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Democracy

Single mom perfectly explains to Congress why the U.S. poverty line needs a total rehaul

Single mom perfectly explains to Congress why the U.S. poverty line needs a total rehaul
Photo by Ev on Unsplash

This article originally appeared on 03.10.20


Nearly 12 percent of the U.S. population lives in poverty. That's more than one in ten Americans—and the percent is even higher for children.

If you're not up on the current numbers, the federal poverty line is $12,760 for an individuals and $26,200 for a family of four. If those annual incomes sound abysmally low, it's because they are. And incredibly, the Trump administration has proposed lowering the poverty line further, which would make more poor Americans ineligible for needed assistance.


However, debates over the poverty line don't even capture the full extent of Americans struggling to make ends meet. For many people, living above the poverty line is actually worse. These are the folks who make too much to qualify for aid programs but not enough to actually get by—a situation millions of working American families find themselves stuck in.

Amy Jo Hutchison is a single mother of two living in West Virginia, and a community organizer for West Virginia Healthy Kids and Families and Our Future West Virginia. She has also lived in poverty and been part of the working poor herself. In an impassioned speech, she spoke to the House Committee on Oversight and Reform about what poverty really looks like for working families—and even called out Congress for being completely out of touch with what it takes for a family to live on while they're spending $40,000 a year on office furniture.

Watch Hutchison's testimony here (transcript included below):

Ms. Hutchison Testimony on Proposed Changes to the Poverty Line Calculation

"I'm here to help you better understand poverty because poverty is my lived experience. And I'm also here to acknowledge the biased beliefs that poor people are lazy and the poverty is their fault. But how do I make you understand things like working full-time for $10 an hour is only about $19,000 a year, even though it's well above the federal minimum wage of $7.25 an hour?

I want to tell you about a single mom I met who was working at a gas station. She was promoted to manager within 30 days. She had to report her new income the DHHR within 60 days. Her rent bumped from $475 to $950 a month, she lost her SNAP benefits and her family's health insurance, so she did what poor people are forced to do all the time. She resigned her promotion and went back to working part-time, just so she and her family could survive.

Another single mom I know encouraged her kids to get jobs. For her DHHR review she had to claim their income as well. She lost her SNAP benefits and her insurance, so she weaned herself off of her blood pressure medicines because she—working full-time in a bank and part-time at a shop on the weekends—couldn't afford to buy them. Eventually the girls quit their jobs because their part-time fast food income was literally killing their mother.

You see the thing is children aren't going to escape poverty as long as they're relying on a head of household who is poor. Poverty rolls off the backs of parents, right onto the shoulders of our children, despite how hard we try.

I can tell you about my own with food insecurity the nights I went to bed hungry so my kids could have seconds, and I was employed full time as a Head Start teacher. I can tell you about being above the poverty guideline, nursing my gallbladder with essential oils and prayer, chewing on cloves and eating ibuprofen like they're Tic Tacs because I don't have health insurance and I can't afford a dentist. I have two jobs and a bachelor's degree, and I struggle to make ends meet.

The federal poverty guidelines say that I'm not poor, but I cashed in a jar full of change the other night so my daughter could attend a high school band competition with her band. I can't go grocery shopping without a calculator. I had to decide which bills not to pay to be here in this room today. Believe me, I've pulled myself up by the bootstraps so many damn times that I've ripped them off.

The current poverty guidelines are ridiculously out of touch. The poverty line for a family of three is $21,720. Where I live, because of the oil and gas boom, a 3-bedroom home runs for $1,200 a month. So if I made $22,000 a year, which could disqualify me from assistance, I would have $8000 left to raise two children and myself on. And yet the poverty guidelines wouldn't classify me as poor.

I Googled 'congressman salary' the other day and according to Senate gov the salary for Senators representatives and delegates is $174,000 a year so a year of work for you is the equivalent of almost four years of work for me. I'm $24,000 above the federal poverty guidelines definition of poor. It would take nine people working full-time for a year at $10 an hour to match y'all's salary. I also read that each senator has authorized $40,000 dollars for state office furniture and furnishings, and this amount is increased each year to reflect inflation.

That $40,000 a year for furniture is $360 more than the federal poverty guidelines for a family of seven, and yet here I am begging you on behalf of the 15 million children living in poverty in the United States—on behalf of the one in three kids under the age of five and nearly 100,000 children in my state of West Virginia living in poverty—to not change anything about these federal poverty guidelines until you can make them relevant and reflect what poverty really looks like today.

