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A woman donated her marrow to save her brother’s life, so he surprised her with his Make-A-Wish
'Good Morning America'

Over 35 million people have donated their marrow worldwide, according to the World Marrow Donor Day, which took place September 21. That's 35,295,060 who've selflessly given a part of themselves so another person can have a shot at life. World Marrow Donor Day celebrates and thanks those millions of people who have donated cells for blood stem cells or marrow transplants. But how do you really say thank you to someone who saved your life?

Eighteen-year-old Jack Santos wasn't aware that he was sick."I was getting a lot of nosebleeds but I didn't really think I felt anything wrong," Jack told ABC news. During his yearly checkup, his bloodwork revealed that he had aplastic anemia, a rare non-cancerous blood disease in which there are not enough stem cells in the bone marrow for it to make new blood cells. There are 300 to 900 new cases of aplastic anemia in America each year. It is believed that aplastic anemia is an auto-immune disorder, but in 75% of cases, the cause of the disease is unknown.

It wasn't easy for his family to see him struggle with the illness. "I didn't want to see him go through something like this," Shelby, his older sister, said. "It was terrifying, but we were ready for whatever brought with it at the time."


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Jack needed a bone marrow transplant, but it was hard for him to find a match. His family got tested, and there was only one person who was eligible to donate – his sister, Shelby. She was more than happy to be his donor. "He's the youngest and he's always been my little baby brother so I've always wanted to help him through life and I never thought I could do it this way," she said. "I'm so just beyond grateful that I could."

A year later, both Jack and Shelby are doing just fine. Shelby even got engaged, and she and her fiancé, Garrett, will wed in 2020. Jack was also granted a wish from Make-A-Wish, the organization with 60 chapters across the United States that gives life-changing opportunities to children with critical illnesses. More than 310,000 children have had wishes fulfilled by the charity since 1980.

'Good Morning America'

Jack could have gone to Walt Disney World or played basketball with Michael Jordan, but he felt there was a better way to use his wish. Instead of using his wish on himself, Jack decided to give it to Shelby. During an appearance on "Good Morning America," he surprised Shelby and her fiancé with a five-day honeymoon trip to any Sandals Resort of their choice. "I could never really ever fully repay you. As you know Make-A-Wish granted me a wish before I went into treatment last year," Jack told Shelby during his television appearance. "I was racking my brain thinking about what I wanted to do. I couldn't really figure it out. I reached out to them and they are generous enough to allow me to send you guys on a honeymoon of your choice."

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Shelby was overwhelmed by Jack's generosity. "I am obviously in shock," Shelby said. "This is something that Jack has been having to go through so for him to give [his wish] up and give to me, is just, he didn't have to do that and it's amazing."

It's touching to have a reminder that when you do the right thing just because it's the right thing to do, people take notice. Good deeds don't go out into the universe and then just vanish. There's always someone there who will appreciate your efforts.

Pop Culture

Artist uses AI to create ultra realistic portraits of celebrities who left us too soon

What would certain icons look like if nothing had happened to them?

Mercury would be 76 today.

Some icons have truly left this world too early. It’s a tragedy when anyone doesn’t make it to see old age, but when it happens to a well-known public figure, it’s like a bit of their art and legacy dies with them. What might Freddie Mercury have created if he were granted the gift of long life? Bruce Lee? Princess Diana?

Their futures might be mere musings of our imagination, but thanks to a lot of creativity (and a little tech) we can now get a glimpse into what these celebrities might have looked like when they were older.

Alper Yesiltas, an Istanbul-based lawyer and photographer, created a photography series titled “As If Nothing Happened,” which features eerily realistic portraits of long gone celebrities in their golden years. To make the images as real looking as possible, Yesiltas incorporated various photo editing programs such as Adobe Lightroom and VSCO, as well as the AI photo-enhancing software Remini.

“The hardest part of the creative process for me is making the image feel ‘real’ to me,” Yesiltas wrote about his passion project. “The moment I like the most is when I think the image in front of me looks as if it was taken by a photographer.”

Yesiltas’ meticulousness paid off, because the results are uncanny.

Along with each photo, Yesiltas writes a bittersweet message “wishing” how things might have gone differently … as if nothing happened.
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All images provided by Adewole Adamson

It begins with more inclusive conversations at a patient level

True

Adewole Adamson, MD, of the University of Texas, Austin, aims to create more equity in health care by gathering data from more diverse populations by using artificial intelligence (AI), a type of machine learning. Dr. Adamson’s work is funded by the American Cancer Society (ACS), an organization committed to advancing health equity through research priorities, programs and services for groups who have been marginalized.

Melanoma became a particular focus for Dr. Adamson after meeting Avery Smith, who lost his wife—a Black woman—to the deadly disease.

melanoma,  melanoma for dark skin Avery Smith (left) and Adamson (sidenote)

This personal encounter, coupled with multiple conversations with Black dermatology patients, drove Dr. Adamson to a concerning discovery: as advanced as AI is at detecting possible skin cancers, it is heavily biased.

To understand this bias, it helps to first know how AI works in the early detection of skin cancer, which Dr. Adamson explains in his paper for the New England Journal of Medicine (paywall). The process uses computers that rely on sets of accumulated data to learn what healthy or unhealthy skin looks like and then create an algorithm to predict diagnoses based on those data sets.

This process, known as supervised learning, could lead to huge benefits in preventive care.

After all, early detection is key to better outcomes. The problem is that the data sets don’t include enough information about darker skin tones. As Adamson put it, “everything is viewed through a ‘white lens.’”

“If you don’t teach the algorithm with a diverse set of images, then that algorithm won’t work out in the public that is diverse,” writes Adamson in a study he co-wrote with Smith (according to a story in The Atlantic). “So there’s risk, then, for people with skin of color to fall through the cracks.”

Tragically, Smith’s wife was diagnosed with melanoma too late and paid the ultimate price for it. And she was not an anomaly—though the disease is more common for White patients, Black cancer patients are far more likely to be diagnosed at later stages, causing a notable disparity in survival rates between non-Hispanics whites (90%) and non-Hispanic blacks (66%).

As a computer scientist, Smith suspected this racial bias and reached out to Adamson, hoping a Black dermatologist would have more diverse data sets. Though Adamson didn’t have what Smith was initially looking for, this realization ignited a personal mission to investigate and reduce disparities.

Now, Adamson uses the knowledge gained through his years of research to help advance the fight for health equity. To him, that means not only gaining a wider array of data sets, but also having more conversations with patients to understand how socioeconomic status impacts the level and efficiency of care.

“At the end of the day, what matters most is how we help patients at the patient level,” Adamson told Upworthy. “And how can you do that without knowing exactly what barriers they face?”

american cancer society, skin cacner treatment"What matters most is how we help patients at the patient level."https://www.kellydavidsonstudio.com/

The American Cancer Society believes everyone deserves a fair and just opportunity to prevent, find, treat, and survive cancer—regardless of how much money they make, the color of their skin, their sexual orientation, gender identity, their disability status, or where they live. Inclusive tools and resources on the Health Equity section of their website can be found here. For more information about skin cancer, visit cancer.org/skincancer.

via Dion Merrick / Facebook

This article originally appeared on 02.09.21


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Nurse turns inappropriate things men say in the delivery room into ‘inspirational’ art

"Can you move to the birthing ball so I can sleep in the bed?"

Holly the delivery nurse.

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