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Protect Your Privacy

No, your phone isn’t ‘listening’ to you — but it’s probably tracking you

No, your phone isn’t ‘listening’ to you — but it’s probably tracking you
Mozilla
True
Firefox

When I found out I was pregnant in October 2018, I had planned to keep the news a secret from family for a little while — but my phone seemed to have other ideas.

Within just a few hours of finding out the news, I was being bombarded with ads for baby gear, baby clothes and diapers on Facebook, Instagram and pretty much any other site I visited — be it my phone or on my computer.

Good thing my family wasn't looking over my shoulder while I was on my phone or my secret would have been ruined.

I'm certainly not alone in feeling like online ads can read your mind.

When I started asking around, it seemed like everyone had their own similar story: Brian Kelleher told me that when he and his wife met, they started getting ads for wedding rings and bridal shops within just a few weeks. Tech blogger Snezhina Piskov told me that she started getting ads for pocket projectors after discussing them in Messenger with her colleagues. Meanwhile Lauren Foley, a writer, told me she started getting ads for Happy Socks after seeing one of their shops when she got off the bus one day.

When online advertising seems to know us this well, it begs the question: are our phones listening to us?


Mozilla

"There is a common myth that companies like Facebook are using the microphone on your device to passively listen to all your conversations," says Marshall Erwin, Senior Director of Trust and Security at Mozilla and cybersecurity expert who worked for Congress during the Snowden disclosures in 2013. "This isn't the case."

However, your phone — just like your computer — is collecting your personal data.

It's collecting this data with cookies and other web trackers embedded in the sites you visit, with the data you provide freely when you create social media profiles, use apps or buy things online, with your location data, and with your device ID.

"Your phone is the most complete surveillance device invented by mankind," says Bruce Schneier, adjunct lecturer in public policy at the Harvard Kennedy School and renowned security technologist. "It knows where you live, it knows where you work, it knows when you wake up and when you go to sleep. It knows who you sleep with. It knows you better than your spouse."

"Surveillance is the business model of the internet," he adds.

For example, Schneier tells me, "the fact that we are talking is recorded somewhere and we actually don't know which of our cell phone companies is selling that data. We don't know which apps on our phone are grabbing that data and using it."

Pretty much everything we do on our computers or our phones — which, remember, are mini-computers we carry around all day — produces personal data.

Our data is often then bought, sold, and correlated against other data to create a profile of who we are. That profile is in turn targeted in a variety of ways.

For example, internet advertisers, Erwin explains, can use it "to anticipate and target ads related to what you are thinking and talking about, without actually having to listen to your conversations."

For example, a shoe manufacturer could use your data to target you simply because you're in your 30s and you seem interested in sports. But they might also target you because you googled running trails or you recently visited a running hobbyist website. Meanwhile, a politician might use it to target you because you are white and live in a battle-ground state.

It's easy to use (or misuse) your data.

Mozilla

"Data is what powers a lot of misinformation because it is easier to influence people with malicious messages if those messages are highly targeted towards susceptible groups or populations," explains Erwin.

He continues, "Our data can be misused in discriminatory advertising, where job or housing ads are targeted to only certain racial groups, in violation of people's basic rights."

Personal data can also be targeted by malicious actors, especially when the apps on our phone aren't secure. For example, the app TikTok had vulnerabilities that allowed hackers to manipulate and retrieve user personal information.

So what can you do to protect yourself?

Well, the bad news is that there's no way to fully protect your data.

"Your data isn't under your control," says Schneier, "Your email is held by Google, your photos are held by someone else, your files are on some company's hard drive and your financial purchases are held by credit card companies. Your data is not yours anymore."

"That's the baseline," he continues. "There's largely nothing you can do about it."

But you can take steps to limit the collection of your data.

1. Turn on your privacy controls.

"A lot of tech companies provide ways for people to enhance their privacy and to decrease the amount of data collected about them," explains Erwin. "These privacy settings are often off by default, however, and need users to turn them on."

2. Use a browser that turns those privacy protections by default.

Mozilla protects users' data by turning on privacy features by default in the Firefox browser.

