+
upworthy
Health

Jameela Jamil shows off her 'elastic' skin to shine a light on Ehlers-Danlos syndrome

'The Good Place' actress's viral video shows how serious the rare condition is and how important it is to get a proper diagnosis.

jameela jamil, jameela jamil eds, jameela jamil tiktok

Jamil was diagnosed at 9 years old with the rare tissue disorder.

Jameela Jamil might be best known for acting roles on shows like “The Good Place” and “She-Hulk,” but she has made a secondary name for herself as an outspoken advocate on social media. Though she touches on a wide range of civil rights issues, health is often a major theme.

Recently, Jamil used her platform to discuss her Ehlers-Danlos syndrome (EDS)—a group of inherited disorders that affects connective tissue, primarily the skin, joints and blood vessel walls. While very rare, EDS causes significant problems, especially for those without a proper diagnosis.

In a video posted to TikTok, Jamil is seen stretching out her cheeks while quipping, "Jesus Christ, that is not an app, that is not a filter, that is just my face. Look how elastic that is." This stretchiness, she explains, is a symptom of EDS.


Technically, Jamil has hEDS, which makes her hypermobile. Bending her elbow backwards, she noted that “nothing bends the right way.”

Though she joked that "yes, that is very sexy, thanks for asking," her post was a genuine attempt to raise awareness on EDS’s more severe effects. “It’s a really serious condition and it impacts every single part of your body, and even your mind.”

@jameelajamil

♬ original sound - Jameela Jamil

No kidding. Jamil listed that it causes major bleeding, bruising, clumsiness, joint swelling and dislocation, gut issues, fainting and migraines, and that it severely complicates wound healing, childbirth and dental work, and that those with EDS are predisposed to neurodivergence and mast cell activation syndrome (MCAS), which she said leads to “random allergies that just come and go for no reason.”

Having received a diagnosis at the age of 9, Jamil was able to avoid things that could put her at a further risk. For example, she never pursued contact sports, doesn’t smoke, drink or do drugs, and carries an EpiPen with her everywhere she goes.

But for others, going through life with undiagnosed EDS is, as she put it, “dangerous,” especially as those with it might appear very healthy or to have symptoms related to other conditions.

In her caption, Jamil added that she hadn’t talked much about her condition due to being made fun of for her other health issues, which made her “suicidal for a while.” However, she wrote, “I’m done not talking to the people who MATTER about this hugely important subject because a bunch of people lucky to have good health, have no souls. Let's raise awareness on this subject together, and save some motherfucking lives!"

Clearly her candidness is doing just that. One person on Instagram shared, “I have hEDS too! And I got diagnosed because of something you posted a couple of years ago and it joined the dots on all of my various ailments. Thank you !! Without you mentioning it, I would have never fully understood myself.”

Because it can affect the entire body, EDS is very hard to diagnose. But Jamil recommends going to a rheumatologist or geneticist. Though there is no cure, there are treatments available to manage symptoms and avoid further issues.

Family

Mom calls out teacher who gave her son a 'zero' grade for not providing class with supplies

Her viral video sparked a debate as to whether or not providing school supplies should be mandatory for parents.

@shanittanicole/TikTok

A zero grade for not providing school supplies?

The debate as to whether or not parents should supply classroom supplies is not new. But as prices continue to rise, parents are growing more baffled as to how they can be expected by teachers to provide all the various glue sticks, colored pencils, rulers and other various items the incoming students might need.

What’s even more perplexing, however, is penalizing the children of parents who won’t (or can’t) provide them.

This was the case for Shanitta Nicole, who discovered her son received a zero grade in his new school for not bringing school supplies for the entire classroom.
Keep ReadingShow less
Identity

Neo-Nazis slowly realize this small town totally punked them

Local residents came together to fight Nazis a hilariously perfect way.

Image from YouTube video.

Neo-Nazis parade.

In preparation for an upcoming neo-Nazi march in the small Bavarian town of Wunsiedel, local residents decided to fight back in a hilariously perfect way: by sponsoring each of the 250 fascist participants.

According to Heeb Magazine, "For every metre they walked, €10 went to a programme called EXIT Deutschland, which helps people escape extremist groups."

Keep ReadingShow less


Time travel back to 1905.

Back in 1905, a book called "The Apples of New York" was published by the New York State Department of Agriculture. It featured hundreds of apple varieties of all shapes, colors, and sizes, including Thomas Jefferson's personal favorite, the Esopus Spitzenburg.






Keep ReadingShow less
Identity

When a man asks people to translate a hate message he's received, their response is unforgettable

Reading the words would be one thing. Having to think about what they mean is almost too intense.


As part of an experiment, a man asks for help translating a Facebook message he has received.

There's a man in Lithuania who speaks only English. The message is in Lithuanian. He can't read it, so he asks some locals to translate it for him.

Keep ReadingShow less
Family

A viral photo of a calm dad and a screaming toddler holds an important parenting lesson

He exemplified patient parenting when his daughter started having a meltdown at the store.

Actor Justin Baldoni exemplified patient parenting when his daughter had a meltdown at the store.


Young kids don't always pick the best times to have emotional meltdowns.

Just ask any parent.

Grocery stores, malls, and restaurants (or any place with lots of people around) in particular seem to bring out the worst in our little ones, prompting explosive tantrums that can make even the most stoic parent turn red-faced with embarrassment.

But why be embarrassed? It's just kids being kids, after all.

Keep ReadingShow less
Education

A teen student delivered a masterclass on the true history of the Confederate flag

Christopher Justice broke it down into incredible details most of us probably weren't even aware of.

Six years ago, a high school student named Christopher Justice eloquently explained the multiple problems with flying the Confederate flag. A video clip of Justice's truth bomb has made the viral rounds a few times since then, and here it is once again getting the attention it deserves.

Justice doesn't just explain why the flag is seen as a symbol of racism. He also explains the history of when the flag originated and why flying a Confederate flag makes no sense for people who claim to be loyal Americans.

But that clip, as great as it is, is a small part of the whole story. Knowing how the discussion came about and seeing the full debate in context is even more impressive.

Keep ReadingShow less