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Tulika Bose

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He has one of the world's rarest birth defects. Here's what the experience taught his mom.

The inspiring story of how a mother's love conquered people's fear.

When Lacey Buchanan was 23 weeks pregnant, she was told that her baby would probably die.

After her 18-week ultrasound, doctors had noticed something was wrong. Most likely, they told her, it was a cleft palate. But as more time passed, they grew increasingly concerned.

And by the time she arrived at the hospital to deliver her baby, no one knew if he would live.


To everyone's surprise, though, her son was born and he survived.

But he was born with a condition so rare that it's one of only 50 recorded cases in the world Tessier cleft lip and palate, classifications 3, 4, and 5.

This condition, induced by amniotic band syndrome, caused her son's skull to fail to knit together in the womb, resulting in a large V-shaped cleft from his mouth into his eyes. As a result, Christian was born without eyes. He couldn't even close his mouth.

The team at Vanderbilt University Medical Center had never seen a case like it.

Image via Lacey Buchanan, used with permission.

Lacey and her husband, Chris, were overjoyed that their son was alive. But they were also completely overwhelmed. They couldn't take their newborn home right away, and he needed surgery when he was just four days old to close an exposed part of his head.

Then, before he turned three months old, Christian needed a second surgery.

For Lacey, this was extremely difficult.

Not only was she a new mom with a baby in and out of the hospital, but she was also a law student with a full-time job. It was hard to balance everything, and at one point, she said, she had a breakdown.

"I was thankful that Christian had lived, but there was a point when I started saying, 'Why me? Why my child? What have I done to deserve this?'" she recalls.

"Motherhood can make you feel so ill-equipped," she says. "It can make you feel like you're constantly failing. Am I doing enough? Am I screwing up this little tiny human?"

Image via Lacey Buchanan, used with permission.

Then, when the family started taking Christian out in public, she felt judged.

People would point and stare. They would even come up to Lacey and make rude, hurtful comments.

"What's wrong with him?" people would ask. And when Lacey posted a picture of her young son on Facebook, one woman even told her that she was selfish for not aborting him.

These comments really upset Lacey — they felt like personal attacks on her and her son. And they were from strangers.

But instead of giving up, Lacey decided to be proactive and stand up for herself and her child. So she made a video — with handwritten notecards — to explain what happened to him.

Soon, her inbox was flooding with calls, messages, and notes of encouragement. The world had seen Christian, and they wanted to let her know that they cared about him.

"I was shocked. Absolutely shocked," Buchanan says. As a mother, she felt validated. Suddenly, everything didn't seem quite so hard.

Five years later, Christian is a happy, active little boy. He takes karate lessons.

Image via Lacey Buchanan, used with permission.

He plays Christmas carols on the piano.

Image via Lacey Buchanan, used with permission.

He loves Superman.

Image via Lacey Buchanan, used with permission.

And though he can't see, he is still just a normal little boy who likes playing outside in the fall leaves.

As for his mother, Lacey, she's fulfilled her childhood dreams of becoming a lawyer.  

Image via Lacey Buchanan, used with permission.

And she's planning to use her new law degree to help mothers who are struggling to navigate the complex bureaucracy of disability law, like she once did.

To someone unfamiliar with how the law works, the red tape can be overwhelming, she says. "I wouldn't have even known this world existed if it hadn't been for Christian."

She also decided to write a book about her family that hits bookshelves Jan. 10, 2017.

Being a parent is one of the hardest jobs there is, and all parents, at one point or another, doubt themselves.

Though it was scary for Lacey to balance work and school with being a mom to Christian, she succeeded. Having him was a gift in a different kind of wrapping paper, she says.

And it taught her to be a better mom and to be a better human.

And the biggest lesson she learned is also the biggest piece of advice she has for other mothers: "You are enough. If you weren't enough, you wouldn't have had this child."

As long as animator Chance Raspberry can remember, he's held a pencil in his hand.

When he was 11, Raspberry broke the family VCR by skipping it backward and forward, pausing it to copy the images from Disney's "Sleepy Hollow" into an old notebook. Other days, he sat hunched over the desk in his room, mimicking the jet-black pen strokes that made Spiderman come to life.

For Raspberry, drawing pictures was a window to the rest of the world.

It was the '80s, and at the time, he was coping with Tourette's syndrome, a disorder health professionals and people close to Raspberry knew little about. It meant he often engaged in behaviors that no one could predict or control.


The tics, which started as unusual bouts of excess energy, often caused Raspberry to do dangerous things — like venture into the street in the middle of a preschool class.

Image courtesy of Chance Raspberry.

Once, Raspberry alarmed his preschool staff by perching on top of a jungle gym, pretending to shoot classmates with an imaginary bow and arrow. When they told him to stop, he literally couldn't.

As a result, Raspberry was often sent home, his parents pleading with school administrators who didn't understand him and his behavior. When he was 8, the tics started to manifest in sudden, violent outbursts.

