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upworthy
Health

This mom's empowering selfies show off life with an invisible illness.

She's reclaiming her confidence and sharing what it can really mean to be a mom with Crohn's disease.

Chron’s disease, IBD, irritable bowel syndrome
All photos by Krystal Miller, used with permission.

Krystal, Arabella, and Lukas.


There are a lot of hard things about living with Crohn's disease. Not being able to talk about it might be the worst one.

Imagine being constantly tired, but in a way that even 15 hours of sleep a day can't cure. Imagine going to dinner, but every time you eat something as simple as a roll of warm bread, it feels like it might've had broken glass inside of it.

Then, it's time to go to the bathroom. Again. Is that the fifth time this hour or the sixth? You've lost track. It's a running joke now — your friends think it's funny, but nobody really talks about what happens when you step away. Because, really, you look fine. Just tired.


Crohn's, as defined by the Centers for Disease Control and Prevention, is "a condition of chronic inflammation potentially involving any location of the gastrointestinal tract." But as defined by myself, someone with Crohn's, it's like having food poisoning all the time. The symptoms and presentation are different for every patient, but one thing is the same for all: It's an invisible illness, and it sucks.

And let's face it. Talkin' about your poop is taboo.

Chron\u2019s, GIFs, ostomy

Nothing to see here.

assets.rebelmouse.io

A little privacy, please?

Well, unless you're Krystal Miller.

Stumble over to her Facebook page, Bag Lady Mama, and nearly every post has a reference to doing the doo.

Krystal, who lives in Perth, Australia, has Crohn's. She was first diagnosed at 15 years old, and by 22, most of her intestinal tract had been badly damaged by the disease. At that point, doctors decided to remove large portions of her large and small intestines.

family, vacation, permanent ileostomy

Krystal Miller and her husband, Shannon, son, Lukas, and daughter, Arabella.

All photos by Krystal Miller, used with permission.

For the last decade, she's been living with a permanent ileostomy, a surgically made opening in the abdominal wall that connects the lower intestine to an ostomy bag.

Now, at 32, she's sharing her daily experiences through Facebook.

Her posts show raw insight into her world. They're unapologetically blunt, they're full of curse words, and they're gaining traction — quickly.

In an interview with Upworthy, Krystal said she expected to have a few hundred Likes on her page within a month or two of launching it, mostly from close friends who knew about her life with Crohn's. But since it launched Jan. 25, it's reached more than 13,000 Likes.

Krystal Miller, colostomy bag, bag lady mama

Check out her posts and you'll see some serious granny-panty love.

All photos by Krystal Miller, used with permission.

"I did expect it to reach Europe and America because I have international friends," she said. "But I never expected for it to be as expansive as it has been. It's crazy — I actually got recognized at my local shops the other day!"

Her photos show off her day-to-day life with her two children, Lukas, 4, and Arabella, five months, and her husband, Shannon. Each is filled with her unabashed love for her body.

family, feel good story, pregnancy

Krystal, 32 weeks pregnant and wearing her bag, and her husband, Shannon, during their son's fourth birthday party.

All photos by Krystal Miller, used with permission.

Scars, bag, and the ostomy itself are all on display in the hopes that she can help remove some of the stigma around Crohn's and what life with the disease is like.

It's not a comfortable thing to live with physically or socially. It took years before Krystal was willing to open up about it.

"When I was first diagnosed, I was very uncomfortable. I would be in-tears uncomfortable if someone had to go to the toilet after me. ... And when you're young, it's embarrassing and it's pretty f*cking horrific. It's been slow progress , but I just kind of got sick of caring. Like, who gives a f*ck, it is what it is, I can't do anything about it."

She would go to extreme lengths to cover up the symptoms of the disease, especially when using public restrooms. But she credits the surgery that removed her rectum with alleviating a lot of that embarrassment as well. Once her permanent ostomy was in place, many of her symptoms were alleviated, and her experiences with "number 2" became more matter-of-fact than anything else.

"It's been slow progress , but I just kind of got sick of caring. Like, who gives a f*ck, it is what it is, I can't do anything about it."

From there, it became about reclaiming her sexiness and self-confidence, which started with revisiting how she looked at herself.

"When we look at other women, we don't see the same flaws that we see in ourself. And I've had to retrain myself to see myself the way others might see me, to not notice the finer intricacies that I see on myself. Other people don't see the sh*t that we see."

ileostomy, fashion tips, advice

Krystal, Arabella, and Lukas.

All photos by Krystal Miller, used with permission.

But she hasn't stopped there. She also posts fashion tips for other women with Crohn's and shares advice on how to dress the way you want while still being comfortable with a bag.

