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Disability

Boy carried two miles to school inspires a locally-made wheelchair mission in Malawi

Mobility is a gift that empowers and opens up a whole world of possibilities.

Courtesy of Malawi Wheels

Justin's first wheelchair led to a mission for mobility in Malawi.

If a child has a disability that requires a wheelchair in the United States, we generally assume they'll be able to get one. If a family can't afford a wheelchair, we know there are programs and resources that can help fill that need, so the idea that a child wouldn't be able to go to school at all because of a physical disability doesn't really cross our minds.

That is the reality in many parts of the world, however. In developing nations with limited resources, kids with mobility issues often languish at home, unable to participate in or contribute to many aspects of community life. Especially in rural areas that are far from large medical centers and services, kids with disabilities can slip through the cracks and lose the opportunity to get an education.

wheelchairs, malawi, malawi wheels, disabilities, mobilityMalawi Wheels Country Coordinator Gelson Mtinga poses with three new wheelchairs.Courtesy of Malawi Wheels

Behavioral therapist Danielle Kama encountered that reality while volunteering on international service trips during college at San Diego State University. After her first service trip took her to Tanzania, she returned every other year, helping to build schools or teach English. After college, she became a Christian and started doing mission work as well, which eventually led her to Malawi.

Malawi is a small, majority Christian country in East Africa, landlocked between Tanzania, Mozambique, and Zambia. Approximately the size of Pennsylvania in area, it's also one of the poorest nations on Earth, with the majority of its population living in rural areas and doing cash crop and subsistence farming. Approximately 70% of Malawians live in poverty by international standards.

It was in Malawi that Danielle met Justin, an eight-year-old living with mobility differences. Danielle was helping with a children's program when she noticed Justin sitting on the ground while playing with his friends.

disability, wheelchair needs, malawi, kids, childrenJustin may not be able to walk, but he loves to play soccer.Courtesy of Malawi Wheels

"He had the biggest smile on his face, just like beaming from ear to ear," Danielle tells Upworthy. "And all the kids were around him, also smiling. They just kind of ran off to the next cool thing, and then I noticed him start to crawl, with his arms dragging his knees. He couldn't walk, but he kept smiling while trailing all the way behind these other kids trying to keep up."

"I don't even remember thinking, 'That's so sad'," she adds. "It was just really beautiful to see his joy despite the mobility difference."

Danielle visited with Justin's family to find out what kind of needs they had. She found out that Justin's father carried him to school, two miles each way, so he was able to attend. But most kids in Justin's circumstances aren't that fortunate. In fact, according to the 2018 Population and Housing Census, approximately 11.6% of Malawians aged five and older have at least one type of disability. With only 14 prosthetists and orthotists, 200 physiotherapists and assistants, and 15 orthopedic surgeons serving the entire country, Malawi has a limited number of professionals to address mobility and disability issues.

"It kind of became my mission to see if it was possible to get [Justin] a wheelchair to at least make that easier for him and his family getting him to school," she says. "And I found quickly that there's not a lot of options or organizations in Malawi for making or donating wheelchairs."

wheelchair, disability, mobility, kids with disabilities, malawi wheelsJustin in his chair with his brother and a friend.Courtesy of Malawi Wheels

Danielle managed to track down a chair for Justin, but knowing the need was greater than just one child, she became determined to find a way to get more wheelchairs made locally. She met an "amazingly clever and funny" Malawian named Richard, who was a wheelchair engineer. After he trained three welders in his craft, Danielle hired them to start a wheelchair-making operation, now known as Malawi Wheels.