"The worst tics were when I would repeatedly slap myself across the face. I would have to hit myself in alternating patterns of five and 10. On top of that, I had this tic where I needed to rub my right cheek against my right shoulder, and eventually I got a rash," Raspberry explains.

When he felt alone, Raspberry found solace in the zany world of cartoons, where high energy was normal.

Image courtesy of Chance Raspberry.

He began to draw. But being an artist — and one with a disability — didn't make everything easier for Raspberry. Classmates would often try to startle him just to see what he would do. Sometimes, they would even ruin his drawings.

"I remember I used to make this sound, like ‘weeee,’ obsessively. One time I left my desk to find that this drawing I was working on for hours was gone. I came back, and the drawing had this ‘weee’ written all across the top. It was destroyed, and I was really mad, because it had taken me so long,” Raspberry recalls.

He channeled all of his energy into his drawings, even ignoring the occasional teacher who would rip the pencil sketches from his hands in class and crumple them into the trash. Despite it all, his drawings got better and better.

16 years, countless hours, and thousands of cartoon sketches later, Raspberry ended up with a career drawing the same unruly boy who inspired him as a kid: Bart Simpson.

Image courtesy of Chance Raspberry.

Raspberry says he always loved Bart "because he's this outsider, rebel spirit — but he's never been ashamed. He doesn't regret being different."

"I think as a kid who had these feelings of being an outsider and being different, I loved watching Bart getting into trouble and seeing these stories told through the eyes of someone my age," he says.

After winning a group Emmy for his work on the Simpsons at 28, Raspberry decided he wanted to do more for other kids with neurological differences. He wanted to help those kids — and people around them — understand why thinking differently needs to be not only accepted, but celebrated.

Drawing from his own childhood experiences, Raspberry found the inspiration for the new animated show he's developing called "Little Billy."

Little Billy Harper. GIF courtesy of Chance Raspberry.

Like Raspberry, Billy is a young boy with a neuro-cognitive disability — only Billy's is a fictional one called "ultra-hyper-sensitivity." People around Billy don't often understand him, and some people even find him dangerous.

“I am basing this on my actual life, and I had all of these issues with my teachers and not getting along or following the order of things," he says. The show is largely based on Raspberry's life around age 4, when his abundance of energy made him realize he was different from other kids.

In 2014, Raspberry raised $30,000 on Kickstarter to help bring "Little Billy" to life. He's currently finishing the pilot and continues to work full time as a character layout artist on "The Simpsons."

Image courtesy of Chance Raspberry.

Raspberry channeled his abundance of energy into creating the completely hand-drawn series — the trailer alone required a whopping 1,372 drawings.

The goal of the series is to tap into the nostalgia of childhood in an entertaining, healing way while also creating visibility around what it's like to grow up with special needs.

"The show will explore in full in an honest way how a family that is dealing with this goes through it, how they’re affected," Raspberry says.

"Just because we're different, it doesn't mean we're broken."

Watch the trailer for "Little Billy" below:

In 1962, a chance encounter with Martin Luther King Jr. would transform the life of a young medical student named Larry Brilliant.

Larry Brilliant with an early Apple II computer. All images courtesy of HarperCollins.

Dr. Brilliant would go on to help eradicate smallpox, direct Google.org, help save 4 million people from blindness, and become one of the foremost experts in global pandemics.

But at 19 years old, Brilliant was holed up in his dorm room, subsisting on stale peanut candy and comic books, grief-stricken at the thought of losing his father to cancer.


One rainy Michigan day, Brilliant pulled himself out of his dorm and stumbled into an auditorium to see a black preacher from Atlanta, Georgia, speak of hope, truth, and justice.

Only 60 students stood in a cavernous room meant for 3,000. The school administrators were embarrassed by the low turnout, but Martin Luther King Jr. wasn’t. Chuckling warmly, he told the assembly, “Why don’t y’all come up here. That way, there’s more of me to go around.”

Martin Luther King Jr. at the University of Michigan, 1962.

Brilliant joined the others at King's feet and sat transfixed as a one-hour lecture turned into six.

“[King] famously talked about the arc of the moral universe that would bend towards justice, but it wouldn’t bend on its own. You have to jump up, drag it, twist it, pull it down towards justice. You have to influence that arc,” Brilliant said.

The experience changed Brilliant. He knew he couldn’t just lie around feeling unmotivated.

Brilliant started a journey of self-discovery and transformation that would help save the lives of millions in the process.

Inspired by King, Brilliant became an activist. He marched in civil rights rallies. In 1970, he delivered a Native American baby on Alcatraz Island during a standoff with the United States government. He even saved the life of a former Green Beret who attacked him on the island with a knife.

Larry Brilliant at Alcatraz Island.

Ensuing fame led to a call from Warner Brothers, and soon, Brilliant was starring in a "Woodstock on wheels" film called "Medicine Ball Caravan," playing a doctor alongside musical luminaries like Alice Cooper and B.B. King. Then, he ended up taking a caravan across the Khyber Pass with his wife, Girija, and his best friend, a hippie named Wavy Gravy.

