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Joy

Check out a human library, where you borrow people instead of books.

A surely unforgettable experience reaching all corners of the world.

community, libraries, relationships, diversity, people
Image via Pixabay.

Libraries no longer store only books.

There are libraries popping up around the world where you can see the books breathe.

You can watch the books blink, cry, laugh, and think. You can ask them any sort of question and get a real answer.

It's what the books hope you'll do.

At the Human Library, the books are people!

It's set up just like a normal library: You check out a "book" on a certain topic and have an allotted amount of time with it. Only at the Human Library, the book is, well, a human.

People who volunteer to become "books" make their experiences open and available, usually on issues that people tend to have a difficult time discussing. "Readers" are encouraged to ask questions freely, and they'll get honest answers in return. It's brilliant.

What kind of books can you borrow there?

1. Borrow a person with autism.

With 1 in 68 kids diagnosed with autism spectrum disorder (ASD) today, there's no better way to learn about it than by interacting with someone who has it.

2. Borrow someone who has modified their appearance.

Ever make assumptions about people with lots of piercings and tattoos? Here's an opportunity to stop judging a book by its cover and get to know the inside.

3. Borrow a refugee and hear their story.

You've heard about the Syrian refugee crisis in the news. Why not put the media on hold and talk to an actual refugee?

4. Borrow someone who is transgender.

Perhaps you've always had questions about being transgender but didn't know how to ask them. Go ahead. Get your questions ready.

5. Borrow a homeless person.

What stories do they have of a life you may never know?

6. Borrow someone with deaf-blindness.

Just because they communicate differently doesn't mean their stories are less.

7. Borrow someone who is obese.

Society loves to put people in categories. Break through those boundaries to get a fuller picture.

You can borrow a police officer. A veteran with PTSD. A single mom. A Muslim. Someone in a polyamorous relationship. A former gang member. A sex worker. A welfare recipient. A teacher. The list goes on.

The libraries are bringing people who would otherwise never interact together in a way that many communities long for.

That's what Ronni Abergel has sought to do since the library's launch in 2000. During a four-day test run at the Roskilde Festival in Copenhagen, organizers and festival attendees were stunned at the event's impact.

"The policeman sitting there speaking with the graffiti writer. The politician in discussions with the youth activist and the football fan in a deep chat with the feminist. It was a win-win situation and has been ever since," Ronni said on the Human Library's site.

A no-judgment zone is one key to its impact.

"It's meant to be a safe space to ask difficult questions and not to be judged," he told Upworthy. "To try and gain an important insight into the life of someone you think you know something about, but..."

You don't.

In our quick-to-judge, increasingly polarized world, it's no wonder these events are growing in size. We need them.

When asked what has changed since these events started, Ronni responded, “The world has changed, for the worse.”

He points to there being less tolerance, less understanding, and less social cohesion than when he first had the idea back in 2000. And unfortunately, he's right.

When we have states discriminating against transgender people using the bathroom, presidential candidates campaigning to ban an entire religion from entering the United States, and countries still facing stigma around Ebola, it can be hard to want to high-five humanity.

There's so much to learn about one another. A group of readers here borrowed a nudist.

It's time to face our fears and confront our stereotypes. To embrace the diversity of this world will allow us to feel more secure in it.

"When you meet our books, no matter who you are and where you are from or which book you will be reading, in the end, inside every person, the result will say: we are different from each other, we see things differently and we live life differently. But there are more things that we have in common than are keeping us apart." Truth.

If there's one immediately impactful way to bring communities together, a Human Library might just be it.

Learn more about it in the YouTube video below:

This article originally appeared on 02.18.16

Sponsored

Three women, three MS journeys: How multiple sclerosis looks different for everyone

Gina, Nathalie and Helga share their reactions to being diagnosed with MS and how they stay informed and positive in the face of ever-changing symptoms.

Courtesy of Sanofi

Helga, Nathalie and Gina all have MS, and their experiences show how differently the disease can manifest.

True

It’s been 155 years since neurologist Jean-Martin Charcot gave the first lecture on a mysterious progressive illness he called “multiple sclerosis.” Since then, we’ve learned a lot. We know MS causes the immune system to attack healthy tissue, including damaging the brain and spinal cord. Resulting symptoms can be debilitating and include fatigue, blurred vision, memory problems and weakness. Huge advancements in our understanding of MS and its underlying causes, as well as treatment advances, have been made in the past few decades, but MS remains a complex and unpredictable reality for the 2.8 million+ people diagnosed around the world.

Ironically, the only real constant for people living with MS is change. There’s no set pattern or standard progression of the disease, so each person’s experience is unique. Some people with MS have mild symptoms that worsen slowly but sometimes improve, while others can have severe symptoms that drastically alter their daily lives.

All people with MS share some things in common, however, such as the need to stay informed on the ever-evolving research, find various lines of support and try to remain hopeful as they continue living with the disease.

To better understand what navigating life with MS really looks like, three women shared their MS stories with us. Their journeys demonstrate how MS can look different for different people and interestingly, how the language used to talk about the disease can greatly impact how people understand their realities.

woman with horse, woman riding horseGina loves riding her horse, Benita.Courtesy of Sanofi

Gina—Hamburg, Germany (diagnosed with relapsing multiple sclerosis in 2017)

When her youngest son was 4 months old, Gina started having problems with her eye. She’d soon learn she was experiencing optic neuritis—her first symptom of MS.

“Immediately after the diagnosis, I looked up facts on MS because I didn’t know anything about it,” Gina says. “And as soon as I knew what could really happen with this disease, I actually got scared.”