"So that was in December of 2021," Danielle shares. "And then in February, just two months later, [Richard] died of a heart attack. Terrible, terrible. But I truly believe God allowed his knowledge and passion for making wheelchairs for kids to be transferred to our team before his death. And I know that it was really meaningful for his wife to have that legacy live on through now Malawi Wheels."

malawi wheels team, wheelchair makers, helpers, team, engineersThe Malawi Wheels team, left to right: Samuel George (wheelchair engineer) Esther Anthony (office manager), Emmanuel Fred (wheelchair engineer), Stevie Wilson (fieldwork manager), Gelson Mtinga (country director) , Oscar Tamatha (wheelchair engineer) Courtesy of Malawi Wheels

What started with Justin and Richard has now become a team of six men and women, all local Malawians, who identify children with mobility needs, build wheelchairs for them, and deliver them. Danielle says that so far about 200 kids have gotten wheelchairs from Malawi Wheels, which are all made and repaired locally.

"We believe that local needs should have local solutions," she explains. "All of our materials to make wheelchairs are purchased in Malawi so that we can 1) repair them in Malawi and 2) we can give back to Malawian-owned businesses and of course the local economy. So all of our team is local Malawians, our supplies are purchased in Malawi, and our wheelchairs are built and delivered in Malawi."

group, Malawi, Malawi Wheels, crowd, ministry, missionMiracle and his community the day he got his wheelchairCourtesy of Malawi Wheels

Danielle says there are advantages to staying local and not being part of a large international organization. There are non-profits that give millions of wheelchairs away on a global scale, which Danielle praises, but she says there can be issues with not being able to repair or find replacement parts for wheelchairs shipped in from other places. Additionally, as kids outgrow their chairs, they may not have anyone to contact to get a larger one because the chair was just dropped off for them.

Malawi Wheels wheelchairs are custom made for each child so they are safe and their individual needs are catered to.

Man repairing wheelchair; child smiling in a wheelchair, Malawi Wheels, kids, disabilityOscar puts finishing touches on a wheelchair (left), Rose with her mom after getting into her Malawi Wheels chair for the first time (right)Courtesy of Malawi Wheels

"We really like being small right now," Danielle says, "because we're able to carry those 200 children and really hold them and see their story. Our desire is not just to give a wheelchair, give a handout, and then leave. We want to see their progress, repair wheelchairs, make updates, sustainably support the family for the future with some of our programs like parent support groups, which focus on more of the financial, spiritual help for the parent, and then our small business programs, which focus on empowering families financially so that they can support their children long term."

This holistic approach to service is purposeful. The support groups where parents of kids with disabilities gather to pray for one another and provide mutual support also receive physical therapy educational training to better help their children with their needs.

"We transport licensed physiotherapists to the groups to focus on parent training for exercises so that they can take those exercises home and then continue them daily with their children," Danielle shares. "And the main purpose for a lot of these groups is to try to defeat some of that isolation and discrimination that these parents experience."

parent support group, emotional support, physical therapy education, malawi wheelsParent groups provide emotional and spiritual support as well as physical therapy education for parents of kids with disabilities.Courtesy of Malawi Wheels

It's not uncommon in Malawi for a child born with special needs to be seen as cursed or as a punishment from God for a family or individual. It's also a common and accepted practice for a father to leave the family if a child is born with or develops a disability, so there's a lot of stigma and discrimination that follows these kids.

"That leaves, of course, a lot of single mothers caring for their children alone and a lot of lonely mothers and families," says Danielle. "So our goal has been to start new communities for those parents and caregivers that share that common bond so that they can lean on one another, because there are common struggles and common joys that come with having a child with special needs that can then bring them together and help them feel not so alone. So yeah, we kind of get that emotional spiritual care but then also that physical care because we have the physical therapy embedded within the groups as well."

Malawi Wheels also provides business support to help the families become more self-sufficient financially.

"We recognize that a lot of the time, special needs does mean special expenses like medical equipment, monthly medicines, hospital care, so one solution we've found that can be be helpful is coming alongside those families to assist them in starting their own business so that with the profits they can better support their child long term. Again, not just giving a handout that's not going to help them in the long run, but sustainably supporting them. So, when a family is interested in starting a business, we start with a one-on-one small business training for them, we help them make a business plan and then we supply a grant or a no-interest loan, and then we support them through the building process and check in bimonthly for updates. And we found that this can be a huge help for families."

