How professor with schizophrenia thrives despite many hospitalizations
Oftentimes when people think of psychotic disorders like schizophrenia there's an level of fear that comes along with it. Media has conditioned people to be afraid of those with psychotic disorders. They're almost always portrayed as out of control, dangerous and physically dirty.
Memorable encounters with psychotic people outside of television and movies usually involve seeing an unhoused person deep in conversation with something only they can see. These are not situations that make for positive frames of reference for psychosis or what a well managed psychotic disorder can look like. There's also an immense amount of stigma behind the word "psychotic." When people hear that word they automatically associate it with someone who is "crazy," not an actual mental health disorder that can be managed with medication.
Elyn Saks is a law professor at University of Southern California and legal scholar has lived with schizophrenia for several decades, racking up hundreds of days in hospitals due to her psychosis, yet no one would be the wiser if they passed her at a grocery store. Saks doesn't fit the stereotype of the media portrayal of a psychotic person but she is in deed psychotic.
woman lying on bed
Photo by Yuris Alhumaydy on Unsplash
"Psycho" or "psychotic" is referenced in songs, television shows and even titles of movies like "American Psycho," portraying it as people with extremely unpredictable, dangerous behaviors. The two words are typically used interchangeably though they're not actually the same thing. Pyscho is short for psychopathy, which is a characteristic of Antisocial Personality Disorder, while psychotic encompasses visual and auditory hallucinations along with paranoia and more.
Saks is no stranger to they symptoms of psychosis, "when I'm psychotic I often have the delusion that I've killed hundreds of thousands of people with my thoughts. I sometimes have the idea that nuclear explosions are about to be set off in my brain. Occasionally I have hallucinations, like one time I turned around and saw a man with a raised knife. Imagine having a nightmare when you're awake."
In her 2012 TedTalk, she explains that everyone's psychotic experiences are different before explaining some key characteristics. Due to the severity of her schizophrenia, Saks' mental health team did not think she would be a fully successful member of society. The team of doctors on one of her many psychiatric hospital stays explain that her condition has a poor prognosis.
"As a young woman I was in a psychiatric hospital on three different occasions for lengthy periods. My doctors diagnosed me with chronic schizophrenia and gave me a prognosis of "grave." That is at best I was expected to live in a board and care and work at menial jobs. Fortunately I did not actually enact that grave prognosis, instead I'm a chaired professor of law, psychology and psychiatry at the USC Gould Center of Law, I have many close friends, and I have a beloved husband Will," Saks shares.
Saks describes her experiences in psychiatric hospitals in America that can only be summed up as traumatic. She shares the violence used against her when she was involuntarily committed saying, "once there, someone I'll just call the doctor, and his whole team of goons swooped down, lifted me high into the air and slammed me down on a metal bed with such force that I saw stars. Then they strapped my legs and arms to the metal bed with thick leather straps."
The involuntary commitment that she experienced was not due to her being a danger to herself or others. She was simply speaking in gibberish, this was her third hospitalization but her first in the American healthcare system. The mistreatment, stripping of autonomy and use of medical restraints are not uncommon for people with psychotic disorders. But for those who have an extensive support system and a higher education like Saks, the outcomes of a serious mental health diagnosis can be vastly different.
Reducing the stigma around psychotic disorders can also play a large role in more positive outcomes for people. Between brave people like Saks stepping up to tell their stories and organizations like Hearing Voices Network, an impact can be made towards further destigmatization. The Hearing Voices Network is an international nonprofit that not only trains people to facilitate groups for people living with psychosis but they also provide free resources and support for people that experience it.
Being around psychotic people doesn't have to be scary. You're likely around them every day, in the office, at school or at your kid's soccer practice. You're just not aware because they don't look like the people we have been conditioned to fear. Medication and therapy can go a long way and Saks is proof of how successful those with severe mental illnesses.