As her family’s primary income provider, she worried about how MS would impact her ability to work as a writer and editor. Her family was afraid she was going to end up in a wheelchair. However, for now, Gina’s MS is managed well enough that she still works full-time and is able to be active.

“When I tell somebody that I have MS, they often don't believe me the first time because I don't fulfill any stereotypes,” she says.

Overwhelmed by negative perspectives on living with MS, Gina sought support in the online MS community, which she found to be much more positive.

“I think it’s important to use as many positive words as you can when talking about MS.” It’s important to be realistic while also conveying hope, she says. “MS is an insidious disease that can cause many bad symptoms…that can be frightening, and you can't gloss over it, either.”

To give back to the online community that helped her so much, Gina started a blog to share her story and help others trying to learn about their diagnosis.

Though she deals with fatigue and cognitive dysfunction sometimes, Gina stays active swimming, biking, riding horses and playing with her sons, who are now 11 and 6.

Cognitive dysfunction is common in MS, with over half of people affected. It can impact memory, attention, planning, and word-finding. As with many aspects of MS, some people experience mild changes, while others face more challenges.

Gina says that while there’s still a lot of education about MS needed, she feels positive about the future of MS because there’s so much research being done.

woman in wheelchair holding medal, woman rowingNathalie is an award-winning rower with multiple international titles.Courtesy of Sanofi

Nathalie — Pennes Mirabeau, France (diagnosed with relapsing-remitting multiple sclerosis in 2002)

Nathalie was a teenager and a competitive athlete when she noticed her first symptoms of MS, but it would take four years of “limbo” before she was diagnosed.

“Ultimately, the diagnosis was more of a relief, than a shock,” she says. “Because when you have signs and you don’t know why, it’s worse than knowing, in the end, what you have.”

However, learning more about the disease—and the realities of disease progression—scared her.

“That glimpse of the future was direct and traumatic,” she says. Her neurologist explained that the disease evolves differently for everyone, and her situation might end up being serious or very mild. So, she decided to stop comparing herself to others with MS.

She said to herself, “We’ll see what happens, and you’ll manage it bit by bit.”

By 2005, Nathalie’s MS had progressed to the point of needing a wheelchair. However, that has not dampened her competitive spirit.

Nathalie began her international rowing career in 2009 and has won multiple world titles, including two Paralympic medals—silver in London and bronze in Tokyo. Now, at 42, she still trains 11 times a week. Fatigue can be a problem, and sometimes hard workouts leave her with muscle stiffness and shaking, but she credits her ongoing sports career for helping her feel in tune with her body’s signals.

“Over the years, I’ve learned to listen to my body, letting my body guide when I need to stop and take breaks,” she says.

Nathalie explains that she used to only look backwards because of the initial shock of her diagnosis. In time, she stopped thinking about what she couldn’t do anymore and focused on her future. She now lives in the following mindset: “Even when doors close, don’t miss out on those that open.” Instead of focusing on what she can’t do, she focuses on the opportunities she still has. Right now, this includes her training for the 2024 Paralympic Games in Paris, where she will compete for another rowing medal.

“I only go forward,” she says. “Well, I try, anyway…It’s easy to say, it’s not always easy to do. But that’s what I try to do.”

woman exiting water after swimming, woman with great daneHelga's Great Dane has become a helpful and beloved companion.Courtesy of Sanofi

Helga—Johannesburg, South Africa (diagnosed with relapsing multiple sclerosis in 2010)

When Helga first started having balance issues and numbness in her feet, she chalked it up to her training as a runner. But when the numbness moved to her face, she knew something was wrong. She never guessed it was MS.

“When I was diagnosed, I felt completely overwhelmed and clueless,” Helga says. “I felt that I had nowhere near enough information. I did not know anything about the disease…I had no idea that it was going to be a process of continually monitoring and adjusting your lifestyle.”

In the beginning, Helga’s symptoms developed slowly, and she didn’t appear ill to others. She was even able to run for a few years after her diagnosis, but she couldn’t do marathons anymore, and she began to fall frequently due to balance issues and right-foot dragging. Then her cognition issues became more problematic, especially in her job as a trainer in a printing company.

“My executive function, decision-making and short-term memory were affected to the point that I was eventually medically unfit for work,” she says. She stopped working in 2017.

However, she didn’t stop living life. Even though she could no longer run, she continued to swim competitively. She got a Great Dane puppy and trained him as a service dog to help her walk. She also serves as vice chair of the patient support organization Multiple Sclerosis South Africa, and she advises others who have been diagnosed to join a patient advocacy group as soon as possible to get reliable information and meet others with MS.

Helga says she is “hopeful” about the future of MS. “I must say that I am so grateful that we have all the new medications available, because my life would not be the same if it wasn't for that,” she adds.

Part of how she manages her MS is by looking at the positives.

“If I could tell the world one thing about MS, it would be that MS is an incurable disease of the nervous system, but it's also the greatest teacher of valuing your health, family, friends, and managing change in your life,” she says. “My life is diversified in a way that I never, ever thought it would, and MS has been honestly the greatest teacher.”

Each MS journey is unique – with each person impacted experiencing different struggles, successes, and feelings as they manage this unpredictable disease. But the common thread is clear – there is a critical need for information, support, and hope. We are proud to participate in World MS Day and share these incredible stories of living life while living with MS. To learn more about MS, go to https://www.sanofi.com/why-words-really-matter-when-it-comes-to-multiple-sclerosis.

MAT-GLB-2301642-v1.0-05/2023

This article was sponsored by Sanofi. Participants were compensated when applicable.

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