Businesses are often small grocery businesses, selling various items like tomatoes, cooking oil, eggs, etc. Some families also start cooked food businesses like a French fry stand—known as chips in Malawi—or selling small donuts called mandazis.

Danielle says their research over the last couple of years has indicated that no-interest business loans tend to be much more effective than grants. Having the responsibility and accountability of paying the money back, even without any interest, seems to be more empowering to recipients than being given a grant, leading to greater success. Continuous learning helps the organization hone their programs to have the most impact.

It really all comes down to ministering to people's needs holistically, says Danielle, with the mission being for "people to come away with an understanding of Christianity that reflects God's love for his people, especially regardless of ability, regardless of looks, regardless of religion. Because we believe that God created everyone, that everyone bears his image, that he loves everyone, that he really wants healing for his people, mind, body, and soul. So that's why we focus on that holistic model of helping. Of course, we want to provide spiritually, but we're also there to help with physical needs because that's what Jesus did. He didn't just offer prayer. He offered physical healing and provided for physical needs. So I think that collision of faith and works is really important."

malawi wheels, wheelchairs, non-profit organization, group photo, ministryDanielle and her son with the Malawi Wheels team.Courtesy of Malawi Wheels

As for Justin, he's been thriving with his increased mobility.

"After receiving a chair, we've seen Justin become so social in his community," Danielle says. "Every time our team visits the village he's from, they always pass him on the road and see him at the soccer fields or with his friends. He's always out, every time I go to Kabekere where he's from, he is always along the road somewhere."

Additionally, the physical therapy Justin has received through the parent support group has helped him gain enough strength and balance to be able to use a walking frame for short distances. He's also become a soccer coach for his team of friends.

"I've seen him play soccer, too—adaptively, of course—but he'll sit on the floor and swing his legs to kick it to his friends," says Danielle. "So just seeing that now he's even a soccer coach and how involved he's been in his community since being able to have that mobility and independence is so cool."

Mobility truly is a gift that empowers and opens up a world of possibilities. Learn more about the Malawi Wheels mission and see how you can support their efforts here.

Pop Culture

Here’s a paycheck for a McDonald’s worker. And here's my jaw dropping to the floor.

So we've all heard the numbers, but what does that mean in reality? Here's one year's wages — yes, *full-time* wages. Woo.

Making a little over 10,000 for a yearly salary.

I've written tons of things about minimum wage, backed up by fact-checkers and economists and scholarly studies. All of them point to raising the minimum wage as a solution to lifting people out of poverty and getting folks off of public assistance. It's slowly happening, and there's much more to be done.

But when it comes right down to it, where the rubber meets the road is what it means for everyday workers who have to live with those wages. I honestly don't know how they do it.

Ask yourself: Could I live on this small of a full-time paycheck? I know what my answer is.

(And note that the minimum wage in many parts of the county is STILL $7.25, so it would be even less than this).

paychecks, McDonalds, corporate power, broken system

One year of work at McDonalds grossed this worker $13,811.18.

assets.rebelmouse.io

The YouTube channel Just Frugal Me discussed the viral paycheck and noted there's absolutely nothing wrong with working at McDonald's. More than 2 million people in the U.S. alone work for the fast food giant. The worker's paycheck shows they put in 72 hours over the pay period making $8.75 per hour. Before taxes, that's $631 for the week. Just Frugal Me's breakdown is even more eye opening, breaking down this person's pay after taxes and weighed across average rent and utility costs. Spoiler Alert: the total costs for basic necessities far outweighs what this person is making even while working 12 hours per day. But they do make too much to qualify for Medicaid, meaning they will have to go out and buy their own health insurance.

Even in states like California, where the state's $20 minimum wage ensures that people earn nearly three times as much as the federal minimum wage, which remains as low as when this paycheck first made the rounds nearly 10 years ago.