You have a $40,000 dollar furniture allotment. West Virginia has a median income of $43,000 and some change. People are working full-time and are hungry. Kids are about to be kicked off the free and reduced lunch rolls because of changes y'all want to make to SNAP, even though 62 percent of West Virginia SNAP recipients are families with children—the very same children who cannot take a part-time job because their parents will die without insurance. People are working full-time in this country for very little money.


They're not poor enough to get help. They don't make enough to get by. They're working while their rationing their insulin and their skipping their meds because they can't afford food and healthcare at the same time.

So shame on you. Shame on you, and shame on me, and shame on each and every one of us who haven't rattled the windows of these buildings with cries of outrage at a government that thinks their office furniture is worthy of $40,000 a year and families and children aren't.

I'm not asking you to apologize for your privilege but I'm asking you to see past it. There are 46 million Americans living in poverty doing the best they know how with what they have and we, in defense of children and families, cannot accept anything less from our very own government."

In addition to Hutchison's testimony, a coalition of 26 patient organizations, including the American Cancer Society Action Network, American Heart Association, and United Way, wrote a joint letter opposing the proposed lowering of the poverty line, stating:

"The current Official Poverty Measure (OPM) is based on an old formula that already does not fully capture those living in poverty and does not accurately reflect basic household expenses for families, including by underestimating child care and housing expenses. The proposed changes to the inflation calculation would reduce the annual adjustments to the poverty measure and therefore may exacerbate existing weaknesses, putting vulnerable Americans – including those with serious and chronic diseases – at great risk. Further lowering the poverty line would also give policymakers and the public less credible information about the number and characteristics of Americans living in poverty."

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Three women, three MS journeys: How multiple sclerosis looks different for everyone

Gina, Nathalie and Helga share their reactions to being diagnosed with MS and how they stay informed and positive in the face of ever-changing symptoms.

Courtesy of Sanofi

Helga, Nathalie and Gina all have MS, and their experiences show how differently the disease can manifest.

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It’s been 155 years since neurologist Jean-Martin Charcot gave the first lecture on a mysterious progressive illness he called “multiple sclerosis.” Since then, we’ve learned a lot. We know MS causes the immune system to attack healthy tissue, including damaging the brain and spinal cord. Resulting symptoms can be debilitating and include fatigue, blurred vision, memory problems and weakness. Huge advancements in our understanding of MS and its underlying causes, as well as treatment advances, have been made in the past few decades, but MS remains a complex and unpredictable reality for the 2.8 million+ people diagnosed around the world.

Ironically, the only real constant for people living with MS is change. There’s no set pattern or standard progression of the disease, so each person’s experience is unique. Some people with MS have mild symptoms that worsen slowly but sometimes improve, while others can have severe symptoms that drastically alter their daily lives.

All people with MS share some things in common, however, such as the need to stay informed on the ever-evolving research, find various lines of support and try to remain hopeful as they continue living with the disease.

To better understand what navigating life with MS really looks like, three women shared their MS stories with us. Their journeys demonstrate how MS can look different for different people and interestingly, how the language used to talk about the disease can greatly impact how people understand their realities.

woman with horse, woman riding horseGina loves riding her horse, Benita.Courtesy of Sanofi

Gina—Hamburg, Germany (diagnosed with relapsing multiple sclerosis in 2017)

When her youngest son was 4 months old, Gina started having problems with her eye. She’d soon learn she was experiencing optic neuritis—her first symptom of MS.

“Immediately after the diagnosis, I looked up facts on MS because I didn’t know anything about it,” Gina says. “And as soon as I knew what could really happen with this disease, I actually got scared.”

As her family’s primary income provider, she worried about how MS would impact her ability to work as a writer and editor. Her family was afraid she was going to end up in a wheelchair. However, for now, Gina’s MS is managed well enough that she still works full-time and is able to be active.

“When I tell somebody that I have MS, they often don't believe me the first time because I don't fulfill any stereotypes,” she says.

Overwhelmed by negative perspectives on living with MS, Gina sought support in the online MS community, which she found to be much more positive.

“I think it’s important to use as many positive words as you can when talking about MS.” It’s important to be realistic while also conveying hope, she says. “MS is an insidious disease that can cause many bad symptoms…that can be frightening, and you can't gloss over it, either.”

To give back to the online community that helped her so much, Gina started a blog to share her story and help others trying to learn about their diagnosis.

Though she deals with fatigue and cognitive dysfunction sometimes, Gina stays active swimming, biking, riding horses and playing with her sons, who are now 11 and 6.

Cognitive dysfunction is common in MS, with over half of people affected. It can impact memory, attention, planning, and word-finding. As with many aspects of MS, some people experience mild changes, while others face more challenges.

