family. Here's a sampling of some Breakwell's funniest kid-inspired tweets.

 


 


 


 


 


 


 


 


 


 


 


 


 


 


 


 


 


 


 


 


 


 


 


 

While Breakwell's 7-year-old wasn't as heavily featured, when she was quoted, the sarcasm was palpable. Which makes sense, considering that kiddos begin understanding this mechanism around that age.

 


 


 


 


 


 


 


 


 


 


 


 


 

Kids really do say the darnedest things, and we love them for it. It one of the many, many ways then bring so much joy to the world. It almost makes up for the headaches and sleepless nights, doesn't it.

This article originally appeared seven years ago.

Remember things being built to last?

Americans are well aware of shrinkflation, where food companies reduce the sizes of their products while the price remains the same at the grocery store. You see this in fast food restaurants when you pick up a burger and feel like your hand has grown a few inches, and at the supermarket when you buy a box of cookies, it weighs less than it did a few weeks ago. Companies use this strategy when they think you’ll be less likely to notice a dip in quantity than a hike in the price.

We see something similar in the world of retail, particularly fast fashion. Fast fashion offers cheaper garments made from low-quality materials that last about as long as the trend does, so people can throw them away and buy the next hot thing. This can be a real problem because fast fashion harms the environment and leads to exploitative labor practices. And the tough part is—even for the most conscious of consumer, it's hard to escape from.

Here's a prime example of what this looks like in the real world. A few months ago, a TikTokker named Tom (@SideMoneyTom), popular for making videos about consumer products, went viral for a video where he called out shoe manufacturers for dropping their quality while keeping prices high. “So many of you guys want to shoot the messenger, but look, it's not my fault shoes are made out of Styrofoam and oil now,” Tom says in a TikTok with over 528,000 views. “It's literally every shoe you look at now. It's not even just the cheap ones. I can find hundred dollar plus pairs of shoes all day long with glue squeezing out of their Styrofoam cracks.”

 
 @sidemoneytom Replying to @Oscar Magaña shoes are done #fyp #shoes #foryou ♬ original sound - SideMoneyTom 
 
 

Tom notes that recently, shoes have been made with foam soles instead of rubber. Both have pros and cons. Foam is a little more comfortable, but rubber lasts a lot longer. Rubber shoes keep shape and support over time and are much more durable. Conversely, foam shoes compress over time, losing their support and comfort. When companies sell cheaper shoes that wear out more quickly, they make much more money because you must keep replacing them.

In the video, Tom adds that many companies that used to have shoes made with rubber heels, such as Carhartt and Timberland, have switched to foam. This is an interesting choice for brands that pride themselves on selling durable products.

Cora Harrington, a writer and lingerie expert, says that companies aren't entirely to blame. Americans don’t want to pay higher prices. “People don’t exactly want to pay more for all that stuff,” Harrington told Vox. "So what has to happen if everything is more expensive and the customers still want to pay the same price, something has to be cut and that’s often going to be the quality of the garment.”

“There is an entire generation of consumers at this point that doesn’t actually know what high-quality clothing feels like and looks like,” Harrington continues. “It gets easier, I think, for consumers to just not know any better.”

Many commenters have noticed the decline in shoe quality and praised Tom for pointing it out. "I am so happy I’m not the only one who is baffled by shoes being made of styrofoam and then being upcharged for them," one commenter wrote. "When shoes started being named some version of 'Air Light Cloud float,' my thought was it was because they went from quality rubber to cheap foam and less materials,” another commenter added.

Tom believes the decline in shoe quality is an example of a more significant trend affecting American consumers' products: quality is decreasing while prices remain the same. “The quality of everything is going to hell, and the prices are going up," Tom concludes his video. "The problem is, so many of us have just become used to it that we keep buying it, and we basically allow them to dumb down the quality of everything. Everything in our lives. These shoes are just the tip of the iceberg. Start thinking about it in your life. What are you gonna allow to be garbage quality?"

This article originally appeared in March.

Boomer panic is real.

In a video posted in September 2023, TikToker @myexistentialdread used the phrase “boomer panic” to explain how baby boomers (1946 to 1964) can quickly become unhinged when faced with the most minor problems. It all started when she visited a Lowe’s hardware store and encountered a boomer-aged woman working at the check-out stand.

“I had a dowel that didn’t have a price tag on it, whatever, so I ran back and took a photo of the price tag. And as I was walking back towards her, I was holding up my phone… because I had multiple dowels and that was the one that didn’t have the price tag on it,” she said in the video. “And she looks at me and she goes, ‘I don’t know which one that is,’ and she starts like, panicking.” The TikToker said that the woman was “screechy, panicking for no reason.”

 older woman upset, boomer reactions, boomer panic Older people can become frustrated over seemingly small things.Photo credit: Canva

Many people raised by boomers understood what she meant by "boomer panic." "Boomer panic is such a good phrase for this! Minor inconvenience straight to panic," the most popular commenter wrote. And while there was some unfortunate boomer-bashing in the comments, some younger people tried to explain why the older folks have such a hard time regulating their emotions: “From conversations with my mother, they weren’t allowed to make mistakes and were harshly punished if they did.” The TikToker responded, “A lot of people mentioned this, and it breaks my heart. I think you’re right,” Myexistentialdread responded.

A follow-up video by YourTango Editor Brian Sundholm tried to explain boomer panic in an empathetic way.

 

“Well, it's likely that there actually was a reason the woman started panicking about a seemingly meaningless problem,” Sundholm said. “Most of us nowadays know the importance of recognizing and feeling our emotions.” Sundholm then quoted therapist Mitzi Bachman, who says that when people bottle up their emotions and refuse to express them, it can result in an "unhinged" reaction.

TikToker Gabi Day shared a similar phenomenon she noticed with her boomer mom; she called the behavior “anxiety-at-you.”

Day’s boomer mother was “reactive,” “nervous,” and “anxious” throughout her childhood. Now, she is still on edge with Day’s children. “She's immediately like gasping and just really like exaggerated physical reactions, and then, of course, that kind of startles my kid,” Day said. “Again, I know that this comes from a place of care. It's just a lot,” she continued.

@itsgabiday

It comes from a place of love but it is exhausting 🫠😬 #millennialmomsoftiktok #boomergrandma #reparenting #gentleparenting

 

There is a significant difference in emotional intelligence and regulation between how boomers were raised and how younger generations, such as Gen X, millennials, and Gen Z, were brought up. Boomers grew up when they had to bottle up their feelings to show their resilience. This can lead to growing anger, frustration with situations and people, chronic stress, and anxiety—all conditions that can lead to panicky, unhinged behavior.

Ultimately, Sundholm says that we should sympathize with boomers who have difficulty regulating their emotions and see it as an example of the great strides subsequent generations have made in managing their mental health. “It may seem a little harsh to call something 'boomer panic,' but in the context of how many of them were raised, it makes a lot of sense,” Sundholm says. “It also underlines the importance of emotional regulation skills and teaching them to future generations. And maybe most important, having compassion for those who never had a chance to learn them.”

 older person's hands holding a younger person's hands, compassion for elderly Having compassion for older generations can go a long way.Photo credit: Canva

This article originally appeared in March.