Still, even for a worker that maxed out at 40 hours per week and took zero vacation or sick time, that's only a little over $41,000 per year. That's barely half the median wage in the state of $78,000 and far below a sustainable living wage in cities like Los Angeles.


This story originally appeared ten years ago. It has been updated to reflect new information.

via Blake Kasemeier, used with permission.

Blake Kasemeier and his children.

A video created by Blake Kasemeier has made a lot of people feel seen because it perfectly explains the mindset people develop when they grow up poor. But it’s not just about remembering the hard times of the past. It describes how even though Kasemeier has overcome poverty as an adult, the effects of growing up financially disadvantaged still follow him to this day.

Kasemeier tells stories on social media about parenting, grief, growing up, and where they sometimes collide. He documented the loss of his mom in the 2019 podcast series Good Grief and has written for some of the world’s leading health and fitness brands.

The video begins with Kasemeier admitting that when he was young, he'd always save half of his food until he got home "just in case." It was a symptom of living in a financially unstable family with a single mother who had him at 23 years old. To help them get by, she occasionally wrote "hot checks" at the grocery store and blasted a Counting Crows tape to cover up any scary sounds coming out of the car.

Even though sometimes it seemed like they wouldn't get by and it was “close most days” — "moms always find a way."

The video ends with a poignant stanza about the lasting effects of growing up in an economically unstable home.

“It sits inside of you. Kinda like a worry but a lot like a flame,” Kasemeier says. “These days, we are doing alright. Maybe the fire finally went out, but there is a part of me that will always taste the smoke.”

"The thing about being born rich or, rather, not poor, is that when you are broke, it feels like you are a tourist on a bad trip. A place that you don't belong," Kasemeier continues. "The thing about being born the other way around, is that as hard as you work to escape it, it's always gonna kinda feel like home."

The post received some emotional reactions from people on Instagram.

"I feel the last sentence is the most profound of this video—and the underlying sense of entitlement many have vs the underlying sense of lack of self-worth others may have," one commenter wrote.

"Tasting the smoke is a great way to put this. Growing up this way really makes you look at some of your frugality and not norm habits in a new light. Hard to relearn," another added.

Even though there were hardships growing up in an economically disadvantaged family, Kasemeier wouldn’t have it any other way.

“I am deeply grateful for the way I was raised,” he told Upworthy. “Unfortunately, everyone experiences some trauma in their upbringing—I wouldn't want to trade mine for someone else's. I grew up to be grateful for what I have and without a feeling of entitlement to success: I expected that everything that came to me was going to come through hard work and being kind to people and that has served me very well. It also allowed me to have a great deal of empathy for what everyone is going through.”

Kasemeier further explained the mindset to help those who weren’t raised in that environment better understand the mentality.

“I can tell you that what I experience is a feeling that the other shoe is going to drop, that when I'm up (financially), I don't expect it to last—that leads to a lot of imposter syndrome,” he told Upworthy. “There are little things—like constant anxiety that your card will decline when you go to check out at a grocery store (knowing full well that you have more than enough money). There are big things, like financial literacy.”

The video talks about economic insecurity, but is also touching tribute to his late mother, who, as he said in the post, "found a way.”

“She came from a tiny farm in rural Arkansas, moved to Hollywood where she met my dad and had me at 23 without a degree or any connections,” Kasemeier said. “They had a shotgun wedding and divorced shortly after, my mom was left to navigate parenthood in a pretty challenging way—something I appreciate so much having kids of my own at a totally different place in my life than she was.”

If you or someone you know is experiencing poverty, check out these resources to get connected with organizations and support.


This article originally appeared last year.

Photo by Maxim Hopman on Unsplash

The Sam Vimes "Boots" Theory of Socioeconomic Unfairness explains one way the rich get richer.