Gina says that while there’s still a lot of education about MS needed, she feels positive about the future of MS because there’s so much research being done.

woman in wheelchair holding medal, woman rowingNathalie is an award-winning rower with multiple international titles.Courtesy of Sanofi

Nathalie — Pennes Mirabeau, France (diagnosed with relapsing-remitting multiple sclerosis in 2002)

Nathalie was a teenager and a competitive athlete when she noticed her first symptoms of MS, but it would take four years of “limbo” before she was diagnosed.

“Ultimately, the diagnosis was more of a relief, than a shock,” she says. “Because when you have signs and you don’t know why, it’s worse than knowing, in the end, what you have.”

However, learning more about the disease—and the realities of disease progression—scared her.

“That glimpse of the future was direct and traumatic,” she says. Her neurologist explained that the disease evolves differently for everyone, and her situation might end up being serious or very mild. So, she decided to stop comparing herself to others with MS.

She said to herself, “We’ll see what happens, and you’ll manage it bit by bit.”

By 2005, Nathalie’s MS had progressed to the point of needing a wheelchair. However, that has not dampened her competitive spirit.

Nathalie began her international rowing career in 2009 and has won multiple world titles, including two Paralympic medals—silver in London and bronze in Tokyo. Now, at 42, she still trains 11 times a week. Fatigue can be a problem, and sometimes hard workouts leave her with muscle stiffness and shaking, but she credits her ongoing sports career for helping her feel in tune with her body’s signals.

“Over the years, I’ve learned to listen to my body, letting my body guide when I need to stop and take breaks,” she says.

Nathalie explains that she used to only look backwards because of the initial shock of her diagnosis. In time, she stopped thinking about what she couldn’t do anymore and focused on her future. She now lives in the following mindset: “Even when doors close, don’t miss out on those that open.” Instead of focusing on what she can’t do, she focuses on the opportunities she still has. Right now, this includes her training for the 2024 Paralympic Games in Paris, where she will compete for another rowing medal.

“I only go forward,” she says. “Well, I try, anyway…It’s easy to say, it’s not always easy to do. But that’s what I try to do.”

woman exiting water after swimming, woman with great daneHelga's Great Dane has become a helpful and beloved companion.Courtesy of Sanofi

Helga—Johannesburg, South Africa (diagnosed with relapsing multiple sclerosis in 2010)

When Helga first started having balance issues and numbness in her feet, she chalked it up to her training as a runner. But when the numbness moved to her face, she knew something was wrong. She never guessed it was MS.

“When I was diagnosed, I felt completely overwhelmed and clueless,” Helga says. “I felt that I had nowhere near enough information. I did not know anything about the disease…I had no idea that it was going to be a process of continually monitoring and adjusting your lifestyle.”

In the beginning, Helga’s symptoms developed slowly, and she didn’t appear ill to others. She was even able to run for a few years after her diagnosis, but she couldn’t do marathons anymore, and she began to fall frequently due to balance issues and right-foot dragging. Then her cognition issues became more problematic, especially in her job as a trainer in a printing company.

“My executive function, decision-making and short-term memory were affected to the point that I was eventually medically unfit for work,” she says. She stopped working in 2017.

However, she didn’t stop living life. Even though she could no longer run, she continued to swim competitively. She got a Great Dane puppy and trained him as a service dog to help her walk. She also serves as vice chair of the patient support organization Multiple Sclerosis South Africa, and she advises others who have been diagnosed to join a patient advocacy group as soon as possible to get reliable information and meet others with MS.

Helga says she is “hopeful” about the future of MS. “I must say that I am so grateful that we have all the new medications available, because my life would not be the same if it wasn't for that,” she adds.

Part of how she manages her MS is by looking at the positives.

“If I could tell the world one thing about MS, it would be that MS is an incurable disease of the nervous system, but it's also the greatest teacher of valuing your health, family, friends, and managing change in your life,” she says. “My life is diversified in a way that I never, ever thought it would, and MS has been honestly the greatest teacher.”

Each MS journey is unique – with each person impacted experiencing different struggles, successes, and feelings as they manage this unpredictable disease. But the common thread is clear – there is a critical need for information, support, and hope. We are proud to participate in World MS Day and share these incredible stories of living life while living with MS. To learn more about MS, go to https://www.sanofi.com/why-words-really-matter-when-it-comes-to-multiple-sclerosis.

MAT-GLB-2301642-v1.0-05/2023

This article was sponsored by Sanofi. Participants were compensated when applicable.

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