"For example, our Enhanced Tracking Protection feature prevents third parties from tracking you and building a profile of your activity from the websites you visit," says Erwin. "And our DNS over HTTPS (DoH) feature protects that same data from people spying in the middle of the network, encrypting DNS traffic and ensuring it is only disclosed to parties with strong privacy practices."

3. Use private browsing.

Private browsing — or incognito mode — allow you to browse the web without saving your browsing history. How? They automatically clear cookies and your cache, making it a little harder to track you and target you with ads.

If you use Firefox, you can also use enhanced tracking protection, which blocks a number of trackers before they're even placed on your device in the first place.

4. Avoid public WiFi.

Public wifi networks are less secure and it's easier for your data to be hacked.

5. Use a VPN.

The Mozilla VPN is available on Windows and Android devices and it will help keep you safe online by protecting your data, IP address and location. It also encrypts your activity and communications.

6. Adjust your phone settings

Watch this video for tips on how to do that:

Data Detox: Smartphones | Firefoxwww.youtube.com

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Three women, three MS journeys: How multiple sclerosis looks different for everyone

Gina, Nathalie and Helga share their reactions to being diagnosed with MS and how they stay informed and positive in the face of ever-changing symptoms.

Courtesy of Sanofi

Helga, Nathalie and Gina all have MS, and their experiences show how differently the disease can manifest.

True

It’s been 155 years since neurologist Jean-Martin Charcot gave the first lecture on a mysterious progressive illness he called “multiple sclerosis.” Since then, we’ve learned a lot. We know MS causes the immune system to attack healthy tissue, including damaging the brain and spinal cord. Resulting symptoms can be debilitating and include fatigue, blurred vision, memory problems and weakness. Huge advancements in our understanding of MS and its underlying causes, as well as treatment advances, have been made in the past few decades, but MS remains a complex and unpredictable reality for the 2.8 million+ people diagnosed around the world.

Ironically, the only real constant for people living with MS is change. There’s no set pattern or standard progression of the disease, so each person’s experience is unique. Some people with MS have mild symptoms that worsen slowly but sometimes improve, while others can have severe symptoms that drastically alter their daily lives.

All people with MS share some things in common, however, such as the need to stay informed on the ever-evolving research, find various lines of support and try to remain hopeful as they continue living with the disease.

To better understand what navigating life with MS really looks like, three women shared their MS stories with us. Their journeys demonstrate how MS can look different for different people and interestingly, how the language used to talk about the disease can greatly impact how people understand their realities.

woman with horse, woman riding horseGina loves riding her horse, Benita.Courtesy of Sanofi

Gina—Hamburg, Germany (diagnosed with relapsing multiple sclerosis in 2017)

When her youngest son was 4 months old, Gina started having problems with her eye. She’d soon learn she was experiencing optic neuritis—her first symptom of MS.

“Immediately after the diagnosis, I looked up facts on MS because I didn’t know anything about it,” Gina says. “And as soon as I knew what could really happen with this disease, I actually got scared.”

As her family’s primary income provider, she worried about how MS would impact her ability to work as a writer and editor. Her family was afraid she was going to end up in a wheelchair. However, for now, Gina’s MS is managed well enough that she still works full-time and is able to be active.

“When I tell somebody that I have MS, they often don't believe me the first time because I don't fulfill any stereotypes,” she says.

Overwhelmed by negative perspectives on living with MS, Gina sought support in the online MS community, which she found to be much more positive.

“I think it’s important to use as many positive words as you can when talking about MS.” It’s important to be realistic while also conveying hope, she says. “MS is an insidious disease that can cause many bad symptoms…that can be frightening, and you can't gloss over it, either.”

To give back to the online community that helped her so much, Gina started a blog to share her story and help others trying to learn about their diagnosis.

Though she deals with fatigue and cognitive dysfunction sometimes, Gina stays active swimming, biking, riding horses and playing with her sons, who are now 11 and 6.

Cognitive dysfunction is common in MS, with over half of people affected. It can impact memory, attention, planning, and word-finding. As with many aspects of MS, some people experience mild changes, while others face more challenges.

Gina says that while there’s still a lot of education about MS needed, she feels positive about the future of MS because there’s so much research being done.

woman in wheelchair holding medal, woman rowingNathalie is an award-winning rower with multiple international titles.Courtesy of Sanofi

Nathalie — Pennes Mirabeau, France (diagnosed with relapsing-remitting multiple sclerosis in 2002)

Nathalie was a teenager and a competitive athlete when she noticed her first symptoms of MS, but it would take four years of “limbo” before she was diagnosed.