Brilliant's adventures can seem too wild to be true. But, through it all, he was on the way to finding his destiny.

In 1972, Brilliant ended up in the Himalayas at the feet of a holy man. The guru, named Neem Karoli Baba, clasped Brilliant's hand and gave him the realization of a deep, profound, and universal love for everyone in the world.

Brilliant with his guru, Neem Karoli Baba.

“These machines that we live in, these bodies, they don’t come with an operating manual, and I did not know that mine was capable. I didn’t know where the on switch was that loved everybody. But he turned it on,” Brilliant said of their meeting.

The guru — who referred to Brilliant as "Dr. America" —  told him that his destiny would be to work to cure one of the worst pandemics of all time: smallpox.

Smallpox killed over 300 million people in the 20th century, and it was wreaking havoc on families in India.

Following the instructions of his guru, the now 27-year-old Brilliant took the 17-hour train ride to the World Health Organization headquarters in New Delhi. But success didn't happen overnight for the young doctor.

“I was kicked out in 30 seconds," Brilliant said. "I walked in with a dress on, and a beard down to my knees, and it was a gown. But you know, they thought it looked like a dress. It was an ashram robe. And they kicked me out." 13 attempts later, he finally got the lowest paid job there.

In just a few years, Brilliant went on to lead a WHO team that would play a key role in eradicating smallpox.

Smallpox eradication team from Chota Nagpur.

Brilliant recalled that there were staff from 170 different countries in the WHO smallpox eradication program — all fighting the disease together despite deep division among many of their countries.

"In the middle of the Cold War, Russians and Americans worked together to eradicate smallpox, and the people sitting around the table were from every race, every religion, every language you could think of," Brilliant said.

The team was greater than the sum of their parts, and in 1975, they won. Brilliant saw the last case of killer smallpox with his own eyes: a girl named Rahima Banu. After contracting the disease at 2 years old, she was cured.

Rahima Banu, the last known smallpox patient.

Brilliant went on to mobilize friends — including Steve Jobs, whom he had met in his Guru's ashram in India — to do even more good.

He contacted former members from WHO and created Seva, an organization that gave sight to 4 million blind people.

He became executive director of Google.org and won the TED Prize. He laid out his wish for an early warning system to stop pandemics and helped create Google Flu Trends.

He chaired the Skoll Global Threats Fund, becoming one of humanity's greatest hopes in the fight against global pandemics.

Ultimately, Brilliant is one of the biggest heroes in global health today.

Larry Brilliant gives polio vaccine drops in Chitrakoot, Uttar Pradesh, India.

He's truly lived a "brilliant" life. Just like many of us, he’s struggled with depression and fear, and he's wondered what his purpose was — but he's always known to listen.

"I used to tell my students when I was a professor, always expect the imponderabilia. That’s a made-up word," Brilliant said. "It’s a little creature that comes upon you when you least expect it and whispers in your ear something you haven’t thought of. Always expect that little unexpected twist. Always be willing to listen."

Brilliant’s story teaches us that incredible human accomplishments can only be achieved through faith in ourselves and joining together with a common goal in mind. It takes all of us to bend the arc of the moral universe toward justice.  

You might know Danai Gurira from "The Walking Dead."

She plays the fierce, zombie-slaying Michonne on TV, but this Zimbabwean-American actress is fighting to rid the world of an epidemic in real life.

Image via Gene Page/AMC.


Gurira grew up in southern Africa in the 1980s and '90s and witnessed the horrors brought about by the rise of HIV/AIDS in local communities.

She's since decided to use her platform to help.

Image via iStock.

Gurira is an advocate for Nyumbani Village in Kenya — the first village in Africa founded for children and elders living with HIV/AIDS.

When the pandemic began to rise in Africa, a startling number of children born with HIV were abandoned. Many more who lost their parents to AIDS were turned away from orphanages. Families were fractured as middled-aged people died, leaving behind the very young and elderly.

The founder of Nyumbani, Father Angelo D'Agostino, first opened an orphanage on a shoestring budget that only supported two children. After he died, his organization realized his greatest dream: a holistic, beautiful village for orphans and grandparents living with HIV/AIDS.

Located on more than 1,000 acres of land, Nyumbani Village is a vibrant, sustainable community complete with free schooling, health care, and psychosocial support.

It's a thriving hub for innovative green technology and building methods where residents grow and harvest their own food. Instead of housing children in traditional orphanages, Nyumbani prefers to create loving families by pairing kids with grandparents who also have AIDS.  

Photo via Ben Curtis/CBS News/AP.

Nyumbani — which means "home" in Swahili — has since given thousands of children and elders affected by AIDS a place to live and thrive. It’s also become a model for other African villages who are affected.

Currently 69% of the 34 million AIDS-affected people worldwide live in sub-Saharan Africa. That's why we need to support organizations like Nyumbani.

Gurira believes that looking out for others is central to the spirit of African culture.

"I love what Nyumbani's doing because it brings back the integrity of that really essential component of African life, which is, we take care of each other," Gurira said.

Watch the Upworthy Original video here: