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Rev. Janice Hill wasn't planning to go to D.C. last Tuesday, but her daughter's health was so important, she skipped a meeting and got on a bus.

Several hours later, the West Virginia pastor found herself in a meeting with Sen. Shelley Moore Capito (R), where she showed the lawmaker a photo of her daughter Amy, a cancer survivor, and asked her not to repeal the Affordable Care Act.

"These are real people. My daughter," the nervous Hill said as the senator listened. "And so I just want you to have that in your brain when you look at this."


The encounter was filmed and posted online:

"The next thing you know, somebody said, 'Girl, it’s gone viral,'" Hill says in an interview.

Hill's conversation with Capito has been watched over 4 million times since it went public on Thursday.

The polite yet dogged exchange struck a chord with Americans who fear that new Senate legislation released last week could endanger their ability to pay for care by doing away with consumer protections implemented by the ACA.

Capito has yet to take a position on the bill, which would make substantial cuts to Medicaid and allow states to enable private plans to waive certain "essential" health benefits. CNN included Capito on a list of 12 Republican senators whose votes remain in play.

Capito's office has not responded to Upworthy's request for a comment.

Amy was diagnosed with neuroendocrine small cell carcinoma, a rare form of endocrine cancer, in July 2013 — an illness she's still fighting to this day.

Hill fears her daughter, who gets coverage through her employer, has already exceeded any prospective lifetime benefits cap, which would end insurance payments over a certain lifetime dollar amount or on specific benefits. The ACA outlawed such caps, but they could be brought back under the new legislation.

Senate Majority Leader Mitch McConnell takes questions on the health care legislation. Photo by Saul Loeb/Getty Images.

Within the first seven months of her treatment, Amy had already accumulated more than $1.2 million in costs.

"She is not a drain on this country," Hill says. "She’s been a marathon runner. She doesn’t smoke. Drinks very little. Is in great physical shape. And yet, her world and my world got turned upside down when she got that phone call about this cancer."

Opposition to the legislation emerged swiftly after the text of the bill was made public on June 22.

Illinois residents protest the bill. Photo by Scott Olson/Getty Images.

On June 22, over 50 activists with disabilities from ADAPT were arrested outside Senate Majority Leader Mitch McConnell's office while protesting the bill's proposed Medicaid cuts.

Meanwhile, thousands have turned to social media to express concern about how the legislation might affect their families who depend on Medicaid, have pre-existing conditions, or have chronic illnesses that are expensive to treat. A Congressional Budget Office report estimates that 22 million fewer Americans will be insured by 2026 if the bill becomes law.

Hill, who has spoken privately with many of her congregants about their health challenges, says the legislation is "the most immoral bill that has come about in a long time."

In addition to her daughter's spiraling costs, she worries the bill would create an untenable situation for the 30% of West Virginians enrolled in Medicaid and the rural hospitals that would be in danger of shutting down if the program is gutted.

On June 26, Hill joined a rally in Charleston to encourage her fellow West Virginians to continue pressuring the state's two senators to reject the bill.

Initially, she planned to use some of her time to praise Capito for listening.

Sen. Shelley Moore Capito speaks at the 2016 Republican National Convention. Photo by Jim Watson/Getty Images.

Instead, Hill told attendees at the rally that the tone of the conversation was less important than what the senator plans to do next.

"I very passionately said, 'You know what? She was nice to me, but so what? I don’t care if she’s nice to me,'" Hill explains. "She could have called me every name in the book, she could have spit in my face, and I don’t care. I just want her to vote the correct way.'"

Of the many no good, very bad things in the American Health Care Act (aka Trumpcare) that have a lot of people feeling uneasy, the way pre-existing conditions will be treated takes the cake.

If the AHCA bill that the House passed does become law, it would change how pre-existing conditions are covered, replacing a system where insurance companies need to charge every one the same amount to one where costs can vary based on medical history.

People are not happy about that.


If you're young, wealthy, super healthy, and don't plan on ever getting sick or dying, the new bill might be cause for celebration. But the rest of us mere mortals aren't so lucky.

The Kaiser Family Foundation estimates that more than a quarter of all adults 18-65 have a pre-existing condition that would have left them uninsurable on the private market before the Affordable Care Act. Trumpcare is a functional return to that sort of Wild West landscape.

People on Twitter are using the hashtag #IAmAPreExistingCondition to show just how wide-ranging the damaging effects of AHCA will be.

Before the vote, Rep. Mo Brooks (R-Alabama) seemed to suggest that people with pre-existing conditions were essentially bringing this on themselves, saying that it's only fair to charge them more than people who "lead good lives" and do things "the right way." As though getting pregnant, or surviving rape, or being born with a hole in your heart means you're leading a bad life and doing things the wrong way.

Another lawmaker, Rep. Robert Pittenger (R-North Carolina), said that people should simply move to a different state if theirs decides to pull the rug out from underneath them in terms of pre-existing conditions. For many, that's not an option. More importantly, statements like these are craven in their lack of empathy.

You might have a pre-existing condition. I do. If you don't, at the absolute least, you probably know someone who does.

The bill still has a ways to go before it becomes law.

If it is blocked by the Senate, it'll likely be due to people sharing their stories with their representatives, by calling them and writing them and letting them know just how much the AHCA will hurt them. If it is blocked by the Senate, it'll be the result of our lawmakers demonstrating a groundswell of empathy and compassion for their fellow human beings and constituents.

These stories, as absolutely heartbreaking as they are, can help change the world. And these are just a handful of the many devastating, frightened responses to be found on the #IAmAPreExistingCondition hashtag. We need to save health care for them and for us. We'll be a better country for it.

Matthew Limpede takes a pill that gives him protection, peace of mind, and a reassuring sense of community.

That pill is the drug Truvada, more commonly referred to as "PrEP" (Pre-exposure Prophylaxis). And it's been a game-changer in the fight against HIV/AIDS.

"I think for the whole [gay] community and for me personally, [PrEP has] lifted us up to a place of being more responsible for our own health," Limpede explains.


If taken as directed, PrEP is 99% effective in stopping the transmission of HIV. It's mostly used by HIV-negative men and women who are more at risk of exposure to the virus.

Photo courtesy of Matthew Limpede.

From Limpede's own experiences, the drug isn't just about personal protection, either — it has encouraged more gay and bisexual men to have important conversations about staying safe with their sexual partners, building a sense of openness and honesty within the LGBTQ community. Those conversations have helped destigmatize those who are HIV-positive, too, he says — people who can live long and healthy lives while being sexually active.

The only way Limpede was able to get on PrEP was because of an insurance plan provided through the Affordable Care Act in 2014.

And he's definitely not the only one.

Jim Pickett, director of prevention advocacy and gay men's health at the AIDS Foundation of Chicago, says about 110,000 people across the U.S. started using PrEP between 2012 and February 2017. The ACA played a big role in making that happen.

"PrEP is quite a robust intervention," he says. "It's not just a niche thing for gay men."

Photo illustration by Justin Sullivan/Getty Images.

Making PrEP more accessible has become an increasingly important component of a broader strategy to prevent HIV among groups most vulnerable to the virus, such as transgender women, gay men — particularly gay men of color — and cisgender (non-transgender) black women, according to Pickett.

While PrEP accessibility has grown significantly in the past few years, it's just the tip of the iceberg, Pickett says. About a million more people living at high risk of HIV exposure are good candidates to go on the drug if we can just keep expanding efforts where they're needed most.

Under the current Congress and administration, however, that's shaping up to be quite the tough task.

If the Affordable Care Act is repealed, access to PrEP would take a blow, causing a major setback in our fight against HIV/AIDS.

Image via iStock.

Without health insurance, the price tag for PrEP is about $1,500 a month. With insurance, most people pay between $0 and $500.

Without significant help from an insurer, most Americans can't afford PrEP. Through the ACA's Medicaid expansion, which mostly helped low-income folks — notably, the same groups most affected by HIV/AIDS — PrEP was made accessible in 31 states plus Washington, D.C. Other patients, like Limpede, found the drug was available for free through their ACA plans.

This progress would be reversed under the American Health Care Act, the GOP's plan to "repeal and replace" the Affordable Care Act (aka Obamacare). In the new proposal — one that would cause an estimated 24 million Americans to lose their health care coverage over the next decade — the ACA's Medicaid expansion would phase out. As a result, thousands of people — again, mostly the at-risk groups who desperately need it — would lose access to PrEP.

Photo by Chip Somodevilla/Getty Images.

New HIV diagnoses fell 19% overall from 2005 to 2014, according to the CDC (although progress has been uneven depending on demographics, with some groups seeing increases). With repealing the ACA, we risk reversing this long-term trend.

"If Trumpcare were to be enacted as written, it would be a devastating blow to all of our HIV efforts, both care and prevention," Pickett says. "It would be absolutely devastating."

"If less people are on PrEP, we'll have more HIV infections," Pickett emphasizes. "HIV is forever — that's a cost forever — and that's an increased burden on a system that's overburdened."

Although living a long and healthy life while being HIV-positive is possible, that's only the case for people with access to ongoing health care and treatments that don't come cheap or easy.

For people like Limpede, who has even contemplated moving from Texas to Massachusetts if it means keeping his health care and PrEP access intact, tossing aside life-changing provisions isn't just politics as usual.

It's deeply personal.

"Repealing something like this — that's going to hurt minorities, that's going to hurt people who are low on the socioeconomic scale. It feels very pointed and purposeful," he says. "That's definitely a concern."

Image via iStock.

The HIV/AIDS advocacy community is getting ready for a battle because this is a fight they can't afford to lose.

"The community's main focus now is making sure that Trumpcare does not see the light of day and stopping these harmful provisions in the bill from happening," Limpede says. "We're fighting tooth and nail."