“Ultimately, the diagnosis was more of a relief, than a shock,” she says. “Because when you have signs and you don’t know why, it’s worse than knowing, in the end, what you have.”

However, learning more about the disease—and the realities of disease progression—scared her.

“That glimpse of the future was direct and traumatic,” she says. Her neurologist explained that the disease evolves differently for everyone, and her situation might end up being serious or very mild. So, she decided to stop comparing herself to others with MS.

She said to herself, “We’ll see what happens, and you’ll manage it bit by bit.”

By 2005, Nathalie’s MS had progressed to the point of needing a wheelchair. However, that has not dampened her competitive spirit.

Nathalie began her international rowing career in 2009 and has won multiple world titles, including two Paralympic medals—silver in London and bronze in Tokyo. Now, at 42, she still trains 11 times a week. Fatigue can be a problem, and sometimes hard workouts leave her with muscle stiffness and shaking, but she credits her ongoing sports career for helping her feel in tune with her body’s signals.

“Over the years, I’ve learned to listen to my body, letting my body guide when I need to stop and take breaks,” she says.

Nathalie explains that she used to only look backwards because of the initial shock of her diagnosis. In time, she stopped thinking about what she couldn’t do anymore and focused on her future. She now lives in the following mindset: “Even when doors close, don’t miss out on those that open.” Instead of focusing on what she can’t do, she focuses on the opportunities she still has. Right now, this includes her training for the 2024 Paralympic Games in Paris, where she will compete for another rowing medal.

“I only go forward,” she says. “Well, I try, anyway…It’s easy to say, it’s not always easy to do. But that’s what I try to do.”

woman exiting water after swimming, woman with great daneHelga's Great Dane has become a helpful and beloved companion.Courtesy of Sanofi

Helga—Johannesburg, South Africa (diagnosed with relapsing multiple sclerosis in 2010)

When Helga first started having balance issues and numbness in her feet, she chalked it up to her training as a runner. But when the numbness moved to her face, she knew something was wrong. She never guessed it was MS.

“When I was diagnosed, I felt completely overwhelmed and clueless,” Helga says. “I felt that I had nowhere near enough information. I did not know anything about the disease…I had no idea that it was going to be a process of continually monitoring and adjusting your lifestyle.”

In the beginning, Helga’s symptoms developed slowly, and she didn’t appear ill to others. She was even able to run for a few years after her diagnosis, but she couldn’t do marathons anymore, and she began to fall frequently due to balance issues and right-foot dragging. Then her cognition issues became more problematic, especially in her job as a trainer in a printing company.

“My executive function, decision-making and short-term memory were affected to the point that I was eventually medically unfit for work,” she says. She stopped working in 2017.

However, she didn’t stop living life. Even though she could no longer run, she continued to swim competitively. She got a Great Dane puppy and trained him as a service dog to help her walk. She also serves as vice chair of the patient support organization Multiple Sclerosis South Africa, and she advises others who have been diagnosed to join a patient advocacy group as soon as possible to get reliable information and meet others with MS.

Helga says she is “hopeful” about the future of MS. “I must say that I am so grateful that we have all the new medications available, because my life would not be the same if it wasn't for that,” she adds.

Part of how she manages her MS is by looking at the positives.

“If I could tell the world one thing about MS, it would be that MS is an incurable disease of the nervous system, but it's also the greatest teacher of valuing your health, family, friends, and managing change in your life,” she says. “My life is diversified in a way that I never, ever thought it would, and MS has been honestly the greatest teacher.”

Each MS journey is unique – with each person impacted experiencing different struggles, successes, and feelings as they manage this unpredictable disease. But the common thread is clear – there is a critical need for information, support, and hope. We are proud to participate in World MS Day and share these incredible stories of living life while living with MS. To learn more about MS, go to https://www.sanofi.com/why-words-really-matter-when-it-comes-to-multiple-sclerosis.

MAT-GLB-2301642-v1.0-05/2023

This article was sponsored by Sanofi. Participants were compensated when applicable.

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