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A PERSONAL MESSAGE FROM UPWORTHY
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sadness

Ask anyone who has lost a loved one — grief creeps up at the most random times.

It doesn’t matter how many months or years it has been, all it takes is one second for those memories and heartache to rush back. For me, all it took was an awkward moment to remind me that grief never goes away.

I was recently at a routine appointment. As the woman walked into the room, she smiled and said, “How are the kids?” I gave her a puzzled look, wondering if I heard her correctly. As a mother of one surviving triplet, I’m not used to hearing the plural form of “kid.” She repeated herself and that’s when I realized — she didn’t know that two of my children died.


My heart began to race and my breathing became faster as I explained that Abby and Parker had passed away within two months of being born. The tears erupted as my mind instantly flashed back to three years ago, when I said my final good-byes to two of my children.

The woman felt terrible and rushed up to hug me. As awkward as I felt, I know she must have been mortified. It was the epitome of a “foot in mouth” moment, and here I was, a grieving mother brought to tears.

I left the office in a daze, my mind stuck on that awkward dialogue.

During the first year after my triplets were born, that was a common question. Some people weren’t aware that two of my babies had died and often asked how the triplets were doing.

Because it’s been three years, this time caught me off guard. I assumed most people knew my situation, or if they didn’t, they thought Peyton was an only child. I may have been surprised by the conversation, but I wasn’t mad or upset. All it takes is a simple mention of my children to bring me to tears. That’s part of living life after loss: the grief never goes away.We may moved forward in life, but we never forget. I wear those tears with pride, a sign that a piece of my heart will always be with Abby and Parker.

There is no perfect handbook on how to grieve the loss of a child.

The same goes for comforting a grieving parent. While a simple hug can go a long way, I was more comforted that day by how the conversation ended between me and the woman.

After mentioning that I only had one survivor, the woman went on to ask about my two angels. She repeated their names as I told her about sweet Abby and her peaceful face. And she listened intently as I shared stories of Parker and Peyton in the NICU. She asked about Peyton and I happily shared how strong and healthy she is today, a far cry from her NICU days.

I may have cried at my appointment, but I left that office with a full heart. As parents who've lost a child will tell you, one of the most comforting things people can do is to say your child’s name. Hearing the woman say “Abby” and “Parker” was a beautiful reminder that they existed, and sharing stories of them warmed my heart.

When I explain to people that my daughter is actually a triplet, their smile turns to shock before a sad look takes over their face.

It’s a common expression that I’m accustomed to seeing. A parent is not supposed to outlive their child, and when people realize that I’m the parent of two angels, it often becomes uncomfortable for them. Grief is a hard topic to talk about, especially when it involves the death of a child.

The awkward encounter I faced is something so many of us parents of pregnancy and child loss experience and it’s something I know I will face often in my lifetime.

While it can stir up emotions and memories that have been tucked away for years, there is something positive that can come out of it. I like to think that each time I’m asked about my children, it’s a sign from above. It’s Parker and Abby’s way of saying, “Hi, Mom,” from heaven. And while the other person may feel uncomfortable, they are actually giving me the best gift of all: the gift of remembering and embracing my children who are no longer here on Earth.

More

My wedding was both the best and worst day of my life. Here's what I learned.

10 days before my wedding, my brother lost his fight with pediatric bone cancer.

It was my wedding day.

I stood outside the doors to the chapel. My heart was racing, and I felt my eyes fill up with tears.

I can’t do this.


Before I could turn and run, the doors flung open. I was caught off guard as 80 expectant faces turned to look at me. I scanned the crowd. I saw my family and friends. I saw my dad and stepfather waiting in front of the altar to give me away. But I was going to have to walk down the aisle alone, and that was not how it was supposed to be.

I don’t know how long I paused there. I felt like I couldn’t move.

Then my eyes found my future husband, Joe. And right next to him, I saw a single candle burning on a tall candelabra. Gulp. I looked back at Joe and decided that if I could make it down the aisle to him, I’d be OK.

I felt as if my knees might buckle, but somehow I began walking. It was surreal. I felt as if I were floating, but I eventually made it down the aisle.

