+

They took out Stacey Donovan’s kidney and put it into something that looked like a beer cooler.

An organ transplant cooler in Germany. Photo by Sean Gallup/Getty Images.

The container appeared better suited for a picnic than an operating room. But in a short time, that cooler — and Donovan’s kidney — would be flying over 1,500 miles to San Diego to meet its new owner.


Her donation would also set off an amazing chain reaction that would change not just one life, but seven.

It all started in 2013 in Prairie Village, Kansas, where Donovan lives with her husband and three rescue dogs.

While reading a science magazine, Donovan came across an article about the immense need for kidney donations. Estimates indicate that 600,000 Americans suffer from kidney failure, a serious and potentially fatal condition. Dialysis is the solution for many, but it can be exhausting. The typical procedure takes four hours at a time, has to be done three times a week, and can cause cramps, headaches, and vomiting.

A close-up of an artificial kidney machine. Image from iStock.

A kidney transplant is usually the only way for patients to be free from dialysis, but kidneys are in short supply. The waiting list is almost 100,000 people long, according to the United Network for Organ Sharing. Many people end up waiting for years.

“It just sounded like such a difficult, hard-to-keep-your-hope-up kind of existence,” said Donovan.

Donovan decided to do something most people have probably never considered. She was going to donate a kidney.

A live kidney donation surgery in Birmingham, England. Photo by Christopher Furlong/Getty Images.

“It wasn’t a difficult choice. I’ve taken more time deliberating whether to grow out my bangs,” she’d later write for XOJane.

But her family, especially her husband, wasn’t so keen on the idea. The surgery itself is pretty safe, but all surgeries come with risks. Plus it’d mean Donovan, with only one kidney, would be taking on a new pre-existing condition.

“The one thing that was reassuring for him, and kind of helped me win the debate, was the Affordable Care Act,” said Donovan. The law's pre-existing condition clause would protect her from rate hikes or denial if she ever needed to buy insurance again in the future.

Family convinced, Donovan contacted the National Kidney Registry, an organization that plays matchmaker for organ donors. For the next four or five months, Donovan went through a battery of checkups, stress tests, and urine analyses to make sure she was healthy enough to donate. She also had to send vials of blood for organ compatibility tests. She said that after enough vials, it became easy to imagine the National Kidney Registry as the front for some very sophisticated vampires.

Eventually they found a match — a man in San Diego.

Donovan had never met the man who would get her kidney. She didn’t even know his name.

Donovan and her husband drove to Barnes-Jewish Hospital in St. Louis for the surgery. After she woke up, a nurse told her, “Welp, nobody can ever say you never did anything nice for anyone.”

Donovan the day after the surgery. Photo from Stacey Donovan, used with permission.

But Donovan’s kidney was only the start of this story.

Because of Donovan, the San Diego man’s wife decided to pay the good deed forward and donated her own kidney to another unrelated recipient. And that in turn set off another donation. And another. And another. In total, Donovan’s initial donation ended up getting seven different people new kidneys.

It was a lifesaving effort carefully planned by the National Kidney Registry.

When a person needs a kidney, friends and family often try to donate but many find out they’re not compatible. In the past, this would be the end of the story, but starting in the late-1980s, doctors and hospitals realized they could simply swap who gets which kidney. Sometimes, these were simple exchanges, but sometimes a single altruistic donor can set off a chain reaction — a donor like Donovan.

Today, Donovan's back to her old life, though now she's worried others might not be able to follow in her footsteps.

Donovan says lately she’s been worried about what will happen if the Affordable Care Act's pre-existing condition clause is changed or repealed. The safety ensured by that law played a big part in convincing her family that she should donate.

“My main concern with that is what it'll do with the number of donors,” said Donovan.

What'll ultimately happen to the health care law is still unclear. The latest attempt to repeal and replace tries to keep the pre-existing condition clause, but introduces a loophole that’d allow insurers to charge more if a patient has gaps in their coverage record. And it's not clear if this bill will pass Congress.

Troy Zimmerman, vice president of the National Kidney Foundation, said he thinks the doubt around the Affordable Care Act could certainly affect the number of living donors.

Donovan still hasn’t met the man who got her kidney, but she has been able to get a glimpse of what it meant to him and his family.

About a week after the surgery, Donovan ended up getting a special package in the mail.

“I got all these handwritten letters from his family members,” said Donovan. It turned out the man wasn't just somebody's husband — he was a father and grandfather. In the letters, grandkids explained how the man could now go to the beach with them again. He could see them graduate.

The man's wife wrote as well. In her letter, she described life before the donation. It read, "...He's in the back room all the time in pain." But thanks to Donovan's generosity, she said, that pain could fade away.

And after his transplant, it did.

Photo courtesy of Girls at Work

True

Girls are bombarded with messages from a very young age telling them that they can’t, that is too big, this is too heavy, those are too much.

Keep ReadingShow less
via Lewis Speaks Sr. / Facebook

This article originally appeared on 02.25.21


Middle school has to be the most insecure time in a person's life. Kids in their early teens are incredibly cruel and will make fun of each other for not having the right shoes, listening to the right music, or having the right hairstyle.

As if the social pressure wasn't enough, a child that age has to deal with the intensely awkward psychological and biological changes of puberty at the same time.

Jason Smith, the principal of Stonybrook Intermediate and Middle School in Warren Township, Indiana, had a young student sent to his office recently, and his ability to understand his feelings made all the difference.

Keep ReadingShow less
All images provided by Adewole Adamson

It begins with more inclusive conversations at a patient level

True

Adewole Adamson, MD, of the University of Texas, Austin, aims to create more equity in health care by gathering data from more diverse populations by using artificial intelligence (AI), a type of machine learning. Dr. Adamson’s work is funded by the American Cancer Society (ACS), an organization committed to advancing health equity through research priorities, programs and services for groups who have been marginalized.

Melanoma became a particular focus for Dr. Adamson after meeting Avery Smith, who lost his wife—a Black woman—to the deadly disease.

melanoma,  melanoma for dark skin Avery Smith (left) and Adamson (sidenote)

This personal encounter, coupled with multiple conversations with Black dermatology patients, drove Dr. Adamson to a concerning discovery: as advanced as AI is at detecting possible skin cancers, it is heavily biased.

To understand this bias, it helps to first know how AI works in the early detection of skin cancer, which Dr. Adamson explains in his paper for the New England Journal of Medicine (paywall). The process uses computers that rely on sets of accumulated data to learn what healthy or unhealthy skin looks like and then create an algorithm to predict diagnoses based on those data sets.

This process, known as supervised learning, could lead to huge benefits in preventive care.

After all, early detection is key to better outcomes. The problem is that the data sets don’t include enough information about darker skin tones. As Adamson put it, “everything is viewed through a ‘white lens.’”

“If you don’t teach the algorithm with a diverse set of images, then that algorithm won’t work out in the public that is diverse,” writes Adamson in a study he co-wrote with Smith (according to a story in The Atlantic). “So there’s risk, then, for people with skin of color to fall through the cracks.”

Tragically, Smith’s wife was diagnosed with melanoma too late and paid the ultimate price for it. And she was not an anomaly—though the disease is more common for White patients, Black cancer patients are far more likely to be diagnosed at later stages, causing a notable disparity in survival rates between non-Hispanics whites (90%) and non-Hispanic blacks (66%).

As a computer scientist, Smith suspected this racial bias and reached out to Adamson, hoping a Black dermatologist would have more diverse data sets. Though Adamson didn’t have what Smith was initially looking for, this realization ignited a personal mission to investigate and reduce disparities.

Now, Adamson uses the knowledge gained through his years of research to help advance the fight for health equity. To him, that means not only gaining a wider array of data sets, but also having more conversations with patients to understand how socioeconomic status impacts the level and efficiency of care.

“At the end of the day, what matters most is how we help patients at the patient level,” Adamson told Upworthy. “And how can you do that without knowing exactly what barriers they face?”

american cancer society, skin cacner treatment"What matters most is how we help patients at the patient level."https://www.kellydavidsonstudio.com/

The American Cancer Society believes everyone deserves a fair and just opportunity to prevent, find, treat, and survive cancer—regardless of how much money they make, the color of their skin, their sexual orientation, gender identity, their disability status, or where they live. Inclusive tools and resources on the Health Equity section of their website can be found here. For more information about skin cancer, visit cancer.org/skincancer.

via Pixabay

The show must go on… and more power to her.

There are few things that feel more awful than being stranded at the altar by your spouse-to-be. That’s why people are cheering on Kayley Stead, 27, from the U.K. for turning a day of extreme disappointment into a party for her friends, family and most importantly, herself.

According to a report in The Metro, on Thursday, September 15, Stead woke up in an Airbnb with her bridemaids, having no idea that her fiance, Kallum Norton, 24, had run off early that morning. The word got to Stead’s bridesmaids at around 7 a.m. the day of the wedding.

“[A groomsman] called one of the maids of honor to explain that the groom had ‘gone.’ We were told he had left the caravan they were staying at in Oxwich Bay (the venue) at 12:30 a.m. to visit his family, who were staying in another caravan nearby and hadn’t returned. When they woke in the morning, he was not there and his car had gone,” Jordie Cullen wrote on a GoFundMe page.

Keep ReadingShow less
Pop Culture

14 things that will remain fun no matter how old you get

Your inner child will thank you for doing at least one of these.

Photo by Annie Spratt on Unsplash

Swings can turn 80-year-olds into 8-year-olds in less that two seconds.

When we’re kids, fun comes so easily. You have coloring books and team sports and daily recess … so many opportunities to laugh, play and explore. As we get older, these activities get replaced by routine and responsibility (and yes, at times, survival). Adulthood, yuck.

Many of us want to have more fun, but making time for it still doesn’t come as easily as it did when we were kids—whether that’s because of guilt, a long list of other priorities or because we don’t feel it’s an age-appropriate thing to long for.

Luckily, we’ve come to realize that fun isn’t just a luxury of childhood, but really a vital aspect of living well—like reducing stress, balancing hormone levels and even improving relationships.

More and more people of all ages are letting their inner kids out to play, and the feelings are delightfully infectious.

You might be wanting to instill a little more childlike wonder into your own life, and not sure where to start. Never fear, the internet is here. Reddit user SetsunaSaigami asked people, “What always remains fun no matter how old you get?” People’s (surprisingly profound) answers were great reminders that no matter how complex our lives become, simple joy will always be important.

Here are 14 timeless pleasures to make you feel like a kid again:

Keep ReadingShow less