Any time conversations about wealth and poverty come up, people inevitably start talking about boots. The standard phrase that comes up is "pull yourself up by your bootstraps," which is usually shorthand for "work harder and don't ask for or expect help." (The fact that the phrase was originally used sarcastically because pulling oneself up by one's bootstraps is literally, physically impossible is rarely acknowledged, but c'est la vie.)

The idea that people who build wealth do so because they individually work harder than poor people is baked into the American consciousness and wrapped up in the ideal of the American dream. A different take on boots and building wealth, however, paints a more accurate picture of what it takes to get out of poverty.

Author Terry Pratchett is no longer with us, but his writing lives on and is occasionally shared on his official social media accounts. Recently, his Twitter page shared the "Sam Vimes 'Boots' Theory of Socioeconomic Unfairness" from Pratchett's 1993 book "Men At Arms." This boots theory explains that one reason the rich are able to get richer is because they are able to spend less money.

If that sounds confusing, read on:

Pratchett wrote:

"The reason that the rich were so rich, Vimes reasoned, was because they managed to spend less money.

Take boots, for example. He earned thirty-eight dollars a month plus allowances. A really good pair of leather boots cost fifty dollars. But an affordable pair of boots, which were sort of OK for a season or two and then leaked like hell when the cardboard gave out, cost about ten dollars. Those were the kind of boots Vimes always bought, and wore until the soles were so thin that he could tell where he was in Ankh-Morpork on a foggy night by the feel of the cobbles.

But the thing was that good boots lasted for years and years. A man who could afford fifty dollars had a pair of boots that’d still be keeping his feet dry in ten years’ time, while the poor man who could only afford cheap boots would have spent a hundred dollars on boots in the same time and would still have wet feet."

In other words, people who have the money to spend a little more upfront often end up spending less in the long run. A $50 pair of boots that last five years essentially cost you $10 a year. But if you can only afford $10 upfront for a pair of boots that last six months, that's what you buy—and you end up paying twice as much over a five-year period.

There are so many areas in which this principle applies when you're poor. Buying in bulk saves you money over the long run, but you have to be able to afford the bulk cost up front. A reliable car that doesn't require regular repairs will cost more than a beater, but if the beater is all you can afford, that's what you're stuck with. You'll likely spend the same or more over time than if you'd bought a newer/higher quality car, but without the capital (or the credit rating) to begin with, you don't have much choice.

People who can afford larger down payments pay lower interest rates, saving them money both immediately and in the long run. People who can afford to buy more can spend more with credit cards, pay off the balances, build up good credit and qualify for lower interest rate loans.

There are lots of good financial decisions and strategies one can utilize if one has the ability to build up some cash. But if you are living paycheck to paycheck, you can't.

Climbing the financial ladder requires getting to the bottom rung first. Those who started off anywhere on the ladder can make all kinds of pronouncements about how to climb it—good, sound advice that really does work if you're already on the ladder. But for people living in poverty, the bottom rung is just out of reach, and the walls you have to climb to get to it are slippery. It's expensive to be poor.

When people talk about how hard it is to climb out of poverty, this is a big part of what they mean. Ladder-climbing advice is useless if you can't actually get to the ladder. And yet, far too many people decry offering people assistance that might help them reach the ladder so they can start taking advantage of all that great financial advice. Why? Perhaps because they were born somewhere on the ladder—even if it was the bottom rung—and aren't aware that there are people for whom the ladder is out of reach. Or perhaps they're unaware of how expensive it is to be poor and how the costs of poverty keep people stuck in the pit. Hopefully, this theory will help more people understand and sympathize with the reality of being poor.

Money makes money, but having money also saves you money. The more money you have, the more wealth you're able to build not only because you have extra money to save, but also because you buy higher quality things that last, therefore spending less in the long run. (There's also the reality that the uber-wealthy will pay $5,000 for shoes they'll only wear a few times, but that's a whole other kind of boots story.)

Thanks, Terry Pratchett, for the simple explanation.


This story originally appeared two years ago.