Me and my husband-to-be on my wedding day. All photos from the author and used with permission.

18 months earlier, my 16-year-old brother was diagnosed with a rare pediatric bone cancer.

The diagnosis was grim. The prognosis was not good. He was quick to rally. He was going to be fine. He was going to live his life. He was still planning a future. He packed a lot of living in a short time.

10 days before my wedding, he lost his fight.

Now, I look back and I don’t know how my family and I made it through both a funeral and a wedding in such a short span of time, but we did. There would be no postponing of the wedding as I’d suggested. Every single member of my family told me in no uncertain terms that my brother would never want me to put it off. He always said he "didn’t have time for cancer." He didn’t let it stop him from doing the things he wanted to do, and he would be highly pissed if I let cancer stop my wedding.

So, even though we were still in a state of shock, we had a wedding. There were tributes to my brother throughout the wedding, including the single candle that stood where he was supposed to stand as a groomsman. We read a beautiful poem in his memory during the ceremony. We played his favorite song at the reception. And we danced. And we drank. And, inexplicably, we had fun.

15 years have passed since that day.

15 years and I’m still trying to figure out how to move through life without him. 15 years and I’m still learning about how this "after part" works.


A school picture of my brother.

I would gladly trade the things I’ve learned to have my brother back, but I learned a long time ago that bargaining doesn’t work. So usually, I choose to appreciate the lessons I’ve learned instead.

1. I’ve learned to cut people some extra slack.

You really don’t know what people are going through. You don’t know what they have endured. You don’t know what battles they may be fighting.

There were the times during my brother’s illness when I would find myself driving 15 mph in the left lane. I’d be lost somewhere between grief and exhaustion, and I would arrive home with no idea how I got there. There were times when I’d look up distractedly at the grocery store, only to realize that I’d been standing in the middle of the aisle, lost in thought, for 10 minutes.

I used to be the person who honked impatiently and threw dirty looks as I zoomed past a slow driver, but not anymore.

Now I know what it's like to really have a bad day, to be so lost in a world turned on its head that you’re completely unaware of your surroundings. I learned that we all have bad days. Some of us have really bad days. Most of us are just trying to make it to tomorrow.

2. I’ve learned that true compassion and grace are about suspending judgment.

Over and over, I saw that real compassion is giving people the benefit of the doubt: granting them access, assisting them when you don’t know them, being patient and kind even when you don’t know what they're actually going through.

If you have to know the behind the scenes? If you have to know their story in order to be kind? If your kindness is based on an assessment of their pain and if it is conditional? Then it’s not truly kindness; it’s just judgment.

I didn’t get this before. I wasn’t cruel, and I wasn’t mean-spirited, but I was impatient and I was easily irritated. That was before I realized the depths in which people can be trapped while still looking completely normal to the rest of the world.

3. I’ve learned that comfort sometimes comes from unexpected places.

There are people who had a huge impact on me, who helped me through difficult times, and they probably don’t even know the significance of their actions.

Sometimes, for me, it was the soft-spoken coworker who offered me a hug as I was leaving to meet my family at the hospital. He was shy and reserved, but he wrapped me in a big bear hug when I was overcome with emotion. I knew this small gesture was not easy for him to give, but his effort to offered me solace.

In another moment, that solace came from my brash, loud, jokester boss who let me take off as much time as I needed to be with my brother at the hospital. Another time, it was my friend from work who calmly assured me that I would feel joy again after I tearfully confided my fear and pain to her. And often, solace came from my husband’s brother and my sister-in-law, who drove 12 hours to attend my brother’s memorial service.

I learned that an act of kindness, no matter how small, is never wrong. Sometimes it’s the thing that can help someone put one foot in front of the other.

4. I’ve learned that I can still, even 15 years later, be blindsided by the cruel reality of it all.

Sometimes I’ll be sitting at my kid’s swim practice when a memory knocks the wind out of me. The next thing I know, I’m wiping away tears and hoping no one notices.

Sometimes I’ll be eating dinner at a restaurant and the waiter might look just like my brother. I’ll feel the loss and pain take over and overwhelm me. And in these moments, I’m always surprised at the cruel force of grief’s ability to blindside me.

Sometimes I'll see him when my kids do something especially mischievous, and my thoughts unwillingly flicker to images of my brother, to memories of the antics of a little boy long ago.

Me and my brother as young children.

Then, I start imagining what could have been: him egging them on, encouraging their exasperating behavior. And I can almost hear him laughing, enjoying every second of finding a way to torture me as an adult like he did as a little kid.

You can bottle yourself up and try to insulate yourself from it, but let me tell you: It’s not going away, so you might as well let it happen. You’ll feel it, you’ll hurt, but I’ve learned that you’ll also be OK. You will be OK.

5. I’ve learned that I’ll probably feel my brother’s presence forever.

I'll still see him in each of my children, in their personalities, in their senses of humor, which is what my brother was known for.

I'll still feel him when my family is together and my sister and my parents are laughing and we’re giving each other a hard time. I often feel the hair on the back of my neck stand up. I feel a warmth come over me, a warmth hard to describe because it’s unlike any sensation I’ve felt before.

And I hope I'll still feel him, forever, kicking me in the ass when I’m about to chicken out on doing something that scares me. I can almost hear what he would say to me in those situations: Don’t give up. You’re better than that.

I’ve learned to recognize these moments, when I feel him with me. They are bittersweet. They are welcome. And they tug at my heart because they will never be enough.

6. What I’ve realized most of all, after all of these years, is that there didn’t need to be a replacement for my brother.

When we knew, in those last weeks, that it would not be possible for him to walk me down the aisle, I contemplated other options. But in the end, I decided there was no understudy, and there would be no last minute stand-in. I couldn’t imagine replacing him in that role.

And as always, even though my brother wasn't physically there, he showed up. He kicked me in the ass a little and told me not to be scared. He reminded me that I didn’t have time to let my pain stand in the way of my wedding, my happiness.

Me and my husband walking down the aisle after our marriage ceremony.

In the end, my brother was still there with me on one of the best days of my life because he always has been.

Family

13 usually unspoken tips if your loved one struggles with depression.

If you love a person who has depression, you'll want to remember these things.

1. Depression is not a choice.

Depression is one of the most helpless and frustrating experiences a person can have. It’s sometimes feeling sad, sometimes feeling empty, and sometimes feeling absolutely nothing at all. There are times when depression can leave someone feeling paralyzed in their own mind and body, unable to do the things they used to love to do or the things they know they should be doing. Depression is not just a bad day or a bad mood, and it’s not something someone can just “get over.” Remember: No one chooses to be depressed.


Photo via iStock.

2. Saying things like “it’ll get better,” “you just need to get out of the house,” or “you’ll be fine” doesn't help.

It’s easy to tell someone these things because you think you’re giving them a solution or a simple way to make them feel better and ease their pain. But these kinds of phrases almost always come across as empty, insulting, and essentially meaningless.

In fact, saying these phrases only creates more tension within, making people feel as though they’re inadequate, and like you’re not acknowledging what they’re going through by trying to put a Band-Aid on a much larger issue. They understand you’re just trying to help, but these words will only make them feel worse. A silent hug can do so much more than using cliched sayings. What you can say instead:

"I’m here for you. I believe in you. I believe you are stronger than this, and I believe you’ll get through this. What can I do to help you? What do you think would make you feel better?"

Avoid offering advice, but instead just let them know you’re there for them and ask them questions to help guide them in discovering what could make them feel better.

3. Sometimes they have to push you away before they can bring you closer.

People who suffer from depression often get frustrated with feeling like they’re a burden on other people. This causes them to isolate themselves and push away people they need the most, mentally exhausting themselves from worrying about whether they’re weighing down their loved ones with their sadness. If they become distant, just remember to let them know you’re still there, but don’t try to force them to hang out or talk about what’s going on if they don’t want to.

4. You’re allowed to get frustrated.

Just because someone deals with depression doesn’t mean you have to cater to all of their needs or walk on eggshells when you’re around them. Depressed people need to feel loved and supported, but if it begins to negatively affect your life, you’re also allowed to acknowledge this and figure out how to show them love and kindness without self-sacrificing.

Photo via iStock.