Fremantle Hospital, stomal therapist, public speaking

Krystal speaking at Fremantle Hospital. She's studying to become a stomal therapist.

All photos by Krystal Miller, used with permission.

Krystal does have one thing she wants to say to other people who have Crohn's and other IBDs: It's not always going to be easy, and that's OK.

"We have earned that right to f*cking hate the world," she said. "We are entitled to f*cking be angry and to be sad and to have bad days. If you need to feel sorry for yourself, then feel sorry for yourself. But then pick yourself up and keep going."


This article originally appeared on 04.04.16

True

Do you ever feel like you could be doing more when it comes to making a positive impact on your community? The messaging around giving back is louder than ever this time of year, and for good reason; It is the season of giving, after all.

If you’ve ever wondered who is responsible for bringing many of the giving-back initiatives to life, it’s probably not who you’d expect. The masterminds behind these types of campaigns are project managers.

Using their talents and skills, often proven by earning certifications from the Project Management Institute (PMI), project managers are driving real change and increasing the success rate on projects that truly improve our world.

To celebrate the work that project managers are doing behind the scenes to make a difference, we spoke with two people doing more than their part to make an impact.

In his current role as a Project Management Professional (PMP)-certified project manager and environmental engineer for the U.S. Environmental Protection Agency (EPA), Joshua Williard oversees the cleanup of some of America’s most contaminated and hazardous waste sites.

Courtesy of Joshua Williard

“Recently, I was part of a four-person diving team sent to collect contaminated sediment samples from the bottom of a river in Southeastern Virginia. We wanted to ensure a containment wall was successfully blocking the release of waste into an adjacent river,” Williard says.

Through his work, Josh drives restoration efforts to completion so contaminated land can again be used beneficially, and so future generations will not be at risk of exposure to harmful chemicals.

“I’ve been inspired by the natural world from a young age and always loved being outside. As I gained an understanding about Earth's trajectory, I realized that I wanted to be part of trying to save it and keep it for future generations.

“I learned the importance of using different management styles to address various project challenges. I saw the value in building meaningful relationships with key community members. I came to see that effective project management can make a real difference in getting things done and having on-the-ground impact,” Williard says.

In addition, Monica Chan’s career in project management has enabled her to work at the forefront of conservation efforts with the World Wildlife Fund (WWF-US). She most recently has been managing a climate change project, working with a diverse team including scientists, policy experts, data analysts, biologists, communicators, and more. The goal is to leverage grants to protect and restore mangroves, forests, and ecosystems, and drive demand in seaweed farming – all to harness nature's power to address the climate crisis.

Courtesy of Monica Chan

“As the project management lead for WWF-US, I am collaborating across the organization to build a project management framework that adapts to our diverse projects. Given that WWF's overarching objectives center on conserving nature and addressing imminent threats to the diversity of life on Earth, the stakes are exceptionally high in how we approach projects,” says Chan.

“Throughout my journey, I've discovered a deep passion for project management's ability to unite people for shared goals, contributing meaningfully to environmental conservation,” she says.

With skills learned from on-the-job experience and resources from PMI, project managers are the central point of connection for social impact campaigns, driving them forward and solving problems along the way. They are integral to bringing these projects to life, and they find support from their peers in PMI’s community.

PMI has a global network of more than 300 chapters and serves as a community for project managers – at every stage of their career. Members can share knowledge, celebrate impact, and learn together through resources, events, and other programs such as PMI’s Hours for Impact program, which encourages PMI members to volunteer their time to projects directly supporting the United Nations 17 Sustainable Development Goals.

“By tapping into PMI's extensive network and resources, I've expanded my project management knowledge and skills, gaining insights from seasoned professionals in diverse industries, including environmental management. Exposure to different perspectives has kept me informed about industry trends, best practices, and allowed me to tailor my approach to the unique challenges of the non-profit sector,” Chan says.

“Obtaining my PMP certification has been a game-changer, propelling not only my career growth, but also reshaping my approach to daily projects, both personally and professionally,” Chan says. Research from PMI shows that a career in project management means being part of an industry on the rise, as the global economy will need 25 million new project professionals by 2030 and the median salary for project practitioners in the U.S. is $120K.

PMI’s mission is to help professionals build project management skills through online courses, networking, and other learning opportunities, help them prove their proficiency in project management through certifications, and champion the work that project professionals, like Joshua and Monica, do around the world.

For those interested in pursuing a career in project management to help make a difference, PMI’s Certified Associate in Project Management (CAPM) certification could be the starting point to help get your foot in the door.

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