5. It’s important to discuss and create boundaries.

In those moments of frustration, it’s important to take a step back and look at how you can help the depressed person while also maintaining your own sense of happiness and fulfillment. Be patient. Talk to them about your concerns and explain the boundaries you need to create within your relationship. Find out something that works for both of you.

6. They can become easily overwhelmed.

Constant exhaustion is a common side effect of depression. Just getting through the day can be an overwhelming and exhausting experience. They may seem and look totally fine one moment, but in the next moment feel tired and have no energy at all, even if they’re getting plenty of sleep every night. This can result in canceling plans suddenly, leaving events early, or saying no to things altogether. Just remember that it’s not about anything you did. It’s just one of the prevalent side effects of living with the disease.

7. It’s not about you.

When you have a loved one dealing with depression, it can be difficult to understand what they’re going through and to consider how their sadness is a reflection of your relationship with them. If they need space or become distant, don’t blame yourself and wonder how you could do things differently to heal them. Understand their depression is not about you.

8. Avoid creating ultimatums, making demands, or using a “tough-love” approach.

Telling someone that you’re going to break up with them or not talk to them anymore if they don’t get better is not going to magically cure them of their illness. They won’t suddenly become the person you want them to be just because you’re tired of dealing with their problems. It’s a personal decision to walk away from someone if their issues become too much for you and your relationship with them, but thinking the "tough-love" approach will make them better is unrealistic and manipulative.

9. They don’t always want to do this alone.

It's easy to assume people dealing with depression want to just be left alone. While there may be times when they want their space, that doesn’t mean they want to face their fears alone. Offer to take them on a drive somewhere. Ask if they want to get coffee or a meal. One-on-one time when you can bring them out of their routine and connect with them can mean everything to them.

Photo via iStock.

Reach out to them unexpectedly. Remind them they don’t have to do this alone.

10. Try not to compare your experiences with theirs.

When someone is going through a rough time, we often want to share our own stories with them to let them know we've gone through something similar and can relate with their struggle. When you say something like, “Oh yeah, this one time I was depressed too...” it only makes them feel like you’re minimizing their pain. Express empathy, but don’t suppress their feelings. The greatest resource you can share with your friend is your ability to listen. That’s all they really need.

11. It’s OK to ask your friend where they are in their feelings.

How are they really feeling, and how are they coping with their depression? Suicidal thoughts are a common occurrence for depressed people. It’s OK to directly ask them how they're practicing self-care and to come up with a safety plan for times when their depression becomes too overwhelming.

12. Schedule time to spend together.

Offer to spend time with them once or twice a week to exercise, shop, or hang out together. Ask if you can cook dinner with them and plan a friend date.

Photo via iStock.

One of the hardest parts of depression is feeling too exhausted to cook healthy meals, so you can really help them out by cooking food they can store in their fridge or freezer for later.

13. Just because someone is depressed doesn’t mean they’re weak.

In his book "Against Happiness: In Praise of Melancholia," author Eric G. Wilson explores the depths of sadness and how experiencing mental anguish can actually make us more empathetic, creative people. Although he explains the difference between depression and melancholia, he rejects the idea of inflated happiness that our culture and society is obsessed with and instead explains why we reap benefits from the darker moments in life.

Wilson writes:

“I for one am afraid that our American culture’s overemphasis on happiness at the expense of sadness might be dangerous, a wanton forgetting of an essential part of a full life. I further am wary in the face of this possibility: to desire only happiness in a world undoubtedly tragic is to become inauthentic, to settle for unrealistic abstractions that ignore concrete situations. I am finally fearful over our society’s efforts to expunge melancholia from the system. Without the agitations of the soul, would all of our magnificently yearning towers topple? Would our heart-torn symphonies cease?”

In a similar manner, psychiatrist and philosopher Dr. Neel Burton discusses in his TEDx Talk that some of the most influential and important people in history have experienced depression. He explains the way our culture looks at and treats depression, and how traditional societies differed in their approach, seeing human distress as an indicator of the need to address important life problems, not a mental illness.

It’s important to remember depression is not something that should be considered shameful, and experiencing it doesn’t make someone weak or inadequate.